Re: hello new to group in PA

[Guest guest]

Hi Sandy. I'm on Methotrexate and Remicade and they work well for me with no noticeable side effects. I do read a lot about people who have digestion problems or mouth sores with Methotrexate but I also hear that by taking Folic Acid and/or Leucovorin in large enough amounts it can reduce the side effects greatly. Also injections seem to have fewer side effects than the pills. I hope something works for you to make you better. God bless.

----- Original Message -----

From: beacon348

Rheumatoid Arthritis

Sent: Friday, January 14, 2005 3:34 PM

Subject: hello new to group in PA

Hello, I have had RA since I was 20 now 48,I am on Humira and the rheumy wants me to starttaking MTX not happy about it. I was doing greatuntil I was taken off my hormone replacement dueto occular migraines, I have been in a flare eversince. my hands are the worst my knuckles getreally swollen and sore. Hard to do much ofanything. The only thing that helps these flaresare burst of prednisone then I have lots of energyand eat everything. I see the doc in 2 weeks.I guess I will try and start the MTX. Anyone havesimilar things with the hormones? Kinda odd I know. Thanks Sandy

[Guest guest]

In a message dated 1/19/05 8:09:12 AM, beacon348@... writes:

was doing great

until I was taken off my hormone replacement due

to occular migraines

I have occular migraines and take 2 mg estrogen.....

why were you take off? Do hormones cause them?

I only get them about every 8 weeks....

what are your symptoms?

Pris

Watch for the Performing Pigs in Your Area!

www.valentinesperformingpigs.com

[Guest guest]

Sandy,

I believe that our hormones are tied into this thing, too. I also have

been dealing with menopause and finally found some relief with bio-identical

hormones. My doc prescribes compounded combination of progesterone, the

good estriol, and testosterone and it has worked for me. This is not

synthetic hormones like most of the GYN's hand out. Hot flashes are gone

and all the other horrible things. It worked for me.

Kay

----- Original Message -----

From: " beacon348 " <beacon348@...>

<Rheumatoid Arthritis >

Sent: Friday, January 14, 2005 5:34 PM

Subject: hello new to group in PA

>

>

>

> Hello, I have had RA since I was 20 now 48,

> I am on Humira and the rheumy wants me to start

> taking MTX not happy about it. I was doing great

> until I was taken off my hormone replacement due

> to occular migraines, I have been in a flare ever

> since. my hands are the worst my knuckles get

> really swollen and sore. Hard to do much of

> anything. The only thing that helps these flares

> are burst of prednisone then I have lots of energy

> and eat everything. I see the doc in 2 weeks.

> I guess I will try and start the MTX. Anyone have

> similar things with the hormones? Kinda odd I know.

> Thanks Sandy

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hello that is great I will have to ask about that.

Did your RA symptoms improve also? I was doing

so well. Now it is mostly my hands the knuckles

are so swollen. Let me know..Thanks Sandy

-- In Rheumatoid Arthritis , " Kay Simpson "

<Siwelyak@f...> wrote:

> Sandy,

> I believe that our hormones are tied into this thing, too. I

also have

> been dealing with menopause and finally found some relief with bio-

identical

> hormones. My doc prescribes compounded combination of

progesterone, the

> good estriol, and testosterone and it has worked for me. This is

not

> synthetic hormones like most of the GYN's hand out. Hot flashes

are gone

> and all the other horrible things. It worked for me.

> Kay

> ----- Original Message -----

> From: " beacon348 " <beacon348@y...>

> <Rheumatoid Arthritis >

> Sent: Friday, January 14, 2005 5:34 PM

> Subject: hello new to group in PA

>

>

> >

> >

> >

> > Hello, I have had RA since I was 20 now 48,

> > I am on Humira and the rheumy wants me to start

> > taking MTX not happy about it. I was doing great

> > until I was taken off my hormone replacement due

> > to occular migraines, I have been in a flare ever

> > since. my hands are the worst my knuckles get

> > really swollen and sore. Hard to do much of

> > anything. The only thing that helps these flares

> > are burst of prednisone then I have lots of energy

> > and eat everything. I see the doc in 2 weeks.

