Fibromyalgia

[Guest guest]

YES IT DOES! Hurt that bad. I have fibromyalgia. I too, have to be on narcotics daily. I currently take one every 4 hours. I have RA in both my hands and wrists, but the rest of the pain is from fibromyalgia brought on by Chronic Fatigue Syndrome. I also swell up real bad especially in my neck and feet. I get a huge knot on my neck when it flares up! It hurts so bad even to the touch. I have to pull my hair up because it hurts with just my hair lying against my neck. My rheumy did the x-rays and the only inflammation was in my hands and wrists. To my knowledge, they have to do at least an x-ray to rule out arthritis. Oh, and stress causes a flare up w/ fibromyalgia, RA and CFS. If you would like to talk feel free to email me anytime. coolcat1022@...

I hope this helped some,

Anita ez

owner of :PenPals4meandUTrading4meandUSwaps4meandU

Co-owner of group:Swaps4meandU-Bad_Swappers_List

Moderator of groups:makingfriendsfromallovertheworldhttp://.group/WeLovetoRAK**check us out**

[Guest guest]

I once had it myself and was told it's caused from a combination of

stress and improper diet. I treated it with exercise and taking

lots of malic acid, which can be found either in pill form or

naturally in apples. It worked in about a month or so and required

taking several bottles of malic acid. Of course eating lots of

apples everyday would work also

Reiki Dave

>

> in my world it is a PH problem and many have virus in the joints.

>

>

> ----- Original Message ----

> From: Alice <alichee@...>

>

> Sent: Thursday, November 29, 2007 7:33:19 AM

> Subject: [] Fibromyalgia

>

> Dear Reader,

>

> An HSI member named Dave writes, " You talk about all kinds of

things, but I have not seen anything on fibromyalgia. Any comments? "

>

> I haven't addressed fibromyalgia in the e-Alert in awhile, but here

at HSI we have quite a few comments about fibromyalgia, beginning

with one of the most frustrating aspects of this condition:

Skepticism from the medical community.

>

> Many doctors tell their fibromyalgia patients that their aches and

pains are " all in your head. " As it turns out, those doctors are

correct. But the point the doctors are missing is that the pain is

real.

>

> ------------ --------- --------- --------- -----

> A secret in the brain

> ------------ --------- --------- --------- -----

>

> The typical symptoms of fibromyalgia syndrome (FMS) involve

inflammation or pain in joints and muscles, often accompanied by

fatigue. But such symptoms are impossible to measure, so FMS is often

misdiagnosed as a form of arthritis, or the patient is told the pain

is imagined.

>

> In the e-Alert " Get Real " (3/2/05), I told you about rheumatologist

Clauw, M.D., of the University of Michigan, who used magnetic

resonance imaging (MRI) to examine the area of the brain that

registers pain. The images revealed an increase of blood flow when

FMS patients were given low-pressure stimulus. The identical stimulus

showed no change in the brains of control group subjects.

>

> The next step in Dr. Clauw's research was reported in the December

2006 issue of Current Pain and Headache Reports. In a review of

neurobiological studies that examined pain, brain activity, and

genetics in FMS patients, Dr. Clauw and his University of Michigan

colleague, E. , Ph.D., confirmed the presence of

abnormalities within central brain structures in subjects with FMS.

Genetic research supports the theory that inherited gene mutations

are the most probable cause of FMS brain abnormalities.

>

> In a University of Michigan press release, Dr. stated: " It

is time for us to move past the rhetoric about whether these

conditions are real, and take these patients seriously. "

>

> ------------ --------- --------- --------- -----

> Where to turn

> ------------ --------- --------- --------- -----

>

> FMS treatment generally focuses on pain management measures that

include nonsteroidal anti-inflammatory drugs and antidepressants.

Less conventional treatments utilize aerobic exercise, massage

therapy, and dietary adjustments. But FMS patients have even more

alternatives, which I've covered in these e-Alerts.

>

> " Get Real " (3/2/05) http://www.hsibalti more.com/

ealerts/ea200503 /ea20050302. html

> Some years ago, doctors noticed that pregnant women with FMS often

experienced temporary relief from their symptoms. The reason:

relaxin, a naturally occurring hormone that becomes active during

pregnancy. In addition to information about an oral form of relaxin

(called Vitalaxin), this e-Alert also examines details about a

botanical formula, shown to relieve the degenerative effects of FMS

and lupus.

