New to the group

[Guest guest]

Welcome ,

How is the lovely state of Hawai'i tonight? Very well I hope. Please feel free to ask any questions you have. If there is an answer we'll try to find them and if we can't, we'll get the info from someone who does. I'll start with some basic questions...

when were you diagnosed and with what?

what medications are you on? (please list dosage amount, how many times you take it daily, as well as if it is generic or name brand).

what vitamins/supplements are you taking?

do you have allergies?

what lab work does your doctor perform?

have your symptoms gotten better with these medications or worse?

what are your symptoms?

what is your life like? (hobbies, etc)

Have a wonderful night! You know what I love most about Hawai'i? Other than it's beautiful lush temperatures... I love how the fast food restaurants say 'mahalo' on the trash cans. What can I say... I'm weird. hehe

Re: New to the group

Aloha...I am new to the group and i have hypothryoidism. This seems to be an interesting group. I am tired of taking medication for my thyroid & for my depression and all the other symptoms that comes from this. Doctors keep giving me more and more medications which cost a fortune for me each month.I am hoping that i can learn how to live with and overcome this problem. Hopefully, i can be like this awesome lady and get a top doc that can help me.mahalo, victoria>> I HAVE AN APPOINTMENT WITH A TOP DOC!!!!!!!!!!!!!!!!!!!!!!!!!!! > (almost)...............sorry don't mean to shout.> > Rang and he answered phone himself!!!!!!............he is having to have > some minor surgery but his secretary will ring me back tomorrow and fill me > in when things are more sorted, said to ring him back if I hadn't heard by > end of week, I'm almost in tears, this is part of blurb on him> > "tests all hormone levels, antibodies and diet. He is also taking special > interest in thyroid problems and researching this area extensively and most > importantly he listens !!!"> > Oh God, I'm crying, let's hope he works out told him I was hypothyroid and > said had heard he has a special interest in this area, he said he sure did, > (didn't tell him I got his name off the Net)> > O M G !!!!!!..........................Meleese xxx>

[Guest guest]

Hi Lori and welcome. You sure have been through a lot. If it were me I would have both breast taken off. I sure wish I would have thought to have it done when I had my mastectomy. Back in 1990 we didn't have a computer and I didn't know anyone with breast cancer to ask about all of this. I would not have had reconstruction either.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

New to the group

Hi everyone,My name is Lori. I was dignoised with Imflamatory Breast Cancer in 2001. I had several biopsy's. October 2002 I had radiation treatments by January 2003 I had chemo therapy for six weeks. In August 2004 they discovered more lumps. October 2004 I went in for a simple biopsy and they administered the wrong medication and flat line on the table. After this the insurance company would not remove my breast or complete the biopsy, they wanted me to meet with a Plastic surgeon for a second opionion due to I had severe fibrosis cyst disease as well. I was a 46FF bra size. After the insurance had the plastic surgeon to first do a reduction on my breast then see from there if I would get better. January 2005 I had a breast reduction to 44D. Every month for five months I went in for another surgery or removal of another lump. My right breast which was the one that had the IBC was always infected. Finally, in May 2005 they reopen the right breast removed all lumps and laser burned a spot on my breast. November 2005, I was involved in a motorcycle accident and had a CT scan done on my head, neck, chest, and back area when they discover something was wrong with my right breast. I had a mammogram last month which was adnormal and ultra sound too. They found 2 mass and 4 tumors on the right breast. Now, I am scheduled to see a breast surgeon to remove the right breast. What I want to know if I should suggest to remove both breast or will I be okay. I want to be cancer free. I have already accepted this and feel I have been through so much I don't want to continue worrying everytime a lump or mass appears. I have already considered not to reconstruct after the removal of my breast because I have heard celicone breast have to be redone every ten years, and if they remove fat from areas of my body to make a breast and then tattoo a nipple I am afraid the fatty tissue will just cause more fibrosis cyst disease. I will accept being flat chested and living my life. I learned through the battle of cancer if you stay positive and optimistic you will heal faster. I am a single mother of three daughters (teenagers) they are scared of me going through another surgery and I am too but I rather loose my breast than have a short life to live. Can anyone share their opionion or suggestions with me? I don't know much about the outcome of removal and reconstruct surgeries. I want to look at all my options. I would appreciate your help. Lori