> > I guess I will try and start the MTX. Anyone have

> > similar things with the hormones? Kinda odd I know.

> > Thanks Sandy

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

-Hello, well I guess I will have to try the MTX.

But what else can I do? I don't want to wind

not being able to do anything. I see my rheumatologist

next week and I will ask about the Leucovorin and the

folic acid maybe that will help. Did you lose any

hair or any thing like that? Take care Sandy

-- In Rheumatoid Arthritis , " Harold Van Tuyl "

<hvantuyl@c...> wrote:

> Hi Sandy. I'm on Methotrexate and Remicade and they work well for

me with no noticeable side effects. I do read a lot about people who

have digestion problems or mouth sores with Methotrexate but I also

hear that by taking Folic Acid and/or Leucovorin in large enough

amounts it can reduce the side effects greatly. Also injections seem

to have fewer side effects than the pills. I hope something works

for you to make you better. God bless.

> ----- Original Message -----

> From: beacon348

> Rheumatoid Arthritis

> Sent: Friday, January 14, 2005 3:34 PM

> Subject: hello new to group in PA

>

>

>

>

> Hello, I have had RA since I was 20 now 48,

> I am on Humira and the rheumy wants me to start

> taking MTX not happy about it. I was doing great

> until I was taken off my hormone replacement due

> to occular migraines, I have been in a flare ever

> since. my hands are the worst my knuckles get

> really swollen and sore. Hard to do much of

> anything. The only thing that helps these flares

> are burst of prednisone then I have lots of energy

> and eat everything. I see the doc in 2 weeks.

> I guess I will try and start the MTX. Anyone have

> similar things with the hormones? Kinda odd I know.

> Thanks Sandy

>

>

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

Sandy,

I am still on anti-inflammatory and some supplements. I have joint

damage on right hand and crooked toes but am very functional and working

fulltime.

My body was just too sensitive for all the strong meds. I am fair-skin and

redhead with tons of determination. Ha!

Best to you,

Kay

----- Original Message -----

From: " beacon348 " <beacon348@...>

<Rheumatoid Arthritis >

Sent: Thursday, January 20, 2005 9:52 AM

Subject: Re: hello new to group in PA

>

>

> Hello that is great I will have to ask about that.

> Did your RA symptoms improve also? I was doing

> so well. Now it is mostly my hands the knuckles

> are so swollen. Let me know..Thanks Sandy

>

>

> -- In Rheumatoid Arthritis , " Kay Simpson "

> <Siwelyak@f...> wrote:

> > Sandy,

> > I believe that our hormones are tied into this thing, too. I

> also have

> > been dealing with menopause and finally found some relief with bio-

> identical

> > hormones. My doc prescribes compounded combination of

> progesterone, the

> > good estriol, and testosterone and it has worked for me. This is

> not

> > synthetic hormones like most of the GYN's hand out. Hot flashes

> are gone

> > and all the other horrible things. It worked for me.

> > Kay

> > ----- Original Message -----

> > From: " beacon348 " <beacon348@y...>

> > <Rheumatoid Arthritis >

> > Sent: Friday, January 14, 2005 5:34 PM

> > Subject: hello new to group in PA

> >

> >

> > >

> > >

> > >

> > > Hello, I have had RA since I was 20 now 48,

> > > I am on Humira and the rheumy wants me to start

> > > taking MTX not happy about it. I was doing great

> > > until I was taken off my hormone replacement due

> > > to occular migraines, I have been in a flare ever

> > > since. my hands are the worst my knuckles get

> > > really swollen and sore. Hard to do much of

> > > anything. The only thing that helps these flares

> > > are burst of prednisone then I have lots of energy

> > > and eat everything. I see the doc in 2 weeks.

> > > I guess I will try and start the MTX. Anyone have

> > > similar things with the hormones? Kinda odd I know.

> > > Thanks Sandy

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >