New Member

[Guest guest]

Hi Caroline,

Welcome to the group, though I must say I wish I never got to say that.

Where in the UK are you?

Which hospital treated you?

Most of us UK members have ended up going out o Germany for treatment as the

Doctor out there is amazing and it is a lot cheaper than you might think.

I believe a is the only one of us who has been happy with her

treatment in the UK and I am sure she'll be in touch.

Any questions or if you just need to winge....

Take Care

Lesia

[Guest guest]

Hi Poly:

Thank you for your encouragement with regards to my lining. This is my

big grey area. I initially thought that any uterine lining could

easily be rebuilt but it seems that there is alot of controversy on

which drug to use and whether it should be oral or suppository.

I have not been diagosed with Asherman's in any official way. I was

told very limited information and my ob/gyn said that my case was

beyond his expertise. He said 1)the walls of my uterus are stuck

together and 2)it does not look like the lining is healthy. He was as

vague as that!

I am so angry that the doctor who removed my septum never gave me any

post-op care. He just sent me off thinking everything was actually

better for me since before my birth I had 2 d & c's due to miscarriages.

I thought, horray, no more miscarriages! He never even suggested that

I could have no uterine cavity. He removed the septum without even

talking to me first. I was opened up so he went ahead and removed it.

I am wondering though, could those 2 d & c's I had done some damage to

my lining or is that impossible since I had a full-term pregnancy

after them?

I finally contacted Dr. Vilos offfic in London at the St. ph's

Health Centre but his phone number is actually (519)646-6100. I called

and confirmed that he could treat Asherman's but my current ob/gyn

must decide whether or not to refer me to him.

I will try to find Dr. Leyland. I hope he is closer to where I live.

If he is in Toronto then I can easily travel there from my area which

is borough, Ontario.

I want to fill out your questionnaire after I get my second opinion

and ask more questions.

Thank you kindly,

> ,

> Welcome to our group which is sadly growing by the day. Have you

decided where you are going for a second opinion? I hope you find the

best doctor you can and if at all possible, perhaps you could ask an A

list doctor for a consultation?

>

> If you are having normal periods, then my guess is that your lining

is not harmed. Are you sure you have ashermans? Or perhaps it is

very mild?? I wonder if our ob/gyn should have used a balloon when he

removed your septum so as to avoid your uterine walls from joining.

>

> Some of the best Canadian doctors we have heard about in this group

are Dr Leyland and Dr Vilos. There are quite a few Canadian members

so I hope they can give you some advise on who they have gone to,

especially those in Ontario.

>

> If you have not send me your profile questionnaire yet, can you

please send it asap because we are preparing the latest profile and I

would like to add you to the list also.

>

> Do ask the group any questions you feel you need answering. I'm

sure someone will email you soon with an answer.

>

> Poly

[Guest guest]

Hello Caroline,

Sorry to hear your story - it sounds very similar to lots of the women's

experiences. I had retained placenta, followed by infection and D and C

which caused my AS. I am also from U.K. - London. Where are you? I had been

seeing Prof. Sutton in Guildford but after two unsuccessful surgeries he

referred me to Mr.Lower in Harley Street (He is also the gynae consultant at

Barts) I was very pleased with Mr. Lower's expertise and he says he treats

many AS patients each year. Unfortunately I haven't made contact with any A

list drs. who know him so he can't be put on the list as an A list dr. ( A

dr. can only be put on the A list if recommended by another A list dr.) I do

intend to put him on the B list when I have checked he doesn't mind however

as I have personally been really pleased with his treatment. I had surgery

with him six weeks ago and the cavity now looks very clear and in good shape

for another pregnancy. The nearest A list dr is in Germany. Many UK women go

to Dr Gallinat who is excellent by all accounts. Where have you been having

treatment? Where was the original D and C?

Hope this is of some help - please ask if you have any more questions,

a

[Guest guest]

Hello Caroline,

Sorry to hear your story - it sounds very similar to lots of the women's

experiences. I had retained placenta, followed by infection and D and C

which caused my AS. I am also from U.K. - London. Where are you? I had been

seeing Prof. Sutton in Guildford but after two unsuccessful surgeries he

referred me to Mr.Lower in Harley Street (He is also the gynae consultant at

Barts) I was very pleased with Mr. Lower's expertise and he says he treats

many AS patients each year. Unfortunately I haven't made contact with any A

list drs. who know him so he can't be put on the list as an A list dr. ( A

dr. can only be put on the A list if recommended by another A list dr.) I do

intend to put him on the B list when I have checked he doesn't mind however

as I have personally been really pleased with his treatment. I had surgery

with him six weeks ago and the cavity now looks very clear and in good shape

for another pregnancy. The nearest A list dr is in Germany. Many UK women go

to Dr Gallinat who is excellent by all accounts. Where have you been having

treatment? Where was the original D and C?