>

> " Getting the Point " (9/8/05) http://www.hsibalti more.com/

ealerts/ea200509 /ea20050908. html

> Mayo Clinic researchers recruited 50 subjects with persistent FMS

symptoms. Pain, fatigue, and anxiety were significantly relieved in

subjects who received acupuncture.

>

> " Easy Green " (9/27/04) http://www.hsibalti more.com/

ealerts/ea200409 /ea20040927. html

> Chlorella (a freshwater algae that contains a wide variety of

vitamins, minerals, enzymes, and amino acids) stimulates immune

system function and has been shown to improve pain, sleep, and

anxiety in FMS patients.

>

> E-Alert Week in Review (3/18/05) http://www.hsibalti more.com/

ealerts/ea200503 /ea20050318. html

> HSI members with FMS talk about natural therapies that have worked

for them.

>

> Exercise combined with proper nutrition and key dietary supplements

are just three of the FMS treatment secrets covered in " The

Fibromyalgia Relief Handbook " – an excellent reference tool for

fibromyalgia patients. You can find more information at this link:

http://www.isecureo nline.com/ reports/680SFIBR O/E6EAH4DZ/ ?

o=1232984 & u=2773395 & l=820186 & g=360

>

> If you have family or friends with fibromyalgia, please share this

e-Alert and let them know that the age of fibromyalgia skepticism is

finally coming to an end.

>

> To Your Good Health,

>

>

> (www.hsibaltimore. com)

>

>

>

>

>

______________________________________________________________________

______________

> Get easy, one-click access to your favorites.

> Make your homepage.

> http://www./r/hs

>

[Guest guest]

Many problem today are because of PH-problems or because of toxins.

With the toxins in the body you have more problems with virus, etc.

So it could be usefull to find a therapeut working with Autonomic

Response Testing after Dr. Klinghardt, MD, PhD

And very important to " go out of the morphogenetic field of Fibromyalgia " .

Because the diagnosis works like a " curse " . I don´t know if this is

the right word. (Translator)

Metta

Cawei

>

> in my world it is a PH problem and many have virus in the joints.

>

>

> ----- Original Message ----

> From: Alice <alichee@...>

>

> Sent: Thursday, November 29, 2007 7:33:19 AM

> Subject: [] Fibromyalgia

>

> Dear Reader,

>

> An HSI member named Dave writes, " You talk about all kinds of

things, but I have not seen anything on fibromyalgia. Any comments? "

>

> I haven't addressed fibromyalgia in the e-Alert in awhile, but here

at HSI we have quite a few comments about fibromyalgia, beginning with

one of the most frustrating aspects of this condition: Skepticism from

the medical community.

>

> Many doctors tell their fibromyalgia patients that their aches and

pains are " all in your head. " As it turns out, those doctors are

correct. But the point the doctors are missing is that the pain is real.

>

> ------------ --------- --------- --------- -----

> A secret in the brain

> ------------ --------- --------- --------- -----

>

> The typical symptoms of fibromyalgia syndrome (FMS) involve

inflammation or pain in joints and muscles, often accompanied by

fatigue. But such symptoms are impossible to measure, so FMS is often

misdiagnosed as a form of arthritis, or the patient is told the pain

is imagined.

>

> In the e-Alert " Get Real " (3/2/05), I told you about rheumatologist

Clauw, M.D., of the University of Michigan, who used magnetic

resonance imaging (MRI) to examine the area of the brain that

registers pain. The images revealed an increase of blood flow when FMS

patients were given low-pressure stimulus. The identical stimulus

showed no change in the brains of control group subjects.

>

> The next step in Dr. Clauw's research was reported in the December

2006 issue of Current Pain and Headache Reports. In a review of

neurobiological studies that examined pain, brain activity, and

genetics in FMS patients, Dr. Clauw and his University of Michigan

colleague, E. , Ph.D., confirmed the presence of

abnormalities within central brain structures in subjects with FMS.

Genetic research supports the theory that inherited gene mutations are

the most probable cause of FMS brain abnormalities.

