New to the group

[Guest guest]

Hi Sheila and welcome,

I am glad that you found us, even if I am sad that you had reason to do so.

My ep was in October, and I don't think I will ever get " over it. " I only

hope that I'll continue to handle it with a little more grace a little more

often...even that has it's ups and downs, easier spots and harder

spots...all normal here. I hope you find the support you are looking for

here and some hope for when you start ttc this summer.

Maggie

[Guest guest]

Hi Shiela,

Welcome to the group. I know what you mean about " getting over it "

unfortunately people cannot understand what we actually go through. I can

also relate to you being scared to try again, many of us are, I know I am! I

hope you are doing well, and that when you are ready to try again, things

work out well for you!

Jen

[Guest guest]

Hi Shiela,

Welcome to the group. I know what you mean about " getting over it "

unfortunately people cannot understand what we actually go through. I can

also relate to you being scared to try again, many of us are, I know I am! I

hope you are doing well, and that when you are ready to try again, things

work out well for you!

Jen

[Guest guest]

Hi Shiela,

Welcome to the group. I know what you mean about " getting over it "

unfortunately people cannot understand what we actually go through. I can

also relate to you being scared to try again, many of us are, I know I am! I

hope you are doing well, and that when you are ready to try again, things

work out well for you!

Jen

[Guest guest]

Shelia,

Welcome!!! I am glad you found the group. This is definitely a place to lean

on when you need support and a great place to get advice or answers to

questions. My EP was July,00 and let me tell you I have not been able to just

" get over it " either.

Dana

[Guest guest]

Shelia,

Welcome!!! I am glad you found the group. This is definitely a place to lean

on when you need support and a great place to get advice or answers to

questions. My EP was July,00 and let me tell you I have not been able to just

" get over it " either.

Dana

[Guest guest]

Shelia,

Welcome!!! I am glad you found the group. This is definitely a place to lean

on when you need support and a great place to get advice or answers to

questions. My EP was July,00 and let me tell you I have not been able to just

" get over it " either.

Dana

[Guest guest]

Sheila

Hey, you are not kooky. I hear those same concerns. It

is scary to think even if we are lucky enough to get

pg again, we will never be completely relaxed about it

because of what we have been through. I will be 32

this year and starting to wonder if it will happen.

Keep " rambling " lol!...I think it helps, you have to

get those feelings out somehow.

--- SAVQ71@... wrote:

> ,

>

> Thank you for welcoming me aboard. I have so many

> fears that I get scared

> thinking of all the fears that I have. I want ttc,

> but sometimes I think now

> that I have one tube will it still happen, how long

> will it take and of

> course the biggest of all is will it be another ep.

> Sometimes I swear those

> fears whisper to me. Then I think I'm gonna be 30

> in June and I here that

> fertility starts declining in your 30's. I am so

> confused and petrified. I

> do have a wonderful RE and he is very encouraging

> about future pg. Yet even

> though I believe him I still panic almost everyday

> even though I am not ttc

> and haven't ttc after the surgery. Who knows maybe

> I am kooky. I don't

> know. Then a few people told me that since I was

> under ovulation meds when I

> got pg they can cause it too. Sorry for rambling I

> can't help it. Its just

> that I have so many pent up emotions I forget and

> get caught up in the moment.

>

> Sheila

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Sheila

Hey, you are not kooky. I hear those same concerns. It

is scary to think even if we are lucky enough to get

pg again, we will never be completely relaxed about it

because of what we have been through. I will be 32

this year and starting to wonder if it will happen.

Keep " rambling " lol!...I think it helps, you have to

get those feelings out somehow.

--- SAVQ71@... wrote:

> ,

>

> Thank you for welcoming me aboard. I have so many

> fears that I get scared

> thinking of all the fears that I have. I want ttc,

> but sometimes I think now

> that I have one tube will it still happen, how long

> will it take and of

> course the biggest of all is will it be another ep.

