Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 AHHHHH! Scream! BOOM! (that's me throwing things!) Idiots! Keep fighting it . Hang in there. I know it has been an awful time for you. But HOPEFULLY this will get resolved soon! The stress is awful! ~Hugs, Rainy Sue > I came home to the doctors report > from W.C. and I knew it would be bad, I should get use to it by now. It > always manages to stress me out. He said there is nothing wrong with me > and I should go back to my job. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Welcome back . Sorry you came home to a bad WC report. I was hoping that it would be settled. Sorry your trip was so exhausting. Yes, the meds you are on can make you sensitive to the sun. I am feeling better physically, but the fatigue is really rough. a ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < egroups> Sent: Sunday, August 06, 2000 3:28 PM Subject: [ ] flare > Hi s, > I'm trying to catch up and I was so sorry to hear about your flare. I > hope you will soon be feeling better. I came home to the doctors report > from W.C. and I knew it would be bad, I should get use to it by now. It > always manages to stress me out. He said there is nothing wrong with me > and I should go back to my job. He completely dismissed everything my > doctors have said, even changed there words. He does get paid to do this, > I should get use to it. Tomorrow I have to call my attorney and see what > he says. I think they will try and stop my checks, so it is back to court > again. I had asked him not to hurt me, and he wrote that I said I didn't > want him to touch me. I will never understand how they can lie like they > do and get away with it. You can't even sue them for it because it is > their opinion. If the SS would go through this would all end. > I hope you feel better soon. > > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2002 Report Share Posted April 1, 2002 Hi Carol, My pain comes and goes so often its mind boggling. It can be in one knee or both. Most often, it is in both. But it varies. I guess it just how RA keeps us on our toes. I would definitely call your rheumie if your flare lasts more than one or two days. Why put up with the pain and stiffness any longer than you have to. My rheumie always wants me to call as soon as a flare comes on so that he can try to stop it or control it asap. Usually that means increasing the prednisone for a week or two then tapering down to regular dose. I have been taking prednisone for about a year and a half now. It is the fastest thing to work for me. It does have some uncomfortable sides (weight gain, headaches, bloating, night sweats) but once you adjust to the med, the sides calm down a little. Hope you feel better soon. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2002 Report Share Posted April 1, 2002 this is how my flares go too, they will kick you when you least expect it!! just when you think you can have your life back. also different every time. this is probably the wrong info for me to give you. but, i don't call my rheumi unless it's really bad. i just try to ride it out and try to manage. my rheumi has always told me anything over 100.8 to call my primary. i'm at 100 right now. but i don't feel that bad. just my feet (i'm used to it now!!!) also a headache and my nose is running.it's always a question. is it the flu, flare?? who knows!! but it is snowing here in northern il. since about 1pm and yes it is sticking!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2002 Report Share Posted April 1, 2002 Thanks so much, Stacey. I'm going to give it until Wednesday, then I'll call my rheumy. For now I'm just going to rest and relax. Have a good evening! Re: [ ] Flare Hi Carol, My pain comes and goes so often its mind boggling. It can be in one knee or both. Most often, it is in both. But it varies. I guess it just how RA keeps us on our toes. I would definitely call your rheumie if your flare lasts more than one or two days. Why put up with the pain and stiffness any longer than you have to. My rheumie always wants me to call as soon as a flare comes on so that he can try to stop it or control it asap. Usually that means increasing the prednisone for a week or two then tapering down to regular dose. I have been taking prednisone for about a year and a half now. It is the fastest thing to work for me. It does have some uncomfortable sides (weight gain, headaches, bloating, night sweats) but once you adjust to the med, the sides calm down a little. Hope you feel better soon. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2002 Report Share Posted April 1, 2002 Oh Kathy, I'm sorry to hear you're taking a turn for the worse as well. It' s so discouraging just when you think you've got your life back to suddenly feel so lousy again. Although my husband is supportive, I can see that he is discouraged as well. Like " Oh no, not again so soon " . You sound like me, I hate to call the doctor because I feel like I can get through it on my own. I don't know how to tell if it's the flu or a flare either. But, the 100.8 sounds like a good barometer as to when to call your primary. I'll keep that in mind, too. Hope you feel better soon, Carol in FL Re: [ ] Flare this is how my flares go too, they will kick you when you least expect it!! just when you think you can have your life back. also different every time. this is probably the wrong info for me to give you. but, i don't call my rheumi unless it's really bad. i just try to ride it out and try to manage. my rheumi has always told me anything over 100.8 to call my primary. i'm at 100 right now. but i don't feel that bad. just my feet (i'm used to it now!!!) also a headache and my nose is running.it's always a question. is it the flu, flare?? who knows!! but it is snowing here in northern il. since about 1pm and yes it is sticking!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 thanks carol. what a night. my feet and ankles were so sore it was like i had another ankle on the bottom of my foot!!! i had a hard time standing or walking. it was the worst my feet and ankles have felt since before the surgeries. i could feel the pain going all the way to my knees. i found myself laying in the fetal position with a pillow between my ankles. not sure if i was really calling for my mom to help me or if it was just a dream. i ended up taking tylenol pm's about midnight, that was enough for me!!! so i got maybe 5 1/2 hours. the weather here is horrible freezing rain. i'm sure that has alot to do with it. now this morning i have been getting cramps and little spasms in my calves. they are not as swollen now. but i have hardly walked yet. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Carol, I am so sorry that you are in a major flare. Unfortunately, I don't know if there is any correlation between the dental stuff and the RA, probably or a would have that information. Just wanted to let you know that I will be saying an extra prayer for you today to get some rest which your body always craves during a flare and do (or not do) only the things that you think will make you feel comfy. Pamper yourself today and find a cozy chair or bed that makes you feel all snuggly. No day to be Martha !!!! LOL. Making a list for tomorrow's visit is a good idea, however, when I do this, I usually forget the list at home! Take care, sweetie, and please stay out of the sauna outside that they are passing off as our weather forecast. Very gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Carol, I am so sorry to hear you are having such a bad flare. Take it easy and let us know how it goes. Texas hugs, Colleen PS....Back to NY and reality tomorrow... >From: " Carol " <carol@...> >Reply- > " \(E-mail\) " < > >Subject: [ ] Flare >Date: Wed, 17 Jul 2002 07:51:30 -0400 > >Hi Friends, > >I'm having the worst flare right now. I feel like one big ball of pain. >My >shoulders and hips are the worst, but I feel flu-like and have really dry >eyes and a dry mouth also. > >Tomorrow I go to my rheumy, and I am going to talk seriously with him about >my meds and my quality of life. I'll make notes tonight. Maybe it's >better >I'm flaring right now, so I won't gloss over my remaining symptoms. > >I went to the dentist on Monday, and was premedicated with antibiotics. >Although I was flaring before that, it got much worse after the dentist. >Is >there any reason my symptoms would be worse after the antibiotics and >dental >work? > >Wishing you all a pain free day, >Carol > ================================================ Historian of Zeta of NY http://zetaofny.homestead.com Phi Theta Kappa and Zeta e-mail can be sent to: colleen.donald@... ================================================ President of the NSA at Decker School of Nursing http://dson.binghamton.edu/NSA/NSA.html ================================================ Catch me online!!!! AOL screen name: Cally671 I also use MSN messenger And messenger....callyanne21 _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Carol, So sorry you¹re feeling so bad. The antibiotics can be causing what¹s called the herx reaction. Here is a clip taken from rheumatic.org, the website that supports antibiotics for rheumatic diseases: 6. EXPLAIN THE JARISCH HERXHEIMER REACTION. This drug-induced flare reaction may occur within hours, the next day or within the first weeks after the patient starts the antibiotics - or any time there is a change in antibiotic or dosage. It is caused by a die-off of organisms, which in turn create toxins that circulate in the body. This will often cause a worsening of symptoms. Patients may experience a range of symptoms from mild fatigue and sleepiness to flu-like symptoms - chills, low grade fever, night sweats, muscle aches, aching and swollen joints, nausea, hives, skin rashes, depression and short term memory