Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Hi , yes, my surgery is Monday, the 16th... Am I getting excited our what? Yes, as of today I have lost 67 pounds and starting last Monday I will be drinking 5 protein shakes a day until I am NPO. I have my pre-op appointment with the hospital and surgeon on Friday and then girl's night out. in Sacramento Dr. in Burlingame Surgery 9/16 @ 11:00 am PST Starting weight 380 Current weight 313 Goal 130 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 wow your time is getting her fast now ,I know you are excited too . Re: Surgery > Hi , yes, my surgery is Monday, the 16th... Am I getting excited our > what? Yes, as of today I have lost 67 pounds and starting last Monday I will > be drinking 5 protein shakes a day until I am NPO. I have my pre-op > appointment with the hospital and surgeon on Friday and then girl's night > out. > > in Sacramento > Dr. in Burlingame > Surgery 9/16 @ 11:00 am PST > Starting weight 380 > Current weight 313 > Goal 130 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Donna, thanks much for your reply. I feel very comfy with what to expect, now. I'm not having reconstruct cuz I'm 71 yrs old (ha!)...but if it's how I believe, the lumpectomy wouldn't really change the shape, etc. (I'm a YOUNG 71! In fact, people guess 60. When I was young, I was so upset when people thought I was much younger, especially during my teens, but now...well, it's quite fine with me!) I really do want to come home the same day and my port install was such a cinch, so I'm looking at it the same way. Something I want to mention is for everyone to encourage newbies to chemo to eat those popsickles during the push. It makes such a difference. Love to all & happy wknd. Gail Re: Surgery Gail, I have had 2 lumpectomies. One in March 04 before my mastectomy, and then on my right breast in Jan 05. I was put to sleep both times. I didn't know anything that was going on. But I was also put to sleep for my port insertion also. Told the surgeon he had to put me to sleep for the port, he just said of course!! The lumpectomy wasn't bad at all. I came home the same day. The first one I had to be cut in two places because the cancer was in three places. The second one he went in under the breast so you don't see the scare. I didn't come home with drains until I had the mastectomy. But really don't be worried it really wasn't bad. I am now waiting to start reconstruction for the third time. I am here if I can help you with anything.............................DonnaGail wrote: Gals, I'm going to have a lumpectomy sometime in early Sept. and am wondering about the procedure. With my port insertion, I had twilight sleep (but was aware of everything) and he numbed the area. What did they do with you? I take anesthesia very well and wouldn't mind being put out. But, was it a same-day surgery, or did you have to stay in the hosp? For how long? My lump did shrink a lot with the chemo and I'm looking forward to the surgery. After that, hopefully just the radiation (6 wks.) Anyhow, I like to be prepared as to how they actually perform the surgery. Gail LIFE IS WHAT YOU MAKE IT!! DONNA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 Hi Sheena. Can you fill us in on the meds that you've been on since the RAI? Also can you post your labs, ideally from before RAI and the most recent.... Did they give you a diagnosis? Did they tell you why you went hyper? Why you were hypo before? I had RAI, they killed off my whole gland.... So I can relate to that part... no surgery for this kid yet, other than the micro surgery on my finger.. that was fun.. they let me watch through the microscope!! hehehehe Topper () *48 yrs old, 15 years post RAI, no remaining gland function, self treating since July '02* On Wed, 19 Oct 2005 15:11:52 -0000 "monkeybean21" writes: Hi!My name is Sheena. I'm 21. I was hypothyroid, turned hyperthyroid. I had radioactive iodine treatment that calmed my over actuve nodules down. Since then my goiter has grown and it's a lot more noticeable and it's too big to shrink. I'm suppose to have surgery to takeit out end of November/early December. I'm really scared about this. I was just wondering who else has gone through surgery on this site and if they'd be willing to let me know about it. Thanks :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 I haven't been on anything since RAI. As I have been told I haven't needed to be by a endocrynologist, my family doctor and even the surgeon. I feel fine most of the time, but my goiter has grown a lot since that treatment....