Re: Where to turn? MSA information

[Guest guest]

Hi Jane,

If you haven't already please check out the LINKS page at:

/links/shydrager

Note you must first " sign in " with your email address and password. If

you don't know your password go here: /remind

You'll find lots of information on MSA symptoms, where to find

specialists, current research etc. If you have any questions at all

please keep asking.

Regards,

Pam

[Guest guest]

Hi Jane,

If you haven't already please check out the LINKS page at:

/links/shydrager

Note you must first " sign in " with your email address and password. If

you don't know your password go here: /remind

You'll find lots of information on MSA symptoms, where to find

specialists, current research etc. If you have any questions at all

please keep asking.

Regards,

Pam

[Guest guest]

Jane,

Be sure to check under " symptom management " (on of the links) and check out

the information on speech and swallowing (and any other problem areas your

dad's having).

Rose

----Original Message Follows----

Reply-To: shydrageregroups

To: shydrageregroups, cartermt@...

Subject: Re: Where to turn? MSA information

Date: Mon, 30 Oct 2000 13:42:23 -0400

Hi Jane,

If you haven't already please check out the LINKS page at:

/links/shydrager

Note you must first " sign in " with your email address and password. If

you don't know your password go here: /remind

You'll find lots of information on MSA symptoms, where to find

specialists, current research etc. If you have any questions at all

please keep asking.

Regards,

Pam

[Guest guest]

You all have been so helpful. I already know a mountain of information in

one day compared to what I knew yesterday at this time.

My father's symptoms seem to be pretty classic, from what I have read in

various articles.

Low blood pressure and then it races high and out of control. He had a pace

maker put in about 2 months ago.......dizziness.....his voice is very quiet,

he gets headaches, incontinence, constipation, difficulty

swallowing......gets tired very easily.....shuffles when he walks,

experiences the 'freeze' episodes and blacks out, but regains consciousness

when he is lying straight.

His gait is unsteady and he leans forward when he walks...he can't walk far.

He has been getting a little more disoriented lately too. He was on Sinemet

and Flourinef (excuse the spelling)....but after his last hospital stay was

taken off both medications.

Support hose seem to help, raising the head of the bed (until we get him a

hospital bed) helps too.

He is very strong willed, and he had difficulty accepting that he could no

longer shave with a razor, he would have a hard time shaving, he would often

fall, and have a bad spell after his shaving routine. My Mom has gotten him

to use an electric razor. She supervises him in most of these situations.

Dad, tried very hard to golf up until as recently as 2 weeks ago. He was

taken from the golf course via ambulance and to the emergency room where his

blood pressure was 213/(can't be sure of the bottom # exactly. ) He blacked

out and has no memory of the blackout. That has been happening more and

more frequently.

My sister is living with my parents presently, and has been having her home

remodeled to accommodate my father.......I have been going as often as I can

to visit, and give my sister and or Mom an opportunity to go out.

I am a musician, and always turn to music as a source of comfort, either

playing or listening. We have found that listening to certain music has had

a profound effect on my father's state of mind. Often he would have a look

of fear, and the music has taken much of that away. He never knew that he

" liked " this particular type of music, and he listens to it more than

anything else........(when he goes to sleep, this afternoon when his blood

pressure was elevated and he had a headache, he listened to it......)

May I recommend the CD " DEEP PEACE " by Bill ....it has helped

tremendously. If you're interested in other therapeutic music, let me know.

I'll tell you what has helped my father.....so far this one is tops...when a

DR or Nurse or anyone would come in, he would ask them to come and hear the

music.......

Warm Regards,

jane

Re: Where to turn? MSA information

> Hi Jane,

>

> If you haven't already please check out the LINKS page at:

>

> /links/shydrager

>

> Note you must first " sign in " with your email address and password. If

> you don't know your password go here: /remind

>

> You'll find lots of information on MSA symptoms, where to find

> specialists, current research etc. If you have any questions at all

> please keep asking.

>

> Regards,

> Pam

>

>

>

[Guest guest]

You all have been so helpful. I already know a mountain of information in

one day compared to what I knew yesterday at this time.

My father's symptoms seem to be pretty classic, from what I have read in

various articles.

Low blood pressure and then it races high and out of control. He had a pace

maker put in about 2 months ago.......dizziness.....his voice is very quiet,

he gets headaches, incontinence, constipation, difficulty

swallowing......gets tired very easily.....shuffles when he walks,

experiences the 'freeze' episodes and blacks out, but regains consciousness

when he is lying straight.

His gait is unsteady and he leans forward when he walks...he can't walk far.

He has been getting a little more disoriented lately too. He was on Sinemet

and Flourinef (excuse the spelling)....but after his last hospital stay was

taken off both medications.

Support hose seem to help, raising the head of the bed (until we get him a

hospital bed) helps too.

He is very strong willed, and he had difficulty accepting that he could no

longer shave with a razor, he would have a hard time shaving, he would often

fall, and have a bad spell after his shaving routine. My Mom has gotten him

to use an electric razor. She supervises him in most of these situations.

Dad, tried very hard to golf up until as recently as 2 weeks ago. He was

taken from the golf course via ambulance and to the emergency room where his

blood pressure was 213/(can't be sure of the bottom # exactly. ) He blacked

out and has no memory of the blackout. That has been happening more and

more frequently.

My sister is living with my parents presently, and has been having her home

remodeled to accommodate my father.......I have been going as often as I can

to visit, and give my sister and or Mom an opportunity to go out.

I am a musician, and always turn to music as a source of comfort, either

playing or listening. We have found that listening to certain music has had

a profound effect on my father's state of mind. Often he would have a look

of fear, and the music has taken much of that away. He never knew that he

" liked " this particular type of music, and he listens to it more than

anything else........(when he goes to sleep, this afternoon when his blood

pressure was elevated and he had a headache, he listened to it......)

May I recommend the CD " DEEP PEACE " by Bill ....it has helped

tremendously. If you're interested in other therapeutic music, let me know.

I'll tell you what has helped my father.....so far this one is tops...when a

DR or Nurse or anyone would come in, he would ask them to come and hear the

music.......

Warm Regards,

jane

Re: Where to turn? MSA information

> Hi Jane,

>

> If you haven't already please check out the LINKS page at:

>

> /links/shydrager

>

> Note you must first " sign in " with your email address and password. If

> you don't know your password go here: /remind

>

> You'll find lots of information on MSA symptoms, where to find

> specialists, current research etc. If you have any questions at all

> please keep asking.

>

> Regards,

> Pam

>

>

>