Chicken Soup for the Soul...er Colon :( - I sure could use some

[Guest guest]

I just wanted to vent a little and perhaps get reassurance from you

guys. July 17th this year I had a colonsocopy in which my doctor said

I had gone from having Ulcerative Proctitis to Moderate/Severe Colitis

throughout my entire lower colon. I was going to the bathroom 20+

times a day. As I was waking up out of my groggy state and resisting

his recommendation of Prednisone 60 mg/day he told me that if I did

not take this medication I could die. Reluctantly I started this

horrible medication and have done really well. I implemented the SCD

diet 1 month and two days ago and, probably about two and a half weeks

ago it felt like the Prednisone did not feel like it was covering up a

major internal crisis anymore. For the past two-three weeks I have

have had no blood, no diarrhea and I have 2-4 BM a day that all are

very normal with the occasional issue which I suspect might be too

much fruit which acts as a laxative. Aside from feeling a little

fatigued I really was not experiencing immediate side effects that I

was afraid of (moon face, weight gain and the other medley of freaky

side effects that I have researched.) Two days ago (1 month and 10

days after staring this medication) I noticed that I was starting to

develop a double chin (even though I am not overweight) and while I

normally can see my cheek bone definition - this appears to be slowly

disappearing as well and my face is starting to look fatter. Due to

the required taper...and assuming I don't flare back up I am stuck on

this crap pretty much through October. I feel unattractive and am

afraid as to how " disfigured " I will become.

Asacol was the drug I was taking pre -SCD but I understand it has

starch in it so I switched over to Azulfadene which I am up to 3 - 1/2

pills a day at this point because in the past I have had an allergy to

Suplha. I am introducing slowly this med and waiting for the itching

to stop before I increase to see if I can build up a tolerance.

This all just feels like a tight rope walk and a plate spinning act!!!

I would never think of going off the diet and I consider myself

rather fanatical about it, so i think that is good. If anyone has

examples of their own experience in this " uncertainty, this sucks

right now but things got better stories - I sure could use them right

now. " Thanks for reading - you guys have been such a huge help for me

in making this transition.

Aiazeen

UC 5 1/2 yrs

SCD 1month 2 days