Re: OT- DMPS challenge

[Guest guest]

Funny, I was talking to my mom about Lyme disease today. When I was about 18 months old, I was diagnosed with granuloma annulare. It is another auto immune diease too. Well, it started as a red spot on my hand that moved to bumps on my legs. Well, I was looking up granuloma annulare today and that it is sometimes misdiagnosed lyme disease. Well, so is Crohn's. Around the time I was diagnosed with granuloma annulare, I had reoccuring ear infections and lived on antibiotics for 3 years until they finally gave me tubes. Since antibiotics are the cure for lyme disease, I'm wondering now, if what I has wasn't granuloma annulare but lyme disease and the a/b's I was taking actually got rid of the lyme disease and the symptoms I'm having now are just after effects of the lyme disease. I am wondering this because lyme disease, even if cured, can cause problems

later in life like stiff joints (arthritis). I have been diagnosed with bercitis (pre-arthritis) in my right hip and I have problems with my right ankle, right knee, right wrist, and write shoulder too. In June 07, about a month before I started having my major Crohn's symptoms, I was bit by a tick. In February 07, I had what I thought was my first symptoms of Crohn's which was spastic colon. Well, I had asked my doc if it could be lyme disease after my initial diagnosis and she said no, but what if the tick bite, even though it didn't get into my skin, brought about the Crohn's symptoms?

I don't know. I've been thinking about it all day. I just don't know what to think.

Misty Kimble

Louisiana

CD

SCD - 8 months

Subject: OT- DMPS challengeTo: BTVC-SCD Date: Tuesday, September 16, 2008, 10:10 AM

It looks like I have this Lyme thing as another test came back suspect.Now they are thinking of doing the DMPS challenge to check my metaltoxicity.Is this worth it?Does this ever cause people to flare?It was explained to me that this might be part of the reason I am so sick?Before I got sick years ago I had a hair test that showed ridiculouslevels of various metal toxicity.I was just wondering what others experiences are in this arena??Thanks,JodiSCD 11 monthsCrohn's/Colitis

[Guest guest]

Hi Misty,

It makes my head spin too. It is quite confusing the way some of this

works. Also, keep in mind there is something called " Lyme disease

co-infections " which cause a myriad of problems as well.

Also, the Lyme disease world is quite the money maker and since Yeast

issues go hand in hand with Lyme- SCD is the perfect diet for it!

With that said there is new data out there (from a specialist at

Columbia Pres.) that says with long term chronic Lyme- antibiotics are

not the answer.

It turns out that many ASD kids also test positive for Lyme.

There is a theory out there that many people are walking around with

Lyme or Tick Bourne Illnesses.

I find all of this very interesting- but the way they test for Lyme is

sketchy. Many false negs and false pos. It is important to get

regular labs and also do the CD57 test (although this can be skewed

due to autoimmune disease in my opinion) The Igenex test and the more

conservative StonyBrook test. It costs a lot of money.

Mimi from PecanBread recently told me about a supplement that a lot of

the ASD kids take that works on Lyme. She is not a doctor though-

keep that in mind! If you want the info I can email it to you.

It seems to me there are varying degrees of Lyme. Once someone is

past that initial exposure phase things can get tricky with treatment

options. I do not believe long term antibiotics will do me any good.

I am confused as well.

Jodi

SCD 11 months

Crohn's/Colitis

> I don't know. I've been thinking about it all day. I just don't know

what to think.

>

[Guest guest]

