Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Torsten, I've always' read that Cf patients need a high fat diet, high salt, high calories, as although they need more calories they still can only eat the same amount therefore the high the fat etc. the more weight they put on. julie Enzymes > Hi, > > welcome to the list! Hope I don't cause further confusion, but > unfortunately as usual there are different opinions about CF drugs. Our clinic > RECOMMENDS to give the loose enzyme beads as long as possible, because the > enzymes disperse better in the stomach this way. The capsule is only a help to > make taking the enzymes more convenient for the patient, but it is in no way > necessary. > I have for long stopped to claim that something is wrong or right, when it comes > to eating and digestion. It seems to be more of an endless process of trial and > error. Fiona is on a low-fat high-carb diet, she takes her enzymes without the > capsule and after the meal. The only thing I can say for sure is, that it works > for her. > > I am still taking a break from the normal list stuff, but wanted to jump in on > one of my favorite topics. And I am happy to tell you that after a rough two > months Fiona is back on her baseline. NO snotty nose, almost no night coughs, > normal intake of food and lots of activity. What drives us crazy sometimes is, > that she is extreme in happiness and misery. You either see her laugh or cry, > she is sooo emotional. > > > Bye-bye > Torsten, dad of Fiona 3.5wcf > e-mail: aberdeen95@... > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Meg, Harry was vomiting a lot from his birth and I rushed him into casualty when he was three days old because I was worried about dehydration. They thought it was a twisted bowel but couldn't find the twist after x-rays and a fluoroscopy so they operated when he was four days old. That afternoon the surgeon came to us and said that he had a meconium ileus which indicated cf but not to worry too much because " there is a fifty percent chance that he will reach adulthood " . As you can imagine this is not whet new parents want to hear! Harry's CF was confirmed five days later when the results of his blood test came from the lab'. I am surprised that they didn't blood test Jack when he was born since you already have one child with CF! Barry Father of Harry 12 weeks old wcf and Jack 5 wocf Re: enzymes Barry, When was Harry Diagnosed? My Jack was 4 weeks. My oldest also has CF so we were looking since day one. Meg Mom of 3 Moe 10yowcf, Kate 5yowocf & Jack infant wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2001 Report Share Posted February 2, 2001 << Where are you from? >> Hi NOPE....just a very busy mom, who is lucky enought to have a hubby who gave up his career as geneticist/microbiologist to stay home and take care of sick babies..... we are from Knoxville, Tennessee (or, we live there....I am originally from Texas way back when, lol...) Where are you? Jen Mommy of 7, including ph 19 months with CF, Mallory 3 with CF, RAD, GERD, OSA, port-a-cath; 4 with CF, port-a-cath; 6, Miranda 9, Brittany 7 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon to be adopted by us; ERica 4 yo foster daughter, soon to be adopted by us also ; also aunt to 3 yo with CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 I started Digest Gold enzymes yesterday, and today I got completely dizzy, head spinning, nauseous and eventually vomiting. I'm not at all sure it was from that - they're doing construction in my building in the upstairs apartment, and it could be a reaction to that - I noticed a bad smell at one point in my bathroom- after I was already experiencing a spinning head for a while - and that was the thing that seemed to trigger the vomiting directly. But just to get it more clear in my head what triggered what - has anyone ever had a negative reaction to Digest Gold enzymes? Or especially dizziness or nausea? Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Yep Mara! That is what happens to me with Enzymes. How much of it did you take? How did you take it? You are supposed to eat a couple of bites and then take the enzyme. On a different note: Construction is also happening in my building. I find that it's usually the VOC's in paints, adhesives or mold issues that will actually make me vomit. Did you get any kind of pain? I can -sometimes- tell by the discomfort or pain if it is environmental or supplement etc. But be aware that it's an assault on your immune system so it also might be extra hard to cope with something new like a supplement. Jodi SCD 12 months Crohn's/Colitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 no reaction to them ever - not sure that they even helped actually - just took them for months afraid of letting my own body break things down -I did take them recently before my steak meal nightly as I was re- itro ing and thought it was a " bit " better than without but I weaned off and saw no difference - but I don't think that sounds like a reaction IMO????? feel better eileen > > I started Digest Gold enzymes yesterday, and today I got completely > dizzy, head spinning, nauseous and eventually vomiting. > > I'm not at all sure it was from that - they're doing construction in > my building in the upstairs apartment, and it could be a reaction to > that - I noticed a bad smell at one point in my bathroom- after I was > already experiencing a spinning head for a while - and that was the > thing that seemed to trigger the vomiting directly. > > But just to get it more clear in my head what triggered