> Sometimes I swear those

> fears whisper to me. Then I think I'm gonna be 30

> in June and I here that

> fertility starts declining in your 30's. I am so

> confused and petrified. I

> do have a wonderful RE and he is very encouraging

> about future pg. Yet even

> though I believe him I still panic almost everyday

> even though I am not ttc

> and haven't ttc after the surgery. Who knows maybe

> I am kooky. I don't

> know. Then a few people told me that since I was

> under ovulation meds when I

> got pg they can cause it too. Sorry for rambling I

> can't help it. Its just

> that I have so many pent up emotions I forget and

> get caught up in the moment.

>

> Sheila

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Good luck with your pending RAI treatment.

Merry Xmas, Jim

new to the group

Hi everybody. This is my first time to post, but I have been lurking for a

couple of weeks. I have totally enjoyed reading all the posts and getting

all this information about thyroid cancer. Like some of you, my

gynecologist found the lump in my neck in 4/02. She referred me to an endo

who did an ultrasound and a couple of FNAs. They both came back benign but

suspicious. He suggested I have the lump removed and referred me to a

surgeon. I had my TT on 12/2/02. Going in, I thought it would just be a

partial, but I knew there was a *slight* chance it would be a total. When I

woke up in my hospital room, my wonderful husband had to tell me it was

cancer. The pathology report was good, though. The encapsulated nodule was

only 1.4 cm.

I am currently on Cytomel, but the oncologist will take me off the pills on

1/7/03. I am not looking forward to the hypo days ahead, but your posts

have given me comfort. I have already downloaded the Thyca LID cookbook and

will get started cooking and freezing after Christmas! I am so happy that

my husband found this group and the thyca website for me. I have learned so

much and am not so scared about the future. Thanks!

Margaret

[Guest guest]

Welcome, Margaret - you're off to a good start! Keep reading, keep

that positive attitude :-). Ask questions when they come up.

Cheers,

Alisa

> Hi everybody. This is my first time to post, but I have been

lurking for a

> couple of weeks. I have totally enjoyed reading all the posts and

getting

> all this information about thyroid cancer. Like some of you, my

> gynecologist found the lump in my neck in 4/02. She referred me to

an endo

> who did an ultrasound and a couple of FNAs. They both came back

benign but

> suspicious. He suggested I have the lump removed and referred me to

a

> surgeon. I had my TT on 12/2/02. Going in, I thought it would just

be a

> partial, but I knew there was a *slight* chance it would be a total.

When I

> woke up in my hospital room, my wonderful husband had to tell me it

was

> cancer. The pathology report was good, though. The encapsulated

nodule was

> only 1.4 cm.

>

> I am currently on Cytomel, but the oncologist will take me off the

pills on

> 1/7/03. I am not looking forward to the hypo days ahead, but your

posts

> have given me comfort. I have already downloaded the Thyca LID

cookbook and

> will get started cooking and freezing after Christmas! I am so

happy that

> my husband found this group and the thyca website for me. I have

learned so

> much and am not so scared about the future. Thanks!

> Margaret

[Guest guest]

Jackie,

Welcome:-)

I got chills reading your story. I'm not exactly sure at what point.

I think it started when you mentioned possible mets then I was very

aware of it when you mentioned your 3yr. old. I have a 3yr. old son

and found an enlarged lymph node when he was about 4 months. I was

then told it was cancer but not to worry this was the " good " cancer.

Then they thought I had mets to my liver. Turned out to be FNH focal

nodular hyperplasia...benign condition. I remember vividly all the

poking and prodding ,tests and repeat tests. BTW,have they been

monitoring your thyroglobulins? Have you had only one RAI?

I have had 3 surgeries and 3 RAI's. I have an upcoming PET scan on

the 6th to see if they can find out why my Tg is creeping up again.

I will be keeping you and my thoughts and prayers. Best of luck.

Please keep us posted of how you are doing.

Sandy in NJ

Age:29

TT w/R neck dissec 7/00

RAI 150 mCi 8/00

RaI 100mCi 3/01

L neck dissec 7/01

neck dissec again 11/01

RAI 250 mCi 2/02

Tg 30 (repeat 22.9 1/24/03)

TSH 0.02

> Hi. My name is Jackie and I am new to this site. My story is

rather

> long so i will try and make it brief. In 1993 my doctor found a

> large lump on my left lower side of my neck. He told me it was a

> goiter and we never did anything furhter from there. Being 17 at

the

> time I believed he knew what he was doing. So, 6 yrs late another

> lump formed on the same side but higher up this time. The same

> doctor (regular MD) told me it was an infection and put me on

meds.