Funny, I was talking to my mom about Lyme disease today. When I was about 18 months old, I was diagnosed with granuloma annulare. It is another auto immune diease too. Well, it started as a red spot on my hand that moved to bumps on my legs. Well, I was looking up granuloma annulare today and that it is sometimes misdiagnosed lyme disease. Well, so is Crohn's. Around the time I was diagnosed with granuloma annulare, I had reoccuring ear infections and lived on antibiotics for 3 years until they finally gave me tubes. Since antibiotics are the cure for lyme disease, I'm wondering now, if what I has wasn't granuloma annulare but lyme disease and the a/b's I was taking actually got rid of the lyme disease and the symptoms I'm having now are just after effects of the lyme disease. I am wondering this because lyme disease, even if cured, can cause problems later in life like stiff joints (arthritis). I have been diagnosed with bercitis (pre-arthritis) in my right hip and I have problems with my right ankle, right knee, right wrist, and write shoulder too. In June 07, about a month before I started having my major Crohn's symptoms, I was bit by a tick.What kind of tick? Deer tick or regular? How long was it on you? How full of blood was it?Did you need antibiotics for it? In February 07, I had what I thought was my first symptoms of Crohn's which was spastic colon. Well, I had asked my doc if it could be lyme disease after my initial diagnosis and she said no, but what if the tick bite, even though it didn't get into my skin, brought about the Crohn's symptoms?Um, how? What do you mean it didn't get into your blood? You mean, it didn't have any blood in it at all?Did you save the tick and get it tested to see if it was positive for Lyme? I don't know. I've been thinking about it all day. I just don't know what to think. Misty KimbleLouisianaCDSCD - 8 monthsSubject: OT- DMPS challengeTo: BTVC-SCD Date: Tuesday, September 16, 2008, 10:10 AMIt looks like I have this Lyme thing as another test came back suspect.Now they are thinking of doing the DMPS challenge to check my metaltoxicity.Is this worth it?Does this ever cause people to flare?It was explained to me that this might be part of the reason I am so sick?Before I got sick years ago I had a hair test that showed ridiculouslevels of various metal toxicity.I was just wondering what others experiences are in this arena??Thanks,JodiSCD 11 monthsCrohn's/Colitis

[Guest guest]

> Hi Misty,

>

> It makes my head spin too. It is quite confusing the way some of this

> works. Also, keep in mind there is something called " Lyme disease

> co-infections " which cause a myriad of problems as well.

>

> Also, the Lyme disease world is quite the money maker and since Yeast

> issues go hand in hand with Lyme- SCD is the perfect diet for it!

> With that said there is new data out there (from a specialist at

> Columbia Pres.) that says with long term chronic Lyme- antibiotics are

> not the answer.

>

> It turns out that many ASD kids also test positive for Lyme.

> There is a theory out there that many people are walking around with

> Lyme or Tick Bourne Illnesses.

>

> I find all of this very interesting- but the way they test for Lyme is

> sketchy. Many false negs and false pos. It is important to get

> regular labs and also do the CD57 test (although this can be skewed

> due to autoimmune disease in my opinion) The Igenex test and the more

> conservative StonyBrook test. It costs a lot of money.

>

> Mimi from PecanBread recently told me about a supplement that a lot of

> the ASD kids take that works on Lyme. She is not a doctor though-

> keep that in mind! If you want the info I can email it to you.

>

> It seems to me there are varying degrees of Lyme. Once someone is

> past that initial exposure phase things can get tricky with treatment

> options. I do not believe long term antibiotics will do me any good.

>

> I am confused as well.

Well, I don't have your system sensitivities. But as someone who

actually had Lyme,

though less longterm than you do, I was thrilled to get hold of those

antibiotics. I started

feeling better in a day.

My father - who did have longterm Lyme - also solved his problem with

antibiotics.

If you have it, you don't want it getting more serious - it is

crippling in its later stages.

Mara

[Guest guest]

I was bit by a tick.

What kind of tick? Deer tick or regular? How long was it on you? How full of blood was it? Did you need antibiotics for it?

I don't know what kind of tick. It woke me up in the middle of the night and came off under my nail when I scratched. I put it in the toilet and flushed it. I did not get any antibiotics for it.

In February 07, I had what I thought was my first symptoms of Crohn's which was spastic colon. Well, I had asked my doc if it could be lyme disease after my initial diagnosis and she said no, but what if the tick bite, even though it didn't get into my skin, brought about the Crohn's symptoms?

Um, how?

What do you mean it didn't get into your blood? You mean, it didn't have any blood in it at all?

Did you save the tick and get it tested to see if it was positive for Lyme?