(before it was very small and not noticeable) I had a tube thing with a light on it put up my nose and through the tunnel down to my vocal cords to check if they are ok...and thankfully they are . I'm having a CT scan on it in about 2 weeks, so that will tell alot about it. I've had scans, ultra sounds on it too and I'm told it's nothing to worry about, it's just large... My labs, I'm told are normal. I go see the doctor in a week, I will ask him for copies as I never got copies, just explainations about the numbers. I figure this is kinda hereditary. My Great Grandma had hers taken out like 80 years ago, my grandma has dealt with her thyroid a little bit, my Mom is hypothyroid and my cousin has graves disease. My hypo started at the same age it did for my Mom...but then a year ago, mine turned hyper...and I was on the lowest dose of synhtroid... I was immediately pulled off it...and then drama began... > > Hi Sheena. > > Can you fill us in on the meds that you've been on since the RAI? Also > can you post your labs, ideally from before RAI and the most recent.... > > Did they give you a diagnosis? Did they tell you why you went hyper? Why > you were hypo before? > > I had RAI, they killed off my whole gland.... So I can relate to that > part... no surgery for this kid yet, other than the micro surgery on my > finger.. that was fun.. they let me watch through the microscope!! > hehehehe > > Topper () *48 yrs old, 15 years post RAI, no remaining gland > function, self treating since July '02* > > On Wed, 19 Oct 2005 15:11:52 -0000 " monkeybean21 " > <ducksgurl9@h...> writes: > Hi! > > My name is Sheena. I'm 21. I was hypothyroid, turned hyperthyroid. I > had radioactive iodine treatment that calmed my over actuve nodules > down. Since then my goiter has grown and it's a lot more noticeable and > it's too big to shrink. I'm suppose to have surgery to takeit out end > of November/early December. > > I'm really scared about this. I was just wondering who else has gone > through surgery on this site and if they'd be willing to let me know > about it. Thanks :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 I haven't been on anything since RAI. As I have been told I haven't needed to be by a endocrynologist, my family doctor and even the surgeon. I feel fine most of the time, but my goiter has grown a lot since that treatment....(before it was very small and not noticeable) I had a tube thing with a light on it put up my nose and through the tunnel down to my vocal cords to check if they are ok...and thankfully they are . I'm having a CT scan on it in about 2 weeks, so that will tell alot about it. I've had scans, ultra sounds on it too and I'm told it's nothing to worry about, it's just large... My labs, I'm told are normal. I go see the doctor in a week, I will ask him for copies as I never got copies, just explainations about the numbers. I figure this is kinda hereditary. My Great Grandma had hers taken out like 80 years ago, my grandma has dealt with her thyroid a little bit, my Mom is hypothyroid and my cousin has graves disease. My hypo started at the same age it did for my Mom...but then a year ago, mine turned hyper...and I was on the lowest dose of synhtroid... I was immediately pulled off it...and then drama began... > > Hi Sheena. > > Can you fill us in on the meds that you've been on since the RAI? Also > can you post your labs, ideally from before RAI and the most recent.... > > Did they give you a diagnosis? Did they tell you why you went hyper? Why > you were hypo before? > > I had RAI, they killed off my whole gland.... So I can relate to that > part... no surgery for this kid yet, other than the micro surgery on my > finger.. that was fun.. they let me watch through the microscope!! > hehehehe > > Topper () *48 yrs old, 15 years post RAI, no remaining gland > function, self treating since July '02* > > On Wed, 19 Oct 2005 15:11:52 -0000 " monkeybean21 " > <ducksgurl9@h...> writes: > Hi! > > My name is Sheena. I'm 21. I was hypothyroid, turned hyperthyroid. I > had radioactive iodine treatment that calmed my over actuve nodules > down. Since then my goiter has grown and it's a lot more noticeable and > it's too big to shrink. I'm suppose to have surgery to takeit out end > of November/early December. > > I'm really scared about this. I was just wondering who else has gone > through surgery on this site and if they'd be willing to let me know > about it. Thanks :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 I haven't been on anything since RAI. As I have been told I haven't needed to be by a endocrynologist, my family doctor and even the surgeon. I feel fine most of the time, but my goiter has grown a lot since that treatment....