New w/ concerns

[Guest guest]

A little background first:

My 9yod was diagnosed with severe Crohn's Colitis in May. We haven't

done any medication - yet. We started off doing an elemental diet with

Pediasure but stopped because her tummy seemed to hurt afterwards and

the 2nd ingredient is sugar. I didn't feel like sugar would help her

to heal. Then we tried various diets such as low residue, etc. and

when she would show a serious symptom I would desperately switch to

something else - so we never did anything consistently. Currently, we

are seeing a homeopathic/chiropractor who has her on homeopathic drops

as well as supplements and she gets adjusted 1x-2x/wk. Also, he has

her on basically a caveman's diet. Most of the time I think she's

doing better, albeit slowly. I *think* she has more color to her face

(some have even commented so), she's not in pain, has energy, and uses

the bathroom anywhere from 2-5 times/day. 5 days ago we started her

on scd. (But I'm not sure all her supplements are compliant.)

My concern is this: How will I know when I need to take her into the

Dr. so they can put her on medication? Her gastroenterologist is

completely against what we're doing and thinks we're making a huge

mistake. Sometimes I'm afraid we are. Whenever something is off with

her it scares me - bad. Here's what's going on: She has a fistula on

her anus that I'm worried is getting bigger ( she's had it for

awhile), her bum is red, sorta like diaper rash (which she's also had

for awhile), she's not in any pain, has energy, doesn't seem as pale,

no fevers, no erythema nodosum (which she had really bad when she

first got diagnosed), usually uses the bathroom 2-3x/day (last couple

of days it has been a few more times). The new concern is that a week

ago (before I started scd) she developed a dark green, weird smelling

stool. I at first thought it was the raw green smoothie she had &

green vegetables, but since starting the scd, we've had no greens and

her stool continued to smell funny and be dark, dark green. I don't

think it't because of quick transit time because she'll have it even

when it's been 6-7 hours since she's gone. Yesterday the color changed

from dark green to more of a dark grey and the consistency is

different than her usual stools. I'm worried that it could be melena,

and that her Crohn's has now spread to her upper intestines. I'm

afraid to take her to the dr. because I know they'll want to put her

on medications, but I will if I have to but then again, she doesn't

even seem sick.

Any advice or thoughts would be greatly appreciated!

~Kathy