Hope this is of some help - please ask if you have any more questions,

a

[Guest guest]

, I remembered there is another doctor in Canada whom has been mentioned in this group for Ashermans and his name is Dr Cadesky. Perhaps you can contact him too??

Are you saying that the tel number of Dr Vilos is wrong on our database? If so, can you edit it and make the correction? I'd appreciate your help if you can do this for me if it is wrong.

I will be waiting for your questionnaire .

Poly

[Guest guest]

, I remembered there is another doctor in Canada whom has been mentioned in this group for Ashermans and his name is Dr Cadesky. Perhaps you can contact him too??

Are you saying that the tel number of Dr Vilos is wrong on our database? If so, can you edit it and make the correction? I'd appreciate your help if you can do this for me if it is wrong.

I will be waiting for your questionnaire .

Poly

[Guest guest]

, I remembered there is another doctor in Canada whom has been mentioned in this group for Ashermans and his name is Dr Cadesky. Perhaps you can contact him too??

Are you saying that the tel number of Dr Vilos is wrong on our database? If so, can you edit it and make the correction? I'd appreciate your help if you can do this for me if it is wrong.

I will be waiting for your questionnaire .

Poly

[Guest guest]

Corrina,

Thanks very much for your email.

Now that my partner and I are past the initial shock of the

diagnosis, we are trying to decide how to proceed. Now that I have

thouroughly scanned the website, I can see the importance of using a

doctor that is experienced in dealing with Asherman's. We may have

the right guy now - but we are quite gun shy right now.

I called this 2nd Dr. and explained my situation (no period for 3

mths after d & c) and he called me in within 1 week. He told me that

although he has a 6 month waiting list the reason that he wanted to

see me right away is because he suspectd Asherman's. He explained

the importance of moving quickly and since my estorgen level was at

an extrmemly low level he out me on 6 mg of Estrace/day to see if

that would rebuild my lining before he could see me for a

sonohistogram. When I went in for the procedure I did of some growth

but very little. He spent over an hour trying to perform the

sonohistogram but couldn't get past the cervix/uterin opening. The

next few days after that I did pass some scar tissue which he thought

that was dislodged from the procedure.

So right now go for a second opinion to see his mentor who is the

head of obstetrics/gynocolgy at one of our local hospitals. He says

that they both have experience dealing with Asherman's but since I

don't have a clear pathway I am extremely nervous about taking the

next step. He seems to be doing everything right, unlike Dr. #1 who

would barely take our calls and was quite rude to us.

WE ARE A BIT CONFUSED RIGHT NOW AND CANADA DOESN'T APPEAR TO HAVE A

DR. RATING SYSTEM.

Your insights would be appreciated.

[Guest guest]

Corrina,

Thanks very much for your email.

Now that my partner and I are past the initial shock of the

diagnosis, we are trying to decide how to proceed. Now that I have

thouroughly scanned the website, I can see the importance of using a

doctor that is experienced in dealing with Asherman's. We may have

the right guy now - but we are quite gun shy right now.

I called this 2nd Dr. and explained my situation (no period for 3

mths after d & c) and he called me in within 1 week. He told me that

although he has a 6 month waiting list the reason that he wanted to

see me right away is because he suspectd Asherman's. He explained

the importance of moving quickly and since my estorgen level was at

an extrmemly low level he out me on 6 mg of Estrace/day to see if

that would rebuild my lining before he could see me for a

sonohistogram. When I went in for the procedure I did of some growth

but very little. He spent over an hour trying to perform the

sonohistogram but couldn't get past the cervix/uterin opening. The

next few days after that I did pass some scar tissue which he thought

that was dislodged from the procedure.

So right now go for a second opinion to see his mentor who is the

head of obstetrics/gynocolgy at one of our local hospitals. He says

that they both have experience dealing with Asherman's but since I

don't have a clear pathway I am extremely nervous about taking the

next step. He seems to be doing everything right, unlike Dr. #1 who

would barely take our calls and was quite rude to us.

WE ARE A BIT CONFUSED RIGHT NOW AND CANADA DOESN'T APPEAR TO HAVE A

DR. RATING SYSTEM.

