Re: Naproxen/Aleve... Celebrex....Bextra

[Guest guest]

Hi, I've had RA for about 15 years and take Enbrel and Methotrexate.

For breakthrough pain I use Bextra. It works better than the other

anti-inflammatories I've tried and doesn't have the severe side

effects (hasn't for me anyway). Please don't bring up the " not

having this drug could increase suicide " arguement when there are

alternatives. It's demoralizing.

Jill

> >

> > I take Aleve in huge amounts to deal with my pain, but

> > my heart rate shot up to 160 over 118 or so, so I cut

> > back drastically (i'm not working so i can take the hit)

> > but now i'm concerned because the news tonight reported

> > that the fda issued a warning about Aleve causing

> > heart attacks and strokes... that's what the doc

> > (who gave me a once over, probono) warned me about

> > and prescribed metoprolol...

> > when i go off aleve my blood pressure comes normal

> > again. I can't stay off forever, though, especially

> > when i flare. I've been doing great lately.

> > anybody have any ideas?

> > I have heard some not too encouraging things about tylenol.

> > and have some tylenol800, but it doesn't work for me well

> > --takes too long to absorb, then doesn't do the trick or last

> > or am i just being bated by the newsmedia?

> > love nad peace to you all

> > and good holidays

> > yellow

[Guest guest]

Jill,

I didn't mean to offend or demoralize. I'm simply trying to

illustrate that although there are hazards to all drugs, NSAIDs

included, that there can be a personal cost to not having them

available. Granted for most, suicide is overstated, but many peoples

lives are happier and fuller with these meds available.

I'm glad you're doing well and have a strategy that works well for

you. Have a wonderful holiday,

Best wishes,

Jane

> > >

> > > I take Aleve in huge amounts to deal with my pain, but

> > > my heart rate shot up to 160 over 118 or so, so I cut

> > > back drastically (i'm not working so i can take the hit)

> > > but now i'm concerned because the news tonight reported

> > > that the fda issued a warning about Aleve causing

> > > heart attacks and strokes... that's what the doc

> > > (who gave me a once over, probono) warned me about

> > > and prescribed metoprolol...

> > > when i go off aleve my blood pressure comes normal

> > > again. I can't stay off forever, though, especially

> > > when i flare. I've been doing great lately.

> > > anybody have any ideas?

> > > I have heard some not too encouraging things about tylenol.

> > > and have some tylenol800, but it doesn't work for me well

> > > --takes too long to absorb, then doesn't do the trick or last

> > > or am i just being bated by the newsmedia?

> > > love nad peace to you all

> > > and good holidays

> > > yellow

[Guest guest]

I'm glad you said that it was overstated, Jane. I was a little worried about that.

Although, as some of you know, I'm not under a doctor's care and take the

pain meds to help me function, I think giivng up because life is harder is

a really sad and scary notion.

I hate pain and it frightens me a lot, but even in the few time when I couldn't

do much more than lay in bed and breathe, I never have allowed myself to consider

that. Physical pain is relative and even textural... the mind is tormented, but it still

works... I hope that no one would let go so easily.

Life is more important than that. And it's not the end of the world to lose mobility.

happy holidays

love and peace to you all

yellowchafarm123 <chafarm@...> wrote:

Jill, I didn't mean to offend or demoralize. I'm simply trying to illustrate that although there are hazards to all drugs, NSAIDs included, that there can be a personal cost to not having them available. Granted for most, suicide is overstated, but many peoples lives are happier and fuller with these meds available. I'm glad you're doing well and have a strategy that works well for you. Have a wonderful holiday, Best wishes, Jane> > > > > > I take Aleve in huge amounts to deal with my pain, but> > > my heart rate shot up to 160

over 118 or so, so I cut> > > back drastically (i'm not working so i can take the hit)> > > but now i'm concerned because the news tonight reported> > > that the fda issued a warning about Aleve causing> > > heart attacks and strokes... that's what the doc> > > (who gave me a once over, probono) warned me about> > > and prescribed metoprolol...> > > when i go off aleve my blood pressure comes normal> > > again. I can't stay off forever, though, especially> > > when i flare. I've been doing great lately.> > > anybody have any ideas?> > > I have heard some not too encouraging things about tylenol.> > > and have some tylenol800, but it doesn't work for me well> > > --takes too long to absorb, then doesn't do the trick or last> > > or am i just being bated by the newsmedia?> > > love nad peace

to you all> > > and good holidays> > > yellow__________________________________________________