[Guest guest]

Hi nne,

Thank you for welcoming me in the group. Can you explain why you

wouldn't reconstruct. I am straight forward and don't want to offend

anyone but I need to look at all my options. So, suggestions and

responses would be great. Reconstruction to me would be more

surgeries to deal with, and just having a reduction done I ended up

with five surgeries in less than eight months. I looked into

scilicon (spelling not so good)and what some people tell me they have

to be replaced every ten years. If they go for fat from parts of my

body to reconstruct, wouldn't my severe fibrosis cyst diease never go

away and I will end up with more surgeries, and what about

prosthestic I don't know anything about this? Going through this is

overwhelming because I don't want to wait so long I have to do chemo

and radiation again. They scheduled me for March 1st for the

appointment with the surgeon. I know there is a back log but second

time having cancer I am so scared of it spreading. I was doing

physical therapy due to a motorcycle accident but the therapist felt

it would just make things work and may work things through my body.

Sometimes I feel my health plan takes way too long to do anything.

On top of all this, my boyfriend is on the road and has never been

there for the surgeries but I understand because someone has to pay

the bills. My daughters are my support and parents. On top of all

this, someone broke into my house and stoled all my jewlery, dvd

players, stereo system, PS2 and games, and over 500 DVD's. I have so

many damages to the home along with the animals, I feeling

overwhelmed and always been independent but feel like I can't do this

things just keep going wrong. Any ways, need to find some support

and friends. Lori

[Guest guest]

Hi Lori and welcome. I don't mind sharing with you at all. First of all my husband and I discussed reconstruction. He said he loved me for me not for my breasts. I knew that already but it sure was nice to be reassured. He said if I didn't have reconstruction, when we snuggled at night, he could be closer to my heart :-) Hes such a sweetheart.

Plus we didn't have the money for another surgery. I am happy I didn't have reconstruction and the only thing I regret is not have both breasts taken at the same time. I was diagnosed in 1990 and didn't have a computer or know anyone with breast cancer that I could talk to.

I do have a prosthesis. Actually two. I have one for when we go out and also one that I can wear when just lounging around or if its too hot out to wear the regular one I can wear the lighter one.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: New to the group

Hi nne,Thank you for welcoming me in the group. Can you explain why you wouldn't reconstruct. I am straight forward and don't want to offend anyone but I need to look at all my options. So, suggestions and responses would be great. Reconstruction to me would be more surgeries to deal with, and just having a reduction done I ended up with five surgeries in less than eight months. I looked into scilicon (spelling not so good)and what some people tell me they have to be replaced every ten years. If they go for fat from parts of my body to reconstruct, wouldn't my severe fibrosis cyst diease never go away and I will end up with more surgeries, and what about prosthestic I don't know anything about this? Going through this is overwhelming because I don't want to wait so long I have to do chemo and radiation again. They scheduled me for March 1st for the appointment with the surgeon. I know there is a back log but second time having cancer I am so scared of it spreading. I was doing physical therapy due to a motorcycle accident but the therapist felt it would just make things work and may work things through my body. Sometimes I feel my health plan takes way too long to do anything. On top of all this, my boyfriend is on the road and has never been there for the surgeries but I understand because someone has to pay the bills. My daughters are my support and parents. On top of all this, someone broke into my house and stoled all my jewlery, dvd players, stereo system, PS2 and games, and over 500 DVD's. I have so many damages to the home along with the animals, I feeling overwhelmed and always been independent but feel like I can't do this things just keep going wrong. Any ways, need to find some support and friends. Lori

[Guest guest]

Hi Lori,

I decided not to reconstruct because I dislike surgeries, needles, and

any medical procedures. Reconstruction is elective surgery, so it's one

surgery I could avoid. I might have felt differently if I was younger

and single, but like nne's husband, my husband said he is fine

with my decision. I also know that it's a decision I could revisit down

the road. It also sounds like you need to talk to your surgeon about

any impact your fibrosis cyst would have on whether you're a good candidate

for surgery.

