Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Hello, I'm C. from Mississippi. I'm new here but I've read a few of the messages from late Dec. and in Jan of this year and went to a few links that were sent. Specifically, I went to one that had the Minocin protocol on it. I'd heard about this very thing last year but didn't look into really. I just thought it was a lot of bunk. But now that I finally got round to looking at some of the info on the web I'm really interested in finding out if any of you have any experience with this yourselves and could tell me what your results are. I was dx'd back in 1983 with possible seronegative RA and since then with osteo and possible fibro. I've had some really terrible times since 1965 with rheumatic type ailments but have yet to have a firm dx, altho I've been to only 2 rheums in my life, mainly because I haven't been able to afford healthcare. Now i"m on Medicaid and SSI and have been able to get some treatment but no rheums here will take Medicaid, so that shoots that in the foot. I have flares when I'm in such pain that I am in tears, can't move, even my skin hurts. I have joint damage in nearly 80% of my body, and am just now getting better from a flare that has lasted over 3 months which has left me with some new damage in my hands and feet. I can no longer hold a pen to write, and barely a spoon to eat or my toothbrush, I can still type and can still play piano but my hands swell very badly afterward. Had to give up my hobbies which were hand-oriented (needlework, crochet, bread baking) I had surg. for carpal tunnel last March and I still have trouble with that hand. Have taken many different Rx for this ailment over the years, all with varying effectiveness and side effects. I'm on a multitude of meds right now for various other ailments as well. I've been on prednisone for nearly 7 yrs. now, decreasing the dose until I'm at 5mgs, only a few times a month unless I get into severe pain and swelling. I am a textbook case of the side effects from that and while it is a "miracle" drug when I'm in a bad way, I've felt like it's a monkey on my back at times. It took a very long time of finally getting to this point in the dosage. My little GP is doing the best he can and the ortho and neuro are too, but their hands are tied since they can't find a rheum who'll take Medicaid to send me to. Anyhow, just asking about the antibiotic protocol. Not sure how these docs would react if i took the protocol into them to ask them about this course of action. Wondered what anyone else has experienced in relation to this. Thanks, American by birth, Southern by the grace of God! Quote Link to comment Share on other sites More sharing options...
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