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Hi Midnight!

From the point of view of another teenager, it's nice to see someone else my

age. On the otherhand, sorry it has to be under these circumstances. I'm 16

and was diagnosed last October. I'm going to be a senior in the fall, so I'd

be interested in your college experience, esp. now that you've got fibro..

anyways, nice to meet ya! take care.

Penny

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Hi Midnight!

From the point of view of another teenager, it's nice to see someone else my

age. On the otherhand, sorry it has to be under these circumstances. I'm 16

and was diagnosed last October. I'm going to be a senior in the fall, so I'd

be interested in your college experience, esp. now that you've got fibro..

anyways, nice to meet ya! take care.

Penny

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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Welcome Midnight,

Glad to have you with us. This is a very good group. Friendly and

supportive. I have a drawer in my bedroom that looks like a pharmacy. We

all seem to have so many medications. Those that work and those that didn't

but I keep them because my doctor ever so often has me try one or the other

again. I have an allergy to so many medications that he hopes that one that

I couldn't take before but will help me a lot might by a miracle work without

me having an allergy to it,

Take care,

Irene

> . A counter in my kitchen

> looks like a pharmacy.

>

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Welcome Midnight,

Glad to have you with us. This is a very good group. Friendly and

supportive. I have a drawer in my bedroom that looks like a pharmacy. We

all seem to have so many medications. Those that work and those that didn't

but I keep them because my doctor ever so often has me try one or the other

again. I have an allergy to so many medications that he hopes that one that

I couldn't take before but will help me a lot might by a miracle work without

me having an allergy to it,

Take care,

Irene

> . A counter in my kitchen

> looks like a pharmacy.

>

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Welcome Midnight,

Glad to have you with us. This is a very good group. Friendly and

supportive. I have a drawer in my bedroom that looks like a pharmacy. We

all seem to have so many medications. Those that work and those that didn't

but I keep them because my doctor ever so often has me try one or the other

again. I have an allergy to so many medications that he hopes that one that

I couldn't take before but will help me a lot might by a miracle work without

me having an allergy to it,

Take care,

Irene

> . A counter in my kitchen

> looks like a pharmacy.

>

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Hi Midnight,

I found out that I had Fibro during a workers comp case too. It runs

in my family but my workers comp case didn't get dropped because of it. I

wasn't able to finish college. I only type once in awhile and I can't write

more than my name without causing a lot of nerve pain in my arms. I hope you

have more luck with it than I did.

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  • 4 weeks later...
Guest guest

Hello Fay

I hope you will soon be feeling a bit better. I know

how hard it is when you have a family that don't

understand what you are going through. But I have

thought since that maybe it's because they can't see

our illness and they feel frustrated that they can't

do anything to take away the pain. It must be hard for

them to watch us go through so much crippling pain and

disability.

I know my family are slowly realising that they can't

do much about my condition, but to let me do my own

thing in that when I need to rest, they try not to

disturb me. I try and keep a positive disposition and

I have found that if I want others to be close to me I

have to put on a happy face. But I do tell them that

things aren't too grand but I am doing the best to

keep smiling. I have found that they accept that and

they don't shun away. I hope this will help.

One thing you can always share your feelings with us

your fellow sufferers as we all understand. It's good

to talk especially when you know someone wants to

listen and share.

God Bless

Lorraine.

--- Fay wrote:

<HR>

<html><body>

<tt>

Hello<BR>

Huge hug to<BR>

everyone!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!I have

just<BR>

come back from Houston with our Youth Group. I

almost<BR>

didn't go. I was having anxiety so bad that I

could<BR>

not sleep or function. I had to bring my som to

the<BR>

emergency room the night before we left with right<BR>

side pain but turn out to be muscle spasms and I

have<BR>

such a fear of emergency rooms that I & nbsp; though I

would<BR>

go nuts in there. thank God my husband was there.

