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I am realizing more and more in spite of my family NOT really quite

understanding, that I HAVE to take time to walk and just sit in

nature and find peace. I end up having more energy and feeling

better when I do. Otherwise I just stress out and push and push and

end up accomplishing nothing.

Blessings!

marla

> Boy, do I ever understand what you're saying here. I find that

meditation

> helps achieve with this. I am also very sensitive and need peace.

It helps

> the mind and the soul.

>

> June

>

> >I wonder how many of us here are like the one member said - very

> >sensitive beings. I have within me a great NEED - not desire - for

> >peace, and life today is rather chaotic. I have learned to stop

and

> >try to let go of all the guilt and stress and 'hurrying' and to

> >just 'live'. I will pick up that book and give it a read along

with

> >my own writing (which I ALWAYS have to read as I try to work on my

> >novel... LOL)

> >

> >Blessings and thanks,

> >Marla

> >

> >

> >

> >SEND POST TO: fibromyalgia-cfs@y...

> >

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Guest guest

I am realizing more and more in spite of my family NOT really quite

understanding, that I HAVE to take time to walk and just sit in

nature and find peace. I end up having more energy and feeling

better when I do. Otherwise I just stress out and push and push and

end up accomplishing nothing.

Blessings!

marla

> Boy, do I ever understand what you're saying here. I find that

meditation

> helps achieve with this. I am also very sensitive and need peace.

It helps

> the mind and the soul.

>

> June

>

> >I wonder how many of us here are like the one member said - very

> >sensitive beings. I have within me a great NEED - not desire - for

> >peace, and life today is rather chaotic. I have learned to stop

and

> >try to let go of all the guilt and stress and 'hurrying' and to

> >just 'live'. I will pick up that book and give it a read along

with

> >my own writing (which I ALWAYS have to read as I try to work on my

> >novel... LOL)

> >

> >Blessings and thanks,

> >Marla

> >

> >

> >

> >SEND POST TO: fibromyalgia-cfs@y...

> >

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Guest guest

I am realizing more and more in spite of my family NOT really quite

understanding, that I HAVE to take time to walk and just sit in

nature and find peace. I end up having more energy and feeling

better when I do. Otherwise I just stress out and push and push and

end up accomplishing nothing.

Blessings!

marla

> Boy, do I ever understand what you're saying here. I find that

meditation

> helps achieve with this. I am also very sensitive and need peace.

It helps

> the mind and the soul.

>

> June

>

> >I wonder how many of us here are like the one member said - very

> >sensitive beings. I have within me a great NEED - not desire - for

> >peace, and life today is rather chaotic. I have learned to stop

and

> >try to let go of all the guilt and stress and 'hurrying' and to

> >just 'live'. I will pick up that book and give it a read along

with

> >my own writing (which I ALWAYS have to read as I try to work on my

> >novel... LOL)

> >

> >Blessings and thanks,

> >Marla

> >

> >

> >

> >SEND POST TO: fibromyalgia-cfs@y...

> >

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  • 7 years later...

Marla, I am 34. I have UC (7 years) and am SCD for four years. For me,

diet alone was not enough, because I was also sensitive to pollens and

dust mites (through the roof), mold and I became environmentally

intolerant especially to chemicals in my environment before I figured

it all out. I do not get itchy eyes, I bleed and have mood problems

like panic attacks and emotional issues.

For me, it has been SCD plus environmental changes that has helped me.

We went fragrance free, removed carpeting, added air purifiers,

filtered the water for chlorine, removed trigger foods(even some legal

ones) from my diet, minimized plastics, etc.

I have a comprehensive program which includes SCD, but SCD alone did

not work for me........it just helped so much that I did not stray

from it because straying from it was worse.

My anxiety attacks are much better under control now too as a side

bonus as I am getting well. It turns out that I have panic attacks

when my bodies " load " gets too high.

It is like a barrel and all the toxins and chemicals and other things

we do not tolerate go in. When it gets too high it will overflow and

problems happen.

For me, onions, tomatoes, oranges, brocolli (so most of the

salicylates) were problems for mood/panic. I occasionally have

tomatoes now but not the others. Cheese makes me personally " rage "

too. Black pepper was a problem for me too.....I have read it can

have mold........ anyway, that part is individual and takes a lot of

trial and error to figure out.....just because a food did that to me

oes not mean that is the problem one for her.

It has taken me four years to get everything sorted out for myself.

This is a long journey...I am not sure it can be short for some of

us........but I am off medication and thriving but I still have strict

environmental controls and do not get out a lot and I am strict SCD

with rotation to avoid becoming sensitive to more foods. I do take

antigens (like allergy shots but no preservatives) for many things

too....and a few interesting things have helped the panic but get way

too off topic for this list.......I am already fringing off topic so I

will leave it at that.

Could you homeschool during this period of time while figuring things

out? It might help take the pressure and anxiety about a fast answer

off the table. I am homeschooling, but my children are 5 and 3. It is

much more common nowadays and we like it because we can keep a

fragrance free environment for my kids who are sensitive too and I can

keep them SCD without illegals sneaking in.

The first thing I would recommend is a safe place for her to go when

she has the panic attacks....have you heard of " oasis rooms " ? Perhaps

google that.....but I know SCD is a lot on the plate right now.

Truthfully, we do not do SCD with elaborate bells and whistles

anymore. I have all the cookbooks but we rarely make " recipes "

anymore. We eat simply. The " recipes " are for special occasions. I

bake my meat in water....no black pepper since it was a problem for

me.......steamed veggies on the side. We vary the foods too so not any

one food too often. I think meal preparation is actually much simpler

on SCD than traditional once you get in that groove....where every

meal does not have to be " party " caliber. We do not have to spend all

the time doing the condiments because we have adapted to not

expect/need them anymore since I am intolerant to the mayo and the

tomatoes now.

And I am happy because I feel well.

HTH Michele

PS, I recommend that you start a food/symptoms journal for her.

Sometimes symptoms from a food show up the next day or even up to four

days later. Look for red cheeks or ears after a meal. Try to find

cause and effect. Once you can see an " on and off " to the symptoms you

are on the right track. When I started, my UC symptoms were

continuously " on " and it is so frustrating and hard at that stage to

see which things matter and which don't. Hang in there.

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