Your insights would be appreciated.

[Guest guest]

Welcome ,

I'm glad you found the AS site but sorry you have to be here. Many

of us found this site after a wonderful pregnancy followed by

retained placenta and a d & c. Others have found this site after a

miscarriage and d & c. And others due to uterine surgery (c-section).

You can read our stories in the " Our Stories " file section.

You will probably get many posts from other members who will say the

following, but what I am and what Audrey has said is true, your

specialist should have never recommended you get pregnant with only

a 50% repaired uterus. Many of our A-list doctors (which can be

found in the database section of the site) would NEVER recommend

getting pregnant with only 50%. As Audrey mentioned, there just

isn't enough room for the baby to grow and there is an increased

risk of miscarriage.

I have been a member since May 2002 after having been diagnosed in

March 2002. My story is almost the same as yours except that my son

was born December 2000 and I had retained placenta followed by a d & c

seven weeks later. I also had an untreated infection for another 2

weeks after the d & c. I breastfed my son for 9 months and when I was

done, no period. We did the same drug protocols and still no period.

I was finally referred to an RE, who tried an HSG and couldn't get

the catheter into my uterus. He did a few ultrasounds and diagnosed

me with severe AS and told me to find a surrogate or adopt. Instead,

I found this group and have also found an A-list doctor in Chicago,

Dr. Valle. If there is one thing I could recommend to you that would

be to find an A-list doctor ASAP even if he is in another state or

country. There are very few doctors in the world who treat this

condition and you need to be seen by the best.

Again, welcome to the group and please ask as many questions as

possible. This is a wonderful support group with many wise women!

Sara O.

[Guest guest]

Welcome ,

I'm glad you found the AS site but sorry you have to be here. Many

of us found this site after a wonderful pregnancy followed by

retained placenta and a d & c. Others have found this site after a

miscarriage and d & c. And others due to uterine surgery (c-section).

You can read our stories in the " Our Stories " file section.

You will probably get many posts from other members who will say the

following, but what I am and what Audrey has said is true, your

specialist should have never recommended you get pregnant with only

a 50% repaired uterus. Many of our A-list doctors (which can be

found in the database section of the site) would NEVER recommend

getting pregnant with only 50%. As Audrey mentioned, there just

isn't enough room for the baby to grow and there is an increased

risk of miscarriage.

I have been a member since May 2002 after having been diagnosed in

March 2002. My story is almost the same as yours except that my son

was born December 2000 and I had retained placenta followed by a d & c

seven weeks later. I also had an untreated infection for another 2

weeks after the d & c. I breastfed my son for 9 months and when I was

done, no period. We did the same drug protocols and still no period.

I was finally referred to an RE, who tried an HSG and couldn't get

the catheter into my uterus. He did a few ultrasounds and diagnosed

me with severe AS and told me to find a surrogate or adopt. Instead,

I found this group and have also found an A-list doctor in Chicago,

Dr. Valle. If there is one thing I could recommend to you that would

be to find an A-list doctor ASAP even if he is in another state or

country. There are very few doctors in the world who treat this

condition and you need to be seen by the best.

Again, welcome to the group and please ask as many questions as

possible. This is a wonderful support group with many wise women!

Sara O.

[Guest guest]

Welcome ,

I'm glad you found the AS site but sorry you have to be here. Many

of us found this site after a wonderful pregnancy followed by

retained placenta and a d & c. Others have found this site after a

miscarriage and d & c. And others due to uterine surgery (c-section).

You can read our stories in the " Our Stories " file section.

You will probably get many posts from other members who will say the

following, but what I am and what Audrey has said is true, your

specialist should have never recommended you get pregnant with only

a 50% repaired uterus. Many of our A-list doctors (which can be

found in the database section of the site) would NEVER recommend

getting pregnant with only 50%. As Audrey mentioned, there just

isn't enough room for the baby to grow and there is an increased

risk of miscarriage.

I have been a member since May 2002 after having been diagnosed in

March 2002. My story is almost the same as yours except that my son

was born December 2000 and I had retained placenta followed by a d & c

seven weeks later. I also had an untreated infection for another 2

weeks after the d & c. I breastfed my son for 9 months and when I was

done, no period. We did the same drug protocols and still no period.

