Urgent! My 6 yr old just had a diaper full of primarily clear mucous

[Guest guest]

Hi-- I do not post much but reallyneed your help!

My daughter Kyli has een on SCD for 8 months. we did NOT intor the

yogurt and opted for the probio's in capsules for fear of the

casein/whey issues. It seems as thought Kyli's gut had improved as

she stopped throwing up every meal. We have been inthe hospitla 11

times in 16 months due to seizures correlated w/ gut stress. We

beleive some of that could be the " die off " . we just introduced

the yogurt at the end of July starting with 1/4 tsp up to 1/4 cup.

Each time we upped it we'd see an increase of gas for a day or 2 and

then be okay. She was doing fine-- and snagged a Resp. virus 12 days

ago. It may have been triggere by an allergic response. We use an

Applied Kinnesiologist (AK) who has determined that the homemade

yogurt does not test like it is causing allergy. Through AK We also

have determined that 1oz (1TBSP) of this Homemade yogurt is equal to

once capsule of probiotics. So we have adjust accordingly. Just

this week we have gone from 3TBSP to 4 TBSP of yogurt.

EIher- she has a virus and the yogurt is irritating the mucous- as

dairy is mucous producing. OR the Yogurt is causing an allergy.

What exactly is a flair up. I am sure it is unique to each. Does it

accompany a virus, or can a virus trigger it. Red gums, Horrific

gas. Toxic poops. When we were in the ER on 8/25 Kyli had a BM and

the nurse comment that thy had never had an adult stink the ER out

they way my little 30lb child did. IS THIS MORE DIE OFF? She ran a

temperature last night just before liminating the clear mucous.

Then the temp went down. Prior to releasing she had seizure activity

and a " croupy " breathing. She was very stressed.

Durring our 11 hospital stays the last 16 months it is always bowels -

pain triggering severe 3-5 hour seizures. Seizures stop after

bowels are relieved. BM Always followed by another BM of mucous.

Blood labs always suggest VIRUS. Does anyone know if flair-ups look

like a virus in blood labs? Stool analysis always come back normal

regardless of the stenc. (Metametrics confirmed weak GI Immunity)

Trying to determine the difference btwn a flair up and something

else. Can a virus trigger a flair up? Dr.'s say that Viruses can

cause irritation in a weak spot. Some kids get ear aches or asthma-

Kyli gets the gut reaction. But is the so called virus really a

virus or is it a flair up? Or is is possibly having an allergic

reaction to the yogurt? Any help would be much appreciated!

Jodi A.

Daughter Kyli: www.caringbridge.org/visit/kyliabbinanti

Kyli has static encephelopathy of unkown origin

SCD 18 months - ADDED YOGURT 07/16/08

[Guest guest]

Hi Jodi A,

I'd suggest you join PecanBread yahoo support group and post your

question there. Sheila and Mimi are super knowledgeable when it comes

to SCD+Kids and urgent matters. Marilyn is on vacation- so I think it

would be best for you to get thorough answers over there. Just repost

what you sent here.

http://health.groups.yahoo.com/group/pecanbread/

You need to go through the process of joining this group like you did

with BTVC-SCD.

Jodi

SCD 11 months

Crohn's/Colitis

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> Hi-- I do not post much but reallyneed your help!