Re: venting - losing hubby's support

September 17, 2008

Hey Eileen,

I think it can be hard on loved ones and spouses seeing suffering and

not understanding the concept of consequence...

I am coming out of a -horrible- flare. I think this level of

suffering makes people question things on a different level than how

we SCD'ers question things.

You must understand though that these flares, setbacks or whatever are

part of our healing process. It is very hard to understand it when we

go through it- I think it is extra hard for our loved ones as at least

we look and try to find the culprit. I think they just feel

diminished in some way...

Some of us though seem to go through these roller coaster rides for a

while- I wish it wasn't so difficult and my heart goes out to you that

you are experiencing this... There could be so many things at play as

to why you feel lousy but bottom line SCD is a diet that will restore

our gut ecology with proper addition of healthy legal probiotic and in

turn our immune systems will start functioning on a much more healthy

level as well. It takes time...

There are integrative perspectives you could look into.. Or even

various intolerance testing.. Which all cost a lot of money. I think

SCD takes care of a lot of stuff for us and for me as I learn the

different problems I try and approach them...

I think you are doing a really great job- plus you are raising a bunch

of kids. Your hubby will be on board when you start bouncing back.

Stand on you convictions, keep with it, be strong.. Explain to him

this is important for you to give this diet a real chance and not to

back out when things get tough because this -now- is the critical

stage for you.. Results will come!!

I am thinking about you!!

And so what if we are " brainwashed " we are a true support system for

one another and I think from the outside perspective- people can view

that as " brainwashed " but for us and our suffering to of finally found

something that gives us respite and peace of mind- I don't think

people can really understand this bond. I can see how people that

don't understand it can see it as cult like behavior. But what are we

really doing? All we are just changing is our diet which seems to be

such a misnomer and a threat!

Hang in there..

Jodi

SCD 11 months

Crohn's/Colitis

>

> sorry all -just need to vent - I know it's hard on family when

> someone is sick (as it is on us, the sick folks) and hubby is usually

> good but ...... I'm better to an extent, yes I gained weight but am

> I walking around ok ?? usually not - so I'm 8 months in and telling

> myself - you're 8 months into at least a 2 year commitment but he

> think I should be better than i am now- maybe I should be???

> I don't know what to think - I'd be petrified to do anything but

> scd - he thinks i'm brainwashed by it and won't even look into other

> things - correct somewhat - this is all i want to try - BUT I do want

> to have more good times -maybe there is a med i should be using

> too??????

> I see doc tues to see his thoughts but also was thinking of taking

> everything out as something has me so full of air - not gas just air

> (no odor) I know i'm inflammed still and just got that and loose BM

> under control with soup but maybe good old soup, eggs & meat and no

> supplements need to be in place for a couple of days to see if i

> can't pass this ???? been 3 weeks now -and before that not great- in

> general I look back to last year and I feel better but am i thrilled

> with how i feel- no

> had some better moments but again need them to last and become most

> of the time - am I making any sense - just frustrated!!!!!!

> thanks for listening

> eileen

> 8 months scd

> celiac/crohns

>

September 18, 2008

thank you so much!!!! I really love this group - I will hang in - but

not without you guys!!! must fly

eileen

> >

> > sorry all -just need to vent - I know it's hard on family when

> > someone is sick (as it is on us, the sick folks) and hubby is

usually

> > good but ...... I'm better to an extent, yes I gained weight but

am

> > I walking around ok ?? usually not - so I'm 8 months in and

telling

> > myself - you're 8 months into at least a 2 year commitment but he

> > think I should be better than i am now- maybe I should be???

> > I don't know what to think - I'd be petrified to do anything

but

> > scd - he thinks i'm brainwashed by it and won't even look into

other

> > things - correct somewhat - this is all i want to try - BUT I do

want

> > to have more good times -maybe there is a med i should be using

> > too??????

