Colonoscopy prep

[Guest guest]

I was given a special Miralax combo for the colonoscopy prep-

I was told to mix it with gatorade, powerade or vitamin water. Just

cannot be red.

Was wondering if I could this with something else that's legal that

will mask the flavor?

He gave me scripts for Zofram as well if I get nauseas.

He says the fact that my GI kept insisting on the Fleet prep for me

even after it caused me to go to the hospital is just ridiculous and

antiquated and he also said to me that it's " scary " that I haven't had

a colonoscopy in 9 years. He said the amount of inflammatory polyps

that I had should be monitored and I should get a colonoscopy once a

year. That seems a bit much to me so he settled on every 18 months.

He said with CD it's not as important to have that close monitoring as

they don't really see cancer in the small bowel. But with Colitis and

the Colon well, that's a different story.

I'm not concerned on that level- I bless this diet daily.

I am not sure what mangled mess they will find- but maybe I will be

pleasantly surprised? He didn't seem encouraged based on my medical

file.

I just left home when I was so young and have been learning to deal

with this on my own. I thank the starts I have my Husband but I

realize just how young I was and ill equipt to be so trusting of

doctors and the medical establishment and I am learning that I am

paying for that today. This makes me sad.

I really applaud all of you parents out there.

I have nightmares from my first colonoscopy that was done with no

sedation (had an endo done at the same time) and I wish I could just

let go and get over that trauma somehow. I mean I had a colonoscopy

like 2 years after that hellacious one but still I am terrified. The

more medical stuff I do the more fearful I get- I do understand myself

though- I have experienced anaphalaxsis a couple of times and throw

medical negligence in as well is it a wonder?

This diet has brought light into my life. Because of this diet I have

taken back my life and become hopeful. Because of this diet I have

learned and learning so much. Because of this diet I sought out

proper top notch medical care- with help from all of your experiences

and Grammy's SCD pals I finally feel I am in really good, capable

understanding hands. I wish I could of found this type of medical

care sooner... I realize it is such a mix of various things to get

better. Most docs won't acknowledge this diet- it's like a puzzle

though going to a doc that does see value in diet and also going to

really qualified GI's and the list goes on and on.

Yesterday in the GI's office a son was there with his mom- in his

20's. Telling her how the appt went and him telling her that the doc

said " there is no relationship to food but cut dairy out if you want

to " and the son laughed and said to his mom " I just don't get it, food

does irritate me " and I just wanted to scream " SPECIFIC CARBOHYDRATE

DIET PEOPLE " but I stayed silent as I don't want to be like a zealot.

My husband said that if this is discussed in a public place then I

can go ahead and say something. It's just so not in my nature. I

dunno I don't want people to go through the hell and suffering I have

been through!

Anyway SCD folks.. 'scuze the ranting..

Thanks for being here.

I couldn't do all of this without all of you.

Big Hugs,

Jodi

SCD 13 months

Crohn's/Colitis