I<BR>

had to call my doctor befoer we left and he took

me<BR>

off buspar and put me on ativan which is just<BR>

temporary so I have to go see him If I do not take

it<BR>

three times aday i have the mind racing and real

bad<BR>

anxiety so I go see him next Tuesday bcause he is

out<BR>

for the rest of the week. I have also been some

having<BR>

some weird sstuff going on with my eyesight it is

like<BR>

having dim vision sometimes it makes me dizzy I

get<BR>

real nervous with all this sometimes it is like a

fog<BR>

and I can't focus it has been rough around here I<BR>

would appreciate any input you'll can give me

pleease<BR>

help me I don't know what to do I can't talk to my<BR>

husband because he does not understand. thanks fay<BR>

<BR>

__________________________________________________<BR>

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Hello Fay

I hope you will soon be feeling a bit better. I know

how hard it is when you have a family that don't

understand what you are going through. But I have

thought since that maybe it's because they can't see

our illness and they feel frustrated that they can't

do anything to take away the pain. It must be hard for

them to watch us go through so much crippling pain and

disability.

I know my family are slowly realising that they can't

do much about my condition, but to let me do my own

thing in that when I need to rest, they try not to

disturb me. I try and keep a positive disposition and

I have found that if I want others to be close to me I

have to put on a happy face. But I do tell them that

things aren't too grand but I am doing the best to

keep smiling. I have found that they accept that and

they don't shun away. I hope this will help.

One thing you can always share your feelings with us

your fellow sufferers as we all understand. It's good

to talk especially when you know someone wants to

listen and share.

God Bless

Lorraine.

--- Fay wrote:

<HR>

<html><body>

<tt>

Hello<BR>

Huge hug to<BR>

everyone!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!I have

just<BR>

come back from Houston with our Youth Group. I

almost<BR>

didn't go. I was having anxiety so bad that I

could<BR>

not sleep or function. I had to bring my som to

the<BR>

emergency room the night before we left with right<BR>

side pain but turn out to be muscle spasms and I

have<BR>

such a fear of emergency rooms that I & nbsp; though I

would<BR>

go nuts in there. thank God my husband was there.

I<BR>

had to call my doctor befoer we left and he took

me<BR>

off buspar and put me on ativan which is just<BR>

temporary so I have to go see him If I do not take

it<BR>

three times aday i have the mind racing and real

bad<BR>

anxiety so I go see him next Tuesday bcause he is

out<BR>

for the rest of the week. I have also been some

having<BR>

some weird sstuff going on with my eyesight it is

like<BR>

having dim vision sometimes it makes me dizzy I

get<BR>

real nervous with all this sometimes it is like a

fog<BR>

and I can't focus it has been rough around here I<BR>

would appreciate any input you'll can give me

pleease<BR>

help me I don't know what to do I can't talk to my<BR>

husband because he does not understand. thanks fay<BR>

<BR>

__________________________________________________<BR>

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Hello Fay

I hope you will soon be feeling a bit better. I know

how hard it is when you have a family that don't

understand what you are going through. But I have

thought since that maybe it's because they can't see

our illness and they feel frustrated that they can't

do anything to take away the pain. It must be hard for

them to watch us go through so much crippling pain and

disability.

I know my family are slowly realising that they can't

do much about my condition, but to let me do my own

thing in that when I need to rest, they try not to

disturb me. I try and keep a positive disposition and

I have found that if I want others to be close to me I

have to put on a happy face. But I do tell them that

things aren't too grand but I am doing the best to

keep smiling. I have found that they accept that and

they don't shun away. I hope this will help.

One thing you can always share your feelings with us

your fellow sufferers as we all understand. It's good

to talk especially when you know someone wants to

listen and share.

God Bless

Lorraine.

--- Fay wrote:

<HR>

<html><body>

<tt>

Hello<BR>

Huge hug to<BR>

everyone!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!I have

just<BR>

come back from Houston with our Youth Group. I

almost<BR>

didn't go. I was having anxiety so bad that I

could<BR>

not sleep or function. I had to bring my som to

the<BR>

emergency room the night before we left with right<BR>

side pain but turn out to be muscle spasms and I

have<BR>

such a fear of emergency rooms that I & nbsp; though I

would<BR>

go nuts in there. thank God my husband was there.

