RE: Enterolab

[Guest guest]

Laurie, I had testing by Entero Lab. My blood tests and biopsy were

normal but Entero Lab showed I had antibodies to gluten, moderate

intestinal damage and 2 celiac genes. I don't know where to look to

find opinions from other medical professionals but my GI doctor trusts

Dr. Fine's testing. He actually went to medical school with him and

believes his testing to be accurate, he has sent quite a few patients to

him for diagnosing. I for one believe it is accurate because of how I

feel now that I'm on the Gluten free diet and after I got diagnosed both

my parents got tested from the lab and they both have it too and all

their problems they ever had are gone since on the diet. In March Dr.

Fine is presenting his 8 year research data and I think we will start

seeing more doctors using his lab after the word gets out.

in Kansas City

Message: 21

Date: Thu, 16 Feb 2006 07:37:55 -0500

Subject: Enterolab again.

I know we talk about Enterolab frequently, and I've sifted back through

the

files to remember what's been said here. But do you mind if I bring it

up

again?

I appreciate opinions here and experiences. I'm impressed with the

Enterolab

website-to my feeble-in-science mind the research looks sound and Dr.

Fine's

credentials are clearly sound. But of course, we have to be savvy when

we do

things online.

So let me see if I can form my question well: Where do I look besides

our

opinions for confirmation that the lab results are trustworthy? Are

there

reviews anywhere? If you're Doc/GI uses the lab, would you mind giving

me

his/her name/location?

My own (new) GI dismisses stool testing as not sensitive. I'm doing this

gluten challenge now for the biopsy-I do feel dreadful, but my symptoms

have

always been vague, only CD-ish. My only positive blood test was IGA.

I've

been eating gluten again since Monday. I feel like I'm poisoning

myself-I

had my first migraine in months 12 hours after the first bite. My bones

hurt, I can't sleep and I'm almost narcoleptic I'm so sleepy...actually,

those symptoms seem kind of clear don't they? I don't think they'd all

be a

nervous reaction to the gluten. (Long dramatic scream.)

Thanks for your feedback.

Laurie

[Guest guest]

Thanks . Now, as today goes on, I’m

so nauseous…ick. I can’t continue this gluten challenge. My ds13

who is totally convinced that being gf is for him says “duh, mom.”

He thought I was silly to do it in the first place.

I’m looking forward to seeing Dr.

Fine’s data also. Wish I could go to the conference.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Baggenstoss,

Sent: Thursday, February 16, 2006

9:54 AM

To: SillyYaks

Subject: RE: Enterolab

Laurie, I had testing by

Entero Lab. My blood tests and biopsy were

normal but Entero Lab showed I had antibodies to

gluten, moderate

intestinal damage and 2 celiac genes. I

don't know where to look to

find opinions from other medical professionals but

my GI doctor trusts

Dr. Fine's testing. He actually went to

medical school with him and

believes his testing to be accurate, he has sent

quite a few patients to

him for diagnosing. I for one believe it is

accurate because of how I

feel now that I'm on the Gluten free diet and

after I got diagnosed both

my parents got tested from the lab and they both

have it too and all

their problems they ever had are gone since on the

diet. In March Dr.

Fine is presenting his 8 year research data and I

think we will start

seeing more doctors using his lab after the word

gets out.

in Kansas

City

Message:

21

Date: Thu, 16 Feb 2006 07:37:55 -0500

From: " Laurie Bilyeu "

Subject: Enterolab again.

I know we talk about Enterolab frequently, and

I've sifted back through

the

files to remember what's been said here. But do

you mind if I bring it

up

again?

I appreciate opinions here and experiences. I'm

impressed with the

Enterolab

website-to my feeble-in-science mind the research

looks sound and Dr.

Fine's

credentials are clearly sound. But of course, we

have to be savvy when

we do

things online.

So let me see if I can form my question well:

Where do I look besides

our

opinions for confirmation that the lab results are

trustworthy? Are

there

reviews anywhere? If you're Doc/GI uses the lab,

would you mind giving

me

his/her name/location?

My own (new) GI dismisses stool testing as not

sensitive. I'm doing this

gluten challenge now for the biopsy-I do feel

dreadful, but my symptoms

have

always been vague, only CD-ish. My only positive

blood test was IGA.

I've

been eating gluten again since Monday. I feel like

I'm poisoning

myself-I

had my first migraine in months 12 hours after the

first bite. My bones

hurt, I can't sleep and I'm almost narcoleptic I'm

so sleepy...actually,

those symptoms seem kind of clear don't they? I

don't think they'd all

be a

nervous reaction to the gluten. (Long dramatic

scream.)