I was finally referred to an RE, who tried an HSG and couldn't get

the catheter into my uterus. He did a few ultrasounds and diagnosed

me with severe AS and told me to find a surrogate or adopt. Instead,

I found this group and have also found an A-list doctor in Chicago,

Dr. Valle. If there is one thing I could recommend to you that would

be to find an A-list doctor ASAP even if he is in another state or

country. There are very few doctors in the world who treat this

condition and you need to be seen by the best.

Again, welcome to the group and please ask as many questions as

possible. This is a wonderful support group with many wise women!

Sara O.

[Guest guest]

Dear Lori,

I'm sorry to hear about your voice problems, sounds especially odd

since your surgeon was working on the remaining side -- usually

lower complication rates. Unfort. I cannot provide any voice info.,

but am sure someone else on the site will.

I am personally curious about your completion surgery after a

partial 6 weeks prior. Did something in your surgery/pathology

indicate the need to take out the remaining side when a lobectomy

seemed initially adequate?

Gosh - good luck with your voice recovery. I am sure you are very

frustrated. I had a lobectomy on 12/13 and began synthroid on 12/14,

seems we are both getting adjusted to synthroid in the same time

frame. I seem to have a dizzy spell every day, but may be unrelated

to the drug. I am 37 w/2 young boys, so seems we have a lot in

common.

Jill

> Happy New Year to All!

>

> I'm a 39 yr old mother of 3. Newly dx w/ Papillary thyroid cancer.

> Right lobectomy performed on 10/28/02. Completion TT on 12/16/02.

> Surgeon started me on .112 Synthroid on 12/17/02. Follow up w/

> surgeon yesterday. I have no voice since surgery #2.....he has

> released me to Endo for after care. I will return to Surgeon in 2

> weeks to follow up with vocal problems.

> Endo wants me to discontinue Synthroid on 1/6/03 to prepare for

RAI.

>

> I have a question....since i have obviously got something going

on

> here with laryngeal nerve damage or at least a fair amount of

> inflammation in there to have created this lack of voice....should

I

> wait on the RAI? I certainly do not wish to worsen this problem.

> Will it make a difference in long term outcome?

>

> Realising of course that no one is certain what the " outcome " ever

> will be.... has anyone here had problems like this?..Did you go

> forward with RAI?..How long did the lack of voice last? Surgeon

> insists there was no trauma during surgery to the nerves...of

> course. If I continue with this problem...how will i know what

the

> Real cause is?

>

> Thanks in Advance for listening while I ramble on here!

>

> Lori

[Guest guest]

Dear Lori and Jill,

As you read the posts, I am sure that you'll find that people have a

wide range of symptoms. On the one hand, be proactive and check out

the voice problem as you are your best advocate. On the other hand,

think of the hormonal shifts you are going through--removed thyroid,

on meds and then off, etc. Dizzy spells, hair loss, weight

fluctuations, headaches, muscle aches, menstrual

irregularities...these are all possibilities. Think similar to being

pregnant--odd symptoms that come and go. Anyway, I say this in

hindsight because it took me a good two years to learn this. Best

wishes on your journey, keep asking good questions and searching for

answers and stay as balanced as you can along the way!

Barbie, 34

2/00 TT pap

4/00 RAI 150 mCi

4/01, 12/02 clean scans

> > Happy New Year to All!

> >

> > I'm a 39 yr old mother of 3. Newly dx w/ Papillary thyroid

cancer.

> > Right lobectomy performed on 10/28/02. Completion TT on 12/16/02.

> > Surgeon started me on .112 Synthroid on 12/17/02. Follow up w/

> > surgeon yesterday. I have no voice since surgery #2.....he has

> > released me to Endo for after care. I will return to Surgeon in 2

> > weeks to follow up with vocal problems.

> > Endo wants me to discontinue Synthroid on 1/6/03 to prepare for

> RAI.

> >

> > I have a question....since i have obviously got something going

> on

> > here with laryngeal nerve damage or at least a fair amount of

> > inflammation in there to have created this lack of

voice....should

> I

> > wait on the RAI? I certainly do not wish to worsen this problem.

> > Will it make a difference in long term outcome?

> >

> > Realising of course that no one is certain what the " outcome "

ever

> > will be.... has anyone here had problems like this?..Did you

go

> > forward with RAI?..How long did the lack of voice last? Surgeon

> > insists there was no trauma during surgery to the nerves...of

> > course. If I continue with this problem...how will i know what

> the

> > Real cause is?

> >

> > Thanks in Advance for listening while I ramble on here!

