Re: legal ramifications for parents of SCD kids?

[Guest guest]

From my experience, the attitude from all his docter's has been "ok, whatever" about the diet. They really could care less what you eat, and in fact, they never even ask us. Amazing, a digestive disorder and they don't even ask what you are eating??? Every one I have found so far is just a drug dispensing clone. I bet they won't be if one if and when their kids gets this type of health problem.!Kay-lynnWhen you row another person across the river, you get there yourself..- Fortune cookieSubject: legal ramifications for parents of SCD kids?To: BTVC-SCD Date: Thursday, September 11, 2008, 1:36 PM

Dear group,

I not a traditionalist regarding western medicine. Even though it has

literally saved my life on several occasions and I agree that

sometimes drugs are unavoidable, I wholeheartedly believe in the SCD

and have had some of the same experiences with a doctor's dismissive

attitude about the diet. I assume that I am not alone in this matter.

I am fortunate that I have Crohn's and not my children, but being a

parent does raise a question in my mind. Have any parents who are

trying to move their children from drugs to the SCD faced any concerns

about doctors finding you to be endangering your child by medical neglect?

I understand how ridiculous that sounds, but that question does not

arise from my own perspective, but rather what I imagine could be the

viewpoint of a doctor who has a pediatric patient whose parents are

applying the SCD. Aren't the doctors subject to legal code that

compels them to report medical neglect? Do they have the ability to

make that judgement call or is it explicitly laid out in law? In this

respect, do the results of the diet matter or simply that a parent did

not comply with doctors orders?

I imagine parents must be mindful how they relate to their doctors

when the stakes are so high, but must they be less than forthright

with their doctors in order to protect their children?

Have any of you parents faced this problem or is this issue more a

matter of my vivid imagination?

Cheers,

Stocker

CD 1983

SCD 1/2005

Remission 8/2007

http://eatingSCD. wordpress. com

http://youtube. com/eatingSCD

[Guest guest]

My doc thinks I rock :)He loves that I do this for myself and for my son, whose health he saw turn around in very objectively measurable areas.As long as one is feeding their kids "vegetables, meats and/or eggs; cheese; fruits; muffins, etc", I can't imagine it being an issue. But I would present it that way, and not "no wheat, no sugar, no cereal, no barley, no..."Baden_

[Guest guest]

>

> Dear group,

>

> I not a traditionalist regarding western medicine. Even though it

has

> literally saved my life on several occasions and I agree that

> sometimes drugs are unavoidable, I wholeheartedly believe in the SCD

> and have had some of the same experiences with a doctor's dismissive

> attitude about the diet. I assume that I am not alone in this

matter.

>

> I am fortunate that I have Crohn's and not my children, but being a

> parent does raise a question in my mind. Have any parents who are

> trying to move their children from drugs to the SCD faced any

concerns

> about doctors finding you to be endangering your child by medical

neglect?

>

> I understand how ridiculous that sounds, but that question does not

> arise from my own perspective, but rather what I imagine could be

the

> viewpoint of a doctor who has a pediatric patient whose parents are

> applying the SCD. Aren't the doctors subject to legal code that

> compels them to report medical neglect? Do they have the ability to

> make that judgement call or is it explicitly laid out in law? In

this

> respect, do the results of the diet matter or simply that a parent

did

> not comply with doctors orders?

>

> I imagine parents must be mindful how they relate to their doctors

> when the stakes are so high, but must they be less than forthright

> with their doctors in order to protect their children?

>

> Have any of you parents faced this problem or is this issue more a

> matter of my vivid imagination?

>

> Cheers,

> Stocker

> CD 1983

> SCD 1/2005

> Remission 8/2007

> http://eatingSCD.wordpress.com

> http://youtube.com/eatingSCD

>

& Group,

I had to chime in on this. Child protective services in my state in

the past have been somewhat known for removing children from their

homes for " failure to thrive " . I work in a natural foods store where

we provide many gluten free, dairy free and various other specialty

foods. About 7mos. ago I had the pleasure of helping a young mother

with a then 17mo. old child who was diagnosed earlier that day with

celiac sprue. This beautiful child weighed only 12 pounds, but was

bright and alert. I just had to stop and thank God that the last few

years have brought change, and this child had not been submited to

removal from her home and family. Had she been that small in the past

I am certain this could have been the case. Many children prior to

this diagnosis are somewhat mentally stunted, due to starvation, in

spite of parents best efforts to keep them well fed. This might have

been sighted as further " proof " that a child was neglected.