I don't know how. I was just reading that Crohn's is sometimes misdiagnosd Lyme disease. So is granuloma annulare.

I said it didn't get into my skin. The reason I think this is because it came off under my nail when I scratched. I was asleep at the time. I do not know if it had blood as I immediately flushed it down the toilet.

Misty Kimble

Louisiana

CD

SCD - 8 months

[Guest guest]

Hey Misty..

Since gut dysbiosis goes hand in hand with being a breeding ground for

things to get out of whack. SCD is a good starting point.

I would suggest you get some routine blood tests and maybe do so of

the labs I mentioned before and to be safe go see a very good top

notch Lyme specialist- don't just go to any doc. Today they do brain

scans as one of the ways to diagnose as well.

I don't remember if you have insurance.

Jodi

SCD 11 months

Crohn's/Colitis

[Guest guest]

Mara,

How long did you have Lyme?

How long were you on antibiotics?

Not everyone's case is clear cut and simple.

People need to get proper testing!

Some people with long term Lyme live on antibiotics for a year or 2 or

even three. It is much more preferable to catch it right away and go

on antibiotics. But when it manifests into other co-infections it is

important to go see a Lyme specialist so the Lyme doesn't become

resistant.

Jodi

SCD 11 months

Crohn's/Colitis

> Well, I don't have your system sensitivities. But as someone who

> actually had Lyme,

> though less longterm than you do, I was thrilled to get hold of those

> antibiotics. I started

> feeling better in a day.

>

> My father - who did have longterm Lyme - also solved his problem with

> antibiotics.

>

> If you have it, you don't want it getting more serious - it is

> crippling in its later stages.

>

> Mara

>

[Guest guest]

I was bit by a tick.What kind of tick? Deer tick or regular? How long was it on you? How full of blood was it? Did you need antibiotics for it? I don't know what kind of tick. It woke me up in the middle of the night and came off under my nail when I scratched. I put it in the toilet and flushed it. I did not get any antibiotics for it.What did it look like? Did it look like a regular gross tick? Or was it tiny, and look like a barelyenlarged dot? The latter is a Lyme bearing tick. If you get another tick, and if it is not the regular gross kind, but a tiny dot or a tiny engorged dot, you have to kill it, put it in a plastic bag or something similar and bring it to a lab. Regular ticks do not carry Lyme, just the teeny, tiny ones do. From your description below of it coming right off in your hand it sounds unlikely to me that it was possible that you got infected. The tiny ones have to be in you for a while - I believe 24-48 hours at least. But the way to tell if it had your blood or not was whether it was engorged or just flat. In February 07, I had what I thought was my first symptoms of Crohn's which was spastic colon. Well, I had asked my doc if it could be lyme disease after my initial diagnosis and she said no, but what if the tick bite, even though it didn't get into my skin, brought about the Crohn's symptoms?Um, how? What do you mean it didn't get into your blood? You mean, it didn't have any blood in it at all?Did you save the tick and get it tested to see if it was positive for Lyme? I don't know how. You bring it to your doctor and they send it to the lab. In your case, since you fired your doctor, more or less, you'd have to find another one. A regular doctor could do it. I was just reading that Crohn's is sometimes misdiagnosd Lyme disease. So is granuloma annulare.I said it didn't get into my skin. The reason I think this is because it came off under my nail when I scratched. I was asleep at the time. I do not know if it had blood as I immediately flushed it down the toilet. Misty KimbleLouisianaCDSCD - 8 months

[Guest guest]

My insurance only covers hospital visits after a big deductible. Though, I just started a new job and in 6 months I'll have the same insurance coverage I had before: $1900 deductible but everything is covered after that. I get discounts at participating doctor's offices. I didn't realize how huge of a discount until I got the hospital only coverage. I'll find out if there is a specialist here in the BR/NO area.

Thanks!!!