(before it was very small and not noticeable) I had a tube thing with a light on it put up my nose and through the tunnel down to my vocal cords to check if they are ok...and thankfully they are . I'm having a CT scan on it in about 2 weeks, so that will tell alot about it. I've had scans, ultra sounds on it too and I'm told it's nothing to worry about, it's just large... My labs, I'm told are normal. I go see the doctor in a week, I will ask him for copies as I never got copies, just explainations about the numbers. I figure this is kinda hereditary. My Great Grandma had hers taken out like 80 years ago, my grandma has dealt with her thyroid a little bit, my Mom is hypothyroid and my cousin has graves disease. My hypo started at the same age it did for my Mom...but then a year ago, mine turned hyper...and I was on the lowest dose of synhtroid... I was immediately pulled off it...and then drama began... > > Hi Sheena. > > Can you fill us in on the meds that you've been on since the RAI? Also > can you post your labs, ideally from before RAI and the most recent.... > > Did they give you a diagnosis? Did they tell you why you went hyper? Why > you were hypo before? > > I had RAI, they killed off my whole gland.... So I can relate to that > part... no surgery for this kid yet, other than the micro surgery on my > finger.. that was fun.. they let me watch through the microscope!! > hehehehe > > Topper () *48 yrs old, 15 years post RAI, no remaining gland > function, self treating since July '02* > > On Wed, 19 Oct 2005 15:11:52 -0000 " monkeybean21 " > <ducksgurl9@h...> writes: > Hi! > > My name is Sheena. I'm 21. I was hypothyroid, turned hyperthyroid. I > had radioactive iodine treatment that calmed my over actuve nodules > down. Since then my goiter has grown and it's a lot more noticeable and > it's too big to shrink. I'm suppose to have surgery to takeit out end > of November/early December. > > I'm really scared about this. I was just wondering who else has gone > through surgery on this site and if they'd be willing to let me know > about it. Thanks :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 I'm not on anything. I've been told by my doctor, endo, and surgeon that my all my lab tests for TSH, T3 and T4 have been normal. I will ask my doctor next visit in a week for the actual results so I can have you all look at them. I've also asked my doctors what Hashimotos was, (which I still don't totally understand.).. and maybe if that's what I have -- and they said they knew for sure that wasn't it. I've had a goiter since I was about 15 or 16. It was very small and not noticeable. I was taking a very small amount of synthyroid...until I was 20...last year when I turned Hyperthyroid. My case was considered mild, but it was definitely hard to go through. I had RAI in October 2004....and haven't been on anything since...this is when my goiter started to get bigger which was noticable within a few months, but has relatively stayed the same since....but my lab tests have been normal apparently. > > Are they giving you enough thyroid to suppress the TSH, Sheena? What amts > are you on at this time? Free T3 and Free T4? Do you have Hashimoto's > Disease? How long has your gland been enlarged this way? Before or after > RAI? > > > > Surgery > > > > Hi! > > > > My name is Sheena. I'm 21. I was hypothyroid, turned hyperthyroid. I > > had radioactive iodine treatment that calmed my over actuve nodules > > down. Since then my goiter has grown and it's a lot more noticeable and > > it's too big to shrink. I'm suppose to have surgery to takeit out end > > of November/early December. > > > > I'm really scared about this. I was just wondering who else has gone > > through surgery on this site and if they'd be willing to let me know > > about it. Thanks :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 I'm not on anything. I've been told by my doctor, endo, and surgeon that my all my lab tests for TSH, T3 and T4 have been normal. I will ask my doctor next visit in a week for the actual results so I can have you all look at them. I've also asked my doctors what Hashimotos was, (which I still don't totally understand.).. and maybe if that's what I have -- and they said they knew for sure that wasn't it. I've had a goiter since I