I have a prosthesis which is not a good fit (it was cheap and I needed

to get something quickly), so I've ordered a more expensive one that I

think will work better. Though after I ordered it I realized it was not

waterproof, so I'll have to get a swim one.

That's too bad about your house being broken into. As if you didn't

have enough to deal with.

I'm glad your family is there for support.

take care,

[Guest guest]

I have the same situation my boyfriend of three years told me he

loves me for me and rather have me alive. He wants to spend the rest

of his life with me. Breast are nothing and he would still touch my

chest even without them. I have always been in an abusive

relationship when I meet him I pushed him away because I didn't think

I should be loved. About six months ago, I have accepted his love

and our relationship is wonderful. I want to live and see my

daughters graduate, career, and get married. Plus we have six

children, he has three boys and I have three girls. AFter having the

reduction I feel flat anyways, so I don't feel being flat chested

will bother me. My boyfriend is really worried about me being

depressed I am sure I will go through that but I need to get out of

the depression and realize I am still alive. Thanks for sharing with

me I feel much better and know the decision will go for prosthesis.

Thank yo so so much for sharing with me. Have you had any problems

with cancer since this surgery? Lori

>

> Hi Lori and welcome. I don't mind sharing with you at all. First of

all my husband and I discussed reconstruction. He said he loved me

for me not for my breasts. I knew that already but it sure was nice

to be reassured. He said if I didn't have reconstruction, when we

snuggled at night, he could be closer to my heart :-) Hes such a

sweetheart.

> Plus we didn't have the money for another surgery. I am happy I

didn't have reconstruction and the only thing I regret is not have

both breasts taken at the same time. I was diagnosed in 1990 and

didn't have a computer or know anyone with breast cancer that I could

talk to.

> I do have a prosthesis. Actually two. I have one for when we go out

and also one that I can wear when just lounging around or if its too

hot out to wear the regular one I can wear the lighter one.

> I will keep you in my prayers.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocities.com/chucky5741/breastcancerpatients.html

>

> Check out my breast cancer ornaments at:

> http://www.geocities.com/chucky5741/bcornament.html

> also check out my other ornaments and lots of nice gifts at:

> http://www.cancerclub.com

> Re: New to the group

>

>

> Hi nne,

>

> Thank you for welcoming me in the group. Can you explain why you

> wouldn't reconstruct. I am straight forward and don't want to

offend

> anyone but I need to look at all my options. So, suggestions and

> responses would be great. Reconstruction to me would be more

> surgeries to deal with, and just having a reduction done I ended

up

> with five surgeries in less than eight months. I looked into

> scilicon (spelling not so good)and what some people tell me they

have

> to be replaced every ten years. If they go for fat from parts of

my

> body to reconstruct, wouldn't my severe fibrosis cyst diease

never go

> away and I will end up with more surgeries, and what about

> prosthestic I don't know anything about this? Going through this

is

> overwhelming because I don't want to wait so long I have to do

chemo

> and radiation again. They scheduled me for March 1st for the

> appointment with the surgeon. I know there is a back log but

second

> time having cancer I am so scared of it spreading. I was doing

> physical therapy due to a motorcycle accident but the therapist

felt

> it would just make things work and may work things through my

body.

> Sometimes I feel my health plan takes way too long to do

anything.