loss. Hives and rash are sometimes mistaken for an allergic reaction. When this occurs, it is a good indicator that the antibiotic is reaching its target - a very positive sign. The length of time for this reaction varies from patient to patient. About twenty percent of patients do not experience the Herxheimer reaction. Scleroderma patients seem to experience the Herxheimer reaction less often than RA patients. Oxidative therapy may be useful in reducing these symptoms. Garth Nicholson, M.D., director of The Institute for Molecular Medicine in Huntington Beach, California recommends peroxide baths (four 16 oz. bottles of 3% hydrogen peroxide in 20 inch bath or Jacuzzi, with 2 cups of Epsom salt. Patient soaks in hot water plus the epsom salt for five minutes until pores are open, then adds the peroxide solution. This should be repeated three times a week at bedtime. No vitamins should be taken 8 hours before bath. The peroxide can also be directly applied to the skin after a hot shower/tub. The peroxide should be left on for 5 minutes and then washed off. Another useful suggestion from Dr. Nicholson - blend one whole lemon, then add 1 cup fruit juice or water and 1 tablespoon of olive oil. Strain and drink liquid. http://www.rheumatic.org/faq.htm Here¹s another site that explains it: http://www.angelfire.com/biz/romarkaraoke/Herx.html I don¹t Œt know if your flare is antibiotic induced or is just a coincidence, but they say that if you herx from antibiotics, it¹s a good sign that antibiotics will help RA. I hope you feel better. Hugs, a > Hi Friends, > > I'm having the worst flare right now. I feel like one big ball of pain. My > shoulders and hips are the worst, but I feel flu-like and have really dry > eyes and a dry mouth also. > > Tomorrow I go to my rheumy, and I am going to talk seriously with him about > my meds and my quality of life. I'll make notes tonight. Maybe it's better > I'm flaring right now, so I won't gloss over my remaining symptoms. > > I went to the dentist on Monday, and was premedicated with antibiotics. > Although I was flaring before that, it got much worse after the dentist. Is > there any reason my symptoms would be worse after the antibiotics and dental > work? > > Wishing you all a pain free day, > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Thanks for the info, a. I was wondering if that could be the case with the antibiotics. I am going to ask my rheumy’s opinion on antibiotics for RA tomorrow. Right now I’m just so tired I can hardly type. I haven’t slept well in 2 nights (it seems to be going around lately) and I think it’s catching up with me. Hugs, Carol Re: [ ] Flare Carol, So sorry you¹re feeling so bad. The antibiotics can be causing what¹s called the herx reaction. Here is a clip taken from rheumatic.org, the website that supports antibiotics for rheumatic diseases: 6. EXPLAIN THE JARISCH HERXHEIMER REACTION. This drug-induced flare reaction may occur within hours, the next day or within the first weeks after the patient starts the antibiotics - or any time there is a change in antibiotic or dosage. It is caused by a die-off of organisms, which in turn create toxins that circulate in the body. This will often cause a worsening of symptoms. Patients may experience a range of symptoms from mild fatigue and sleepiness to flu-like symptoms - chills, low grade fever, night sweats, muscle aches, aching and swollen joints, nausea, hives, skin rashes, depression and short term memory loss. Hives and rash are sometimes mistaken for an allergic reaction. When this occurs, it is a good indicator that the antibiotic is reaching its target - a very positive sign. The length of time for this reaction varies from patient to patient. About twenty percent of patients do not experience the Herxheimer reaction. Scleroderma patients seem to experience the Herxheimer reaction less often than RA patients. Oxidative therapy may be useful in reducing these symptoms. Garth Nicholson, M.D., director of The Institute for Molecular Medicine in Huntington Beach, California recommends peroxide baths (four 16 oz. bottles of 3% hydrogen peroxide in 20 inch bath or Jacuzzi, with 2 cups of Epsom salt. Patient soaks in hot water plus the epsom salt for five minutes until pores are open, then adds the peroxide solution. This should be repeated three times a week at bedtime. No vitamins should be taken 8 hours before bath. The peroxide can also be directly applied to the skin after a hot shower/tub. The peroxide should be left on for 5 minutes and then washed off. Another useful suggestion from Dr. Nicholson - blend one whole lemon, then add 1 cup fruit juice or water and 1 tablespoon of olive oil. Strain and drink liquid. http://www.rheumatic.org/faq.htm Here¹s another site that explains it: http://www.angelfire.com/biz/romarkaraoke/Herx.html I don¹t OEt know if your flare is antibiotic induced or is just a coincidence, but they say