Re: Integrative Doctors

September 10, 2008

, that is the best news I've seen in months!! I think it might be MY rant that you were referring to.. LOLYou are doing a fabulous job!! I am so so happy that you found a Dr that will work WITH you and not against you. You might want to post his name for other who are in your area that are trying to find the same kind of wonderful care.Please keep us informed on how it's going!.. Thank you for posting this!Kay-lynn18 yr son, UC May 08, SCD July 08.AsacolWhen you row another person across the river, you get there yourself..- Fortune cookieSubject: Integrative DoctorsTo: BTVC-SCD Date: Wednesday, September 10, 2008, 9:41 PM

Hi All,

I noticed the recent discussion (under "gaining weight") regarding

doctors and that they (notoriously) do not support the SCD (or, at

least, blow it off). I know, personally, we have been trying to

convince our GI that SCD is actually a very legitiment treatment for

our son's CD. We even printed out info from the BTVC site explaining

the diet, gave our doc examples of 's daily food diary, etc. Our

doc took the info and simply filed it away. I doubt he has ever

referred back to it. We continued to do our own thing with SCD, and

have been going for monthly follow-up visits. I was really starting

to feel it was a waste of our time since we were on different pages.

He (clearly) is a "meds are the only way" kind of guy. Then, at our

last visit, after our son's bad reaction (and 8 lbs weight LOSS) on

Imuran, he suggested our only two options were Remicade (uhhh...I

don't think so!), and/or a feeding tube. Interestingly, our doc

mentioned CD treatments in Europe rely on nutrition (via some kind of

drink, or through a tube). He indicated that it has proven quite

successful. I left the appointment shaking my head, and thinking the

best option might be a feeding tube. HOWEVER, I posted my question

about feeding tubes on this board and received GREAT

feedbakc...thanks everyone! We have decided to fore go the tube and

are JUST going "nutritional" ...which is exactly what we were doing

before all the meds messed our son up even more (just my opinion)!

I agree with what one poster said about taking control of our kid's

(and our own) health, and not letting docs "force" us in to things.

There is part of me that feels like I "have" to do what the doctor

says. BUT, I am learning the hard way, this is not SO! I need to

advocate for my child, and do what I think is right...despite the

guidance of my doc.

Anyway, all of this to say, we have finally located another doctor

who already seems so helpful! We have located an Integrative Doctor

(MD) who incorporates alternative and medical treatment into her

practice. Actually, we have already had our son there twice in the

last week, and we are so very happy! The practice is family medicine

( not a GI), but they are very knowledgable about the whole body and

how to treat it. They are very supportive of the SCD and are working

with us as we explore alternative treatments. Their attitude is also

one of victory (unlike our GI who said our son will be on meds his

whole life, feel sick off and on, and have surgeries). Our new

doctor seems quite confident that we can lick CD! Wow!! Another

great thing is this doc takes our insurance and can do all sorts of

blood tests (in fact, our son is being testing for a bunch of

things...they want to treat my whole child...not just his GI

tract!). We are pretty happy, and cautiously optimistic. At this

point, I am even wondering if we need a GI. Though, I am sort of

afraid NOT to have one...not sure why... In some respects, I want to

demonstrate our son's success (through alternative means) to our GI

to maybe help open his eyes so he can help others in the future. I

am proabbly being unrealistic, though. Anyway, I just wanted to

share our story, and pass on integrative docs as an "alternative! "

DS CD Jan 08, SCD Jan 08, 10 mg pred

September 10, 2008

>

> Anyway, all of this to say, we have finally located another doctor

> who already seems so helpful! We have located an Integrative Doctor

> (MD) who incorporates alternative and medical treatment into her

> practice. Actually, we have already had our son there twice in the

> last week, and we are so very happy! The practice is family medicine

> ( not a GI), but they are very knowledgable about the whole body and

> how to treat it. They are very supportive of the SCD and are working

> with us as we explore alternative treatments. Their attitude is also

> one of victory (unlike our GI who said our son will be on meds his

> whole life, feel sick off and on, and have surgeries). Our new

> doctor seems quite confident that we can lick CD! Wow!! Another

> great thing is this doc takes our insurance and can do all sorts of

> blood tests (in fact, our son is being testing for a bunch of

> things...they want to treat my whole child...not just his GI

> tract!). We are pretty happy, and cautiously optimistic. At this

> point, I am even wondering if we need a GI. Though, I am sort of

> afraid NOT to have one...not sure why... In some respects, I want to

> demonstrate our son's success (through alternative means) to our GI

> to maybe help open his eyes so he can help others in the future. I

> am proabbly being unrealistic, though. Anyway, I just wanted to

> share our story, and pass on integrative docs as an " alternative! "

