Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 They wont see FM patients.....WHY!!! Makes me wonder what kind of DR you got down there. Im not being funny either. This makes me so darn mad! Sue I wish you lived here cuz you would LOVE joe's DR whom we are off to see now. BTW: I'll ask him how to find you one down there..maybe, just maybe he knows! Catch ya later......Chin up girlfreind!!! I wish I could hug you in person! ----- Original Message ----- From: " Headley " <sheadley@...> < egroups> Sent: Monday, August 14, 2000 2:52 PM Subject: [ ] Doctors > Hi all. Am dying, here. This has about got the best of me. No doctors > here in Savannah area will see Fibromylgia paitents. The one who I can > see, can't see me for a couple of more months. He is that booked > up...Too much pain I am in to wait that long. Actually, I don't know how > this little body hangs on day to day being assulted as it is. > So, I called the MAYO CLINIC in ville today. > They gave me a list of Doctors who DOES treat Fibromylgia patients. I > will list them, and could anyone tell me which one to get? Or if they > have heard of them. > Dr. ABRIL > Dr. CALAMIA > Dr. COHEN > Dr. GINSBURG > Dr. PERFELLIN > Thanks for any help > Susie > > > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 Sorry that you are in such distress, Susie. I wish I could recommend a good doctor in your area, but calling Mayo was a great start! ----- Original Message ----- From: " Headley " <sheadley@...> < egroups> Sent: Monday, August 14, 2000 1:52 PM Subject: [ ] Doctors > Hi all. Am dying, here. This has about got the best of me. No doctors > here in Savannah area will see Fibromylgia paitents. The one who I can > see, can't see me for a couple of more months. He is that booked > up...Too much pain I am in to wait that long. Actually, I don't know how > this little body hangs on day to day being assulted as it is. > So, I called the MAYO CLINIC in ville today. > They gave me a list of Doctors who DOES treat Fibromylgia patients. I > will list them, and could anyone tell me which one to get? Or if they > have heard of them. > Dr. ABRIL > Dr. CALAMIA > Dr. COHEN > Dr. GINSBURG > Dr. PERFELLIN > Thanks for any help > Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Hi Joe, Here is a site that tells NCV averages for types of CMT... http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html Also, you shows lots of signs for CMT, most Docs take that into account and also your history....IMO you need very much to get another opinion from a neurologist that is well versed in CMT... Will Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 , My experience with Doctor Ordog was not a very good experience. I would suggest Dr. Gunner Heuser in Aguora HIlls, CA. If you want any information about him I will be happy to forward anything I can do to help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 ... What happened with Ordog? The last time I checked was only one of 2 board certified toxicologists in CA. I know a lot who have gone to Heuser and feel they are 3,000.00 lighter (if you konow what I mean). Angel > , > > My experience with Doctor Ordog was not a very good experience. I would > suggest Dr. Gunner Heuser in Aguora HIlls, CA. > > If you want any information about him I will be happy to forward anything I > can do to help! > > > " If having endured much, we at last asserted our 'right to know' and if, knowing, we have concluded that we are being asked to take senseless and frightening risks, then we should no longer accept the counsel of those who tell us that we must fill our world with poisonous chemicals, we should look around and see what other course is open to us. " Carson " My toxicasa (world) is your toxicasa (world). " Judith Goode Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Did you try Grace Ziem in land? Robbins in Florida? Lawrence Plumtree in NC? Same level as the others only less publicized. THose with MCS who have used them highly recommend them. Angel On Fri, 9 Jan 2004, Peebles wrote: > Date: Fri, 09 Jan 2004 00:36:29 -0000 > From: Peebles <robert.peebles@...