that if you herx from antibiotics, it¹s a good sign that antibiotics will help RA. I hope you feel better. Hugs, a > Hi Friends, > > I'm having the worst flare right now. I feel like one big ball of pain. My > shoulders and hips are the worst, but I feel flu-like and have really dry > eyes and a dry mouth also. > > Tomorrow I go to my rheumy, and I am going to talk seriously with him about > my meds and my quality of life. I'll make notes tonight. Maybe it's better > I'm flaring right now, so I won't gloss over my remaining symptoms. > > I went to the dentist on Monday, and was premedicated with antibiotics. > Although I was flaring before that, it got much worse after the dentist. Is > there any reason my symptoms would be worse after the antibiotics and dental > work? > > Wishing you all a pain free day, > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Sorry, Lois! What a terrible decision to have to make. We've got mixed reports here about whether you will feel better or worse after your colonoscopy. And then there are those 5 days with nothing but Tylenol. I'm not sure what to advise. Maybe you could ask your doctors about it? Belatedly, here is some information on neck pain: " Cervical spine complications in rheumatoid arthritis patients " : http://www.postgradmed.com/issues/2000/01_00/alberstone.htm " Cervical spine in RA " : http://wheeless.orthoweb.be/o11/162.htm " Neck Pain: why so common in women? " http://www.womenshealthpc.com/6_00/pdf/394NeckPain.pdf Good luck. Let us know what you decide to do. [ ] Flare > Hi all, > > I recently wrote asking if RA can effect the neck as I was having > neck pain. Well over the next few days I had pain in shoulders, > elbow, fingers and I just felt plain yucky. My blood test was > scheduled for this past week and I found out my ESR and RA Factor > were up significantly (for me), so I called my rheumy and he said I > was probably in a flare (duh!) and he prescribed a medrol pack, upped > my mtx from 5 to 6/wk and doubled my celebrex. Well I'm in heaving > right now - with no pain and lots of energy (I know it's the medrol > or prednisone). Anyway, I have a colonscopy booked for Monday (just > a routine first one) and they just called to confirm and told me I > couldn't take any meds for 5 days before - arghhh! Just Tylenol. I > am very tempted to cancel this and schedule it for later this year > when I'm not flaring - what do you think? > > Lois in MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 Hi , Well, I decided to postpone the colonoscopy until June as I usually have bad flares in the winter and do ok with meds in the summer. I'm on the last day of my Medrol pack and feel the difference already. Wish I could stay on that stuff, but I know its not good for you. Thanks for the links to the neck pain - will have to check them out. I broke down and bought a magnet necklace to see if that will help. Anyone had any luck with magnet therapy? I enjoy reading everyone's posts and consider myself lucky compared to some of the ladies with their problems. Hopefully I'll be able to get this flare under control and get back to a somewhat normal life. Lois in MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Lois, I too have bad flares in the winter but do great in the summer. Sometimes I think I¹d be in complete remission if I lived where it is summer all the time. I never tried magnets but have read that it helps some and does nothing for others. I hope you are one of the lucky ones. a > Hi , > > Well, I decided to postpone the colonoscopy until June as I usually > have bad flares in the winter and do ok with meds in the summer. I'm > on the last day of my Medrol pack and feel the difference already. > Wish I could stay on that stuff, but I know its not good for you. > Thanks for the links to the neck pain - will have to check them out. > I broke down and bought a magnet necklace to see if that will help. > Anyone had any luck with magnet therapy? I enjoy reading everyone's > posts and consider myself lucky compared to some of the ladies with > their problems. Hopefully I'll be able to get this flare under > control and get back to a somewhat normal life. > > Lois in MA > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Patty, I am not sure if you should have premedicated or not. I certainly know that it creates a bacteremia when you have a cleaning. What did your appt. entail? I know you mentioned that you go for regular checkups and have good home care so maybe she did a little too much at your appt. It can actually be detrimental to your teeth to have them overscaled etc. I too am still battling the brain fog. It comes and goes for me and I am beginning to think it is hormonal for me. I personally don't get relief from it when I take antibiotics but it may be worth a shot for you. I guess it could be that the hygienist stirred up the bacteria so much and your body has to fight it off just