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I just returned froma trip to the Bahamas. It was great, though at

times I was aware of new limitations. The day before we left the

spring break crowd started to arrive--healthy, attractive, vibrant

young people. It was a bit depressing to see how far I've moved away

from being one of them. But on my last night, I spied a woman about

my age who appeared to have RA. Far more advanced than mine. The

sight of her was compelling; I have met so few (actual) people with

RA, that I wanted to study how she looked, how she moved, how she

seemed emotionally and socially. Seeing this woman really affected my

attitude; so what if I'm not a hot college student? I can walk well!

I can use my hands! My self pity transformed into gratitude.

Sierra

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Sierra,

Thanks so much for sharing this! It's easy to loose perspective and

focus only on ourselves and the challenges we are each going

through. It's amazing how much of an influence our attitude is on

our physical health - a positive outlook on life can really make a

difference in how we feel and make it through the day.

Beth

>

> I just returned froma trip to the Bahamas. It was great, though at

> times I was aware of new limitations. The day before we left the

> spring break crowd started to arrive--healthy, attractive, vibrant

> young people. It was a bit depressing to see how far I've moved

away

> from being one of them. But on my last night, I spied a woman

about

> my age who appeared to have RA. Far more advanced than mine. The

> sight of her was compelling; I have met so few (actual) people

with

> RA, that I wanted to study how she looked, how she moved, how she

> seemed emotionally and socially. Seeing this woman really affected

my

> attitude; so what if I'm not a hot college student? I can walk

well!

> I can use my hands! My self pity transformed into gratitude.

>

> Sierra

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  • 2 years later...
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I think it has helped me a lot Gretchen,

I work as a social worker in a dialysis unit and I think it makes me

much more understanding/sensitive to my patients issues (adjustment

to chronic illness, body image issues, loss of independence).

Actually, I guess I am a little warped in that I feel I am able to do what I do

and am the person I am ONLY BECAUSE of the CMT - I would be a completely

different person had I not had to overcome (and continue to today) the

challenges of CMT - and I like the person I am.

I think my compassion, patience, and sensitivity would be affected.

Don't misunderstand - I have bad days just like everybody else -- but recently

have had to investigate some abnormal breasts masses and am grateful in some way

that I only have CMT, the lots could've been worse.

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