Thanks for your feedback.

Laurie

[Guest guest]

I'm proud of you for even trying! I'm too chicken to "go back to the dark side" as we say at our side...hehe Actually I accidentally glutened and reglutened myself over the weekend...since I have no willpower! : ) My hubbie made the rice crispie squares with the Coco dynobites that say WHEAT on it. They are so good I kept eating them even though.....well...my nose is raw from it dripping and my head hurt and I was soo soo sleepy!! Stopped eating them and in about a day I'm 75% better!! ugh I was hoping it wasn't true. kathiLaurie Bilyeu wrote: Thanks . Now, as today goes on, I’m so nauseous…ick. I can’t continue this gluten challenge. My ds13 who is totally convinced that being gf is for him says “duh, mom.” He thought I was silly to do it in the first place. I’m looking forward to seeing Dr. Fine’s data also. Wish I could go to the conference. Laurie lbilyeu@... From: SillyYaks [mailto:SillyYaks ] On Behalf Of Baggenstoss, Sent: Thursday, February 16, 2006 9:54 AMTo: SillyYaks Subject: RE: Enterolab Laurie, I had testing by Entero Lab. My blood tests and biopsy werenormal but Entero Lab showed I had antibodies to gluten, moderateintestinal damage and 2 celiac genes. I don't know where to look tofind opinions from other medical professionals but my GI doctor trustsDr. Fine's testing. He actually went to medical school with him andbelieves his testing to be accurate, he has sent quite a few patients tohim for diagnosing. I for one believe it is accurate because of how Ifeel now that I'm on the Gluten free diet and after I got diagnosed bothmy parents got tested from the lab and they both have it too and alltheir problems they ever had are gone since on the diet.

In March Dr.Fine is presenting his 8 year research data and I think we will startseeing more doctors using his lab after the word gets out. in Kansas CityMessage: 21 Date: Thu, 16 Feb 2006 07:37:55 -0500 Subject: Enterolab again.I know we talk about Enterolab frequently, and I've sifted back throughthefiles to remember what's been said here. But do you

mind if I bring itupagain? I appreciate opinions here and experiences. I'm impressed with theEnterolabwebsite-to my feeble-in-science mind the research looks sound and Dr.Fine'scredentials are clearly sound. But of course, we have to be savvy whenwe dothings online.So let me see if I can form my question well: Where do I look besidesouropinions for confirmation that the lab results are trustworthy? Aretherereviews anywhere? If you're Doc/GI uses the lab, would you mind givingmehis/her name/location? My own (new) GI dismisses stool testing as not sensitive. I'm doing thisgluten challenge now for the biopsy-I do feel dreadful, but my symptomshavealways been vague, only CD-ish. My only positive blood test was IGA.I'vebeen eating gluten again since Monday. I feel like I'm poisoningmyself-Ihad my first migraine in months 12 hours after the first bite. My boneshurt, I can't sleep and I'm almost narcoleptic I'm so sleepy...actually,those symptoms seem kind of clear don't they? I don't think they'd allbe anervous reaction to the gluten. (Long dramatic scream.)Thanks for your feedback.Laurie

[Guest guest]

The dark side is right, fer sure. And why

did your hubbie make rice crispie squares with poisonous cereal? Shame on him. J

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Kathi Sandler

Sent: Thursday, February 16, 2006

11:20 AM

To: SillyYaks

Subject: RE: Enterolab

I'm proud of you for even trying! I'm too chicken to " go

back to the dark side "

as we say at our side...hehe Actually I accidentally glutened and

reglutened

myself over the weekend...since I have no willpower! :

) My hubbie made

the rice crispie squares with the Coco

dynobites that say WHEAT on it.

They are so good I kept eating them even though.....well...my nose is

raw

from it dripping and my head hurt and I was soo soo sleepy!!

Stopped eating

them and in about a day I'm 75% better!! ugh I was hoping

it wasn't true.

kathi

Laurie Bilyeu

wrote:

Thanks . Now, as today goes on,

I’m so nauseous…ick. I can’t continue this gluten challenge.

My ds13 who is totally convinced that being gf is for him says “duh,

mom.” He thought I was silly to do it in the first place.

I’m looking forward to seeing Dr.