what - has > anyone ever had a negative reaction to Digest Gold enzymes? Or > especially dizziness or nausea? > > Mara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Mara, You might try doing the enzymes every other day for awhile, so you can see if it makes a difference. I have no to few symptoms, but smells and chemicals usually trigger those symptoms for me. A room full of perfume wearers, driving past a oil pump jack or getting down wind from the nozzle while filling up my car up usually does the trick . It happens when I go in to pay, but that is something different. (aka Margie11) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 I love that idea, Toni. Very creative. Just so I'm clear, once I pour the melted chocolate into the molds, then I mix in the enzyme, into the hot chocolate, and then cool the mixture? The enzyme won't be damaged by being mixed into the heated chocolate? Our schools reject chewable thingies that look like medication at all (even a cough drop looking candy) so I open up our enzymes, and add them to melted white chocolate, put them in molds and refrigerate. Pretty easy to do if I can do it. We use Digest Spectrum by Enzymedica. They are the ones that make Gluten Ease. 90 caps (one month) are about 35$Be careful with the white choc you use, as some have milk fat and/or soy lecithin. I decided it was ok for my kids to have these but your kid might be more sensitive. :-) The nice thing is, they are " candy " (so child will consume!) and you can also buy molds that look like their favorite things, like for instance I bought some Toy Story ones. You could even get fancy and color them with natural colors, but I just do plain. You heat the chocolate, not the enzymes, by the way. Just pack a Trienza chewable in his lunch. Looks like food right? > > Can anyone suggest a good enzyme that works well for your kids? I've never > had success mixing enzymes in my son's food—he does not like his food > tampered with—but he's starting to take things in his juice, so I'd love to > start giving him enzymes. > > Also, how do I give my son enzymes when he's at school? > > Thanks! > > Soraya > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 I love that idea, Toni. Very creative. Just so I'm clear, once I pour the melted chocolate into the molds, then I mix in the enzyme, into the hot chocolate, and then cool the mixture? The enzyme won't be damaged by being mixed into the heated chocolate? Our schools reject chewable thingies that look like medication at all (even a cough drop looking candy) so I open up our enzymes, and add them to melted white chocolate, put them in molds and refrigerate. Pretty easy to do if I can do it. We use Digest Spectrum by Enzymedica. They are the ones that make Gluten Ease. 90 caps (one month) are about 35$Be careful with the white choc you use, as some have milk fat and/or soy lecithin. I decided it was ok for my kids to have these but your kid might be more sensitive. :-) The nice thing is, they are " candy " (so child will consume!) and you can also buy molds that look like their favorite things, like for instance I bought some Toy Story ones. You could even get fancy and color them with natural colors, but I just do plain. You heat the chocolate, not the enzymes, by the way. Just pack a Trienza chewable in his lunch. Looks like food right? > > Can anyone suggest a good enzyme that works well for your kids? I've never > had success mixing enzymes in my son's food—he does not like his food > tampered with—but he's starting to take things in his juice, so I'd love to > start giving him enzymes. > > Also, how do I give my son enzymes when he's at school? > > Thanks! > > Soraya > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 I love that idea, Toni. Very creative. Just so I'm clear, once I pour the melted chocolate into the molds, then I mix in the enzyme, into the hot chocolate, and then cool the mixture? The enzyme won't be damaged by being mixed into the heated chocolate? Our schools reject chewable thingies that look like medication at all (even a cough drop looking candy) so I open up our enzymes, and add them to melted white chocolate, put them in molds and refrigerate. Pretty easy to do if I can do it. We use Digest Spectrum by Enzymedica. They are the ones that make Gluten Ease. 90 caps (one month) are about 35$Be careful with the white choc you use, as some have milk fat and/or soy lecithin. I decided it was ok for my kids to have these but your kid might be more sensitive. :-) The nice thing is, they are " candy " (so child will consume!) and you can also buy molds that look like their favorite things, like for instance I bought some Toy Story ones. You could even get fancy and color them with natural colors, but I just do plain. You heat the chocolate, not the enzymes, by the way. Just pack a Trienza chewable in his lunch. Looks like food right? > > Can anyone suggest a good enzyme that works well for your kids? I've never > had success mixing enzymes in my son's food—he does not like his food > tampered with—but he's starting to take things in his juice, so I'd love to > start giving him enzymes. > > Also, how do I give my son enzymes when he's at school? > > Thanks! > > Soraya > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 I don't get a casein free version, but I know there IS one. I know someone has posted on here before about it.Let me look! Where did u find white chocolate that is gfcf? Thanks! Sent from my iPhone -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
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