>

> In a University of Michigan press release, Dr. stated: " It is

time for us to move past the rhetoric about whether these conditions

are real, and take these patients seriously. "

>

> ------------ --------- --------- --------- -----

> Where to turn

> ------------ --------- --------- --------- -----

>

> FMS treatment generally focuses on pain management measures that

include nonsteroidal anti-inflammatory drugs and antidepressants. Less

conventional treatments utilize aerobic exercise, massage therapy, and

dietary adjustments. But FMS patients have even more alternatives,

which I've covered in these e-Alerts.

>

> " Get Real " (3/2/05) http://www.hsibalti more.com/ ealerts/ea200503

/ea20050302. html

> Some years ago, doctors noticed that pregnant women with FMS often

experienced temporary relief from their symptoms. The reason: relaxin,

a naturally occurring hormone that becomes active during pregnancy. In

addition to information about an oral form of relaxin (called

Vitalaxin), this e-Alert also examines details about a botanical

formula, shown to relieve the degenerative effects of FMS and lupus.

>

> " Getting the Point " (9/8/05) http://www.hsibalti more.com/

ealerts/ea200509 /ea20050908. html

> Mayo Clinic researchers recruited 50 subjects with persistent FMS

symptoms. Pain, fatigue, and anxiety were significantly relieved in

subjects who received acupuncture.

>

> " Easy Green " (9/27/04) http://www.hsibalti more.com/

ealerts/ea200409 /ea20040927. html

> Chlorella (a freshwater algae that contains a wide variety of

vitamins, minerals, enzymes, and amino acids) stimulates immune system

function and has been shown to improve pain, sleep, and anxiety in FMS

patients.

>

> E-Alert Week in Review (3/18/05) http://www.hsibalti more.com/

ealerts/ea200503 /ea20050318. html

> HSI members with FMS talk about natural therapies that have worked

for them.

>

> Exercise combined with proper nutrition and key dietary supplements

are just three of the FMS treatment secrets covered in " The

Fibromyalgia Relief Handbook " – an excellent reference tool for

fibromyalgia patients. You can find more information at this link:

http://www.isecureo nline.com/ reports/680SFIBR O/E6EAH4DZ/

?o=1232984 & u=2773395 & l=820186 & g=360

>

> If you have family or friends with fibromyalgia, please share this

e-Alert and let them know that the age of fibromyalgia skepticism is

finally coming to an end.

>

> To Your Good Health,

>

>

> (www.hsibaltimore. com)

>

>

>

>

>

________________________________________________________________________________\

____

> Get easy, one-click access to your favorites.

> Make your homepage.

> http://www./r/hs

>

[Guest guest]

many have been healed from the diet change and

eliminating negative emotions

----- Original Message ----From: scarbrough.1 <scarbrough.1@...> Sent: Friday, November 30, 2007 8:29:33 AMSubject: [] Re: Fibromyalgia

I once had it myself and was told it's caused from a combination of stress and improper diet. I treated it with exercise and taking lots of malic acid, which can be found either in pill form or naturally in apples. It worked in about a month or so and required taking several bottles of malic acid. Of course eating lots of apples everyday would work alsoReiki Dave>> in my world it is a PH problem and many have virus in the joints.> > > ----- Original Message ----> From: Alice <alichee@... >> > Sent: Thursday, November 29, 2007 7:33:19 AM> Subject: [] Fibromyalgia> > Dear Reader, > > An HSI member named Dave writes, "You talk about all kinds of things, but I have not seen anything on fibromyalgia. Any comments?" > > I haven't addressed fibromyalgia in the e-Alert in awhile, but here at HSI we have quite a few comments about fibromyalgia, beginning with one of the most frustrating aspects of this condition: Skepticism from the medical community. > > Many doctors tell their fibromyalgia patients that their aches and pains are "all in your head." As it turns out, those doctors are correct. But the point the doctors are missing is that the pain is real. > > ------------ --------- --------- --------- ----- > A secret in the

brain > ------------ --------- --------- --------- ----- > > The typical symptoms of fibromyalgia syndrome (FMS) involve inflammation or pain in joints and muscles, often accompanied by fatigue. But such symptoms are impossible to measure, so FMS is often misdiagnosed as a form of arthritis, or the patient is told the pain is imagined. > > In the e-Alert "Get Real" (3/2/05), I told you about rheumatologist Clauw, M.D., of the University of Michigan, who used magnetic resonance imaging (MRI) to examine the area of the brain that registers pain. The images revealed an increase of blood flow when FMS patients were given low-pressure stimulus. The identical stimulus showed no change in the brains of control group subjects. > > The next step in Dr. Clauw's research was reported in the December 2006 issue of Current Pain and Headache Reports. In a review of

