Update on Ainslie, thoughts about domestic sharing, Jen, , CPT, CF parent illness

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Hi to all,

After almost 6 months on pulmozyme Ainslie has gotten her first

sinus/chest infection, compared to every second month (at least) last

year. She had her dance concert X2 on Saturday, Fiday night it all

started, Saturday all I could do was keep treatments up to her and keep

the paracetamol coming. She DID NOT want to miss out on that day and

what a long day it was. Hopefully she will come out of it quickly as I

started her on cipro on Saturday morning and informed the doc on Monday

morning and he agreed that I had made the best decision.

She is becoming quite the seasoned performer, she smiled and sang and

really really looked like she was enjoying herself. I was very proud

her, her bubbly and vivacious personality shone through even though she

had been a right little ...... all day to me.

Husbands, wives and domestic sharing of 'jobs'. Yes I thought I'd have

my little say on the topic. Men and women (not all) think differently,

I find myself carrying most of the load but it wasn't always that way.

Somewhere along the line Nigel started to take me for granted, yes he

doesn't like doctors and hospitals so I do all those things, I do all

the house work, groceries etc., but I refuse to take the dog to the vet,

do the lawns, go into the roof, or stack wood. I do enjoy painting walls

but find that I do not have time to do it.

Now that Nigel has gone away for 7 months (his choice), been gone 2 1/2

weeks now, I find that I am doing it all and handling it fairly well, I

don't think he would be doing as well as I am. I suppose what I am

trying to say is that I just do what needs to be done, sometimes I

probably do too much and really need to delegate (or jump up and down)

to get some help from Nigel.

When he gets back life will be very different around here, I will be

stronger for having coped with children, cf, uni, schooling, pets,

house, car etc., and he will have to slot back in and take on a " fair "

share of the whole workload not just what he chooses.

Oh I have rambled a little, sorry.

Jen. I certainly hope little Mallory and are on the mend.

, brochoscopies aren't routinely done here, even when Ainslie was a

baby and we were still in Sydney they weren't routinely done - they may

be now. I have requested now that whenever Ainslie goes under next that

I would like one done, even though both the doctor and I agree that we

will probably find psuedo there, I would like to make sure. The docs

here are not overly aggressive so I have to push a little for new

treaments etc which can be frustrating, but overall Ainslie is a

relatively healthy little girl.

I checked out the website, very interesting, I wish that CF Tas had

enough support to be able to do this sort of thing. I dropped off the

board last year after 5 year involvement,I will get involved again in

the future, after uni. Are you going to the conference in Brisbane I am

contemplating going.

Why did you give Elisha Robitussen?

CPT. we have always given Ainslie it twice a day even when she is well,

the only time she misses is when she is well and she has a friend to

stay over or we are out very late as a family.

Parent illness, I have recently had trouble with my ulna nerve in my

left arm, thankfully after a few physio treatments of my own all is back

to normal. Mentally I have had my up and downs, pregnancies have been

my biggest stress and I am sure that I had depression after my

termination and miscarriage it was all a little too much, now I

terrified of becoming pregnant again even though I would dearly love

more children and I had Connor after those events.

Sorry for being so long, but I have been busy lately.

Terri from Hobart mum to Ainslie 8 wcf and Connor 4 no cf