>

,

Where do you live and what is your doctor's name.

That's lucky that she takes your insurance, because I've noticed that

many of them seem not to, which makes the whole thing even harder.

Mara

September 10, 2008

,

Where do you live and what is your doctor's name.

That's lucky that she takes your insurance, because I've noticed that

many of them seem not to, which makes the whole thing even harder.

Mara

We live in the Denver, CO area and we are going to Clear Sky

Medical. The doctor's name is Dr. Katya Meier, MD and she is located

in Lone Tree (for anyone living in the Denver area). Her number is

.

On another note, I have been trying to find an Integrative Doc that

would take our insurance with no luck. UNTIL, I spoke with another

person (who successfully beat CD through natural remedies) via

email. She recommended a product called Standard Process (SP). So,

I looked into it, but discovered it is not SCD compliant. Anyway,

before I knew this, I went to the Standard Process website and

clicked on providers (as this supplement is only available through

health care providers). After contacting the rep in my area, he gave

me the name of Clear Sky Medical. I had never heard of them before,

and they are near where I live! So, maybe searching the provider

list on the Standard Process site " might " yield some results for

others not in Denver. It seemed there were a lot of chiropractors on

the list, as well as nutritionists. BUT, when I aksed for a doctor,

the local SP rep was able to give me a name! Since SP is a natural

remedy, I sort of figured that if a medical professional carried it,

they had to be integrative, and it turned out to be true! I hope

others are able to have some luck as well...

DS 11 yo CD Jan 08 SCD Jan 08

September 11, 2008

Please help me!

My parents want to hospitalize me and I know that the doctors with mess me up

more as

they have put me on 3 antibiotic treatments for SIBO and my gut is now leaky!

What is the

name of this Integrative Doctor? I have lost so much weight and my parents are

raging and

scared.

Thank you for listening,

Blessings,

Crystal

>

> Hi All,

>

> I noticed the recent discussion (under " gaining weight " ) regarding

> doctors and that they (notoriously) do not support the SCD (or, at

> least, blow it off). I know, personally, we have been trying to

> convince our GI that SCD is actually a very legitiment treatment for

> our son's CD. We even printed out info from the BTVC site explaining

> the diet, gave our doc examples of 's daily food diary, etc. Our

> doc took the info and simply filed it away. I doubt he has ever

> referred back to it. We continued to do our own thing with SCD, and

> have been going for monthly follow-up visits. I was really starting

> to feel it was a waste of our time since we were on different pages.

> He (clearly) is a " meds are the only way " kind of guy. Then, at our

> last visit, after our son's bad reaction (and 8 lbs weight LOSS) on

> Imuran, he suggested our only two options were Remicade (uhhh...I

> don't think so!), and/or a feeding tube. Interestingly, our doc

> mentioned CD treatments in Europe rely on nutrition (via some kind of

> drink, or through a tube). He indicated that it has proven quite

> successful. I left the appointment shaking my head, and thinking the

> best option might be a feeding tube. HOWEVER, I posted my question

> about feeding tubes on this board and received GREAT

> feedbakc...thanks everyone! We have decided to fore go the tube and

> are JUST going " nutritional " ...which is exactly what we were doing

> before all the meds messed our son up even more (just my opinion)!

>

> I agree with what one poster said about taking control of our kid's

> (and our own) health, and not letting docs " force " us in to things.

> There is part of me that feels like I " have " to do what the doctor

> says. BUT, I am learning the hard way, this is not SO! I need to

> advocate for my child, and do what I think is right...despite the

> guidance of my doc.