Re: Follow up to Suggestion Post & Newbie

[Guest guest]

Hello Everyone & Mark.......

My name is , Long Island , New York , 48 & 1/4 yrs old and

it has been a week on the list. It just takes me some time to decide where

to sit , I see you have room for many dxs and You all do cover quite a bit.

As far as your suggestion Mark, it is a great idea and I will take

you up on your offer to post as soon as I can condense the 15 yrs of notes...

I am still learning everyones lingo and by the way what is AP ?

Thank you

Mycoplasma spp, CFS/FMS

[Guest guest]

Hey ,

I also have a diagnosis of CFS with or caused by ? mycoplasma incognitus. I

had joint and muscle pains for many years before coming down with CFS 4 yrs

ago, but the joint problem was no big deal, not too serious. The CFS was

SERIOUS. I've been on Zithromax for 3 years and now inject human growth

hormone. This seems to be working for me. I would like to hear more about

your treatment. Also, what doctors you are seeing. I have been to Cheney

clinic and Dr. See's clinic in Los Angeles, but have just found a great

doctor in Hilton Head, SC closer to home. I have sickie friends in the New

York and Boston areas. The ones in Boston especially are at a loss for

doctors to test and treat for mycoplasma. Also, many in those areas have

chronic Lyme disease and are having a tough time.

a Carnes

> From: 1984@...

>

> Hello Everyone & Mark.......

> My name is , Long Island , New York , 48 & 1/4 yrs old

and

> it has been a week on the list. It just takes me some time to decide

where

> to sit , I see you have room for many dxs and You all do cover quite a

bit.

> As far as your suggestion Mark, it is a great idea and I will

take

> you up on your offer to post as soon as I can condense the 15 yrs of

notes...

> I am still learning everyones lingo and by the way what is AP ?

> Thank you

>

> Mycoplasma spp, CFS/FMS

>

>

>

>

>

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