Re: Special insurance program

[Guest guest]

sierre if you don't mine would you tell me what is ald and i am very

sorry you have it sherrie

>

> Some of you may remember an earlier post of mine about an offer

from

> my insurance company to participate in a special program for

people

> with chronic conditions. I did not have a good feeling about it,

> beginning with the brochure, which listed the conditions this

program

> is designed for. ALS was on the list, and as you probably know,

most

> people with ALS die in 5 years of diagnosis. It frightened me to

be

> included in such a list, when I'm doing quite well!

>

> Then, I received several calls from the program's representatives.

> They called when I wasn't home, and I chose not to return the

> messages. I could tell from the accents that the people who wanted

to

> manage my care were located in a distant part of the country.

>

> Today I received a letter in the mail, and I responded to it with

a

> brief note-- " Not interested in participating. " Hopefully, that

will

> be the end of it.

>

> As far as I can tell, the only benefit I would receive would be

phone

> access to a nurse, 24/7--not much to get excited about there.

>

> I feel that hope is such an important aspect of health and well-

> being. This program offer, with its distant helpers and scary

> brochure, made me feel less hope for my future. (The first letter

I

> got from them implied that I will definitely be getting worse and

> that my care will become more complex.) I suppose this reaction

would

> be better directed toward the insurance co. as feedback for their

> communications dept., but I guess I just wanted to vent it here.

> Thanks.

>

> Sierra

[Guest guest]

I DON'T have it; that was my point.

S.

> >

> > Some of you may remember an earlier post of mine about an offer

> from

> > my insurance company to participate in a special program for

> people

> > with chronic conditions. I did not have a good feeling about it,

> > beginning with the brochure, which listed the conditions this

> program

> > is designed for. ALS was on the list, and as you probably know,

> most

> > people with ALS die in 5 years of diagnosis. It frightened me to

> be

> > included in such a list, when I'm doing quite well!

> >

> > Then, I received several calls from the program's representatives.

> > They called when I wasn't home, and I chose not to return the

> > messages. I could tell from the accents that the people who

wanted

> to

> > manage my care were located in a distant part of the country.

> >

> > Today I received a letter in the mail, and I responded to it with

> a

> > brief note-- " Not interested in participating. " Hopefully, that

> will

> > be the end of it.

> >

> > As far as I can tell, the only benefit I would receive would be

> phone

> > access to a nurse, 24/7--not much to get excited about there.

> >

> > I feel that hope is such an important aspect of health and well-

> > being. This program offer, with its distant helpers and scary

> > brochure, made me feel less hope for my future. (The first letter

> I

> > got from them implied that I will definitely be getting worse and

> > that my care will become more complex.) I suppose this reaction

> would

> > be better directed toward the insurance co. as feedback for their

> > communications dept., but I guess I just wanted to vent it here.

> > Thanks.

> >

> > Sierra

[Guest guest]

>

> sierre if you don't mine would you tell me what is ald and i am very

> sorry you have it sherrie--- In

ALS is amyotrophic lateral sclerosis, also known as Lou Gherig's disease.

Sierra didn't say she has ALS, she said she was disturbed at being grouped with

such a serious disease. There is no cure for ALS and it is always fatal,

usually within five years.

Sharon