neurobiological studies that examined pain, brain activity, and genetics in FMS patients, Dr. Clauw and his University of Michigan colleague, E. , Ph.D., confirmed the presence of abnormalities within central brain structures in subjects with FMS. Genetic research supports the theory that inherited gene mutations are the most probable cause of FMS brain abnormalities. > > In a University of Michigan press release, Dr. stated: "It is time for us to move past the rhetoric about whether these conditions are real, and take these patients seriously." > > ------------ --------- --------- --------- ----- > Where to turn > ------------ --------- --------- --------- ----- > > FMS treatment generally focuses on pain management measures that include nonsteroidal anti-inflammatory drugs and antidepressants. Less conventional treatments utilize

aerobic exercise, massage therapy, and dietary adjustments. But FMS patients have even more alternatives, which I've covered in these e-Alerts. > > "Get Real" (3/2/05) http://www.hsibalti more.com/ ealerts/ea200503 /ea20050302. html > Some years ago, doctors noticed that pregnant women with FMS often experienced temporary relief from their symptoms. The reason: relaxin, a naturally occurring hormone that becomes active during pregnancy. In addition to information about an oral form of relaxin (called Vitalaxin), this e-Alert also examines details about a botanical formula, shown to relieve the degenerative effects of FMS and lupus. > > "Getting the Point" (9/8/05) http://www.hsibalti more.com/ ealerts/ea200509 /ea20050908. html > Mayo Clinic researchers recruited 50 subjects with persistent FMS symptoms. Pain, fatigue, and anxiety were significantly relieved in subjects who received acupuncture. > > "Easy Green" (9/27/04) http://www.hsibalti more.com/ ealerts/ea200409 /ea20040927. html > Chlorella (a freshwater algae that contains a wide variety of vitamins, minerals, enzymes, and amino acids) stimulates immune system function and has been shown to improve pain, sleep, and anxiety in FMS patients. > > E-Alert Week in Review (3/18/05) http://www.hsibalti more.com/ ealerts/ea200503 /ea20050318. html > HSI members with FMS talk

about natural therapies that have worked for them. > > Exercise combined with proper nutrition and key dietary supplements are just three of the FMS treatment secrets covered in "The Fibromyalgia Relief Handbook" – an excellent reference tool for fibromyalgia patients. You can find more information at this link: http://www.isecureo nline.com/ reports/680SFIBR O/E6EAH4DZ/ ?o=1232984 & u= 2773395 & l= 820186 & g= 360 > > If you have family or friends with fibromyalgia, please share this e-Alert and let them know that the age of fibromyalgia skepticism is finally coming to an end. > > To Your Good Health, > > > (www.hsibaltimore. com)> > > > > ____________ _________ _________ _________ _________

_________ _____________ __> Get easy, one-click access to your favorites. > Make your homepage.> http://www.. com/r/hs>

Be a better pen pal. Text or chat with friends inside . See how.

[Guest guest]

I want to respond with a longer, more helpful post ASAP but can't right now, Dad's funeral is tomorrow and it has been the hardest marathon few weeks of my life. I have fibro and 8 other diseases. I belong to some online fibro groups who have saved my mind and helped me live with this disease. I suggest you join at least one fibro group. I will send you more helpful info ASAP. Blessings,Sheila

[Guest guest]

Sheila my thoughts and love are with you during your fathers funeral. Please take good care of yourself during this time. Infinite love to youStef>> I want to respond with a longer, more helpful post ASAP but can't right now, Dad's funeral is tomorrow and it has been the hardest marathon few weeks of my life. I have fibro and 8 other diseases. I belong to some online fibro groups who have saved my mind and helped me live with this disease. I suggest you join at least one fibro group. I will send you more helpful info ASAP. > Blessings,> Sheila>

[Guest guest]

> >

> > I want to respond with a longer, more helpful post ASAP but can't

> right now, Dad's funeral is tomorrow and it has been the hardest

> marathon few weeks of my life. I have fibro and 8 other diseases. I

> belong to some online fibro groups who have saved my mind and

helped me

> live with this disease. I suggest you join at least one fibro

group. I

> will send you more helpful info ASAP.