> Obviously it did not go away so he sent me to a general surgeon who

> took a biopsy of it and told me it was a cyst. After putting me on

> synthroid and it would not go down, he suggested surgery. i went

to

> an endocrinologist for a second opinion on surgery and she said it

> wouldn't be a bad idea but would prefer I went to a specialist

> surgeon. So I did and he decided to remove the thyroid and the

> lumps. When he went in to do the surgery in Nov of 2000 he found

> that it was full of cancer and that the lump that was there

since '93

> was huge and cancerous. It had grown so much it was going under my

> collarbone. After the experience of finding out I had cancer but

> having yet another doctor tell me everything was fine I found two

> weeks later (after just feeling my neck) that he never removed the

> lump up towards the top. I went and had another biopsy done and it

> was cancer so two weeks after my first surgery I had another. When

I

> went in for my total body scan I was told all was fine and then

went

> for my treatment. 2 weeks after my treatment I went for another

scan

> and was told that a spot picked up on the first scan and again on

the

> second. I was so mad because they told me all was fine the first

> time. Since then through all my tests they found a spot on my

pelvic

> bone and were concerned that it spread to my bones. After 3 motnhs

> of tests it was found that nothing was there.....a false postitive

> reading I guess. I went through many scares of lymph nodes in my

neck

> and numerous biopsies. Then my one year check-up came. A spot was

> again found on my pelvic bone so they did a bone scan. Nothing was

> there but something picked up on my skull. They have done about 3

> more MRI's (3 months apart) and the spot remains but has not

changed

> so they feel it is nothing!?!? I come up for my 2 year checkup

this

> summer and am so scared that I will have to go through all of this

> again. I am so drained, so tired and just wish I could go for one

> test and not have to go for follow-ups until one year later. My

> husband and my 3 year old along with the rest of my family have

been

> great strenghts for me. I've found though that I have lost a lot

of

> faith in doctor's (other than my endocrinologist.....she is our

angel

> sent from God). I hate having that insecurity though about other

> doctor's that I see and don't know if I will ever get that trust

back.

>

> I just wanted to say that I am so glad this site is here because

> everyone needs support. keep up the good work everyone!

[Guest guest]

Jackie,

Welcome:-)

I got chills reading your story. I'm not exactly sure at what point.

I think it started when you mentioned possible mets then I was very

aware of it when you mentioned your 3yr. old. I have a 3yr. old son

and found an enlarged lymph node when he was about 4 months. I was

then told it was cancer but not to worry this was the " good " cancer.

Then they thought I had mets to my liver. Turned out to be FNH focal

nodular hyperplasia...benign condition. I remember vividly all the

poking and prodding ,tests and repeat tests. BTW,have they been

monitoring your thyroglobulins? Have you had only one RAI?

I have had 3 surgeries and 3 RAI's. I have an upcoming PET scan on

the 6th to see if they can find out why my Tg is creeping up again.

I will be keeping you and my thoughts and prayers. Best of luck.

Please keep us posted of how you are doing.

Sandy in NJ

Age:29

TT w/R neck dissec 7/00

RAI 150 mCi 8/00

RaI 100mCi 3/01

L neck dissec 7/01

neck dissec again 11/01

RAI 250 mCi 2/02

Tg 30 (repeat 22.9 1/24/03)

TSH 0.02

> Hi. My name is Jackie and I am new to this site. My story is

rather

> long so i will try and make it brief. In 1993 my doctor found a

> large lump on my left lower side of my neck. He told me it was a

> goiter and we never did anything furhter from there. Being 17 at

the

> time I believed he knew what he was doing. So, 6 yrs late another

> lump formed on the same side but higher up this time. The same

> doctor (regular MD) told me it was an infection and put me on

meds.