[Guest guest]

Hello , Yellow , Jane, others

Well overstated or not is not really an issue the fact is when liveing with chronic pain and depression as a result it some times is reality and a fact that i have faced more than several times myself thanks to god and my children i have not but i have been extremly close several times and im not a weak person so if i can say this i know there most be more that have considered it to so it is a valid issue maybe not drug vers drug , thus ive always had and been swiched to find one that worked better but i guess i was just one thats not much if anything is going to work well for . one guys experince

johnyellow dancer <yellowplugempress@...> wrote:

I'm glad you said that it was overstated, Jane. I was a little worried about that.

Although, as some of you know, I'm not under a doctor's care and take the

pain meds to help me function, I think giivng up because life is harder is

a really sad and scary notion.

I hate pain and it frightens me a lot, but even in the few time when I couldn't

do much more than lay in bed and breathe, I never have allowed myself to consider

that. Physical pain is relative and even textural... the mind is tormented, but it still

works... I hope that no one would let go so easily.

Life is more important than that. And it's not the end of the world to lose mobility.

happy holidays

love and peace to you all

yellowchafarm123 <chafarm@...> wrote:

Jill, I didn't mean to offend or demoralize. I'm simply trying to illustrate that although there are hazards to all drugs, NSAIDs included, that there can be a personal cost to not having them available. Granted for most, suicide is overstated, but many peoples lives are happier and fuller with these meds available. I'm glad you're doing well and have a strategy that works well for you. Have a wonderful holiday, Best wishes, Jane> > > > > > I take Aleve in huge amounts to deal with my pain, but> > > my heart rate shot up to 160

over 118 or so, so I cut> > > back drastically (i'm not working so i can take the hit)> > > but now i'm concerned because the news tonight reported> > > that the fda issued a warning about Aleve causing> > > heart attacks and strokes... that's what the doc> > > (who gave me a once over, probono) warned me about> > > and prescribed metoprolol...> > > when i go off aleve my blood pressure comes normal> > > again. I can't stay off forever, though, especially> > > when i flare. I've been doing great lately.> > > anybody have any ideas?> > > I have heard some not too encouraging things about tylenol.> > > and have some tylenol800, but it doesn't work for me well> > > --takes too long to absorb, then doesn't do the trick or last> > > or am i just being bated by the newsmedia?> > > love nad peace

to you all> > > and good holidays> > > yellow

__________________________________________________

[Guest guest]

Yellow,

I am like you ! I will work hard to remain here doing good and

living my life to the last drop regardless of the illness or strife !

I was only thinking of the few despondent folks I have seen as a

nurse, who did not necessarily have RA, but whose pain was not

controlled well. If we spare even one suicide in these people by

keeping a broader range of drugs available then I support that. I

suppose my thinking is that we should not close all the candy stores

just because diabetes is up and more than half of America is obese !

LOL

Best wishes to you, and I hope you are doing well !

I am hanging in there also.

Jane

> > > >

> > > > I take Aleve in huge amounts to deal with my pain, but

> > > > my heart rate shot up to 160 over 118 or so, so I cut

> > > > back drastically (i'm not working so i can take the hit)

> > > > but now i'm concerned because the news tonight reported

> > > > that the fda issued a warning about Aleve causing

> > > > heart attacks and strokes... that's what the doc

> > > > (who gave me a once over, probono) warned me about

> > > > and prescribed metoprolol...

> > > > when i go off aleve my blood pressure comes normal

> > > > again. I can't stay off forever, though, especially

> > > > when i flare. I've been doing great lately.

> > > > anybody have any ideas?

> > > > I have heard some not too encouraging things about tylenol.

> > > > and have some tylenol800, but it doesn't work for me well

> > > > --takes too long to absorb, then doesn't do the trick or last

> > > > or am i just being bated by the newsmedia?

> > > > love nad peace to you all

> > > > and good holidays

> > > > yellow

>

>

>

>

>

[Guest guest]

,

Exactly ! I just want as much as possible available for

people, particularly for pain control.

This illustrates what I mean, although it doesn't directly

impact RA. My dog takes a drug called potassium bromide for

seizures. It is approved for use only in dogs and has to be

specially mixed by a compounding pharmacy. It works well to

completely prevent his seizures, as I am told it does in mammals.

In a rural town some miles from here a family drops off their

teen daughter at the small library while they grocery shop each week,

and to my daughter's horror, the girl has one or two grand mal

seizures most weeks. The library staff has agreed to watch the girl

and this has been going on for years. The girl apparently has

intractable seizures which no medication available to humans is able

to prevent, or to better control. I am told by my vet that potassium

bromicde will never be used on human beings because it is a cheap

drug and that no one will ever pay the millions of dolars it would

take to put it through the FDA process. Nurse or not, I want to know

why my dog has the right to use things that I can't even if I needed

them.

It is for this reason that I wish drugs freely available to

physicians...... They can post all the cautions they want, but I

still want a broad range of all types of drugs available for everyone.

Currently ibuprofen works very well for me, despite the fact

that I do have some nausea and occasional colitis from it, but in the

years to come, it may not. If my kidney labs ever deteriorate, then

ibuprofen may not be an option. Some of these other drugs might be

well tolerated by me at that time.

I wish each of you a gentle and happy holiday with benevolent

relatives (LOL) and that your meds work to help all of you for a long

time to come.

Best wishes to all,

Jane

> > > >

> > > > I take Aleve in huge amounts to deal with my pain, but

> > > > my heart rate shot up to 160 over 118 or so, so I cut

> > > > back drastically (i'm not working so i can take the hit)

> > > > but now i'm concerned because the news tonight reported

> > > > that the fda issued a warning about Aleve causing

> > > > heart attacks and strokes... that's what the doc

> > > > (who gave me a once over, probono) warned me about

> > > > and prescribed metoprolol...

> > > > when i go off aleve my blood pressure comes normal

> > > > again. I can't stay off forever, though, especially

> > > > when i flare. I've been doing great lately.

> > > > anybody have any ideas?

> > > > I have heard some not too encouraging things about tylenol.

> > > > and have some tylenol800, but it doesn't work for me well

> > > > --takes too long to absorb, then doesn't do the trick or last

> > > > or am i just being bated by the newsmedia?

> > > > love nad peace to you all

> > > > and good holidays

> > > > yellow

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

LOL

You're right about the Candy stores! lol

I'm glad for the warning, though, because i think i was headed down

that path. and i have an elevated risk for stroke.

love and peace to you all

yellowchafarm123 <chafarm@...> wrote:

Yellow, I am like you ! I will work hard to remain here doing good and living my life to the last drop regardless of the illness or strife ! I was only thinking of the few despondent folks I have seen as a nurse, who did not necessarily have RA, but whose pain was not controlled well. If we spare even one suicide in these people by keeping a broader range of drugs available then I support that. I suppose my thinking is that we should not close all the candy stores just because diabetes is up and more than half of America is obese ! LOL Best wishes to you, and I hope you are doing well ! I am hanging in there also. Jane> > > > > > > > I take Aleve in huge amounts to deal with my pain, but> > > > my heart rate shot up to 160 over 118 or so, so I cut> > > > back drastically (i'm not working so i can take the hit)> > > > but now i'm concerned because the news tonight reported> > > > that the fda issued a warning about Aleve causing> > > > heart attacks and strokes... that's what the doc> > > > (who gave me a once over, probono) warned me about> > > > and prescribed metoprolol...> > > > when i go off aleve my blood pressure comes normal> > > > again. I can't stay off forever, though, especially> > > > when i flare. I've been doing great lately.> > > > anybody have any ideas?> >

> > I have heard some not too encouraging things about tylenol.> > > > and have some tylenol800, but it doesn't work for me well> > > > --takes too long to absorb, then doesn't do the trick or last> > > > or am i just being bated by the newsmedia?> > > > love nad peace to you all> > > > and good holidays> > > > yellow> > > > >