Re:UC Crossroads - 6MP vs. Testosterone / LDN

[Guest guest]

Sal,

As Jodi said, being on LDN while on high level of prednisone, you will

not see the effect of LDN.

Also as Jodi said, I would not rush to jump on 6mp. The GI had my

teenage son start 6mp along with prednisone in July 07 - the reason

being 6mp takes 3-6 months to " kick in " and the idea was that by the

time you'd taper off prednisone, the 6mp would be in effect and maintain

remission. It did not work well at all for him and, after learning in

July 08 that my son has C-diff and other pathogenic bacterial issues, it

seems a suppressed immune system is not at all what he needs. We

stopped the 6mp in April 07 after he got the -Sachy virus and was

horribly ill. He was way too immune-suppressed.

His testosterone level is also very low, probably from the prednisone

having suppressed the adrenal system (if I understand that correctly -

and I don't think LDN would have anything to do with the low

testosterone level). A slow taper off prednisone is supposed to ensure

the adrenals get back on board, and he did taper slowly, but the GI

doctor did not monitor anything related to adrenals to see if things

were going right (which apparently they weren't). We work with a

holistic MD now and he is considering using cortisol to get the

testosterone up. We will be asking more about this and adding in LDN at

our appt next week.

I'm curious how you got prescribed LDN while on prednisone. If you

haven't seen it yet, the best website for LDN is

http://www.lowdosenaltrexone.org/

and the Yahoo group for LDN is awesome

http://health.groups.yahoo.com/group/lowdosenaltrexone/

People on the group have said taking LDN as a transdermal cream vs. a

pill is more effective for IBD patients due to trouble absorbing through

an inflammed colon.

Good luck!

Sally

[Guest guest]

WOW SALLY!!!

This post rocked my world.

After my whole C Diff debacle from Clindamycine 7 years ago in the

hospital I got out a month later on so many meds including steroids.

I came down with -horrible- -Sachy (was told only babies get it the

way I did) I could not eat or swallow (so much worse then Strep) and I

had to keep drinking lidocaine. What a nightmare!!!

I was told that this was beyond rare.

Reading that your son went through this pains me and makes me sad but

I also see this connection with the whole C Diff thing.

My goodness!

Jodi

SCD 13 months

Crohn's/Colitis

> July 08 that my son has C-diff and other pathogenic bacterial

issues, it

> seems a suppressed immune system is not at all what he needs. We

> stopped the 6mp in April 07 after he got the -Sachy virus and was

> horribly ill. He was way too immune-suppressed.

[Guest guest]

Hi Mara,

It's basically the human version of " foot and mouth "

here's a link;

http://www.medicinenet.com/coxsackie_virus/article.htm

Babies are the ones that get it the most.

It was beyond painful for me.

Jodi

SCD 13 months

Crohn's/Colitis

>

> What is the cox-sachy virus?