> On top of all this, my boyfriend is on the road and has never

been

> there for the surgeries but I understand because someone has to

pay

> the bills. My daughters are my support and parents. On top of

all

> this, someone broke into my house and stoled all my jewlery, dvd

> players, stereo system, PS2 and games, and over 500 DVD's. I

have so

> many damages to the home along with the animals, I feeling

> overwhelmed and always been independent but feel like I can't do

this

> things just keep going wrong. Any ways, need to find some

support

> and friends. Lori

>

>

>

>

>

>

>

>

[Guest guest]

Hi Lori,

So far I am doing great :-) It will be 16 yrs May 24th.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: New to the group> > > Hi nne,> > Thank you for welcoming me in the group. Can you explain why you > wouldn't reconstruct. I am straight forward and don't want to offend > anyone but I need to look at all my options. So, suggestions and > responses would be great. Reconstruction to me would be more > surgeries to deal with, and just having a reduction done I ended up > with five surgeries in less than eight months. I looked into > scilicon (spelling not so good)and what some people tell me they have > to be replaced every ten years. If they go for fat from parts of my > body to reconstruct, wouldn't my severe fibrosis cyst diease never go > away and I will end up with more surgeries, and what about > prosthestic I don't know anything about this? Going through this is > overwhelming because I don't want to wait so long I have to do chemo > and radiation again. They scheduled me for March 1st for the > appointment with the surgeon. I know there is a back log but second > time having cancer I am so scared of it spreading. I was doing > physical therapy due to a motorcycle accident but the therapist felt > it would just make things work and may work things through my body. > Sometimes I feel my health plan takes way too long to do anything. > On top of all this, my boyfriend is on the road and has never been > there for the surgeries but I understand because someone has to pay > the bills. My daughters are my support and parents. On top of all > this, someone broke into my house and stoled all my jewlery, dvd > players, stereo system, PS2 and games, and over 500 DVD's. I have so > many damages to the home along with the animals, I feeling > overwhelmed and always been independent but feel like I can't do this > things just keep going wrong. Any ways, need to find some support > and friends. Lori> > > > > > > >

[Guest guest]

When I was first dx. I opted for a mastectomy with intentions to have reconstruction. My surgeon didn't believe in doing that until It had been a year. I did see a plastic surgeon but wasn't really please with the options and I didn't like the thought of several additional surgeries. Plus the thought of complications scared me. I was large breasted so 5 years later I opted to have the other breast removed while they were checking a lump in that breast. I had no problem getting it okayed by the insurance company. We used the following reasons: 1) back pain from being uneven, 2) stress , 3) fact that my sister had bilateral breast cancer. I had more problems with my husband who couldn't understand why I would remove a part of my body when there wasn't cancer. Of course I just went through the same thing when the dr.

wanted to do a hysterectomy. Not cancer but high risk of becoming that way. Prothesis have gotten so much better in 10 years. You might want to go to a store that has them and look at them before making up your mind. SharonBmountainchicus wrote: I have the same situation my boyfriend of three years told me he loves me for me and rather have me alive. He wants to spend the rest of his life with me. Breast are nothing and he would still touch my chest even without them. I have always been in an abusive relationship when I meet him I pushed him away because I didn't think I should be loved. About six months ago, I have accepted his love and our relationship is wonderful. I want to

live and see my daughters graduate, career, and get married. Plus we have six children, he has three boys and I have three girls. AFter having the reduction I feel flat anyways, so I don't feel being flat chested will bother me. My boyfriend is really worried about me being depressed I am sure I will go through that but I need to get out of the depression and realize I am still alive. Thanks for sharing with me I feel much better and know the decision will go for prosthesis. Thank yo so so much for sharing with me. Have you had any problems with cancer since this surgery? Lori>> Hi Lori and welcome. I don't mind sharing with you at all. First of all my husband and I discussed reconstruction. He said he loved me for me not for my breasts. I knew that already but it sure was

nice to be reassured. He said if I didn't have reconstruction, when we snuggled at night, he could be closer to my heart :-) Hes such a sweetheart.> Plus we didn't have the money for another surgery. I am happy I didn't have reconstruction and the only thing I regret is not have both breasts taken at the same time. I was diagnosed in 1990 and didn't have a computer or know anyone with breast cancer that I could talk to.> I do have a prosthesis. Actually two. I have one for when we go out and also one that I can wear when just lounging around or if its too hot out to wear the regular one I can wear the lighter one.> I will keep you in my prayers.> Hugs> nne> Breast Cancer Patients Soul Mates for Life> http://www.geocities.com/chucky5741/breastcancerpatients.html> > Check out my breast cancer ornaments