> > Blessings,

> > Sheila

> >

>

[Guest guest]

Sweet Sheila,

May you feel much love and peace during this difficult time.

Much Love to you,

Carole

> >

> > I want to respond with a longer, more helpful post ASAP but can't

> right now, Dad's funeral is tomorrow and it has been the hardest

> marathon few weeks of my life. I have fibro and 8 other diseases. I

> belong to some online fibro groups who have saved my mind and

helped me

> live with this disease. I suggest you join at least one fibro

group. I

> will send you more helpful info ASAP.

> > Blessings,

> > Sheila

> >

>

[Guest guest]

Dearest Alice,

Again very helpful information on fibromyalgia, my dear

friend! I had no idea about the many helpful methods! Yes, that

silly phrase " Its all in our head " technically is true but

unfortunately as your post states they do not udnerstand or seem to

wish to understand that people like myself and many here at HH do

feel a tremendous amount of pain, fatigue and many other uniquely

individual symptoms. Thank you so much for this post. Another one

to save for my betterment of knowledge about FMS! Namaste, Luna---

In , " Alice " <alichee@...> wrote:

>

> Dear Reader,

>

> An HSI member named Dave writes, " You talk about all kinds of

things, but I have not seen anything on fibromyalgia. Any comments? "

>

> I haven't addressed fibromyalgia in the e-Alert in awhile, but here

at HSI we have quite a few comments about fibromyalgia, beginning

with one of the most frustrating aspects of this condition:

Skepticism from the medical community.

>

> Many doctors tell their fibromyalgia patients that their aches and

pains are " all in your head. " As it turns out, those doctors are

correct. But the point the doctors are missing is that the pain is

real.

>

> --------------------------------------------

> A secret in the brain

> --------------------------------------------

>

> The typical symptoms of fibromyalgia syndrome (FMS) involve

inflammation or pain in joints and muscles, often accompanied by

fatigue. But such symptoms are impossible to measure, so FMS is often

misdiagnosed as a form of arthritis, or the patient is told the pain

is imagined.

>

> In the e-Alert " Get Real " (3/2/05), I told you about rheumatologist

Clauw, M.D., of the University of Michigan, who used magnetic

resonance imaging (MRI) to examine the area of the brain that

registers pain. The images revealed an increase of blood flow when

FMS patients were given low-pressure stimulus. The identical stimulus

showed no change in the brains of control group subjects.

>

> The next step in Dr. Clauw's research was reported in the December

2006 issue of Current Pain and Headache Reports. In a review of

neurobiological studies that examined pain, brain activity, and

genetics in FMS patients, Dr. Clauw and his University of Michigan

colleague, E. , Ph.D., confirmed the presence of

abnormalities within central brain structures in subjects with FMS.

Genetic research supports the theory that inherited gene mutations

are the most probable cause of FMS brain abnormalities.

>

> In a University of Michigan press release, Dr. stated: " It

is time for us to move past the rhetoric about whether these

conditions are real, and take these patients seriously. "

>

> --------------------------------------------

> Where to turn

> --------------------------------------------

>

> FMS treatment generally focuses on pain management measures that

include nonsteroidal anti-inflammatory drugs and antidepressants.

Less conventional treatments utilize aerobic exercise, massage

therapy, and dietary adjustments. But FMS patients have even more

alternatives, which I've covered in these e-Alerts.

>

> " Get Real " (3/2/05)

http://www.hsibaltimore.com/ealerts/ea200503/ea20050302.html

> Some years ago, doctors noticed that pregnant women with FMS often

experienced temporary relief from their symptoms. The reason:

relaxin, a naturally occurring hormone that becomes active during

pregnancy. In addition to information about an oral form of relaxin

(called Vitalaxin), this e-Alert also examines details about a

botanical formula, shown to relieve the degenerative effects of FMS

and lupus.

>

> " Getting the Point " (9/8/05)

http://www.hsibaltimore.com/ealerts/ea200509/ea20050908.html

> Mayo Clinic researchers recruited 50 subjects with persistent FMS

symptoms. Pain, fatigue, and anxiety were significantly relieved in

subjects who received acupuncture.