I<BR>

had to call my doctor befoer we left and he took

me<BR>

off buspar and put me on ativan which is just<BR>

temporary so I have to go see him If I do not take

it<BR>

three times aday i have the mind racing and real

bad<BR>

anxiety so I go see him next Tuesday bcause he is

out<BR>

for the rest of the week. I have also been some

having<BR>

some weird sstuff going on with my eyesight it is

like<BR>

having dim vision sometimes it makes me dizzy I

get<BR>

real nervous with all this sometimes it is like a

fog<BR>

and I can't focus it has been rough around here I<BR>

would appreciate any input you'll can give me

pleease<BR>

help me I don't know what to do I can't talk to my<BR>

husband because he does not understand. thanks fay<BR>

<BR>

__________________________________________________<BR>

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Fay wrote:

>

> I

> had to call my doctor befoer we left and he took me

> off buspar and put me on ativan which is just

> temporary so I have to go see him If I do not take it

> three times aday i have the mind racing and real bad

> anxiety so I go see him next Tuesday bcause he is out

> for the rest of the week.

THis is probably too late, but why did he change your medicine like

that? Have you tried practicing being calm when you are calm and

associating that with a word? For example, when I was feeling fairly

calm, I would tell myself " calm, calm " so I associated the word with how

I was feeling right then, which was pretty decent. Then when my anxiety

flares up, I keep saying " calm " to help me talk myself into making my

body feel how it does when it is calm. It works pretty well if I'm just

slightly to moderately anxious, doesn't do a whole lot for me when I'm

really anxious, but I'm still working on it.

have also been some having

> some weird sstuff going on with my eyesight it is like

> having dim vision sometimes it makes me dizzy I get

> real nervous with all this sometimes it is like a fog

> and I can't focus it has been rough around here

Have you been to see an eye doctor to make sure it isn't something

else? My eyes sometimes have a hard time focusing, but not to the dizzy

point. Let us know how things are going!

Darcy

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Fay wrote:

>

> I

> had to call my doctor befoer we left and he took me

> off buspar and put me on ativan which is just

> temporary so I have to go see him If I do not take it

> three times aday i have the mind racing and real bad

> anxiety so I go see him next Tuesday bcause he is out

> for the rest of the week.

THis is probably too late, but why did he change your medicine like

that? Have you tried practicing being calm when you are calm and

associating that with a word? For example, when I was feeling fairly

calm, I would tell myself " calm, calm " so I associated the word with how

I was feeling right then, which was pretty decent. Then when my anxiety

flares up, I keep saying " calm " to help me talk myself into making my

body feel how it does when it is calm. It works pretty well if I'm just

slightly to moderately anxious, doesn't do a whole lot for me when I'm

really anxious, but I'm still working on it.

have also been some having

> some weird sstuff going on with my eyesight it is like

> having dim vision sometimes it makes me dizzy I get

> real nervous with all this sometimes it is like a fog

> and I can't focus it has been rough around here

Have you been to see an eye doctor to make sure it isn't something

else? My eyes sometimes have a hard time focusing, but not to the dizzy

point. Let us know how things are going!

Darcy

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Guest guest

Amy,

I'm so happy for you & . I'm sure is very glad to home as well. So does he think you are showing?

Love & hugs,

Jo-Ann

Hello

Hi, everyone! Well, is here!! YYYYAAAAAAAAYYYYYYYYYYYYY!!!!!!!!!!! :o) His flight was an hour late so we spent an extra hour in the airport just waiting and fell asleep... then didn't want to go back to sleep last night until 1:30. Plus she just HAD to sleep with Daddy, and of course we couldn't deny her that. She had us up at 7:00 this morning. I'm exhausted. Anyway, I'm not going to be able to keep up with the mail at least for the first few days... there's some minor adjustments to make (most things just fell right into place) like having to make sure the toilet seat is down when I walk into the bathroom. ;o) Anyway, my point was to let you all know how happy and I are to finally have home. It was so nice to sleep in his arms again. And the other point was to let you all know that I'm going to go digest until I feel like I can keep up. You are all in my thought, as I know that many of you have things going on right now. Amy H., I'll be looking for your embie report... I just know it's going to be filled with good news. Jo-Ann, could you do me a huge favor please? I'm going to try to access the site and change myself to digest but I'm on my dad's computer and not sure I'll be able to. Can you make sure I got to it and if not change me over? I'd really appreciate it! Well, that's all for now. Time to go hug on my husband some more. :o)Amywife to ~2/14/97~mommy to ~6/18/97~ andone on the way ~EDD 11/8/01~_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Amy,

I'm so happy for you & . I'm sure is very glad to home as well. So does he think you are showing?