at:> http://www.geocities.com/chucky5741/bcornament.html> also check out my other ornaments and lots of nice gifts at:> http://www.cancerclub.com> Re: New to the group> > > Hi nne,> > Thank you for welcoming me in the group. Can you explain why you > wouldn't reconstruct. I am straight forward and don't want to offend > anyone but I need to look at all my options. So, suggestions and > responses would be great. Reconstruction to me would be more

> surgeries to deal with, and just having a reduction done I ended up > with five surgeries in less than eight months. I looked into > scilicon (spelling not so good)and what some people tell me they have > to be replaced every ten years. If they go for fat from parts of my > body to reconstruct, wouldn't my severe fibrosis cyst diease never go > away and I will end up with more surgeries, and what about > prosthestic I don't know anything about this? Going through this is > overwhelming because I don't want to wait so long I have to do chemo > and radiation again. They scheduled me for March 1st for the > appointment with the surgeon. I know there is a back log but second > time having cancer I am so scared of it

spreading. I was doing > physical therapy due to a motorcycle accident but the therapist felt > it would just make things work and may work things through my body. > Sometimes I feel my health plan takes way too long to do anything. > On top of all this, my boyfriend is on the road and has never been > there for the surgeries but I understand because someone has to pay > the bills. My daughters are my support and parents. On top of all > this, someone broke into my house and stoled all my jewlery, dvd > players, stereo system, PS2 and games, and over 500 DVD's. I have so > many damages to the home along with the animals, I feeling > overwhelmed and always been independent but feel like I can't do this > things

just keep going wrong. Any ways, need to find some support > and friends. Lori> > > > > > > >

[Guest guest]

Hi Lori, I am no sorry for all the troubles you are having. Re reconstruction, I chose to NOT do it and have not regretted my decision. Going through chemo, surgery, rads, more chemo, etc. was enough for me. Most all of the women who had recon were very happy with their decision, but they did have to endure a lot of surgery. To me, it just wasn't worth going through more pain. Ann Chemo Hats: www.cjhats.com

What are the most popular cars? Find out at Yahoo! Autos

[Guest guest]

Thanks for sharing your story with me. I never even thought of

water proof prothesis. Like I said I am new to this. I know things

will work out but I want to make sure I understand everything before I

meet with the surgeon's again. Lori

[Guest guest]

Congrats nne! That is where I want to be. Lori

[Guest guest]

Thanks for your advice Sharon. After being in remission of IBC, one

surgeon wanted to remove both breast. My health insurance wanted me

to see the plastic surgeon. Insurance agreed with the plastic surgeon

to go for reduction. It's been a year and 10 days and now having more

complications and there is a possible chance of 40% cancer in my right

breast but can not tell until I get another biopsy. I am fed up with

all these surgeries so I am praying they will not just remove the

right breast but both so I don't have to go through this no more. Or

panic when I discover another lump in the opposite breast. I hope and

pray the surgeon agree's. So, would I have to go back to plastic

surgeon for prothesis or where? Every day I am learning something

new. I appreciate everyone advice and sharing your stories. I am

glad I joined this group because now I don't feel alone. Lori

[Guest guest]

nne,

I don't know how long you have been married but it sounds like a long

time since your husband has stood by your side through all this. My

boyfriend tells me the breast are not what he loves about me. But

sometimes I have concerns if I go through with this and then he

changes his mind. He says our love is very strong but I guess I am

really not used of someone really loving me. I have been divorced

for six years. I dated a guy for about two months and when I found

out I had breast cancer he dumped me. When my present boyfriend and

I met it was through our best friends. He is on the road a lot, I

see him about two days out of a month to six weeks. We moved in with

each other going on three years. He has gone through the reduction

and several surgeries due to infections but he really has not been

there for the actual surgeries. He usually comes after the surgery.

