Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi April! Welcome to our list!! Nice to meet you! I don't know of a beginners kit ... Can someone else help her on that one? ~ ..:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:. A Garden of Soap: http://www.GardenofSoap.com A Place for Tulips: http://Tulips.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi April! Welcome to our list!! Nice to meet you! I don't know of a beginners kit ... Can someone else help her on that one? ~ ..:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:. A Garden of Soap: http://www.GardenofSoap.com A Place for Tulips: http://Tulips.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 Hi April! Welcome to our list!! Nice to meet you! I don't know of a beginners kit ... Can someone else help her on that one? ~ ..:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:. A Garden of Soap: http://www.GardenofSoap.com A Place for Tulips: http://Tulips.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Tara: Congratulations on your upcoming new life! That is so wonderful to hear. I and I'm sure I speak for all of us here, am so glad you are here, welcome. Love, Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 I understand completely having to put yourself on display and beg for medical treatment. I put up with that crap only so far before I got a lawyer. Good luck in Spain, I have heard very good things about Dr. B. Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Thank you for the kind words Darlene! Tara Re: Hello! Tara: Congratulations on your upcoming new life! That is so wonderful to hear. I and I'm sure I speak for all of us here, am so glad you are here, welcome. Love, Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Teri: Thanks for the encouragement, hope all is well with you. Tara Re: Hello! > I understand completely having to put yourself on display and beg > for medical treatment. I put up with that crap only so far before I > got a lawyer. Good luck in Spain, I have heard very good things about > Dr. B. > > Teri > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Hi I am a member of this list, and I received a virus from this email you sent to the list??? Just wanted you to know and make sure to run a virus scan on your computer because you could have it and not know. Crissy Wagner Re: Hello! Tara: Congratulations on your upcoming new life! That is so wonderful to hear. I and I'm sure I speak for all of us here, am so glad you are here, welcome. Love, Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 there is a virus on the message sent below Re: Hello! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Hi Jane, welcome to the list! Although you have a sad reason to join us, we will try to help you through this hard time. And yep, there are a few members here, who were pregnant when they got the news about CF in one of their kids. I can easily imagine how stressful this is for you. If the DNA analysis doesn't show another CF gene, but you still are afraid that your daughter might have CF, ask your docs for a NPD testing. I am not sure from what age on they offer this test, but here in Germany they have improved this test and it is now available for toddlers too. Bye Torsten, dad of Fiona 4wcf > Hello everyone... > My name is Jane. I am very glad to have found this list as we are still > in the " numb " stage here as we continue the diagnosis process. My > youngest child is 19 months old and wasn't gaining weight. She also has > asthma so we went for a sweat test. The result came out borderline so > we went back at did another test which came out much lower but they also > took blood for a genetic screen. I got the results of that screen > today. They looked for the top 30 mutations (of the 900 possible CF > ones) and found she had one of these. Now apparently they start the > search for the second gene using my and my husband's DNA also. The > clincher here is that 2 days before we had the results of the first > sweat test, I found out I was expecting another baby. So the stress > level is a little high 'round here. We are back at the CF clinic next > week and will talk to the geneticist about the siuation. > Has anyone else had such a confusing time trying to get a diagnosis? I > thought CF would be fairly clear cut to detect. > Thanks, > Jane, wife of Tom, mom of wocf, Tony wocf, wocf, Meredith > wocf, Eleanora maybe wcf and one on the way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Hello everyone; I'm new to this group, my name is Sara Enee (call me Rowanfae), I'm 25 and living in the country, in Quebec, Canada. I'm on the SC diet since...August, I think (100%,SCD, at least). Before that, I was only on a Gluten-Free diet, after years on a "special ibs" diet (which made me much worst, and never help at all because we found out last Summer that it was NOT ibs causing all the mess in my poor skinny body. It was Celiac Disease!). Poor me, I was having breakfast, everyday, with oat porridge and bananas...and every diner with french breads! (hum...and yes, we are french-canadian, but quebecois). And the Gluten-Free wasn't working at all. Still in pain, exhausted and skinny. Well, this SC diet is something! I can see a change after only three months (not a miracle, but there's progress). It was very difficult for me to follow all the guidelines and "laws", but after a whole month, I was IN and I even began to have some fun. I love making my precious yogurt each weeks (and even got a bigger yogurt maker as a gift!), making my own scd-bread, muffins, great funny cookies and such. Despite the great exhaustion caused by the dis-ease (and other health issues), I have the strength and courage to cook in the morning from time to time. At least, I got some energies, thanks to the SC diet! That's my own personal little miracle. Since mid-September, I'm finally regular. But I'm still bloated (sometimes), having pain in my stomach and bowels (sometimes too), reflux (rarer), but at last it's not an everyday nightmare. I can even have a good week (sweet!). I hope that in the future months those things will go and disappear completely, and that I could call a month a "good month". Well, that's enough for today. I'm very happy for having found this group, and I hope that my questions will be answered, as they will probably come. It was a great challenge for me to find almond flour and a great yogurt starter (I was SO afraid to eat my first yogurt, even taste it was kind of spooky! lol I'm lactose intolerant, pretty powerfully). Thanks to my dad, he tasted it, and next month he run to get me a bigger yogurt-maker to make more! How sweet! Yogurt rock! Have a nice day; Rowanfae Dragons are made with two primal ingredients (and many others too, of course).With Fire and Ice, dragons are born after a year and a day of incubation into the Belly of Mother Earth.So, be cool with Mama Earth! She could send Her Dragons to you if you fool around!Rowanfae Quote Link to comment Share on other sites More sharing options...
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