Love & hugs,

Jo-Ann

Hello

Hi, everyone! Well, is here!! YYYYAAAAAAAAYYYYYYYYYYYYY!!!!!!!!!!! :o) His flight was an hour late so we spent an extra hour in the airport just waiting and fell asleep... then didn't want to go back to sleep last night until 1:30. Plus she just HAD to sleep with Daddy, and of course we couldn't deny her that. She had us up at 7:00 this morning. I'm exhausted. Anyway, I'm not going to be able to keep up with the mail at least for the first few days... there's some minor adjustments to make (most things just fell right into place) like having to make sure the toilet seat is down when I walk into the bathroom. ;o) Anyway, my point was to let you all know how happy and I are to finally have home. It was so nice to sleep in his arms again. And the other point was to let you all know that I'm going to go digest until I feel like I can keep up. You are all in my thought, as I know that many of you have things going on right now. Amy H., I'll be looking for your embie report... I just know it's going to be filled with good news. Jo-Ann, could you do me a huge favor please? I'm going to try to access the site and change myself to digest but I'm on my dad's computer and not sure I'll be able to. Can you make sure I got to it and if not change me over? I'd really appreciate it! Well, that's all for now. Time to go hug on my husband some more. :o)Amywife to ~2/14/97~mommy to ~6/18/97~ andone on the way ~EDD 11/8/01~_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Guest guest

Amy,

I'm so happy for you & . I'm sure is very glad to home as well. So does he think you are showing?

Love & hugs,

Jo-Ann

Hello

Hi, everyone! Well, is here!! YYYYAAAAAAAAYYYYYYYYYYYYY!!!!!!!!!!! :o) His flight was an hour late so we spent an extra hour in the airport just waiting and fell asleep... then didn't want to go back to sleep last night until 1:30. Plus she just HAD to sleep with Daddy, and of course we couldn't deny her that. She had us up at 7:00 this morning. I'm exhausted. Anyway, I'm not going to be able to keep up with the mail at least for the first few days... there's some minor adjustments to make (most things just fell right into place) like having to make sure the toilet seat is down when I walk into the bathroom. ;o) Anyway, my point was to let you all know how happy and I are to finally have home. It was so nice to sleep in his arms again. And the other point was to let you all know that I'm going to go digest until I feel like I can keep up. You are all in my thought, as I know that many of you have things going on right now. Amy H., I'll be looking for your embie report... I just know it's going to be filled with good news. Jo-Ann, could you do me a huge favor please? I'm going to try to access the site and change myself to digest but I'm on my dad's computer and not sure I'll be able to. Can you make sure I got to it and if not change me over? I'd really appreciate it! Well, that's all for now. Time to go hug on my husband some more. :o)Amywife to ~2/14/97~mommy to ~6/18/97~ andone on the way ~EDD 11/8/01~_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Guest guest

Amy, We will miss you but enjoy your time!! Hello Hi, everyone! Well, is here!! YYYYAAAAAAAAYYYYYYYYYYYYY!!!!!!!!!!! :o) His flight was an hour late so we spent an extra hour in the airport just waiting and fell asleep... then didn't want to go back to sleep last night until 1:30. Plus she just HAD to sleep with Daddy, and of course we couldn't deny her that. She had us up at 7:00 this morning. I'm exhausted. Anyway, I'm not going to be able to keep up with the mail at least for the first few days... there's some minor adjustments to make (most things just fell right into place) like having to make sure the toilet seat is down when I walk into the bathroom. ;o) Anyway, my point was to let you all know how happy and I are to finally have home. It was so nice to sleep in his arms again. And the other point was to let you all know that I'm going to go digest until I feel like I can keep up. You are all in my thought, as I know that many of you have things going on right now. Amy H., I'll be looking for your embie report... I just know it's going to be filled with good news. Jo-Ann, could you do me a huge favor please? I'm going to try to access the site and change myself to digest but I'm on my dad's computer and not sure I'll be able to. Can you make sure I got to it and if not change me over? I'd really appreciate it! Well, that's all for now. Time to go hug on my husband some more. :o)Amywife to ~2/14/97~mommy to ~6/18/97~ andone on the way ~EDD 11/8/01~_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Amy,

I am so glad made it home safe and sound, and I know what a relief it must be to finally have your family together. I know this is a really special time for your family.