Misty

Subject: Re: OT- DMPS challengeTo: BTVC-SCD Date: Tuesday, September 16, 2008, 8:35 PM

Hey Misty..Since gut dysbiosis goes hand in hand with being a breeding ground forthings to get out of whack. SCD is a good starting point.I would suggest you get some routine blood tests and maybe do so ofthe labs I mentioned before and to be safe go see a very good topnotch Lyme specialist- don't just go to any doc. Today they do brainscans as one of the ways to diagnose as well.I don't remember if you have insurance.JodiSCD 11 monthsCrohn's/Colitis

[Guest guest]

What did it look like? Did it look like a regular gross tick? Or was it tiny, and look like a barely enlarged dot? The latter is a Lyme bearing tick.

It was a normal looking tick.

If you get another tick, and if it is not the regular gross kind, but a tiny dot or a tiny engorged dot, you have to kill it, put it in a plastic bag or something similar and bring it to a lab. Regular ticks do not carry Lyme, just the teeny, tiny ones do.

It looked fat so I don't know if it had blood or not. It is possible that it came off my cat so it could have been fat from the cat. If I get another one, I'll keep it.

From your description below of it coming right off in your hand it sounds unlikely to me that it was possible that you got infected. The tiny ones have to be in you for a while - I believe 24-48 hours at least. But the way to tell if it had your blood or not was whether it was engorged or just flat.

Yeah, it was probably on me for just a few minutes. Just long enough to cause pain.

Thanks, I do feel a bit better now. Maybe since I told my doc it was a normal looking tick, she didn't consider lyme disease. Had she explained that to me, maybe I wouldn't be worried.

I kinda did fire her, but that's cause she said diet doesn't play a role in Crohn's disease and my insurance sucks and it costs too much to go to her.

Misty Kimble

..

[Guest guest]

Jumping in here to say, that my 18 year son got sick exactly one week

after working at a high class dog kennel/hotel where he was handling

dog feces, cleaning sick dog cages, and walking them in the woods.

I do NOT think it was a coincidence. Something got in his system and

noone can tell me otherwise. This kid never went anywhere but his

room and school so 1 week of being around animals and he gets

violently ill? I mentioned lyme desease from the very beginning, but

they just ignored me.. and still do.

Kay-lynn

>

>

>

>

>

>

>

>

> What did it look like? Did it look like a regular gross tick? Or

was it tiny, and look like a barely enlarged dot? The latter is a

Lyme bearing tick.

>

> It was a normal looking tick.

>

>

>

>

>

> If you get another tick, and if it is not the regular gross kind,

but a tiny dot or a tiny engorged dot, you have to kill it, put it in

a plastic bag or something similar and bring it to a lab. Regular

ticks do not carry Lyme, just the teeny, tiny ones do.

>

> It looked fat so I don't know if it had blood or not. It is possible

that it came off my cat so it could have been fat from the cat. If I

get another one, I'll keep it.

>

>

>

>

>

> From your description below of it coming right off in your hand it

sounds unlikely to me that it was possible that you got infected. The

tiny ones have to be in you for a while - I believe 24-48 hours at

least. But the way to tell if it had your blood or not was whether it

was engorged or just flat.

>

> Yeah, it was probably on me for just a few minutes. Just long enough

to cause pain.

>

> Thanks, I do feel a bit better now. Maybe since I told my doc it was

a normal looking tick, she didn't consider lyme disease. Had she

explained that to me, maybe I wouldn't be worried.

>

> I kinda did fire her, but that's cause she said diet doesn't play a

role in Crohn's disease and my insurance sucks and it costs too much

to go to her.

>

> Misty Kimble

> .

>

[Guest guest]

> Jumping in here to say, that my 18 year son got sick exactly one week

> after working at a high class dog kennel/hotel where he was handling

> dog feces, cleaning sick dog cages, and walking them in the woods.

>

> I do NOT think it was a coincidence. Something got in his system and

> noone can tell me otherwise. This kid never went anywhere but his

> room and school so 1 week of being around animals and he gets

> violently ill? I mentioned lyme desease from the very beginning, but

> they just ignored me.. and still do.

Well, go to an infectious disease specialist or to a different doctor,

say you

suspect lyme disease and have them do a blood test.

Mara