Like , I have faith in Western Medicine. In the last 5 years,

3 of my close family members have avoided near certain death, with

western medicine. After many I donno's from my doctors, 12 years

of " unspecified autoimmune disorder " , and finally a diagnosis of

Crohn's, the SCD was the answer for me. I pray that the SCD is never

a legal issue, it is a balanced diet, as it provides carbs,just not

in the form of sugar or starch.

I think that many if not most of the Doctors I have spoken to in

my work enviroment, as well as my personal Doctors, might well take

a " Don't ask, Don't tell " attitude. I just hope this is not

challenged on a legal basis, until trial, error, and time can " prove "

the validity of the SCD. I have personal experence with the error,

but only when I fall off the SCD wagon, as I have arthritic pain and

there are not many pain relief options for crohnies. I share your

fear, this is the safest most helpful thing I have found, and

would want it to be a option if it were my Grandchildren. I hope and

pray we are both suffering from " vivid imagination " .

[Guest guest]

I have a son who before SCD was bloated from steroids -- the only

medicine that seemed to control his UC symptoms. After he started SCD,

his food was finally getting into his system, so he began to gain

weight noticeably, and we were off the steroids in a few months. The

doctor, though still wondering if maybe we'd finally found the right

mix of other medicines, couldn't argue with the fact that he made a

major improvement after starting the diet. So her attitude about what

we were doing improved as she saw the results. At the time though, I

spent an average of 40 hours per week, planning, buying & preparing our

SCD food. But it was sure better than spending that time in the

hospital! Now I don't spend that much time, and he's not gaining

weight quite so quickly, but he is making steady improvement. One

thing that works with our doctor is that we am respectful of her

opinion about medicine, and are cutting out his medicines very

gradually and with her approval. So she sees the diet as something

we're trying to do to help, but not as counter to her medical wisdom.

Son w. UC, diagnosed 2005

SCD 2007

On Thursday, September 11, 2008, at 11:56 PM, supplementmary wrote:

>

> >

> > Subject: legal ramifications for parents of SCD kids?

> > To: BTVC-SCD

> > Date: Thursday, September 11, 2008, 1:36 PM

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Dear group,

> >

> >

> >

> > I not a traditionalist regarding western medicine. Even though it

> has

> >

> > literally saved my life on several occasions and I agree that

> >

> > sometimes drugs are unavoidable, I wholeheartedly believe in the SCD

> >

> > and have had some of the same experiences with a doctor's dismissive

> >

> > attitude about the diet. I assume that I am not alone in this

> matter.

> >

> >

> >

> > I am fortunate that I have Crohn's and not my children, but being a

> >

> > parent does raise a question in my mind. Have any parents who are

> >

> > trying to move their children from drugs to the SCD faced any

> concerns

> >

> > about doctors finding you to be endangering your child by medical

> neglect?

> >

> >

> >

> > I understand how ridiculous that sounds, but that question does not

> >

> > arise from my own perspective, but rather what I imagine could be

> the

> >

> > viewpoint of a doctor who has a pediatric patient whose parents are

> >

> > applying the SCD. Aren't the doctors subject to legal code that

> >

> > compels them to report medical neglect? Do they have the ability to

> >

> > make that judgement call or is it explicitly laid out in law? In

> this

> >

> > respect, do the results of the diet matter or simply that a parent

> did

> >

> > not comply with doctors orders?

> >

> >

> >

> > I imagine parents must be mindful how they relate to their doctors

> >

> > when the stakes are so high, but must they be less than forthright

> >

> > with their doctors in order to protect their children?

> >

> >

> >

> > Have any of you parents faced this problem or is this issue more a

> >

> > matter of my vivid imagination?

> >

> >

> >

> > Cheers,

> >

> > Stocker

> >

> > CD 1983

> >

> > SCD 1/2005

> >

> > Remission 8/2007

> >

> > http://eatingSCD. wordpress. com

> >

> > http://youtube. com/eatingSCD

> >

>

>