> >

> > Lori

[Guest guest]

Dear Lori and Jill,

As you read the posts, I am sure that you'll find that people have a

wide range of symptoms. On the one hand, be proactive and check out

the voice problem as you are your best advocate. On the other hand,

think of the hormonal shifts you are going through--removed thyroid,

on meds and then off, etc. Dizzy spells, hair loss, weight

fluctuations, headaches, muscle aches, menstrual

irregularities...these are all possibilities. Think similar to being

pregnant--odd symptoms that come and go. Anyway, I say this in

hindsight because it took me a good two years to learn this. Best

wishes on your journey, keep asking good questions and searching for

answers and stay as balanced as you can along the way!

Barbie, 34

2/00 TT pap

4/00 RAI 150 mCi

4/01, 12/02 clean scans

> > Happy New Year to All!

> >

> > I'm a 39 yr old mother of 3. Newly dx w/ Papillary thyroid

cancer.

> > Right lobectomy performed on 10/28/02. Completion TT on 12/16/02.

> > Surgeon started me on .112 Synthroid on 12/17/02. Follow up w/

> > surgeon yesterday. I have no voice since surgery #2.....he has

> > released me to Endo for after care. I will return to Surgeon in 2

> > weeks to follow up with vocal problems.

> > Endo wants me to discontinue Synthroid on 1/6/03 to prepare for

> RAI.

> >

> > I have a question....since i have obviously got something going

> on

> > here with laryngeal nerve damage or at least a fair amount of

> > inflammation in there to have created this lack of

voice....should

> I

> > wait on the RAI? I certainly do not wish to worsen this problem.

> > Will it make a difference in long term outcome?

> >

> > Realising of course that no one is certain what the " outcome "

ever

> > will be.... has anyone here had problems like this?..Did you

go

> > forward with RAI?..How long did the lack of voice last? Surgeon

> > insists there was no trauma during surgery to the nerves...of

> > course. If I continue with this problem...how will i know what

> the

> > Real cause is?

> >

> > Thanks in Advance for listening while I ramble on here!

> >

> > Lori

[Guest guest]

Hi Lori;

welcome to the group no one wants to have to join. RAI doesn't

always have to be right away, i went 8 months between surgery and RAI

with no ill effects. I'm not a doctor and don't know if RAI would

make the voice worse, although I know that when I'm hypo my voice

gets hoarse and scratchy and weak.

Is your surgeon an ENT? if not, find a good ENT who can evaluate

your vocal situation. My voice disaappears when hypo and also as a

side effect of one of my asthma inhalers that can thin the vocal

cords and the combination of the two leaves me squeeking... Get your

vocal cord situation checked out.. is it nerve damage? vocal cord

damage? inflamation? there are lots of ways to proceed.

good luck!

barb

tt 8/99 rai 4/00 clean scans 12/00, 5/02

> Happy New Year to All!

>

> I'm a 39 yr old mother of 3. Newly dx w/ Papillary thyroid cancer.

> Right lobectomy performed on 10/28/02. Completion TT on 12/16/02.

> Surgeon started me on .112 Synthroid on 12/17/02. Follow up w/

> surgeon yesterday. I have no voice since surgery #2.....he has

> released me to Endo for after care. I will return to Surgeon in 2

> weeks to follow up with vocal problems.

> Endo wants me to discontinue Synthroid on 1/6/03 to prepare for

RAI.

>

> I have a question....since i have obviously got something going on

> here with laryngeal nerve damage or at least a fair amount of

> inflammation in there to have created this lack of voice....should

I

> wait on the RAI? I certainly do not wish to worsen this problem.

> Will it make a difference in long term outcome?

>

> Realising of course that no one is certain what the " outcome " ever

> will be.... has anyone here had problems like this?..Did you go

> forward with RAI?..How long did the lack of voice last? Surgeon

> insists there was no trauma during surgery to the nerves...of

> course. If I continue with this problem...how will i know what the

> Real cause is?

>

> Thanks in Advance for listening while I ramble on here!

>

> Lori

[Guest guest]

Hi Lori;

welcome to the group no one wants to have to join. RAI doesn't

always have to be right away, i went 8 months between surgery and RAI

with no ill effects. I'm not a doctor and don't know if RAI would

make the voice worse, although I know that when I'm hypo my voice

gets hoarse and scratchy and weak.

Is your surgeon an ENT? if not, find a good ENT who can evaluate

your vocal situation. My voice disaappears when hypo and also as a

side effect of one of my asthma inhalers that can thin the vocal

cords and the combination of the two leaves me squeeking... Get your

vocal cord situation checked out.. is it nerve damage? vocal cord

damage? inflamation? there are lots of ways to proceed.

good luck!

barb

tt 8/99 rai 4/00 clean scans 12/00, 5/02

> Happy New Year to All!