> Obviously it did not go away so he sent me to a general surgeon who

> took a biopsy of it and told me it was a cyst. After putting me on

> synthroid and it would not go down, he suggested surgery. i went

to

> an endocrinologist for a second opinion on surgery and she said it

> wouldn't be a bad idea but would prefer I went to a specialist

> surgeon. So I did and he decided to remove the thyroid and the

> lumps. When he went in to do the surgery in Nov of 2000 he found

> that it was full of cancer and that the lump that was there

since '93

> was huge and cancerous. It had grown so much it was going under my

> collarbone. After the experience of finding out I had cancer but

> having yet another doctor tell me everything was fine I found two

> weeks later (after just feeling my neck) that he never removed the

> lump up towards the top. I went and had another biopsy done and it

> was cancer so two weeks after my first surgery I had another. When

I

> went in for my total body scan I was told all was fine and then

went

> for my treatment. 2 weeks after my treatment I went for another

scan

> and was told that a spot picked up on the first scan and again on

the

> second. I was so mad because they told me all was fine the first

> time. Since then through all my tests they found a spot on my

pelvic

> bone and were concerned that it spread to my bones. After 3 motnhs

> of tests it was found that nothing was there.....a false postitive

> reading I guess. I went through many scares of lymph nodes in my

neck

> and numerous biopsies. Then my one year check-up came. A spot was

> again found on my pelvic bone so they did a bone scan. Nothing was

> there but something picked up on my skull. They have done about 3

> more MRI's (3 months apart) and the spot remains but has not

changed

> so they feel it is nothing!?!? I come up for my 2 year checkup

this

> summer and am so scared that I will have to go through all of this

> again. I am so drained, so tired and just wish I could go for one

> test and not have to go for follow-ups until one year later. My

> husband and my 3 year old along with the rest of my family have

been

> great strenghts for me. I've found though that I have lost a lot

of

> faith in doctor's (other than my endocrinologist.....she is our

angel

> sent from God). I hate having that insecurity though about other

> doctor's that I see and don't know if I will ever get that trust

back.

>

> I just wanted to say that I am so glad this site is here because

> everyone needs support. keep up the good work everyone!

[Guest guest]

Sandy

Thank you for you thoughts and prayers. My endocrinologist is a god

sent and she keeps up on everything, especially my thyroglobulins. I

have had only one treatment because thankfully no other tests have

proven positive for cancer. I have been through 2 PET scans and

numerous other tests.

I will keep you all posted as well as you do the same.

Good luck!

> > Hi. My name is Jackie and I am new to this site. My story is

> rather

> > long so i will try and make it brief. In 1993 my doctor found a

> > large lump on my left lower side of my neck. He told me it was a

> > goiter and we never did anything furhter from there. Being 17 at

> the

> > time I believed he knew what he was doing. So, 6 yrs late

another

> > lump formed on the same side but higher up this time. The same

> > doctor (regular MD) told me it was an infection and put me on

> meds.

> > Obviously it did not go away so he sent me to a general surgeon

who

> > took a biopsy of it and told me it was a cyst. After putting me

on

> > synthroid and it would not go down, he suggested surgery. i went

> to

> > an endocrinologist for a second opinion on surgery and she said

it

> > wouldn't be a bad idea but would prefer I went to a specialist

> > surgeon. So I did and he decided to remove the thyroid and the

> > lumps. When he went in to do the surgery in Nov of 2000 he found

> > that it was full of cancer and that the lump that was there

> since '93

> > was huge and cancerous. It had grown so much it was going under

my

> > collarbone. After the experience of finding out I had cancer but

> > having yet another doctor tell me everything was fine I found two

> > weeks later (after just feeling my neck) that he never removed

the

> > lump up towards the top. I went and had another biopsy done and

it

> > was cancer so two weeks after my first surgery I had another.

When

> I

> > went in for my total body scan I was told all was fine and then

> went

> > for my treatment. 2 weeks after my treatment I went for another

> scan

> > and was told that a spot picked up on the first scan and again on

> the

> > second. I was so mad because they told me all was fine the first

> > time. Since then through all my tests they found a spot on my

> pelvic

> > bone and were concerned that it spread to my bones. After 3

motnhs

> > of tests it was found that nothing was there.....a false

postitive

> > reading I guess. I went through many scares of lymph nodes in my

> neck

> > and numerous biopsies. Then my one year check-up came. A spot was

> > again found on my pelvic bone so they did a bone scan. Nothing

was

> > there but something picked up on my skull. They have done about

3

> > more MRI's (3 months apart) and the spot remains but has not

> changed

> > so they feel it is nothing!?!? I come up for my 2 year checkup

> this

> > summer and am so scared that I will have to go through all of

this

> > again. I am so drained, so tired and just wish I could go for

one

> > test and not have to go for follow-ups until one year later. My

> > husband and my 3 year old along with the rest of my family have

> been

> > great strenghts for me. I've found though that I have lost a lot

> of

> > faith in doctor's (other than my endocrinologist.....she is our

> angel

> > sent from God). I hate having that insecurity though about other

> > doctor's that I see and don't know if I will ever get that trust

> back.