like it did with implants so maybe that is why it is so bad. Maybe antibiotic prophylaxis may be warranted for some of us explantees. I hope you feel some relief soon. Take Care, Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Patty: When you take raw garlic, tell about that. How much do you take and how often? Do you buy it from the produce department or do you get the already chopped up stuff in a jar? Do you chew it or just swallow it? A girlfriend brought over a jar of chopped garlic for me yesterday and I "swallowed" down a teaspoonful. Don't know if that'll do anything for me..............????? ----- Original Message ----- From: *~Patty~* Sent: Monday, July 07, 2003 10:59 AM Subject: flare Wow, I don't know what is going on, but ever since my dental cleaning on June 24th, I have felt like crap! I mean, it isn't so bad that I can't get out and have fun, but my brain fog is definitely an issue again, don't understand why, except maybe it has something to do with my Hashimoto's. I will try upping my thyroid meds, try adding more raw garlic, try maybe a fasting detox for a few days, more coffee enemas, whatever, I just need to get rid of this brain fog as it is driving me crazy! I can't believe I am still dealing with this 5 years after explant. Crystal, do you think my dental cleaning had anything to do with this, with the release of all that bacteria? I wonder if I should have been on some kind of antibiotic? I have been so free of brain fog for so long this is really strange that I should be dealing with it again NOW! Maybe my body is giving up its last final hurrah herx, ha ha ha! Maybe I should give some antibiotics a go? I haven't ever taken any, so I am grasping at straws here... Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 , I found several easy ways to take raw garlic. It does burn when eaten raw, so you kinda have to get used to it. I buy it at the grocery store and just eat it raw--I am not too excited about the chopped stuff in the jar, as I am not sure the allicin is still active, and that is what kills the bacterias and fungus in us. When I want to get it down fast, I just peel it and then cut it into pill sized pieces and swallow them like pills. I can get down quite a bit of garlic this way. Here are some of my other ideas, which almost always involve peeling and cutting into smaller pieces: --lightly chew the clove to break it up, and swallow with orange juice, or some other juice. -- eat it with hummus and pita bread, putting a cut clove on each piece of dipped bread --eat it with a grilled chicken breast, bite by bite with the chicken. The garlic and chicken together taste great! I've also done this with some nitrite free chicken and pesto sausages I found at Trader Joes, and you can't even taste the burn of the garlic. Just adds zest to it. --I make a caesar's salad and make my own dressing with the raw garlic. My favorite recipe is listed in the recipes folder, under the database section on the website. --Using my garlic press, I press a clove or two (or three!) into a cup of organic chicken broth and sip it, making sure to eat the little chunks. --eat the garlic with bread and cheese, like feta I've also bought picked garlic cloves and garlic stuffed olives at Trader Joes, those were pretty good, but I want to be careful of all the sodium, too. Pickled stuff in excess can contribute to stomach cancer, so I don't eat those very often. Once in awhile they taste pretty good though! As for how often I take it, that totally depends on what social engagements are coming up, but when I am feeling bad, I really try to take it every day. It is not always possible, but I figure if I can have 8 hours when I won't be around someone then I can fit it in. But my husband tells me he can smell it on me! Nobody else gets as close as he does, tho, so I don't worry about it too much. I have had some embarassing moments, that's for sure, I know I've stunk like garlic bad at times. According to my research, I've heard that 12 cloves a day is considered to be a therapeutic dose. All I can say is that you better have some really good friends if you can stick to that! Here's the link to my research on garlic, in the files section, under Healing Therapies, Garlic: http://f5.grp.fs.com/v1/MMMJP6EcAkPwBZ3JlVA2j4Rpa7Hs3k7X58PLlYg7nGR33R1l-HgaWSRnOEnEYieRzy68CRJ_dvBCBem3/Healing%20Therapies/Garlic%20and%20Reducing%20Your%20Viral%20Load...Naturally Hope this helps, . Patty ----- Original Message ----- From: DepoDeeva Sent: Monday, July 07, 2003 11:24 AM Subject: Re: flare Patty: When you take raw garlic, tell about that. How much do you take and how often? Do you buy it from the produce department or do you get the already chopped up stuff in a jar? Do you chew it or just swallow it? A girlfriend brought over a jar of chopped garlic for me yesterday and I "swallowed" down a teaspoonful. Don't know if that'll do anything for me..............????