Re: Re: Results of Colonoscopy afteralmost 1 year on SCD

[Guest guest]

Thanks Eileen...appreciate your support and comments! I sure don't want you to be scared. I have read many reports of positive colonoscopy results after SCD, but I don't remember how long those people were on the diet. I will keep the positives you mentioned in my mind and stick to the diet!Thanks again,Janet Re: Results of

Colonoscopy afteralmost 1 year on SCD

so sorry to hear!!! and scared now too!! to be honest- but i would

say while you and doc are figuring this out keep in mind you are

healthier and do feel better so those are 2 positives of scd - it can

take 2 years they say but yes i would have thought you'd see some

healing by now - hang in

eileen

7 months scd

celiac/crohns

-- In BTVC-SCD@yahoogroup s.com, Janet/Lloyd Wolford <ljwolf2001@ ...>

wrote:

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> Hello Everyone,

> I have been on SCD since Oct. 5, 2007. I have followed the diet

religiously, have felt better than ever since being on the diet and

have been in remission(or so I thought) with just a few relapses. I

have lost 35 pounds which was a benefit and people tell me I look

great! Even with the relapses, I have believed in this diet and

wanted so much for my doctor to see a healthy colon when he did the

colonoscopy yesterday.

> He said my colon is "worse!" He wants to see me in 2 weeks for

some other kind of treatment plan...currently I am on Colazal...9

capsules a day.

> I still believe in SCD and will continue to follow it, but I am

obviously disappointed with these results. My medical doctor does

not know I am on SCD because he believes in nothing but medication.

I will schedule an appt. with my Naturopahic doctor soon and discuss

the results with him.

> Have any of you had a similar experience? Please share with me. I

realize I have had UC for 29 years, however, I think there should

have been some positive changes in my colon after being on SCD for

almost a year.

> Thanks for any comments, suggestions or thoughts on this!

> Janet

>

[Guest guest]

Hi Kathy,Yes! I have experienced improvement in my symptoms. I have had a few short relapses since I started, but have bounced back faster. I currently have no symptoms and just one bm a day and it is great...that's why I was so surprised/disappointed after hearing the results. I think you are right about the colon needing more time to heal and I will give it more time as I stick with the diet. It sure has improved the quality of my life as far as bleeding/d/stomach pain and trips to the bathroom. I can eat almost everything SCD legal too with the exception of peanuts ...I limit the pecans too.I have not been able to stop the meds...Colazal...whenever I try to reduce them I feel a relapse coming on. That's great you are med free...good for

you.!Thanks for your encouragement!Janet Re: Results of Colonoscopy afteralmost 1 year on SCD

>

> Hello Everyone,

> I have been on SCD since Oct. 5, 2007.

> He said my colon is "worse!"

> I realize I have had UC for 29 years, however, I think there

should have been some positive changes in my colon after being on

SCD for almost a year.

>

> Janet

>

Hi Janet,

How extensive was your UC prior to being on SCD? Have you been on

the same quantity and type of meds the entire time you've been on

SCD?

I know that my case of UC was considered "mild" by my GI doctor, and

I responded well to azulfidine (sulfasalazine) for the first year

after my diagnosis, but then it stopped working. I only had UC for

about 1-1/2 or 2 years before starting SCD.

Although my situation seems much more "mild" and of shorter duration

than yours and many others, I have been on SCD for almost 14 months

and just last month was able to eliminate meds. So - my point is

that I think that UC is really difficult to recover from. It must

take a very long time for the intestine to heal. And if you have UC

throughout much of your colon and have had for 29 years, it's going

to take a long time to heal that damage.

Other than feeling better and losing weight, have you had an

improvement of your symptoms (frequency, diarrhea, bleeding, etc.)?

It seems that if you are doing better from the standpoint of using

fewer meds or having improvements in your symptoms, it might be

worth talking to your doctor about giving SCD a bit more time.

I'm sure you feel discouraged - I keep thinking that it's been a

year for me now and I'm off meds, so I should be able to eat pretty

much whatever I want that's SCD legal - but still even too many raw

nuts will send my stools into mushy-land. It is discouraging how

long it takes, but (at least for me) the improvements are noticeable

enough to keep me going and committed to the diet.

Hang in there!

Kathy

UC since 12/05

SCD since 7/07

med-free since 7/08