> >

> > I just wanted to say that I am so glad this site is here because

> > everyone needs support. keep up the good work everyone!

[Guest guest]

Sandy

Thank you for you thoughts and prayers. My endocrinologist is a god

sent and she keeps up on everything, especially my thyroglobulins. I

have had only one treatment because thankfully no other tests have

proven positive for cancer. I have been through 2 PET scans and

numerous other tests.

I will keep you all posted as well as you do the same.

Good luck!

> > Hi. My name is Jackie and I am new to this site. My story is

> rather

> > long so i will try and make it brief. In 1993 my doctor found a

> > large lump on my left lower side of my neck. He told me it was a

> > goiter and we never did anything furhter from there. Being 17 at

> the

> > time I believed he knew what he was doing. So, 6 yrs late

another

> > lump formed on the same side but higher up this time. The same

> > doctor (regular MD) told me it was an infection and put me on

> meds.

> > Obviously it did not go away so he sent me to a general surgeon

who

> > took a biopsy of it and told me it was a cyst. After putting me

on

> > synthroid and it would not go down, he suggested surgery. i went

> to

> > an endocrinologist for a second opinion on surgery and she said

it

> > wouldn't be a bad idea but would prefer I went to a specialist

> > surgeon. So I did and he decided to remove the thyroid and the

> > lumps. When he went in to do the surgery in Nov of 2000 he found

> > that it was full of cancer and that the lump that was there

> since '93

> > was huge and cancerous. It had grown so much it was going under

my

> > collarbone. After the experience of finding out I had cancer but

> > having yet another doctor tell me everything was fine I found two

> > weeks later (after just feeling my neck) that he never removed

the

> > lump up towards the top. I went and had another biopsy done and

it

> > was cancer so two weeks after my first surgery I had another.

When

> I

> > went in for my total body scan I was told all was fine and then

> went

> > for my treatment. 2 weeks after my treatment I went for another

> scan

> > and was told that a spot picked up on the first scan and again on

> the

> > second. I was so mad because they told me all was fine the first

> > time. Since then through all my tests they found a spot on my

> pelvic

> > bone and were concerned that it spread to my bones. After 3

motnhs

> > of tests it was found that nothing was there.....a false

postitive

> > reading I guess. I went through many scares of lymph nodes in my

> neck

> > and numerous biopsies. Then my one year check-up came. A spot was

> > again found on my pelvic bone so they did a bone scan. Nothing

was

> > there but something picked up on my skull. They have done about

3

> > more MRI's (3 months apart) and the spot remains but has not

> changed

> > so they feel it is nothing!?!? I come up for my 2 year checkup

> this

> > summer and am so scared that I will have to go through all of

this

> > again. I am so drained, so tired and just wish I could go for

one

> > test and not have to go for follow-ups until one year later. My

> > husband and my 3 year old along with the rest of my family have

> been

> > great strenghts for me. I've found though that I have lost a lot

> of

> > faith in doctor's (other than my endocrinologist.....she is our

> angel

> > sent from God). I hate having that insecurity though about other

> > doctor's that I see and don't know if I will ever get that trust

> back.

> >

> > I just wanted to say that I am so glad this site is here because

> > everyone needs support. keep up the good work everyone!

[Guest guest]

Welcome )!!!!!!!

exerqueen01 wrote:

Hi! I have been a member of W.W. before (I had actually gotten to lifetime in

1997).

Gymmie in Cali °Ü°

The difference between fat and fit is " I "

What you eat between Thanksgiving and Christmas isn't nearly as important as

what you eat between Christmas and Thanksgiving

[Guest guest]

Welcome to the group...congrats on keeping the 20 lbs off so far.