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Patty, how do i sign up for the breast implant new? thx kimCrystalRDH@... wrote: Patty,I am not sure if you should have premedicated or not. I certainly know that it creates a bacteremia when you have a cleaning. What did your appt. entail? I know you mentioned that you go for regular checkups and have good home care so maybe she did a little too much at your appt. It can actually be detrimental to your teeth to have them overscaled etc. I too am still battling the brain fog. It comes and goes for me and I am beginning to think it is hormonal for me. I personally don't get relief from it when I take antibiotics but it may be worth a shot for you. I guess it could be that the hygienist stirred up the bacteria so much and your body has to fight it off just like it did with implants so maybe that is why it is so bad. Maybe antibiotic prophylaxis may be warranted for some of us explantees.I hope you feel some relief soon.Take Care,Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Kim, Not sure what you are asking for here....? Can you clarify? ----- Original Message ----- From: kim przybylski Sent: Monday, July 07, 2003 1:34 PM Subject: Re: flare Patty, how do i sign up for the breast implant new? thx kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 sorry, isnt there a breast implant newsletter that comes by e-mail?*~Patty~* <fdp@...> wrote: Kim, Not sure what you are asking for here....? Can you clarify? ----- Original Message ----- From: kim przybylski Sent: Monday, July 07, 2003 1:34 PM Subject: Re: flare Patty, how do i sign up for the breast implant new? thx kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Wow, Patty! Thanks. 12 cloves..............eeewh! I just ate 5 with a little mayo between two pieces of bread. It was doable! Guess I better get started on my last 7. I have a depo tomorrow (with attorneys) Will I clear the room (LOL)????? ----- Original Message ----- From: *~Patty~* Sent: Monday, July 07, 2003 12:05 PM Subject: Re: flare , I found several easy ways to take raw garlic. It does burn when eaten raw, so you kinda have to get used to it. I buy it at the grocery store and just eat it raw--I am not too excited about the chopped stuff in the jar, as I am not sure the allicin is still active, and that is what kills the bacterias and fungus in us. When I want to get it down fast, I just peel it and then cut it into pill sized pieces and swallow them like pills. I can get down quite a bit of garlic this way. Here are some of my other ideas, which almost always involve peeling and cutting into smaller pieces: --lightly chew the clove to break it up, and swallow with orange juice, or some other juice. -- eat it with hummus and pita bread, putting a cut clove on each piece of dipped bread --eat it with a grilled chicken breast, bite by bite with the chicken. The garlic and chicken together taste great! I've also done this with some nitrite free chicken and pesto sausages I found at Trader Joes, and you can't even taste the burn of the garlic. Just adds zest to it. --I make a caesar's salad and make my own dressing with the raw garlic. My favorite recipe is listed in the recipes folder, under the database section on the website. --Using my garlic press, I press a clove or two (or three!) into a cup of organic chicken broth and sip it, making sure to eat the little chunks. --eat the garlic with bread and cheese, like feta I've also bought picked garlic cloves and garlic stuffed olives at Trader Joes, those were pretty good, but I want to be careful of all the sodium, too. Pickled stuff in excess can contribute to stomach cancer, so I don't eat those very often. Once in awhile they taste pretty good though! As for how often I take it, that totally depends on what social engagements are coming up, but when I am feeling bad, I really try to take it every day. It is not always possible, but I figure if I can have 8 hours when I won't be around someone then I can fit it in. But my husband tells me he can smell it on me! Nobody else gets as close as he does, tho, so I don't worry about it too much. I have had some embarassing moments, that's for sure, I know I've stunk like garlic bad at times. According to my research, I've heard that 12 cloves a day is considered to be a therapeutic dose. All I can say is that you better have some really good friends if you can stick to that! Here's the link to my research on garlic, in the files section, under Healing Therapies, Garlic: http://f5.grp.fs.com/v1/MMMJP6EcAkPwBZ3JlVA2j4Rpa7Hs3k7X58PLlYg7nGR33R1l-HgaWSRnOEnEYieRzy68CRJ_dvBCBem3/Healing%20Therapies/Garlic%20and%20Reducing%20Your%20Viral%20Load...Naturally Hope this helps, . Patty ----- Original Message ----- From: DepoDeeva Sent: Monday, July 07, 2003 11:24 AM Subject: Re: flare Patty: When you take raw garlic, tell about that. How much do you take and how often? Do you buy it from the produce department or do you get the already chopped up stuff in a jar? Do you chew it or just swallow it? A girlfriend brought over a jar of chopped garlic for me yesterday and I "swallowed" down a teaspoonful. Don't know if that'll do anything for me..............????