> > I see doc tues to see his thoughts but also was thinking of

taking

> > everything out as something has me so full of air - not gas just

air

> > (no odor) I know i'm inflammed still and just got that and loose

BM

> > under control with soup but maybe good old soup, eggs & meat and

no

> > supplements need to be in place for a couple of days to see if i

> > can't pass this ???? been 3 weeks now -and before that not great-

in

> > general I look back to last year and I feel better but am i

thrilled

> > with how i feel- no

> > had some better moments but again need them to last and become

most

> > of the time - am I making any sense - just frustrated!!!!!!

> > thanks for listening

> > eileen

> > 8 months scd

> > celiac/crohns

> >

>

September 18, 2008

I know how you feel. My son was doing wondering (the best in 3 years) all summer and then all of a sudden--he got worse and worse. Started the diet and naltrexon in May after huge flareup on antibiotic treatment for a year. Was really feeling hopeless and went back to the intro diet twice these past 3 weeks. No matter what I did, no matter how hard I tried (I know its just not fair how effort and positive result do not always go hand in hand), he was getting worse.

A counselor gave me an idea to put him on anti-yeast since he was on antibiotics so long--which made so much logical sense to me. Also, to do a stool culture for cdiff--which sure enough he had. So he's now been taking these drugs (which are all compounded) for 6 days now--and I've finally see improvement the last couple of days. We also did reikki yesterday which I really believe helped his energy. So think---besides food--maybe something additional could help, too. Don't give up on the diet if you really think deepdown its working but perhaps test for an imbalance in your system which may help (ex. bacteria-cdiff). All the best and I sure do understand the frustration, regards, cher

Subject: Re: venting - losing hubby's supportTo: BTVC-SCD Date: Thursday, September 18, 2008, 1:36 PM

thank you so much!!!! I really love this group - I will hang in - but not without you guys!!! must flyeileen> >> > sorry all -just need to vent - I know it's hard on family when > > someone is sick (as it is on us, the sick folks) and hubby is usually > > good but ...... I'm better to an extent, yes I gained weight but am > > I walking around ok ?? usually not - so I'm 8 months in and telling > > myself - you're 8 months into at least a 2 year commitment but he > > think I should be better than i am now- maybe I should be???> > I don't know what to think - I'd be petrified to do anything but > > scd - he thinks i'm brainwashed by it and won't even look into other

> > things - correct somewhat - this is all i want to try - BUT I do want > > to have more good times -maybe there is a med i should be using > > too??????> > I see doc tues to see his thoughts but also was thinking of taking > > everything out as something has me so full of air - not gas just air > > (no odor) I know i'm inflammed still and just got that and loose BM > > under control with soup but maybe good old soup, eggs & meat and no > > supplements need to be in place for a couple of days to see if i > > can't pass this ???? been 3 weeks now -and before that not great- in > > general I look back to last year and I feel better but am i thrilled > > with how i feel- no > > had some better moments but again need them to last and become most > > of the time - am I making any sense - just

frustrated!! !!!!> > thanks for listening> > eileen> > 8 months scd> > celiac/crohns> >>

September 20, 2008

I don't know if this will help or not, but my diet was driving my wife

crazy. She was cooking for the rest of the family one way and then

doing a completely different meal for myself. We would have cooked the

same for every body, but the kids (4 in all) don't like meat that much

and trying to feed our twins at 2 years of age steak, was not going to

happen. She would constantly tell me, I want on my grave stone marker

to read: " He drove me bananas over bananas. " (It's a long story). We

ended up hiring a lady down the street that needed some extra income

to cook for us. We buy all the ingredients (spices, everything) and

give her the pans and recipes and the dates we want the food made by.

She spends about 4-7 hours a week doing this for us. It has been a

huge burden release for my wife. We are getting wonderful meals and

I'm hoping that my wife will change her mind about her grave stone

mark. :-)

Rexroad

SCD 1.5 years

Crohns 2 years

On Wed, Sep 17, 2008 at 8:35 PM, blackguitarmaker

wrote: