MSA reversal-16 months + drooling info

[Guest guest]

MSA reversal 16 months update + Drooling info

Jan 21,2001 Fax request to Colet Lahoz

Colet, reason for this fax. In Sept of 1999, when Als (74)system was shutting down, he could not rise from chair,get on or off the bed unaided, was incontinent. both bowel and bladder, rigidity, iris atrophy, low blood pressure, drooling, slurred speech, etc. and I brought him to you. When I told you that he had Multiple System Atrophy, you said. "I CAN HELP". You explained plan of treatment.Acupuncture twice a week, you used 60-90 needles each treatment (I counted them from time to time) Cleanses and Supplements.I remember you saying, "if one part of the body is sick, the whole body is sick" You reversed the incontinence in four treatments,drooling in two, after six he knelt down and rose up from a kneeling position on our pontoon boat unaided. You raised his very low blood pressure to 117-78, where it has remained for 15 months.He takes care of himself.Our only major problem is the hallucinations which started three weeks after he started taking Levadopa/Carbidopa and Fludrocortisone in 1996. Except for this terrible problem our life would be great. I complained about this but was told it would help. After sixteen months of being off the meds it is still the same.Colet, if we could just do something about this. Dr. Khalaf Bushara, a Movement Disorder Specialist, first saw Al in Oct., 2000 at the VA Medical Center in Minneapolis. He reconfirmed the diagnosis of Multiple System Atrophy. After listening to our experience with Alternative Medicine, he said "could you, would you travel"? I said yes. He has asked that Dr. Mark Hallet,( who he studied under) at the National Institute of Neurological Disease and Stroke in Bethseda, see Al . Colet, I have been reading MSA email,( wish I had known about support groups in 1996), and I see that drooling is a big problem, as it was with Al. I know you brought it under control with Acupuncture. Now, when I notice a bit of drool, usually about every three months, you treat it and it is once again under control.Would you please give me the points you used? Maybe this would help some of the individuals with this problem. I will pass this information along. There should be a four year Acupuncture College in most of the large cities and they could get referrals from them.Thank you, see you in April and have a great trip to China. Marge Soeffker

response from Colet Lahoz----------------------Marge, for the drooling problem that Al exhibited as part of the MSA Syndrome, I used the following points in pairs-LI4, GB20 and St.7. In the beginning I connected LI4 and GB20 with electro Acupuncture Stimulation. The frequency set at intermittent and the intensity between 2 -4.-------------------Als case history will soon be seen on Colet Lahoz, BSN., R.N., M.S., L.ac., website: www.eastwest-mn.com email:eastwest@... This has been successful for us and I wanted to share it with you. Marge Soeffker

[Guest guest]

Madge,

That is NOT a case history! When was he originally diagnosed as MSA and WHO did

the diagnoses? How did " Dr. Khalaf Bushara, a Movement Disorder Specialist,

first saw Al in Oct., 2000 at the VA Medical Center in Minneapolis " diagnose Al

as MSA when all his MSA symptoms were gone already for 12 months or more? Who

decided to take Al off of the medicines - a doctor, you or a acupuncturist?

When did Al come off the medicines? What are Al's current MSA symptoms?

My wife's diagnoses includes notes on why the neurologists thought it was MSA

and included info on tests for:

MRI's over a 5 year span - told where specifally there was visible atrophy

EEG and nerve conduction tests - told which nerves were doing their jobs and

which were not

Did Al have these tests? What were the results? Did he show atrophy of the

cerebellar pons , whole brain, or exactly what areas of the brain?

Do his records have words like cogwheeling, cerebellar ataxia, dysphagia,

bradykinesia, vestibular ataxia, dysarthria, nystagmus, blepharospasm,

amyotrophy, corticospinal tract signs,

sleep apnea, stridor, hyperreflexia. and extensor plantar responses. cerebellar

or pyrramidal tract signs, akinesia, limb dystonia, cortical myoclonus. Some of

these words will be found in a case history of MSA, but not all. While every

case is different, there are common symptoms. If the symptoms are gone - how do

you say it was MSA, since MSA is (at this time) only a set of symptoms.

Another discrepancy with this treatment is that in MSA brain cells die. How do

you grow new brain cells by sticking needles into their bodies. If somehow

sticking the needles into the body caused dopamine producing neurons to grow

where you stuck the needles, how would they get across the blood/brain barrier.

If hallucinations are Al's major problem, taking him off of Sinemet, should cure

the hallucinations in 30 days (at most), yet you say he has been off of Sinemet

and all PD medicines for 16 months. How can you blame a protein for

hallucinations when you have not had that protein for 16 months. Proteins do

last in the body for days and possibly weeks, but not months.

You have never mentioned how Al regained muscle strength. Did he have extended

physical therapy? Muscles can not heal themselves from atrophy without

stretching them. You said that Al was helpless for three years in one of your

emails, yet popped right up off the table after one session of acupuncture.

Even if the acupuncture cured nerve problems, how did the muscles regain

strength without therapy?

I'm sorry, but if you insist on saying this woman can cure MSA, please make sure

Al had MSA. Many here took 5-7 years before doctors told them they had MSA and

many tests. It bothers me that it took 14 doctors at NIH plus 4 other

neurologists who were movement disorder specialists to decide that my wife

" probably " had MSA and your neurologist can say with one visit and no tests (15

months after Al had no more symptoms) that he definitely HAD MSA. If the

symptoms are gone - Al is cured! And he was " cured " by a woman whose specialty

is curing yeast infections with acupuncture. She has no neurological training,

yet she cures dead brain cells with pins.

Do you realize that some doctors have been saying for years that ny Cash had

MSA and some are now saying that he had diabetes all the time? I also do not

understand why you go to a VA hospital in Minneapolis, when you live in

Florida. I thought you had to live near the hospital you used in VA cases. You

mentioned going to Dr. Mark Hallet at NIH (NINDS) months ago, why hasn't he seen

Al?

I don't want to say that Alternative Medicine can not help at all. Obviously

that is how many medicines were discovered (like aspirin). We do know that

therapy and lots of liquids help MSA patients. But I can not conceive of a way

that sticking pins in someone can cure dead brain cells. I also can not

conceive of a acupuncturist telling you to stop taking medicines that a doctor

prescribed. Dropping medicines like florinef can kill a person. Dropping

others suddenly can also kill you.

This list is NOT the place for advertising of unproven treatments which go

against your doctor's advice. If Al had MSA show us his records in detail. I

am sure you could share them with Dr. on at Vanderbilt, who IS an expert

in this disorder. The only movement disorder specialist I can find in Minnesota

is:

Dr. Paola Sandroni

Mayo Clinic

Dept. of Neurology

200 First Street SW

Rochester, MN 55905

Phone:

That's my opinion, Bill Werre

[Guest guest]

Bill,

That was not even a response to your questions, just a repeat of what

he/she posted day before yesterday. I wonder if something similar is

being posted to other health-related mailing lists.

Looks like spam to me.

Do you recognize 'Marge Soeffker' from the list? One of the things I

miss about Jeff's shy-drager pages was the ability to sort by subject

line or author. It was always worthwhile to sort by author and read

all your posts.

I'd email this person directly except then they'd have my email

address and I don't want anymore spam there either.

Doug in Greenbelt, MD USA

PS, the merger with Yahoo Groups sure took me by surprise.

Did they warn anyone?