~~Kallie~

---------------------------------------------------------------------

In Serious-Weight-Watchers , " exerqueen01 "

<teach88@o...> wrote:

> Hi! . Last year, I lost 20, and in 2004, I am ready to lose the

> remaining 20.

[Guest guest]

Cora,

Welcome to the group. You will find that there are a wide range of people

and philosophies represented here. Some of us have older kids and plenty more

have little ones. There is a lot of support and information to be had, so

don't be shy to ask about anything. Even if all you're asking is for us to

explain the abbreviations we all use and take for granted. (ASL, SEE, CI, HOH,

whatever) It's a great group.

My son is 13 and is losing his hearing post-lingually -- after he learned to

speak. I never had experiences with the EI (early intervetion) programs but

plenty of the parents here have. And don't worry if everything seems like an

incredible emotional roller coaster ... at first it really is. Lots of new

information, lots of decisions, and many moments of overwhelming confusion. But

it will balance out and sooner than you know you'll be an old pro giving

advice to the new moms and dads.

Welcome!

Jill

[Guest guest]

Cora,

Welcome to the group. You will find that there are a wide range of people

and philosophies represented here. Some of us have older kids and plenty more

have little ones. There is a lot of support and information to be had, so

don't be shy to ask about anything. Even if all you're asking is for us to

explain the abbreviations we all use and take for granted. (ASL, SEE, CI, HOH,

whatever) It's a great group.

My son is 13 and is losing his hearing post-lingually -- after he learned to

speak. I never had experiences with the EI (early intervetion) programs but

plenty of the parents here have. And don't worry if everything seems like an

incredible emotional roller coaster ... at first it really is. Lots of new

information, lots of decisions, and many moments of overwhelming confusion. But

it will balance out and sooner than you know you'll be an old pro giving

advice to the new moms and dads.

Welcome!

Jill

[Guest guest]

Cora,

Welcome to the group. You will find that there are a wide range of people

and philosophies represented here. Some of us have older kids and plenty more

have little ones. There is a lot of support and information to be had, so

don't be shy to ask about anything. Even if all you're asking is for us to

explain the abbreviations we all use and take for granted. (ASL, SEE, CI, HOH,

whatever) It's a great group.

My son is 13 and is losing his hearing post-lingually -- after he learned to

speak. I never had experiences with the EI (early intervetion) programs but

plenty of the parents here have. And don't worry if everything seems like an

incredible emotional roller coaster ... at first it really is. Lots of new

information, lots of decisions, and many moments of overwhelming confusion. But

it will balance out and sooner than you know you'll be an old pro giving

advice to the new moms and dads.

Welcome!

Jill

[Guest guest]

Hi Cora - We too have a son who was diagnosed thanks to newborn screenings.

He has mild/moderate hearing loss and received his hearing aids at 9 weeks

old. They were such a pain in the beginning. We were ready to quit with

them because of the hassle-which our audiologist warned. But he is now

nearly 7 months and is doing better with them. This group has given me a

lot of information. I don't post often, but read the posts daily. Any

advice helps and it seems like a lot of the parents in this group have had a

lot to deal with.

I'm sure it was a shock to learn about Zain's hearing loss, especially if it

doesn't run in the family - it doesn't in ours. Ask the audiologist about

services that may be provided by your state. Liam receives free speech

therapy and occupational therapy from the state - it is available to all

families regardless of income. They will also provide digital hearing aids

(we were able to get better aids from my health insurance though).

There is alot to learn but just take it one step at a time. Liam is doing

really well - he is right on target developmentally and he hasn't had his

aids in much due to him outgrowing the moulds so quickly and waiting for the

new ones to come in. Now that his growing has " slowed down " , he will be

able to fit the moulds for longer than he has in the past.

Good luck!

Dianne

Mama to Jack, 2 1/2 hearing (what he wants)

Liam 6 months, bilateral mild/moderate loss

-- New To the Group

Hello,

My name is Cora. I have a son who is 8 weeks old, his name is Zain.

Thanks to the New Born screening we found out that he has a hearing loss at

2 days and then it was Confirmed at 4 weeks with ABR. I wanted to join this

group to gain more information for my son and our family. We live in

Southern California and so far have meet with some wonderful people who are

so helpful.I look forward to getting to know all of you.