>

> I'm a 39 yr old mother of 3. Newly dx w/ Papillary thyroid cancer.

> Right lobectomy performed on 10/28/02. Completion TT on 12/16/02.

> Surgeon started me on .112 Synthroid on 12/17/02. Follow up w/

> surgeon yesterday. I have no voice since surgery #2.....he has

> released me to Endo for after care. I will return to Surgeon in 2

> weeks to follow up with vocal problems.

> Endo wants me to discontinue Synthroid on 1/6/03 to prepare for

RAI.

>

> I have a question....since i have obviously got something going on

> here with laryngeal nerve damage or at least a fair amount of

> inflammation in there to have created this lack of voice....should

I

> wait on the RAI? I certainly do not wish to worsen this problem.

> Will it make a difference in long term outcome?

>

> Realising of course that no one is certain what the " outcome " ever

> will be.... has anyone here had problems like this?..Did you go

> forward with RAI?..How long did the lack of voice last? Surgeon

> insists there was no trauma during surgery to the nerves...of

> course. If I continue with this problem...how will i know what the

> Real cause is?

>

> Thanks in Advance for listening while I ramble on here!

>

> Lori

[Guest guest]

Hi, and welcome to the group!

> I was diagnosed with " highly suspicious " nodule Dec. 19,

> and had my thyroidectomy (TT?)

Yep!

> on Jan. 9th. I'm seeing my endo this

> week to schedule my RAI, and I'm really curious to what the " hypo "

> symtoms are-I don't think I'm feeling any yet, though I did feel

> very " spacy " this morning after taking two excedrin for a sinus

> headache. Can someone tell me what to expect. It's got me pretty

> nervous reading some of the entries.....are there any methods to

> reduce any of it? (diet, vitamins, anything?)

Here's a link to info on possible hypo symptoms:

http://groups.yahoo.com/group/Thyca/message/11671

Telling you what to expect is a bit more difficult - it's a real YMMV

(your mileage may vary). A a small percentage of people breeze through

it, a small percentage are really miserable, and the rest of us are

somewhere in between. I think it's important to be AWARE of the

symptoms, so that if you do get them, you're not freaked out, but not

to EXPECT them.

While what symptoms you get and the severity of them isn't something

you can control, there are some things that help your general physical

and mental state during that time - taking naps, having a good diet,

taking vitamins, taking naps, and getting some exercise (even if all

you're able to do is a bit of walking). Did I mention taking naps?

:-) Seriously, I find that when I'm hypo I need about 10 hours of

sleep a night.

That spacy feeling you got this moring may or may not be from being

hypo, given the sinus headache, but it's certainly a symptom many of

us have :-)

Cheers,

Alisa

Currently - 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

[Guest guest]

,

I hate to be so blunt, but there are many things that cause early mc. If your RE could not name a few.....find a new RE. Also, you need to ask him how many cases of AS he sees in a year. A few is not enough! Please be sure to find an experienced AS doctor! Your success usuallt concurs with the docs experience.

I hope you get some answers soon. I am glad you found us. Keep asking all of us questions, and do not be afraid to question your doctor. Really, they are not all experts!

Best Wishes,

"scrapple222000 wrote:

Hi everyone....First I want to express my greatfulness to Poly that this informative community exists... Also I want to express my sadness for all of you that lurk here.My name is and I live in FLorida with my husband 2 cats and a dog. (my only children)I got the courage to see a RE after my third miscarriage. My first miscarriage was 5 weeks, second was 7 weeks and third miscarriage; which was removed via DNC at 12 weeks, but really should have been found out at 8 weeks (darn doctor was cheap about giving ultrasounds!!) . I feel rather lost and frightened. I went to the RE to find out what was causing my miscarriages.. What he found was a whole new set of questions... I took the HSG test and was diagnosed with Asherman's.. Seems like my doctor is quite aware of this disease, because on the test pamphlet, it mentions that HSG is used for diagnosing tubal defects etc. etc. and also included Asherman's syndrome. My HSG showed a filling defect in the upper left corner (the triangle corner completely did not show up on the test, albeit neither did the left tube, due to the adhesion) I asked him if it was caused by the dnc and he said most probobly... I am so sad right now, I wanted reason for recurrent miscarriages and all I got was another obsticle. I am greatful though that I did get a period following my DNC, lets just hope I get another one. Anyhow... I am scheduled for a hysteroscopy and a lap at the same time next month. One part of me hopes the Ashermans was caused by something other than this DNC, hence it would explain my miscarriages. Anyone know of anything else that could cause this? perhaps a STD or a miscarriage that went unnoticed? Anyhow.. I dont know what else to write, I will keep you posted on my surgeries and any new info as it comes to me.