I was upset once because I planned the surgery a month in advance and

he still did not make it. I guess what I am saying is " Did you ever

feel that he would give up on you? " I am not afraid of being alone

but I am afraid of being rejected. I also need to learn to take what

he says is true and from the heart and if it does not work out

between us then at least we tried and I still have a life to live and

spend it with my family and friends. What do you say? Lori

[Guest guest]

Mari Ann,

When I had the reduction I was told only one surgery and that was it,

ended up with five more within several months. When I was told about

reconstruction, I wanted to know my options but after listening and

hearing everyone's stories I would settle with just having the breast

off and prothesis, possibly not even going with prothesis and just be

flat chested. My body goes through so much and always had

complications I just dont' want to keep it going on. The older I get

the bigger chance of not surviving or making things worse in my

life. I apploud all of you that has gone through this and remember

you are wonderful individuals who took that step to be able to live a

life with your friends and family. Since I have been dignoised I

started writting poems again. One of my two support friends, who are

online friends, started a web site dedicated to me and poetry. I was

really into this until we drifted apart. I talk on and off to one of

the support friends after all these years and realized if I was going

to go through these surgeries again I needed support with women who

have gone or going through this and needing new friends. My life

consist of doctors, tests, working, and then going home and working

on my five acres in the country. I don't go out with friends, I

actually stay home and my weekends are sometimes alone due to my

teenage daughters want to spend time with their friends in the

city. So, that is pretty much how I have been living. My boyfriend

is afraid I am getting depressed but I force myself to stay positive

and have pushed all the negative things out of my life except what I

can't control like my house being robbed yesterday. Thanks again for

sharing with me and look forward in getting to know everyone. Lori

[Guest guest]

Hi Lori,

We were married in 1963. The day after my 18th birthday. So it will be 43 years in October. No I never figured Chuck would give up on me. We have had some rough times, not marriage wise but unemployment wise etc. and I think it made our love even stronger.

If you click the link below you will see my journey through breast cancer which I need to go in there and update. If you go down about half way you will see an article called The Women You Love. Chuck wrote that right after my surgery.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: New to the group

nne,I don't know how long you have been married but it sounds like a long time since your husband has stood by your side through all this. My boyfriend tells me the breast are not what he loves about me. But sometimes I have concerns if I go through with this and then he changes his mind. He says our love is very strong but I guess I am really not used of someone really loving me. I have been divorced for six years. I dated a guy for about two months and when I found out I had breast cancer he dumped me. When my present boyfriend and I met it was through our best friends. He is on the road a lot, I see him about two days out of a month to six weeks. We moved in with each other going on three years. He has gone through the reduction and several surgeries due to infections but he really has not been there for the actual surgeries. He usually comes after the surgery. I was upset once because I planned the surgery a month in advance and he still did not make it. I guess what I am saying is "Did you ever feel that he would give up on you?" I am not afraid of being alone but I am afraid of being rejected. I also need to learn to take what he says is true and from the heart and if it does not work out between us then at least we tried and I still have a life to live and spend it with my family and friends. What do you say? Lori

[Guest guest]

Lori,

No you can call the American Cancer Society and the can give you names of stores in your area that sell breas and prosthesis. Or your surgeon may know also.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: New to the group

Thanks for your advice Sharon. After being in remission of IBC, one surgeon wanted to remove both breast. My health insurance wanted me to see the plastic surgeon. Insurance agreed with the plastic surgeon to go for reduction. It's been a year and 10 days and now having more complications and there is a possible chance of 40% cancer in my right breast but can not tell until I get another biopsy. I am fed up with all these surgeries so I am praying they will not just remove the right breast but both so I don't have to go through this no more. Or panic when I discover another lump in the opposite breast. I hope and pray the surgeon agree's. So, would I have to go back to plastic surgeon for prothesis or where? Every day I am learning something new. I appreciate everyone advice and sharing your stories. I am glad I joined this group because now I don't feel alone. Lori

[Guest guest]

Lori, Look in your phone book. Here we have stores that specialize in prothesis. Or check with your insurance company and see who they use. I think even J C Penneys has a catalog for prothesis and special bras. But I think you really want a store where you can actually see and feel them. SharonBmountainchicus wrote: Thanks for your advice Sharon. After being in remission of IBC, one surgeon wanted to remove both breast. My health insurance wanted me to see the plastic surgeon. Insurance agreed with the plastic surgeon to go for reduction. It's been a year and 10 days and now having more complications and there is a possible chance of 40% cancer in my

right breast but can not tell until I get another biopsy. I am fed up with all these surgeries so I am praying they will not just remove the right breast but both so I don't have to go through this no more. Or panic when I discover another lump in the opposite breast. I hope and pray the surgeon agree's. So, would I have to go back to plastic surgeon for prothesis or where? Every day I am learning something new. I appreciate everyone advice and sharing your stories. I am glad I joined this group because now I don't feel alone. Lori__________________________________________________

[Guest guest]

Lori,

Your surgeon will write you a prescription for a prosthesis. Your

insurance company should cover it.

-

& nne Svihlik wrote on 2/18/2006,

8:38 AM:

Lori,

No you can call the American Cancer

Society and the can give you names of stores in your area that sell

breas and prosthesis. Or your surgeon may know also.

Hugs

nne

[Guest guest]

Welcome ,

I wish I had thought to have both breast removed when I was diagnosed back in 1990. We didn't have a computer and I didn't know anyone else that had breast cancer. But if I had it to do all over again I would have them both taken.

What a nice jesture to give your hair to Locks of Love. I am sure they will appreciate it.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

New to the group

Hello, I'm and I found out 4 weeks ago that I have breast cancer.I am scheduled to have a bilateral mastectomy in 2 weeks.The cancer was found in my right breast on a 6 month follow up mammogram. The biopsy came back as invasive carcinoma. (Ouch). I have decided to have my left breast removed as a preventive measure. (double ouch)Today I had 20inches of my hair donated to Locks Of Love. I decided when I start loosing my hair loss my hair I knew it would be tough to wake and find my long hair on the pillow case,also my estrogen was stopped and I thought the short hair might help with the melt downs. Those of you who have gone through this know what I am talking about.Thanks for listening. I appreciate all the hugs and well wishes.

[Guest guest]

Hi ,

I usually check profiles when someone joins. Yours just came up and it

says you are a male?

Hugs

nne

>

> Hello, I'm and I found out 4 weeks ago that I have breast

cancer.

> I am scheduled to have a bilateral mastectomy in 2 weeks.

> The cancer was found in my right breast on a 6 month follow up

> mammogram. The biopsy came back as invasive carcinoma. (Ouch). I have

> decided to have my left breast removed as a preventive measure.

(double

> ouch)

> Today I had 20inches of my hair donated to Locks Of Love. I decided

> when I start loosing my hair loss my hair I knew it would be tough to

> wake and find my long hair on the pillow case,also my estrogen was

> stopped and I thought the short hair might help with the melt downs.

> Those of you who have gone through this know what I am talking about.

> Thanks for listening. I appreciate all the hugs and well wishes.

>

>

>

[Guest guest]

My husband is on Yahoo and found your group for me. I am female. sorry for the confusionmarianne wrote: Hi ,I usually check profiles when someone joins. Yours just came up and it says you are a male?Hugsnne>> Hello, I'm and I found out 4 weeks ago that I have breast cancer.> I am scheduled to have a bilateral mastectomy in 2 weeks.> The cancer was found in my right breast on a 6 month follow up > mammogram. The biopsy came back as invasive carcinoma. (Ouch). I have > decided to have my left breast removed as a preventive measure. (double > ouch)> Today I had 20inches of my hair donated to Locks Of Love. I decided > when I start loosing my hair loss

my hair I knew it would be tough to > wake and find my long hair on the pillow case,also my estrogen was > stopped and I thought the short hair might help with the melt downs. > Those of you who have gone through this know what I am talking about.> Thanks for listening. I appreciate all the hugs and well wishes.> > >

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

My mom had her hair cut ( I think it was 6 inches) and donated to Locks of Love about 2 weeks before I found out I had breast cancer.