> > Reply- > > Subject: [] Doctors > > Greetings, > > Please excuse cross posts... > > My wife is very ill from toxic mold poisoning. We are very confident > in the doctor she is seeing, but would like to see another doctor for > a second opinion. (We are seeking a second opinion both because it > just seems like a sensible course of action and also because it will > probably help in our court case.) > > I've heard of Dr Johanning, Dr Gray, Dr Ordog, etc., but > I would like to hear of firsthand experience with these or any other > doctors who specialize in treating toxic mold patients. > > We live in Oklahoma, but are willing to travel anywhere in the US to > see a specialist. > > Thanks in advance for any help you can provide. > > Regards, > > Peebles > www.thismoldhouse.org > > > FAIR USE NOTICE: > > This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 My visit to Dr. Ordogs office was awful. First of all, the office staff is very cold and could care less how sick I was that very day!!! I sat in the waiting room for over an hour....and then in the room for over an hour...so much for having a scheduled appointment. Anyhow, Dr. Ordog...lead my questions quite well. Do you have this sympton, this one, this one? Instead of asking me what symptoms I was having. Not a good idea if you have any kind of lawsuit pending! Oh by the way, I have tremendous attorneys and they were telling me if State Farm or Farmers is involved in a mold litigation suit...you certainly do not want Dr. Ordog as your doctor! They think he is NOT crediable, have the information of his being removed from the board at Henry Mayo and he will certainly hurt your case! Then he ordered a ton of tests....including MRI, Cat Scans of my lungs, SPECT scan of my brain, etc...oh and bloodwork. Then when he was ordering my bloodwork he asked me if I had a cat? I said yes I do have a cat...he said...did this cat live in this mold house? I said "of course, my cat lived with me" He said..well, you might as well put the cat to sleep now! I sat there crying my eyes out...he ordered some cat saliva test...and told me my cat of over 10 years was probably infecting me even more!!!! No sympathy! Nothing! Then he told me to take the keys and the clothes on my back and walk away from my house, belonging, etc. He gave me a packet with information in it...how to remediate (but doesn't recommend it), a list of vitamins to take, put me on Sporonex which almost killed me, and said we should go in the jacuzzi an hour a day for a year. That was the whole appointment! Then I talked to some other local people who have been to him...and he did the same regime with them! Unbelievable! As for being board certified...he was kicked out of our local hospital for being a quack! Check with Henry Mayo...he was fired from there! He charges $975 cash only to walk in his door....tells every patient the same thing...and has convinced numerous people he specializes in mold and WE all are desperate to get help that we beleive anything and everything we here seeking the answers to all our questions because there aren't many informed about mold. One thing I can say about Dr. Heuser....he is compassionate, he is super in court, his staff is friendly...they truly care...and when I was in the hopsital...literally dying, he worked with my other doctors hand in hand. Says something to me! HE also has worked endless hours with Immniosciences lab perfecting the blood test for mold. He works at the lab (because he wants to know more) a couple days a week. He truly wants to help mold victims! He doesn't know all the answers, as most doctors don't....but he goes out on a limb helping each individual as just that My husband and kids adore him! Oh, by the way, he beleives in alternative medicines also....not just medical stuff. If you want to know what I have done to get better I will share that also. Dr. Gunner Heuser 28240 W. Agoura Road agoura Hills, CA 91301 (818) 865-1858 I don't mean to sound bitter...only I KNOW for a fact, that he is just in this to make a buck! Please stay away from him...and find a doctor with compassion and empathy. It's what we all need more then anything when it comes to being intoxicated with this posion we have in our systems! Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 My cat loves me...and hates Dr. Ordog! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I understand the contempt for doctors. I have been to medical, pulminologists, a so called environmental doctor and three allergists. None know anything and dont know what to do for me or they dont believe me. Im up here in Maine and I guess there is much ignorance here.The only help I have gotten is from alternative medicine from a kinesiologist.I wish there was a way to change or COME OUT as you might say.I find it DEPLORABLE these docctors are UNwilling to learn about toxic mold and the awful effects it causes to humans. I suffer quite bad as I was exposed to great amounts for a long time with Stachy and Aspergullus and many more working in a government owned wet basement. Their fix? I lost my job. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 My cat loves me too ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I talked to several of Dr Ordogs patients over a year ago and found they knew nothing about Stachybotrys or mycotoxin avoidance. One asked if she could take some of my information to Dr Ordog. I never heard anything back so I guess Dr Ordog wasn't interested. I was told the same thing, to kill my cat. Mere words cannot express my contempt for doctors. My cat thinks so too and still tells me about it every day. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Group, Have any or you visited Dr. Ritchie Shoemaker in Pocomoke MD? http://www.chronicneurotoxins.com He can testify in court as to causation for toxic mold exposure and human health. So can his research partner, Dr. Ken Hudnell - neurotoxicologist. Regards, Greg Weatherman Aerobiological Solutions Inc. Arlington VA 22202 gw@... > I understand the contempt for doctors. I have been to medical, > pulminologists, a so called environmental doctor and three allergists. None know > anything and dont know what to do for me or they dont believe me. Im up here in > Maine and I guess there is much ignorance here.The only help I have gotten is from > alternative medicine from a kinesiologist.I wish there was a way to change or > COME OUT as you might say.I find it DEPLORABLE these docctors are UNwilling > to learn about toxic mold and the awful effects it causes to humans. > I suffer quite bad as I was exposed to great amounts for a long time with > Stachy and Aspergullus and many more working in a government owned wet basement. > Their fix? I lost my job. > Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 I understand and fully relate to your contempt for allopaths aka MD's. I really lucked out my EI doc is a MD, classical homeopath and to top it all off has a MS in I think toxicology and worked for an oil company. Who incorporats ALL forms of healing from allergy shots to those who want them to homoepathics. I really do have the best of both wprlds. And she is a FIRM believer in all EI conditions! The day that thee bastards at Nordstroms sprayed me with perfume, her office staff was FABULOUS! There is a note on the door and ALL patients are informed NO FRAGRANCES. I was sucking on 02 and a new patient came in. Her office manager jumped up and told her to leave. SHe (the patient) whines I washed it off when I realized that I put it on so no one will notice it yeah right!. SHe was escorted out of the office and told you will not compromise the health of the pothers and the doctor will not see you. She whined about it taking 2 months for an appointment. Hey, this doc knows environment is hazardous to all our healths. On Fri, 9 Jan 2004 Gingersnap1964@... wrote: > Date: Fri, 9 Jan 2004 17:24:52 EST > From: Gingersnap1964@... > Reply- > > Subject: Re: [] Re: Doctors > > I understand the contempt for doctors. I have been to medical, > pulminologists, a so called environmental doctor and three allergists. None know > anything and dont know what to do for me or they dont believe me. Im up here in > Maine and I guess there is much ignorance here.The only help I have gotten is from > alternative medicine from a kinesiologist.I wish there was a way to change or > COME OUT as you might say.I find it DEPLORABLE these docctors are UNwilling > to learn about toxic mold and the awful effects it causes to humans. > I suffer quite bad as I was exposed to great amounts for a long time with > Stachy and Aspergullus and many more working in a government owned wet basement. > Their fix? I lost my job. > Janet > " If having endured much, we at last asserted our 'right to know' and if, knowing, we have concluded that we are being asked to take senseless and frightening risks, then we should no longer accept the counsel of those who tell us that we must fill our world with poisonous chemicals, we should look around and see what other course is open to us. " Carson " My toxicasa (world) is your toxicasa (world). " Judith Goode Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Good Morning! It sure is wonderful to find a good EI doctor. Especially one who has the best interest of her patients at heart! None of this is a cure until we decide to do what is needed for our selves. Giving up our favorite foods, places we love to go and a lot we feel is more than we can give up. Yet none of the programs to better health work until we make them work. Some doctors offer help,,,but we make the altimate decision(s)! Our greatest problem is that of education!!!! To learn what we need to do we spend all we have and go into debt....all to find that we wasted much to get little! The only benefit we receive is education after seeing all the doctors we can ! Tests and more seem to point a direction to follow...yet we soon learn that products we use normally are containing bad things. And the very things we are given in a RX form are just as bad for us! We reinvent the "wheel" at our expense ... when all we needed was some one with experience and knowledge to help us. We are blessed with this and other groups where those folks give for "free" what costs us dearly at a doctors office. The first thing we need to do is forget the usual ..."that we