was about 15 or 16. It was very small and not noticeable. I was taking a very small amount of synthyroid...until I was 20...last year when I turned Hyperthyroid. My case was considered mild, but it was definitely hard to go through. I had RAI in October 2004....and haven't been on anything since...this is when my goiter started to get bigger which was noticable within a few months, but has relatively stayed the same since....but my lab tests have been normal apparently. > > Are they giving you enough thyroid to suppress the TSH, Sheena? What amts > are you on at this time? Free T3 and Free T4? Do you have Hashimoto's > Disease? How long has your gland been enlarged this way? Before or after > RAI? > > > > Surgery > > > > Hi! > > > > My name is Sheena. I'm 21. I was hypothyroid, turned hyperthyroid. I > > had radioactive iodine treatment that calmed my over actuve nodules > > down. Since then my goiter has grown and it's a lot more noticeable and > > it's too big to shrink. I'm suppose to have surgery to takeit out end > > of November/early December. > > > > I'm really scared about this. I was just wondering who else has gone > > through surgery on this site and if they'd be willing to let me know > > about it. Thanks :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 I'm not on anything. I've been told by my doctor, endo, and surgeon that my all my lab tests for TSH, T3 and T4 have been normal. I will ask my doctor next visit in a week for the actual results so I can have you all look at them. I've also asked my doctors what Hashimotos was, (which I still don't totally understand.).. and maybe if that's what I have -- and they said they knew for sure that wasn't it. I've had a goiter since I was about 15 or 16. It was very small and not noticeable. I was taking a very small amount of synthyroid...until I was 20...last year when I turned Hyperthyroid. My case was considered mild, but it was definitely hard to go through. I had RAI in October 2004....and haven't been on anything since...this is when my goiter started to get bigger which was noticable within a few months, but has relatively stayed the same since....but my lab tests have been normal apparently. > > Are they giving you enough thyroid to suppress the TSH, Sheena? What amts > are you on at this time? Free T3 and Free T4? Do you have Hashimoto's > Disease? How long has your gland been enlarged this way? Before or after > RAI? > > > > Surgery > > > > Hi! > > > > My name is Sheena. I'm 21. I was hypothyroid, turned hyperthyroid. I > > had radioactive iodine treatment that calmed my over actuve nodules > > down. Since then my goiter has grown and it's a lot more noticeable and > > it's too big to shrink. I'm suppose to have surgery to takeit out end > > of November/early December. > > > > I'm really scared about this. I was just wondering who else has gone > > through surgery on this site and if they'd be willing to let me know > > about it. Thanks :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Wow, this all makes sense. No one has ever explained it soo thoroughly and detailed to me before. Thank you. > > For the scan,I took some iodine, they put dye in me and they saw in > > my pictures of my thyroid that there was 2 nodules, one on each side > > that were acting overactive. I saw these pictures. I could pinpoint > > the spots where they were. > > Over active nodules are called hot nodules, they produce too much > thyroid hormone..hot is good because they are considered non - > cancerous ( cold nodules need to be looked at more closely). > > Unfortunately toxic multinodular goiter which is what you have is not > as easy to treat as hyper caused by graves or any other issue. > > Given your age I am surprised they did RAI and not surgery as surgery > is the reccommended treatment for toxic goiters caused my multiple > nodules. > > My thinking is that they were hoping to illiminate the hyper and still > leave you with a functioning thyroid. > > What is happening now is that the RAI is slowly destroying your > thyroid. As your hormone levels drop in your body the body sends a > signal ( TSH) to stimulate the thyroid to produce more hormone..the > part of your thyroid that is still functioning is being overworked > trying to comply and hench the inflammation and increased goiter size. > > As far as surgery goes, that choice is yours. Your options are limited > though..you can go on a full replacement strength of replacement > hormone to cause the thyroid to become inactive and this may reduce > the size of the goiter. > But considering you have an active nodule that is still remaining ( > and depending on how much the gland is being stimulated) you may now > have more..these will act independantly regardless of the body's > hormone levels ( why you went hyper with out Grave's to begin with). > This as you realize will make it harder to control blood levels and > puts you at risk for cold nodules so in a few years you may need to > get it removed anyways with the possibility of biopsies etc.. > > ( hope this makes sense) > > One thing I may suggest though is taking a look at a few Thyroid > cancer sites..with hot nodules it is safe to say you are not at risk > of having thyroid cancer so do not worry about that. > When someone has thyroid cancer though they have a special prep that > they do before surgery as far as a no iodine diet and a few > otherthings go..as well as a follow up for proper meds . dosing etc. > 90% of what is required has to do with removal of the thyroid and not > so much the cancer issue..other suggestions made there as far as > chemo, radiation , cancer meds etc.. you can ignore but you might find > a lot of the information relevant as most thyroid cancer treatment > involves removing the thyroid and then following up with RAI to make > sure any remaining tissue is gone. So although the diagnosis is > different you may find some helpful information there. > > Kats3boys > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Wow, this all makes sense. No one has ever explained it soo thoroughly and detailed to me before. Thank you. > > For the scan,I took some iodine, they put dye in me and they saw in > > my pictures of my thyroid that there was 2 nodules, one on each side > > that were acting overactive. I saw these pictures. I could pinpoint > > the spots where they were. > > Over active nodules are called hot nodules, they produce too much > thyroid hormone..hot is good because they are considered non - > cancerous ( cold nodules need to be looked at more closely). > > Unfortunately toxic multinodular goiter which is what you have is not > as easy to treat as hyper caused by graves or any other issue. > > Given your age I am surprised they did RAI and not surgery as surgery > is the reccommended treatment for toxic goiters caused my multiple > nodules. > > My thinking is that they were hoping to illiminate the hyper and still > leave you with a functioning thyroid. > > What is happening now is that the RAI is slowly destroying your > thyroid. As your hormone levels drop in your body the body sends a > signal ( TSH) to stimulate the thyroid to produce more hormone..the > part of your thyroid that is still functioning is being overworked > trying to comply and hench the inflammation and increased goiter size. > > As far as surgery goes, that choice is yours. Your options are limited > though..you can go on a full replacement strength of replacement > hormone to cause the thyroid to become inactive and this may reduce > the size of the goiter. > But considering you have an active nodule that is still remaining ( > and depending on how much the gland is being stimulated) you may now > have more..these will act independantly regardless of the body's > hormone levels ( why you went hyper with out Grave's to begin with). > This as you realize will make it harder to control blood levels and > puts you at risk for cold nodules so in a few years you may need to > get it removed anyways with the possibility of biopsies etc.. > > ( hope this makes sense) > > One thing I may suggest though is taking a look at a few Thyroid > cancer sites..with hot nodules it is safe to say you are not at risk > of having thyroid cancer so do not worry about that. > When someone has thyroid cancer though they have a special prep that > they do before surgery as far as a no iodine diet and a few > otherthings go..as well as a follow up for proper meds . dosing etc. > 90% of what is required has to do with removal of the thyroid and not > so much the cancer issue..other suggestions made there as far as > chemo, radiation , cancer meds etc.. you can ignore but you might find > a lot of the information relevant as most thyroid cancer treatment > involves removing the thyroid and then following up with RAI to make > sure any remaining tissue is gone. So although the diagnosis is > different you may find some helpful information there. > > Kats3boys > Quote Link to comment Share on other sites More sharing options...
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