I found that kinda ironic.

Hugs,

Jackie

-- Re: New to the group

Welcome ,

I wish I had thought to have both breast removed when I was diagnosed back in 1990. We didn't have a computer and I didn't know anyone else that had breast cancer. But if I had it to do all over again I would have them both taken.

What a nice jesture to give your hair to Locks of Love. I am sure they will appreciate it.

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

New to the group

Hello, I'm and I found out 4 weeks ago that I have breast cancer.I am scheduled to have a bilateral mastectomy in 2 weeks.The cancer was found in my right breast on a 6 month follow up mammogram. The biopsy came back as invasive carcinoma. (Ouch). I have decided to have my left breast removed as a preventive measure. (double ouch)Today I had 20inches of my hair donated to Locks Of Love. I decided when I start loosing my hair loss my hair I knew it would be tough to wake and find my long hair on the pillow case,also my estrogen was stopped and I thought the short hair might help with the melt downs. Those of you who have gone through this know what I am talking about.Thanks for listening. I appreciate all the hugs and well wishes.

[Guest guest]

Ok thanks.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: Re: New to the group

My husband is on Yahoo and found your group for me. I am female. sorry for the confusionmarianne wrote: Hi ,I usually check profiles when someone joins. Yours just came up and it says you are a male?Hugsnne>> Hello, I'm and I found out 4 weeks ago that I have breast cancer.> I am scheduled to have a bilateral mastectomy in 2 weeks.> The cancer was found in my right breast on a 6 month follow up > mammogram. The biopsy came back as invasive carcinoma. (Ouch). I have > decided to have my left breast removed as a preventive measure. (double > ouch)> Today I had 20inches of my hair donated to Locks Of Love. I decided > when I start loosing my hair loss my hair I knew it would be tough to > wake and find my long hair on the pillow case,also my estrogen was > stopped and I thought the short hair might help with the melt downs. > Those of you who have gone through this know what I am talking about.> Thanks for listening. I appreciate all the hugs and well wishes.> > >

Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Dear ,

Welcome to the group.

I had a bilateral in June of 2004 and completed treatment.

You will enjoy all the women in this group - they are just precious!

Best,

[Guest guest]

,

What you are feeling is normal. Most all of us go through it. Remember breast cancer is NOT the death sentence it was once thought to be. If you feel the Valium isn't working I would call the dr back and tell him. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

New to the Group

Dear Breast Cancer Group,I'm new here.I have a lump in my breast. It's been there 6 months. At my mammogramand sonogram six months ago, I was told that it was nothing as itdidn't show up on the films. The lump got bigger, so I went back to thedoctor in February. She sent me for an ultrasound. Nothing but densetissue shows up on the ultrasound, so I went to a breast surgeon for afine needle aspiration yesterday. Based on the behavior of theextractedmaterial ("gritty", she said), the surgeon believes that I have cancerand will most likely need a radical masectomy. I will receive biopsyresults on Monday or Tuesday.So there it is. I'm 44 and have a six year old son who I breast fed forthree years. There is no premenopausal breast cancer in my family, thatI know of. I took the pill for years.I thought it was fibrocystic breast condition, as it has always beentender to the touch, and that does run in our family.I am so confused, and sad, and stunned. I guess you know how it goes.I figure by joining this group, I can hear about how other women arecoping with breast cancer. I want to fight this bastard.The other big question is, how do I manage to make it through the nextfew days? I asked the doctor for Valium, but it doesn't seem to beworking. Or maybe it is - yikes. My son is six and we homeschool. Idon't want to freak him out.Take care, __________________________________________________