Feeding Tube/Elemental Diet Questions

[Guest guest]

Hi All,

We visited our son's GI today, and he is wanting us to consider

putting our 11 yo son with CD on a feeding tube. He explained that

some other countries have found great success treating CD with

nutrition (via a feeding tube). He indicated he thought our son (who

has dropped back to 60 lbs) would really benefit from getting his

nutrients this way.

Has anyone on this list been on a feeding tube (placed through the

abdominal wall), and, if so, how did it work for you? Also, I am

most concerned about the " food/liquid " that will be adminsitered

through the tube. I want it to be compliant with SCD if possible,

but I fear it is loaded with junk. Does anyone know if there are

certain types of feeding tube " foods " that are SCD legal? And, can a

person eat while they are on a feeding tube? I hate the thought of

my son not being able to eat anything, but we need to get him better

(as he has only grown 1/2 " in the last year, and the doc says we are

losing valuable growing time). I read about elemental diets in BTVC,

but I am not completely sure what that is... Hmmmm...

Sorry for all the questions! You guys are awesome, and thanks for

your help!

DS 11 yo CD Jan 08, SCD 8 months, 10 mg pred