>

> " Easy Green " (9/27/04)

http://www.hsibaltimore.com/ealerts/ea200409/ea20040927.html

> Chlorella (a freshwater algae that contains a wide variety of

vitamins, minerals, enzymes, and amino acids) stimulates immune

system function and has been shown to improve pain, sleep, and

anxiety in FMS patients.

>

> E-Alert Week in Review (3/18/05)

http://www.hsibaltimore.com/ealerts/ea200503/ea20050318.html

> HSI members with FMS talk about natural therapies that have worked

for them.

>

> Exercise combined with proper nutrition and key dietary supplements

are just three of the FMS treatment secrets covered in " The

Fibromyalgia Relief Handbook " - an excellent reference tool for

fibromyalgia patients. You can find more information at this link:

http://www.isecureonline.com/reports/680SFIBRO/E6EAH4DZ/?

o=1232984 & u=2773395 & l=820186 & g=360

>

> If you have family or friends with fibromyalgia, please share this

e-Alert and let them know that the age of fibromyalgia skepticism is

finally coming to an end.

>

> To Your Good Health,

>

>

> (www.hsibaltimore.com)

>

[Guest guest]

Sheila, I wish to you and for you much love and peace during this

difficult time! May your father's crossing be gentle and in peace!!!

Take care of yourself

" metta "

In light of Spirit,

cyndi

> >

> > I want to respond with a longer, more helpful post ASAP but can't

> right now, Dad's funeral is tomorrow and it has been the hardest

> marathon few weeks of my life. I have fibro and 8 other diseases. I

> belong to some online fibro groups who have saved my mind and

helped me

> live with this disease. I suggest you join at least one fibro

group. I

> will send you more helpful info ASAP.

> > Blessings,

> > Sheila

> >

>

[Guest guest]

Hi Dear friends

I am still recovering from Dad's funeral but I am getting letters asking about fibro, who seem to need help urgently, and I have so much info to share with you about fibro. I can't write much now its almost 2 a.m. but my best advice is to STUDY THE DISEASE ALL YOU CAN and go with natural treatments, because the medical world do not have the patience, time or compassion to study a disease which is so different in each person.

The best book on earth on the subject, I bought used online. It is written by an M.D. who also has the disease, and it lists every possible symptom, its cause, how to live with the disease in EVERY thinkable way. It is called "Fibromyalgia and Myofascial pain syndrome" by Devin Starlanyl. If you google "Devin Starlanyl" you will find her website, but she is not rich so it is not a well built site and is not easy to find information on there, but what you do find, you will like. Book is definitely better. I also suggest researching any site about "invisible illness" and "MS" and "lupus" because these diseases all have so much in common, that when they talk about dealing with chronic illness, what they are talking about will talk to you too. I have had to teach my Dr. about fibro. They just don't want to learn. They are more happy to insult you and say you are faking and don't want to spend time on you. The only way I have stayed sane and functional is to go with natural treatments They are not covered by insurance but they are the only option. I'll write more when I can.

Blessings, Sheila

[Guest guest]

Oh ,

You can get better with fibro. When I first got it I was in agony and a neurologist just told me that I had this very painful disease and I was going to be in pain the rest of my life. That's all he said. As you can imagine I was totally freaked out. But luckily my massage therapist knew a lot about this disease and taught me how to take care of myself. For me its about doing everything in balance and believe me that's not my nature,lol. But I had to learn. I have to eat healthily, stay away from sweets and salty snacks, I had to exercise moderately, I had to learn to pace myself. I do a bit of housework in the morning and then rest for awhile and do the rest in the late afternoon. I take naps when I can, I try not to do temperate extreems, so I don't go out on very hot days or very cold days. I eat lots of vegetables and protien but cut back on the carbs. I don't lift anything over 5 lbs and my husband does the vacumming. On days when I hurt badly I take an aleve and curl up on the couch and don't do anything.

I know that its probably a bit easier for me because its just me and my husband here and he is a wonderful help. But I did have to change my life completely in order to not suffer from this disease so much. I had to quit working and spend more time taking care of myself. Stress was a big factor for me in increasing the pain and work for me was stress. I guess what I am saying is that this disease made me put myself first. Everything became about me taking care of myself. And I think that's what most people will have to do to get some relief from it. I don't take meds for the most part for the fibro anymore, like I said just an occassional aleve. And most days I feel ok, not 100%, but tolerable. I am leary about taking herbals because I take a lot of meds for other reasons (diabetes, sleep disorder, high colesterol, nerve pain). It can be a tricky situation to mix herbals with regular medication.

