Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi Ann, When you have hashi's you are hypo. As they thyroid cells are destroyed by the antibody attack, excess hormone is released and you can have hyper symptoms because of this. This is hashitoxicosis. These occurances can be transient, with periods of hyperthyroid followed by euthyroid and eventually back to hypo. This is what has happened to me. Hope this helps, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 The quack that I was seeing said I was the first patient he had ever seen with Hashitoxocosis. The next endo I saw said he had 2 other patients in his career. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Started with severe hypo. Doc started having to lower my Synthroid as my labs were high. Finally took me off and labs were still high. Put me on Tapazole and like a dummy I agreed to RAI 10 months later. I was diagnosed with a 200 tsh so there is no doubt I was in hypohell, but only 6 months later my synthroid started getting decreased. I need to find out with my new endo that I am seeing on the 25th exactly what antibodies I have to see if I went from Hashi's to Graves or if I had Hashitoxicosis or what! I have never really had this explained to me and am wondering if it may be true that Hashi's and Graves are one in the same. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi Ann, here is a good link for you re hashitoxixosis: http://www.suite101.com/article.cfm/graves_disease/71806 Yes, it's time to find a new doc, how frustrating - I know, I've been there. Good luck, Pam B. Hashitoxicosis Thanks to Elaine for such wonderful answers. At least I have a place to begin! I called my doc and asked her to write a script for antibody testing. She refused and told me to have the urine tests done for pheo and carcinoid syndrome. She also said I should have my labs done for FSH and LSH to see if I'm changing life. I'm 45 years old and have had a partial hysterectomy - uterus removed. She wants those labs done right away but no go on the antibody labs. I know Jody, it's time to get a new doc. Funny, but I've only been to see her once and she seemed so open. She was also on the Top Doc list. I have a question: What is Hashitoxicosis? What are the symptoms? Thanks again for all your support. This has been so difficult!! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Thanks Pam for the URL. I printed it out and will take it to my new doc. Another question if I may. I read that the antibodies all must be present. This means that they're just present and not in the abnormal range right? I remember my doc saying I had the peroxidase antibodies but they were not above normal. I did have the TSI at the time, back in 1999 and they were well above normal. Oh well...go figure. Thanks for the info. My husband cannot believe the runaround I'm getting from these people. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Can one experience Hashitoxicosis over a period of years? Then could it go into remission and return again? I read the article it's really facinating. Why don't the docs I've gone to know this stuff? Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 That is a question I've been asking as well, and the other question is how long do the hyper phases last? Not many people, not to mention doctors, know much about it. One woman told me she was fluctuating back and forth for years, sometimes hyper for 6-8 months, sometimes as long as a year. She finally got her thyroid removed, because she couldn't handle the swings. I will be asking my endo about it next week, I'll let you know what I find out. RE: Hashitoxicosis Can one experience Hashitoxicosis over a period of years? Then could it go into remission and return again? I read the article it's really facinating. Why don't the docs I've gone to know this stuff? Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi , did your blood tests show hyper or hypo when your were having hyper symptoms? Thanks, Pam Re: Hashitoxicosis Hi Ann, When you have hashi's you are hypo. As they thyroid cells are destroyed by the antibody attack, excess hormone is released and you can have hyper symptoms because of this. This is hashitoxicosis. These occurances can be transient, with periods of hyperthyroid followed by euthyroid and eventually back to hypo. This is what has happened to me. Hope this helps, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi Ann, if you have my book there's a section on pheochromocytoma mimicking hyperthyroidism but there are also some different symptoms and this is a fairly rare disorder. It's standard practice today to follow patients like you with thyroid antibody tests so I think I would try a new doctor. Hashitoxicosis is a condition in which patients are primarily hypothyroid. However, they have transient symptoms of hyperthyroidism at the same time because they have the antibodies that cause both hypothyroidism and hyperthyroidism. So their lab tests are normal, except of course, for the antibody tests. Hashitoxicosis is similar to the transient hyper symptoms seen in early hypothyroidism but Hashitoxicosis lasts longer, since hypo eventually resolves to full blown hypo. I have a page on Hashitoxicosis on my web site, http://daisyelaine_co.tripod.com/gravesdisease/ Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Yes, you can have Hashitoxicosis for years. I've read reports that it's not all that uncommon either for people to have it for years with it being misdiagnosed. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.