Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Thank you Harold! Just reading that helps, because it proves that what you're going through isn't insanity or it doesn't make you a bad person in general. My mother thinks I'm crazy, so I'm not trying to convince them anymore. They have known me forever, so if they decide to deny me the courtesy of belief, then I don't need it from them.Harold Van Tuyl <hvantuyl@...> wrote: I found an interesting link to dealing with people who have chronic pain. Perhaps it will be useful to some of you. God bless. http://www.pain-connection.org/news/spring2005pg2.html ----- Original Message ----- From: Ms. JM Rheumatoid Arthritis Sent: Thursday, January 13, 2005 1:24 PM Subject: Re: Re: New member in SoCal/Yellow I really appreciate it. I'm doing my best to get off on my own again. Things will be a lot better then. love and peace to you all yellow <catdelouise@...> wrote: My heart goes out to you, Yellow. My husband has been phenomenal in understanding what I am going through, and I do have some friends who accept me for who I am. I know what its like though, on the other side, the family and friends who think you are lying or exagerating. Perhaps it is just their ignorance or they love you so much that they are in denial that you really are that sick. They just can't handle it. Yes, family and friends are give and take relationships but when you have chronic illness the balance is thrown way off, some people get it and some people don't. That's why we are all here for you! > > > I'm a new member and was diagnosed with RA in April 2004. I had a > horrible reaction to the Prednisone/Methotrexate and am now taking > Prednisone/Ibuprofen. This combo works ok but I still have a hard > time getting started in the morning. It takes about 4 hours for me > to use my hands/fingers and walk without a limp. I work full time > and have to get up at 3:00 am so I can make it to the office on > time - LOL. I switched medical insurance providers due to a job > change and am going to ask for either Remicade or Humira <keeping > fingers crossed>. I'm hoping one of these will give me the relief I > need as this schedule is wearing me down quickly. > > My question to the group is.... has anyone had a hard time on the > home front dealing with their spouse? Mine just doesn't seem to get > it and I've tried showing him the RA brochures, inviting him to > attend my rheumy appointments, etc. He just doesn't understand that > I can't do things I used to do (like make breakfast on the weekends > or bring him a cup of coffee) because I can't use my hands or move > around much for the first part of the day. Any advice would be > greatly appreciated =)> > > sorry i have no answer for this question but i was allso dxed in april 04 and in pain since 1999 i have been working on the same problem for a long time it seems to slowly get better with some flare ups along the way umm no good answer here sorry if you get one let me know i even tryed the spoon one it didnt even sink in ? > > later john> > > > > > > > ---------------------------------> Do you ?> The all-new My – Get yours free! > > ---------------------------------> Quote Link to comment Share on other sites More sharing options...
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