Love and hugs, Cheryl

May we learn to benefit the life of Earth with peace, humble in our needs,and generous in our giving.Joanne SunshowerCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

;

Its rare to find a Dr. who cares about fibro or even admits it exists. You are blessed if you do find such a Dr. Since they are too impatient and uncompassionate to learn about such a variable disease, most of us have chosen to mix the medical world with the natural treatment route, and learn and study your disease and how it acts in YOUR body. We are all different, but all share symptoms at different times. Joining an online support group saved my sanity and life. You can compare symptoms and see what is Fibro and what isn't, something that you should get checked out. Some of us are on strong pain meds. For this you need to find a pain specialist who believes this is a real disease. Many doctors are still in the dark ages and think its not real. What I take for muscle pain is natural, cheaper than Tylenol or ibuprofen or aspirin, and HEALS your stomach. Its called pantothenic acid (vit B5). You can take up to 500 mg every 6 hours. I have to take it before I get out of bed, then wait for it to work, then get up. I take tryptophan to get more natural sleep, and different natural supplements for different symptoms. The book I mentioned in the group is marvelous and offers so many ideas. I also have a good pain cream without any smell. My pharmacist makes it for me. Its baclofen (muscle relaxant and anti inflammatory) in a cream. WOW IS IT EVER GREAT! Especially for those big sore knots that show up. Drink lots of water, try not to push yourself too hard, and they are finding that gentle stretching exercises just as you wake up and as you go to sleep helps with depression and pain and stress and many other things. I got a natural anti depressant that is wonderful. With prescriptions, it takes 6 weeks to know if it works. If it doesn't, you start over, and you can have withdrawal if you miss a day or decide to quit. This natural one was a prescription in Europe but not here. It takes care of 14 brain and body chemicals. It helps with depression, pain, muscle spasms, sleep, stress, and the way all your hormones and chemistry works together. You can tell if it works in 3 days, and quit anytime or miss a dose and won't have any withdrawal. I buy it online, its cheapest there. I have been studying a lot, and most doctors say they want fibro patients to only do the mild stretching and some walking and quit before it starts to hurt. People who exercise with machines or other harsh exercises cause micro-tears (rips) in their muscles, and then when they sleep, the body restores them, so their muscles are made stronger and bigger and it makes them stronger. With fibro, when we get micro-tears, we do not get the same healing effect when we sleep, so we really have to stop at our limits, or suffer for days until we CAN re-heal what we have overdone. Massage by a masseuse that UNDERSTANDS fibro is good, but damaging if they have not dealt with fibro before. Temperatures that are too hot or cold will make you feel worse, and rapid changes in barometric pressure can make you feel like you have been hit by a truck. Stress also makes fibro worse, so its wise to look online or in books or look into your faith for stress management. The remedies I told you about are just things that helped me, not a prescription. Everyone seems to have to experiment to find what works best for them. That's another reason fibro support groups are good, for various suggestions. SUGAR MAKES THE MUSCLE PAIN WORSE! Clean water, lots of it, eases it. The more natural foods you can eat, the better fibro is, and if you can limit portions without starving yourself, to lose some weight, it helps too, but dieting is a no-no. It messes up your metabolism and makes your body think its starving, so it won't burn ANY calories. I dieted myself all the way up to 250 pounds and I don't know how I will get it off now. Its a painful, invisible disease but we can learn to live with it and even find some joy in life in spite of it. It was sure tough when I was raising my children, but I still was able to do it. I hope some of my advice helped. This disease teaches you patience and how to take care of yourself first so you can be of use to those who need you. the social aspect is the hardest, dealing with people who think you look fine and blame you for all sorts of things. Please go to this website, it applies to all invisible illnesses, not just lupus. www.butyoudontlooksick.com/spoons.htm

Hope something here helps!Blessings, Sheila

----- Original Message -----

From:

penlady5@...

Sent: Saturday, December 01, 2007 11:46 AM

Subject: Re: Fibromyalgia

When you have time would you send me some too, I am ready to give up! I am sorry for your loss, please take care of yourself.angel

Let the beauty we love be what we do." ~Rumi "Be the change you want to see in the world." ~Gandhi"

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