Results of Colonoscopy afteralmost 1 year on SCD

[Guest guest]

Hello Everyone,I have been on SCD since Oct. 5, 2007. I have followed the diet religiously, have felt better than ever since being on the diet and have been in remission(or so I thought) with just a few relapses. I have lost 35 pounds which was a benefit and people tell me I look great! Even with the relapses, I have believed in this diet and wanted so much for my doctor to see a healthy colon when he did the colonoscopy yesterday.He said my colon is "worse!" He wants to see me in 2 weeks for some other

kind of treatment plan...currently I am on Colazal...9 capsules a day.I still believe in SCD and will continue to follow it, but I am obviously disappointed with these results. My medical doctor does not know I am on SCD because he believes in nothing but medication. I will schedule an appt. with my Naturopahic doctor soon and discuss the results with him.Have any of you had a similar experience? Please share with me. I realize I have had UC for 29 years, however, I think there should have been some positive changes in my colon after being on SCD for almost a year.Thanks for any comments, suggestions or thoughts on this!Janet

[Guest guest]

so sorry to hear!!! and scared now too!! to be honest- but i would

say while you and doc are figuring this out keep in mind you are

healthier and do feel better so those are 2 positives of scd - it can

take 2 years they say but yes i would have thought you'd see some

healing by now - hang in

eileen

7 months scd

celiac/crohns

-- In BTVC-SCD , Janet/Lloyd Wolford

wrote:

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> Hello Everyone,

> I have been on SCD since Oct. 5, 2007. I have followed the diet

religiously, have felt better than ever since being on the diet and

have been in remission(or so I thought) with just a few relapses. I

have lost 35 pounds which was a benefit and people tell me I look

great! Even with the relapses, I have believed in this diet and

wanted so much for my doctor to see a healthy colon when he did the

colonoscopy yesterday.

> He said my colon is " worse! " He wants to see me in 2 weeks for

some other kind of treatment plan...currently I am on Colazal...9

capsules a day.

> I still believe in SCD and will continue to follow it, but I am

obviously disappointed with these results. My medical doctor does

not know I am on SCD because he believes in nothing but medication.

I will schedule an appt. with my Naturopahic doctor soon and discuss

the results with him.

> Have any of you had a similar experience? Please share with me. I

realize I have had UC for 29 years, however, I think there should

have been some positive changes in my colon after being on SCD for

almost a year.

> Thanks for any comments, suggestions or thoughts on this!

> Janet

>

[Guest guest]

Hi Janet, I'm so sorry for your recent disappointment. I've only been on SCD for one month and feel so much better I know I would be shocked to find out that things are not so well inside. Did your Dr. say in what way you're worse? Does it cover more colon or is the ulceration deeper? Have you had any other concrete tests that say it's worse, ie, blood work, hemocrit, SED, C-RP, white blood cell count, etc?

It seems baffling that you could be worse but feel better. At any rate, you feel better and that counts for a lot. If you feel like you're in remission, no diarrhea, bleeding, etc. it seems that the diet is working but needs more time to actually heal the old damage. I hope you won't get too discouraged from one test, the fact that you feel good is very important. Let us know how you're doing.

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: Tapering Prednisone for PG

Results of Colonoscopy afteralmost 1 year on SCD

Hello Everyone,I have been on SCD since Oct. 5, 2007. I have followed the diet religiously, have felt better than ever since being on the diet and have been in remission(or so I thought) with just a few relapses. I have lost 35 pounds which was a benefit and people tell me I look great! Even with the relapses, I have believed in this diet and wanted so much for my doctor to see a healthy colon when he did the colonoscopy yesterday.He said my colon is "worse!" He wants to see me in 2 weeks for some other kind of treatment plan...currently I am on Colazal...9 capsules a day.I still believe in SCD and will continue to follow it, but I am obviously disappointed with these results. My medical doctor does not know I am on SCD because he believes in nothing but medication. I will schedule an

appt. with my Naturopahic doctor soon and discuss the results with him.Have any of you had a similar experience? Please share with me. I realize I have had UC for 29 years, however, I think there should have been some positive changes in my colon after being on SCD for almost a year.Thanks for any comments, suggestions or thoughts on this!Janet

[Guest guest]

>

> Hello Everyone,

> I have been on SCD since Oct. 5, 2007.

> He said my colon is " worse! "

> I realize I have had UC for 29 years, however, I think there

should have been some positive changes in my colon after being on

SCD for almost a year.

>

> Janet

>

Hi Janet,

How extensive was your UC prior to being on SCD? Have you been on

the same quantity and type of meds the entire time you've been on

SCD?

I know that my case of UC was considered " mild " by my GI doctor, and

I responded well to azulfidine (sulfasalazine) for the first year

after my diagnosis, but then it stopped working. I only had UC for

about 1-1/2 or 2 years before starting SCD.

Although my situation seems much more " mild " and of shorter duration

than yours and many others, I have been on SCD for almost 14 months

and just last month was able to eliminate meds. So - my point is

that I think that UC is really difficult to recover from. It must

take a very long time for the intestine to heal. And if you have UC

throughout much of your colon and have had for 29 years, it's going

to take a long time to heal that damage.

Other than feeling better and losing weight, have you had an

improvement of your symptoms (frequency, diarrhea, bleeding, etc.)?

It seems that if you are doing better from the standpoint of using

fewer meds or having improvements in your symptoms, it might be

worth talking to your doctor about giving SCD a bit more time.

I'm sure you feel discouraged - I keep thinking that it's been a

year for me now and I'm off meds, so I should be able to eat pretty

much whatever I want that's SCD legal - but still even too many raw

nuts will send my stools into mushy-land. It is discouraging how

long it takes, but (at least for me) the improvements are noticeable

enough to keep me going and committed to the diet.

Hang in there!

Kathy

UC since 12/05

SCD since 7/07

med-free since 7/08

[Guest guest]

Thanks Ann,I am still on the diet, even though discouraged. I have to go by how I feel and hope that like you say the diet needs more time to heal old damage. I have an appt. in a couple of weeks and then can find out more about how it is worse. I haven't had any other tests.Thanks for your encouragement!Janet Results of Colonoscopy afteralmost 1 year on SCD

Hello Everyone,I have been on SCD since Oct. 5, 2007. I have followed the diet religiously, have felt better than ever since being on the diet and have been in remission(or so I thought) with just a few relapses. I have lost 35 pounds which was a benefit and people tell me I look great! Even with the relapses, I have believed in this diet and wanted so much for my doctor to see a healthy colon when he did the colonoscopy yesterday.He said my colon is "worse!" He wants to see me in 2 weeks for some other kind of treatment plan...currently I am on Colazal...9 capsules a day.I still believe in SCD and will continue to follow it, but I am obviously disappointed with these results. My medical doctor does not know I am on SCD because he believes in nothing but medication. I will schedule an

appt. with my Naturopahic doctor soon and discuss the results with him.Have any of you had a similar experience? Please share with me. I realize I have had UC for 29 years, however, I think there should have been some positive changes in my colon after being on SCD for almost a year.Thanks for any comments, suggestions or thoughts on this!Janet