ileostomy reconnect

[Guest guest]

My 19 year old son has had an ileostomy to let his colon rest and

give time for ulcerations to heal. He has a rectal abcess and

fistula and is on the drug Cimzia. It is getting close to the time

for him to go back into the OR to try a reconnect of his small

intestine to his colon. Has anyone had this experience? Any words

of wisdom?

I discovered this web group after reading the BTVC book. I was

diagnosed with celiac disease 2 years ago and had never heard of the

SCD diet before and thought I would give it a try because I still

have other auto-immune diseases to deal with. This diet has been

rough going for me. I'm not sure if it has been the cause of a

recent flare for me or not. My son refuses to try the diet...even a

standard healthy diet...he prefers the junk food diet:( I am so sad

about this, but my nagging and cajoling was not helping, not even one

tiny bit! So now I am just praying that he can have this reconnect

surgery. I agree with so many posts I've been reading...that regular

medicine is really letting us down! His GI doc just pushes the meds,

so my son does not have any authority figure that encourages him to

take more control over his health...nothing can be done except meds

and surgery (so why not enjoy his junk food!) Don't you all ever

feel like just screaming?

Would appreciate any insights,

Sharon

[Guest guest]

Hi Sharon...just a thought ( I hope it's not "blasphemous" ?!) But with my kids I had to take a "master the treats first" approach ...I made many of the very tasty scd treats & slowly "replaced" junk treats in our diet with them & then after several months ( where they both were gradually feeling better ) I then ( this is embarassing & I hope, not too immoral..) I bribed them $5 a day to stay on the intro ( lasted 3 days with my son, 5 with my daughter ) & then proceeded to add in foods, with scd jello popsicles & scd muffins, cookies etc to fill them up ...it is now part of their lifestyle & after feeling well & healthy, they have each "cheated" a couple times & felt the negative reaction more fully ( after feeling really well, you notice the difference more fully?!) so after ~ 6 months, we were, as a family, fully scd. hth, gisele

[Guest guest]

At 09:51 AM 9/11/2008, you wrote:

so after ~ 6 months, we were, as

a family, fully scd.

Gisele,

Good idea! For some people, going cold turkey works best. Others have to

slide into it gradually.

I did the sort-of slide into it initially, then went cold turkey when I

had the gall bladder surgery. (Albeit, not without making plenty of

mistakes!) By sort-of slide in, I mean I got rid of the illegals, and

then tried to be strict with myself.

Ironically, for me, the sweet stuff was the easiest to give up. Oh, but

giving up the things which go CRUNCH in the night....!

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

> >so after ~ 6 months, we were, as a family, fully scd.

>

> Gisele,

>

> Good idea! For some people, going cold turkey

> works best. Others have to slide into it gradually.

>

> I did the sort-of slide into it initially, then

> went cold turkey when I had the gall bladder

> surgery. (Albeit, not without making plenty of

> mistakes!) By sort-of slide in, I mean I got rid

> of the illegals, and then tried to be strict with myself.

>

> Ironically, for me, the sweet stuff was the

> easiest to give up. Oh, but giving up the things

> which go CRUNCH in the night....!

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

Group,

Yes, things that go crunch in the night, I was a happy camper

when I was able to eat krispy cheese tostados with cheese from a non

stick skillet and beans. YUMMY