Have a great day!

[Guest guest]

Hi Cora - We too have a son who was diagnosed thanks to newborn screenings.

He has mild/moderate hearing loss and received his hearing aids at 9 weeks

old. They were such a pain in the beginning. We were ready to quit with

them because of the hassle-which our audiologist warned. But he is now

nearly 7 months and is doing better with them. This group has given me a

lot of information. I don't post often, but read the posts daily. Any

advice helps and it seems like a lot of the parents in this group have had a

lot to deal with.

I'm sure it was a shock to learn about Zain's hearing loss, especially if it

doesn't run in the family - it doesn't in ours. Ask the audiologist about

services that may be provided by your state. Liam receives free speech

therapy and occupational therapy from the state - it is available to all

families regardless of income. They will also provide digital hearing aids

(we were able to get better aids from my health insurance though).

There is alot to learn but just take it one step at a time. Liam is doing

really well - he is right on target developmentally and he hasn't had his

aids in much due to him outgrowing the moulds so quickly and waiting for the

new ones to come in. Now that his growing has " slowed down " , he will be

able to fit the moulds for longer than he has in the past.

Good luck!

Dianne

Mama to Jack, 2 1/2 hearing (what he wants)

Liam 6 months, bilateral mild/moderate loss

-- New To the Group

Hello,

My name is Cora. I have a son who is 8 weeks old, his name is Zain.

Thanks to the New Born screening we found out that he has a hearing loss at

2 days and then it was Confirmed at 4 weeks with ABR. I wanted to join this

group to gain more information for my son and our family. We live in

Southern California and so far have meet with some wonderful people who are

so helpful.I look forward to getting to know all of you.

Have a great day!

[Guest guest]

Hi Cora - We too have a son who was diagnosed thanks to newborn screenings.

He has mild/moderate hearing loss and received his hearing aids at 9 weeks

old. They were such a pain in the beginning. We were ready to quit with

them because of the hassle-which our audiologist warned. But he is now

nearly 7 months and is doing better with them. This group has given me a

lot of information. I don't post often, but read the posts daily. Any

advice helps and it seems like a lot of the parents in this group have had a

lot to deal with.

I'm sure it was a shock to learn about Zain's hearing loss, especially if it

doesn't run in the family - it doesn't in ours. Ask the audiologist about

services that may be provided by your state. Liam receives free speech

therapy and occupational therapy from the state - it is available to all

families regardless of income. They will also provide digital hearing aids

(we were able to get better aids from my health insurance though).

There is alot to learn but just take it one step at a time. Liam is doing

really well - he is right on target developmentally and he hasn't had his

aids in much due to him outgrowing the moulds so quickly and waiting for the

new ones to come in. Now that his growing has " slowed down " , he will be

able to fit the moulds for longer than he has in the past.

Good luck!

Dianne

Mama to Jack, 2 1/2 hearing (what he wants)

Liam 6 months, bilateral mild/moderate loss

-- New To the Group

Hello,

My name is Cora. I have a son who is 8 weeks old, his name is Zain.

Thanks to the New Born screening we found out that he has a hearing loss at

2 days and then it was Confirmed at 4 weeks with ABR. I wanted to join this

group to gain more information for my son and our family. We live in

Southern California and so far have meet with some wonderful people who are

so helpful.I look forward to getting to know all of you.

Have a great day!

[Guest guest]

Alison,

You are doing exactly what a good mother should do, and that is loving

your baby first and setting your priorities. You will not feel any regret

about doing it that way when that baby is all of a sudden a senior in high

school and ready to leave your home. It is never wrong to love and bond

with your child before all else. Good luck to your family. Tish

I've put this hearing loss second - which some may not agree with - and it

has helped me.

[Guest guest]

Alison,

You are doing exactly what a good mother should do, and that is loving

your baby first and setting your priorities. You will not feel any regret

about doing it that way when that baby is all of a sudden a senior in high

school and ready to leave your home. It is never wrong to love and bond

with your child before all else. Good luck to your family. Tish

I've put this hearing loss second - which some may not agree with - and it

has helped me.