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Patty It certainly is plausible that the dental cleaning released bacteria and that is causing your brain fog. It sure can be hard to tell. Are you sure it isn't a herx? Have you recently started anything new to your regimen or upped the dosage of anything? the first symptom I get is brain fog when I herx. Every time I try to up the dose of enzymes, colostrum, whey, or anything that kills yeast, I herx like crazy and get terrible brain fog. By the way, didn't you tell me you flunked the neurotoxin test? If I tried anything new, it would probably be suggestions fromthe stealth virus website. Lauricidin might be a good choice as it does the same thing that antibiotics do---kills mycoplasma, as well as yeast and virus. Some people have alot of success with it. it also can causes herxes. Hope you are feeling better soon! love, kathy*~Patty~* <fdp@...> wrote: Wow, I don't know what is going on, but ever since my dental cleaning on June 24th, I have felt like crap! I mean, it isn't so bad that I can't get out and have fun, but my brain fog is definitely an issue again, don't understand why, except maybe it has something to do with my Hashimoto's. I will try upping my thyroid meds, try adding more raw garlic, try maybe a fasting detox for a few days, more coffee enemas, whatever, I just need to get rid of this brain fog as it is driving me crazy! I can't believe I am still dealing with this 5 years after explant. Crystal, do you think my dental cleaning had anything to do with this, with the release of all that bacteria? I wonder if I should have been on some kind of antibiotic? I have been so free of brain fog for so long this is really strange that I should be dealing with it again NOW! Maybe my body is giving up its last final hurrah herx, ha ha ha! Maybe I should give some antibiotics a go? I haven't ever taken any, so I am grasping at straws here... Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Nea, I'm sorry to hear that you are having such a bad flare. Have you called your rheumatologist about it? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] flare > > > > Hello everyone,I haven't posted in a while.I have had Ra for a few > years and Fibro for at least 6 years.Right now my ankles are hurting > so bad.I have lots of meds for pain but get so tired from taken them.I > should be grateful I have them And I am just you know..I am on > Methatrexate and Enbrel and celebrex for the RA right now.Doesn't yet > seem to be working but have only been on it a month or so.They say it > takes 3 months for the full effect of Enbrel.I find my self > exhausted.I am in bed ususally by 1:30 everyday and am in it til at > least 6am.This is rare that I am up this early .It is 4 right now .Got > up at 3am.Just needed to complain to someone.Also does anyone else > here have experience with Enbrel and Fatigue? Nea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 I useualy call my doctor and he will up my prednisone and that helps me get me through a fare up Sherrie--- In Rheumatoid Arthritis , " Sharon Wertz " <sbwertz@y...> wrote: > > Well, I'm experiencing my first flare since starting MTX in November. I don't know if it is the miserable weather we have been having, the stress of a recent plane trip, the phase of the moon or the depth of the Thames! > > My hands are sore and swollen, my shoulders stiff and sore and my ankles and feet painful. It is nowhere near as bad as before I started the MTX, but is worse than it has been in three months. > > About how long does a flare ususally last for most of you? > > Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 It sould be any of the things you mentioned. I always keep Prednisone on hand and take a mg or two for a few days to see it things stabilize. If they don't I ask my rheumatologist if my medicines should be changed. It seems to be a never ending battle. God bless. ----- Original Message ----- From: Sharon Wertz Rheumatoid Arthritis Sent: Saturday, January 29, 2005 3:35 AM Subject: Flare Well, I'm experiencing my first flare since starting MTX in November. I don't know if it is the miserable weather we have been having, the stress of a recent plane trip, the phase of the moon or the depth of the Thames! My hands are sore and swollen, my shoulders stiff and sore and my ankles and feet painful. It is nowhere near as bad as before I started the MTX, but is worse than it has been in three months. About how long does a flare ususally last for most of you? Sharon Quote Link to comment Share on other sites More sharing options...
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