Dana

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Amy,

I am so glad made it home safe and sound, and I know what a relief it must be to finally have your family together. I know this is a really special time for your family.

Dana

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Amy,

I am so glad made it home safe and sound, and I know what a relief it must be to finally have your family together. I know this is a really special time for your family.

Dana

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  • 5 weeks later...

Fay,

I'm in physical therapy. Actually, I do pool therapy, which consists of

doing VERY mild exercises in the warm pool. My physical therapist said that

the warm pool, combined with the moving about in it, has been proven to help

fibromyalgia patients. I would have to agree. As for the steroids, I

haven't found that they work for me, and they are one thing you don't want

to be on long term. From what I understand, this won't hurt you in any way,

and it very well might help! One other thing for me has also been meeting

others that suffer from the same thing. Our physical therapy group has

gotten very close.

Carol Lugg

hello

Hello to everyone.

I was wondering how physical therapy works with

fibromyalgia. I was involved in a automobile accident

on August 11, 2001. My doctor wants me to take

physical therayp but i talked him into trying some

steroids before having to do the therapy well he

agreed. I have till Monday to get better and then if

not better I have to go for an evaluation with the

therapist. I was wondering if it makes the fibro worse

or does it help? thanks and bye for now fay

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Fay,

I'm in physical therapy. Actually, I do pool therapy, which consists of

doing VERY mild exercises in the warm pool. My physical therapist said that

the warm pool, combined with the moving about in it, has been proven to help

fibromyalgia patients. I would have to agree. As for the steroids, I

haven't found that they work for me, and they are one thing you don't want

to be on long term. From what I understand, this won't hurt you in any way,

and it very well might help! One other thing for me has also been meeting

others that suffer from the same thing. Our physical therapy group has

gotten very close.

Carol Lugg

hello

Hello to everyone.

I was wondering how physical therapy works with

fibromyalgia. I was involved in a automobile accident

on August 11, 2001. My doctor wants me to take

physical therayp but i talked him into trying some

steroids before having to do the therapy well he

agreed. I have till Monday to get better and then if

not better I have to go for an evaluation with the

therapist. I was wondering if it makes the fibro worse

or does it help? thanks and bye for now fay

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Fay,

I'm in physical therapy. Actually, I do pool therapy, which consists of

doing VERY mild exercises in the warm pool. My physical therapist said that

the warm pool, combined with the moving about in it, has been proven to help

fibromyalgia patients. I would have to agree. As for the steroids, I

haven't found that they work for me, and they are one thing you don't want

to be on long term. From what I understand, this won't hurt you in any way,

and it very well might help! One other thing for me has also been meeting

others that suffer from the same thing. Our physical therapy group has

gotten very close.

Carol Lugg

hello

Hello to everyone.

I was wondering how physical therapy works with

fibromyalgia. I was involved in a automobile accident

on August 11, 2001. My doctor wants me to take

physical therayp but i talked him into trying some

steroids before having to do the therapy well he

agreed. I have till Monday to get better and then if

not better I have to go for an evaluation with the

therapist. I was wondering if it makes the fibro worse

or does it help? thanks and bye for now fay

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Hello Fay

In regards to physical therapy, you may find it

helpful and then again you amy not. For some of with

Fibro we find any kind of exercise detrimental to us

in that we end up more injured and in more pain, But

for others very light movement and exercise does help

and also exercising in an Hydro Pool, but beware if

you do go for any form of exercising no matter how

much you feel you can do at the time, take it gently

and don't overdo it as you will soon realise about it

after.

I hope this is helpful to you. I know I had to try the

exercises in the pool and out to see if it helped, but

for me it caused me more problems, so I had to stop

the exercise and relax more and I found that, that

helped.