[Guest guest]

,

I hate to be so blunt, but there are many things that cause early mc. If your RE could not name a few.....find a new RE. Also, you need to ask him how many cases of AS he sees in a year. A few is not enough! Please be sure to find an experienced AS doctor! Your success usuallt concurs with the docs experience.

I hope you get some answers soon. I am glad you found us. Keep asking all of us questions, and do not be afraid to question your doctor. Really, they are not all experts!

Best Wishes,

"scrapple222000 wrote:

Hi everyone....First I want to express my greatfulness to Poly that this informative community exists... Also I want to express my sadness for all of you that lurk here.My name is and I live in FLorida with my husband 2 cats and a dog. (my only children)I got the courage to see a RE after my third miscarriage. My first miscarriage was 5 weeks, second was 7 weeks and third miscarriage; which was removed via DNC at 12 weeks, but really should have been found out at 8 weeks (darn doctor was cheap about giving ultrasounds!!) . I feel rather lost and frightened. I went to the RE to find out what was causing my miscarriages.. What he found was a whole new set of questions... I took the HSG test and was diagnosed with Asherman's.. Seems like my doctor is quite aware of this disease, because on the test pamphlet, it mentions that HSG is used for diagnosing tubal defects etc. etc. and also included Asherman's syndrome. My HSG showed a filling defect in the upper left corner (the triangle corner completely did not show up on the test, albeit neither did the left tube, due to the adhesion) I asked him if it was caused by the dnc and he said most probobly... I am so sad right now, I wanted reason for recurrent miscarriages and all I got was another obsticle. I am greatful though that I did get a period following my DNC, lets just hope I get another one. Anyhow... I am scheduled for a hysteroscopy and a lap at the same time next month. One part of me hopes the Ashermans was caused by something other than this DNC, hence it would explain my miscarriages. Anyone know of anything else that could cause this? perhaps a STD or a miscarriage that went unnoticed? Anyhow.. I dont know what else to write, I will keep you posted on my surgeries and any new info as it comes to me.

[Guest guest]

,

I hate to be so blunt, but there are many things that cause early mc. If your RE could not name a few.....find a new RE. Also, you need to ask him how many cases of AS he sees in a year. A few is not enough! Please be sure to find an experienced AS doctor! Your success usuallt concurs with the docs experience.

I hope you get some answers soon. I am glad you found us. Keep asking all of us questions, and do not be afraid to question your doctor. Really, they are not all experts!

Best Wishes,

"scrapple222000 wrote:

Hi everyone....First I want to express my greatfulness to Poly that this informative community exists... Also I want to express my sadness for all of you that lurk here.My name is and I live in FLorida with my husband 2 cats and a dog. (my only children)I got the courage to see a RE after my third miscarriage. My first miscarriage was 5 weeks, second was 7 weeks and third miscarriage; which was removed via DNC at 12 weeks, but really should have been found out at 8 weeks (darn doctor was cheap about giving ultrasounds!!) . I feel rather lost and frightened. I went to the RE to find out what was causing my miscarriages.. What he found was a whole new set of questions... I took the HSG test and was diagnosed with Asherman's.. Seems like my doctor is quite aware of this disease, because on the test pamphlet, it mentions that HSG is used for diagnosing tubal defects etc. etc. and also included Asherman's syndrome. My HSG showed a filling defect in the upper left corner (the triangle corner completely did not show up on the test, albeit neither did the left tube, due to the adhesion) I asked him if it was caused by the dnc and he said most probobly... I am so sad right now, I wanted reason for recurrent miscarriages and all I got was another obsticle. I am greatful though that I did get a period following my DNC, lets just hope I get another one. Anyhow... I am scheduled for a hysteroscopy and a lap at the same time next month. One part of me hopes the Ashermans was caused by something other than this DNC, hence it would explain my miscarriages. Anyone know of anything else that could cause this? perhaps a STD or a miscarriage that went unnoticed? Anyhow.. I dont know what else to write, I will keep you posted on my surgeries and any new info as it comes to me.