Fine’s data also. Wish I could go to the conference.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Baggenstoss,

Sent: Thursday, February 16, 2006

9:54 AM

To: SillyYaks

Subject: RE: Enterolab

Laurie, I had testing by

Entero Lab. My blood tests and biopsy were

normal but Entero

Lab showed I had antibodies to gluten, moderate

intestinal damage and 2 celiac genes. I

don't know where to look to

find opinions from other medical professionals but

my GI doctor trusts

Dr. Fine's testing. He actually went to

medical school with him and

believes his testing to be accurate, he has sent

quite a few patients to

him for diagnosing. I for one believe it is

accurate because of how I

feel now that I'm on the Gluten free diet and

after I got diagnosed both

my parents got tested from the lab and they both

have it too and all

their problems they ever had are gone since on the

diet. In March Dr.

Fine is presenting his 8 year research data and I

think we will start

seeing more doctors using his lab after the word

gets out.

in Kansas City

Message:

21

Date: Thu, 16 Feb 2006 07:37:55 -0500

From: " Laurie Bilyeu "

Subject: Enterolab again.

I know we talk about Enterolab frequently, and

I've sifted back through

the

files to remember what's been said here. But do

you mind if I bring it

up

again?

I appreciate opinions here and experiences. I'm

impressed with the

Enterolab

website-to my feeble-in-science mind the research

looks sound and Dr.

Fine's

credentials are clearly sound. But of course, we

have to be savvy when

we do

things online.

So let me see if I can form my question well:

Where do I look besides

our

opinions for confirmation that the lab results are

trustworthy? Are

there

reviews anywhere? If you're Doc/GI uses the lab,

would you mind giving

me

his/her name/location?

My own (new) GI dismisses stool testing as not

sensitive. I'm doing this

gluten challenge now for the biopsy-I do feel

dreadful, but my symptoms

have

always been vague, only CD-ish. My only positive

blood test was IGA.

I've

been eating gluten again since Monday. I feel like

I'm poisoning

myself-I

had my first migraine in months 12 hours after the

first bite. My bones

hurt, I can't sleep and I'm almost narcoleptic I'm

so sleepy...actually,

those symptoms seem kind of clear don't they? I

don't think they'd all

be a

nervous reaction to the gluten. (Long dramatic

scream.)

Thanks for your feedback.

Laurie

[Guest guest]

Confirmation is a good thing, for sure. I

just think that my reaction this week is more clear than any endo would be! I

do NOT look forward to accidental glutenening now that I see what kind of

reaction I have, though.

Yes, next year, GF chocolates (from See’s)

and flowers. Even if I have to buy them myself!

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Lori

Sent: Friday, February 17, 2006

1:57 PM

To: SillyYaks

Subject: Re: Stop the

Mc's Madness

Thanks Laurie for reminding

me that I just don't care what the endo

might say. I go back and forth between

wanting some solid data

(getting the endo) or just being relieved that I

feel so much better

(leave well enough alone). Every couple of

months I start to dwell

on it again, think maybe the gluten isn't really

the problem, and get

complacent in my diet. Then I get accidently

glutened and come to my

senses and forget all about needing any

confirmation. Even my doctor

referred to it as making a donation to Enterolab

in my case. All the

other numbers (iron is almost normal!!!!!) look so

good now.

If I had it to do over again, I'd definitely get

it done before

trying the elimination diet. But now, no

way. There's no bathroom

so beautiful that I'd want to have to live in it.

Hope you're feeling better soon! And next

V-day, maybe just

chocolate and flowers?

Lori in ATL

>

> OK! :-) Here's how I spent Valentine's

day-eating gluten on

purpose. I

> mentioned earlier this week that the GI wants

to do the endo

because he

> thought my bloodwork was inconclusive, so I

embarked on a 6 week

gluten

> spree. I started Monday night. Tuesday I had

a migraine. Wed I was

grumbly

> in my tumbly, and achy up my spine. Thursday

I spent with vomiting

and

> diarrhea, total body/joint aches, dizzy.

Whew!

>

>

>

> Do I need to even say that I won't have that

endo? I think I have

my answer,

> and will cancel that appointment! I'd been GF

for about 6 weeks

which was

> evidently enough time for my body to find a

more balanced place to

be. I

> never had vomiting and diarrhea with gluten

before, so it must have

been a

> long fall.

>

>

>

> I feel better this morning, but think I'll

just have a cup of tea.

Maybe a

> bowl of rice. Some applesauce.

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> From: SillyYaks

[mailto:SillyYaks ]

On Behalf

> Of onesillyyak

> So, how about let's move our dicussions to

something else for now?

> Wonderful GF Valentine's experiences, any

great new GF products you

> have tried?

>

>

>

>

>

>

>