God bless,

Lorraine UK

--- Fay wrote:

<HR>

<html><body>

<tt>

Hello to everyone.<BR>

I was wondering how physical therapy works with<BR>

fibromyalgia. I was involved in a automobile

accident<BR>

on August 11, 2001. My doctor wants me to take<BR>

physical therayp but i talked him into trying some<BR>

steroids before having to do the therapy well he<BR>

agreed. I have till Monday to get better and then

if<BR>

not better I have to go for an evaluation with the<BR>

therapist. I was wondering if it makes the fibro

worse<BR>

or does it help? thanks and bye for now fay<BR>

<BR>

__________________________________________________<BR>

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  • 2 weeks later...

Dear

you have come to a great support group that will show

how they care by listening and reading and replying to

your mail.

I am 50 yrs young, I say young because I refuse to let

htis Fibro age me or depress me, I have had fibro all

my life, and I understand what you must be feeling

like at the moment. You probably feel you life is

crashing all around you as more and more you are

unable to do the things you used to do. But we have to

learn to enjoy what little we can do. You have to take

each moment and do what you can when you can and when

you can't do much, leave it as it will still be there

another day. Today for instance, I've had to lie down

most of the day, it took all my effort to get up and

have something to eat, this was due to me going

shopping yesterday. You will find there will be times

when you can't do much more than rest for a day. But

it is worth it to be able to go shopping.

You will find that making long term plans, you can't

always stick too as you may never know how you will

feel when that time comes. I usually say all being

well I will go or do somthing, and If I can't I will

do it another time. If there are any questions you

want to ask about what is happening with you, write

and tell us, or if you just want to have a moan and

gripe then do so. We all understand.

Others have found that their partner finds it hard to

see their loved one suffer so and don't know what to

do to help, as there is little they can do, other than

accept that there will be times when you can't do as

much and have to rest. They can be supportive by

perhaps doing little things around the house or just

bringing you a meal whilst you rest and just be there

for you to talk too. But remember if you can't talk to

anyone about what you are going through you can always

talk to our support group, because we know and

understand what you are going through.

I hope this is of help to you. Keep writing.

God bless

Lorraine UK

--- brenda odell wrote:

<HR>

<html><body>

<tt>

I am 40yrs old-have had fibromyalgia since '99 and

am<BR>

having a very bad yr. I am going through a bad

marital<BR>

experience at the moment. I have no energy what so<BR>

every can anyone help<BR>

<BR>

__________________________________________________<BR>

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Dear

you have come to a great support group that will show

how they care by listening and reading and replying to

your mail.

I am 50 yrs young, I say young because I refuse to let

htis Fibro age me or depress me, I have had fibro all

my life, and I understand what you must be feeling

like at the moment. You probably feel you life is

crashing all around you as more and more you are

unable to do the things you used to do. But we have to

learn to enjoy what little we can do. You have to take

each moment and do what you can when you can and when

you can't do much, leave it as it will still be there

another day. Today for instance, I've had to lie down

most of the day, it took all my effort to get up and

have something to eat, this was due to me going

shopping yesterday. You will find there will be times

when you can't do much more than rest for a day. But

it is worth it to be able to go shopping.

You will find that making long term plans, you can't

always stick too as you may never know how you will

feel when that time comes. I usually say all being

well I will go or do somthing, and If I can't I will

do it another time. If there are any questions you

want to ask about what is happening with you, write

and tell us, or if you just want to have a moan and

gripe then do so. We all understand.

Others have found that their partner finds it hard to

see their loved one suffer so and don't know what to

do to help, as there is little they can do, other than

accept that there will be times when you can't do as

much and have to rest. They can be supportive by

perhaps doing little things around the house or just

bringing you a meal whilst you rest and just be there

for you to talk too. But remember if you can't talk to

anyone about what you are going through you can always

talk to our support group, because we know and

understand what you are going through.

I hope this is of help to you. Keep writing.

God bless

Lorraine UK

--- brenda odell wrote:

<HR>

<html><body>

<tt>

I am 40yrs old-have had fibromyalgia since '99 and

am<BR>

having a very bad yr. I am going through a bad

marital<BR>

experience at the moment. I have no energy what so<BR>

every can anyone help<BR>

<BR>

__________________________________________________<BR>

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