have specialists" who are there as the source for things beyond the usual. These "specialists" are too often "opportunists"! We have gone through the many steps of this illness to find we are still at stage one....needing to take charge of our living and to seek God for answers. We reached out to all these "specialists" and as they held our hands they emptied our purses, bank accounts and more. Compassion is expensive if sought this way! One begins to think of some doctors as one would of a con-artist!!! And I believe some have developed a plan to do just that....con you out of all they can get. A con-artist doc can see three or four patients a day and equal the intake of a top paid doctor at a major hospital. And never need to pay the high risk insurance paid by that doctor ! I hate to be bilked of my lifes earnings and get nothing back! Yet it seems to be the price that many pay to learn enough to "get smart" ! Ok you good doctors...I love You! But you are a minority!!!! Bryce On Sat, 10 Jan 2004 09:02:15 +0000 (UTC) Angel MCS <jap2bemc@...> writes: I understand and fully relate to your contempt for allopaths aka MD's. Ireally lucked out my EI doc is a MD, classical homeopath and to top it alloff has a MS in I think toxicology and worked for an oil company. Whoincorporats ALL forms of healing from allergy shots to those who want themto homoepathics. I really do have the best of both wprlds. And she is aFIRM believer in all EI conditions!The day that thee bastards at Nordstroms sprayed me with perfume, heroffice staff was FABULOUS! There is a note on the door and ALL patientsare informed NO FRAGRANCES. I was sucking on 02 and a new patient camein. Her office manager jumped up and told her to leave. SHe (thepatient) whines I washed it off when I realized that I put it on so no onewill notice it yeah right!. SHe was escorted out of the office and toldyou will not compromise the health of the pothers and the doctor will notsee you. She whined about it taking 2 months for an appointment. Hey,this doc knows environment is hazardous to all our healths. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Dr. Bernard Bihari New York, NY 212-929-4196 Dr. Sidney, NY 607-561-2000 Dr. Carole Saratoga Springs, NY 518-587-3438 Dr. Guddesblatt, Bayshore, Long Island, NY 631-666-3939 Noland ----- Original Message ----- From: " carrielandau " <carrieland2@...> <low dose naltrexone > Sent: Monday, December 22, 2003 3:07 PM Subject: [low dose naltrexone] Doctors > Dr. Bihari recently prescribed naltrexone for me. I've had a rough > four days, so tonight I'm cutting down to 3 mg, per his advice. Dr. > Bihari's been terrific so far--kind, accessible, and not in the least > bit condescending. But in the event he stops practicing at some > point, I'd appreciate hearing about other doctors in the NYC area who > prescribe naltrexone. I'm brand new to this MS thing and I think > this website is a terrific idea. Thanks. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Dr. Bihari in New York won't make you do diets or blood test Marie ----- Original Message ----- From: lhowett524@... low dose naltrexone Sent: Tuesday, March 23, 2004 1:10 PM Subject: [low dose naltrexone] doctors Any one know any doctors on the list or anywhere that will do phone consultations without having you jump thru hoops such as putting you on diets and making you go thru blood tests. Would greatly appreciate any info. I am having a devil of a time finding anyone!!! Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 I went to the doctor yesterday and he upped my pain meds hopefuley we will see if that works I sure hope so I am so tired of being in so much pain it has brougth it down a little bit last night hopefulley it will contuion to work I know the pain will never go a way but I sure would like to get it under control some I have a lot of imflammation right side now to I need to call my RA and up my predisone a little I see him at the end of the month any way I would like to chat in the chat room with some of you it would be nice I can get on 3pm to 5;30 any time just let me know when and I will be there Sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2006 Report Share Posted March 18, 2006 Look, there are lots of more natural things in life that don't get recommended because *they* don't get any MONEY or CONTROL out of it!! Money and power. Golden rule: those with the gold make the rules. It's sad but usually true. Be an ADVOCATE for yourself, do your OWN research, and be cautious! I have not even decided what I think of flushes yet. My first was unsuccessful. However, what I said above applies to many things! I could give examples, but that's my short answer. ~Faith Quote Link to comment Share on other sites More sharing options...
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