[Guest guest]

,

Welcome to our group although I am sorry you need to be here.

After reading your story I couldn't help but feel that your miscarriages were a result of the scarring you still have in your uterus. Do you know what severity you have? Also, are you sure your doctor is competent enough to do your surgery without causing you any more damage? Please check our A list doctors and see if you can get a second opinion before your surgery. Before you attempt to get pregnant again, please make sure your scarring is completely removed. An A list doctor would tell you that from the beginning.

Please feel free to ask us any questions you have.

Poly

[Guest guest]

,

Welcome to our group although I am sorry you need to be here.

After reading your story I couldn't help but feel that your miscarriages were a result of the scarring you still have in your uterus. Do you know what severity you have? Also, are you sure your doctor is competent enough to do your surgery without causing you any more damage? Please check our A list doctors and see if you can get a second opinion before your surgery. Before you attempt to get pregnant again, please make sure your scarring is completely removed. An A list doctor would tell you that from the beginning.

Please feel free to ask us any questions you have.

Poly

[Guest guest]

> ,

> Welcome to our group although I am sorry you need to be here.

>

> After reading your story I couldn't help but feel that your

miscarriages were a result of the scarring you still have in your

uterus. Do you know what severity you have? Also, are you sure your

doctor is competent enough to do your surgery without causing you any

more damage? Please check our A list doctors and see if you can get

a second opinion before your surgery. Before you attempt to get

pregnant again, please make sure your scarring is completely

removed. An A list doctor would tell you that from the beginning.

>

> Please feel free to ask us any questions you have.

>

> Poly

Poly..

I sure hope that the miscarriages were caused by the scarring.. The

only thing that eats at me is the fact that I never had any surgeries

until my last miscarriage, which is when I got the DNC. I have read

so many stories of AS and have not really found anyone with adhesions

in the uterus unless they have had some sort of surgery.. Have you?

Anyhows.....

He did not give me a severity of AS, but when I asked him the

percentage of cavity affected, he told me 1/4. I am grateful that is

all that is affected.. Do you think they will find more scarring once

inside with the hysteroscope?

As far as choosing my surgeon, I can't really afford anything my

insurance does not cover.(they cover up to 6000 worth of infertility

treatments) Dr. Illions (RE) who is on my darn HMO plan, seems

really concerned, compassionate and knowledgable.. I did ask him if

Asherman's is a rare find for him and he told me, " not necessarily,

it is just your affected area that is rare " (upper left triangle

corner blocking left tube).

How can I find out if he is competent? where would you reccomend me

go for a Second opinion before scheduling surgery? from another RE?

Are there any A doctors in FLorida? I wish I could fly off to an A

list doctor.. would feel much more confident I hope he can fix

me.

Thank you so much Poly... and god bless you.

[Guest guest]

> ,

> Welcome to our group although I am sorry you need to be here.

>

> After reading your story I couldn't help but feel that your

miscarriages were a result of the scarring you still have in your

uterus. Do you know what severity you have? Also, are you sure your

doctor is competent enough to do your surgery without causing you any

more damage? Please check our A list doctors and see if you can get

a second opinion before your surgery. Before you attempt to get

pregnant again, please make sure your scarring is completely

removed. An A list doctor would tell you that from the beginning.

>

> Please feel free to ask us any questions you have.

>

> Poly

Poly..

I sure hope that the miscarriages were caused by the scarring.. The

only thing that eats at me is the fact that I never had any surgeries

until my last miscarriage, which is when I got the DNC. I have read

so many stories of AS and have not really found anyone with adhesions

in the uterus unless they have had some sort of surgery.. Have you?

Anyhows.....

He did not give me a severity of AS, but when I asked him the

percentage of cavity affected, he told me 1/4. I am grateful that is

all that is affected.. Do you think they will find more scarring once

inside with the hysteroscope?

As far as choosing my surgeon, I can't really afford anything my

insurance does not cover.(they cover up to 6000 worth of infertility

treatments) Dr. Illions (RE) who is on my darn HMO plan, seems

really concerned, compassionate and knowledgable.. I did ask him if

Asherman's is a rare find for him and he told me, " not necessarily,

it is just your affected area that is rare " (upper left triangle

corner blocking left tube).

How can I find out if he is competent? where would you reccomend me

go for a Second opinion before scheduling surgery? from another RE?

Are there any A doctors in FLorida? I wish I could fly off to an A

list doctor.. would feel much more confident I hope he can fix

me.

Thank you so much Poly... and god bless you.