Re:My Daughter/ Supplements

December 3, 2008

Hi Marla,

Many many red flags...

If I miss any please point it out!!

>

> I know you just gave me websites. But I just wrote down the

ingredients in some of the supplements so here they are:

> Magnesium:

> Magnesium citrate, magnesium ascorbate, zinc, stevia, natural orange

flavor

*Not sure about the _magnesium ascorbate_ as that has vitamin C in it?

and not sure what they buffer the C with? So that is questionable but

I could be totally worng!

*_Stevia_ is illegal

*_natural orange flavor_ is totally questionable- is this made from

concentrate? What is this?

> berberine:

> barberry bark of root extract, oregon grape root extract,

goldenseal-root and rhizone extract - alkaloids including berberine,

hydrastine and canadine, veget. polysaccharide capsule, cellulose,

magnesium stearate, silicon dioxide.

*barks and roots are illegal

*_polysaccharide_ capsule- totally illegal

* we also have to be careful of many herbs

> multiple vitamin without iron or copper:

> other ingred: cellulose, silica, stearic acid, rice flour. contains

soybean oil.

*rice flour is illegal

*soybean oil is illegal

> probiotic:

> hydroxypropyl methylcellulose, cellulose, magnesium stearate

Which bacteria is the probiotic?

Is this the S Boulardii you were talking about?

> and Paxil

Elaine said that when we need to take prescription meds we should take

them. If you are super concerned with the illegals in this you can

always get it compounded to be SCD compliant if you can afford it. I

am unsure of the cost difference with your insurance etc..

> and the Endotrex spray (neurotransmitter) :

> water, fructose, hydroxylated lecithin, potassium sorbate, citric

acid. contains lecithin from soy

*fructose is illegal

From what I read briefly the Endotrex is Theanine (which I would like

to take myself) it helps with stress and is calming.. I think there

are legal versions of Theanine.

*hydroxylated lecithin is a red flag for me, not sure about this?

> inositol:

> cellulose, gelatin, veget. stearate

*Not sure what they mean about vegetarian stearate?

> L-Glutamine:

> gelatin, water, glycerin

*This appears legal;

L-Glutamine is a tricky one. Some people do really well on it and

others don't. There is literature out there that it is

contra-indicative with Crohn's. But then there are some Crohn's

people who do well with it. I think if you are considering this- you

should only take something like this when the D has cleared up and she

is feeling much better!

You need to post the brand and a link! To make sure it is legal.

> iodine drops:

> citric acid, potassium sorbate, sodium benzoate

*This 'looks' ok.

When looking into whether a supplement is legal it is best to also

type the name of supplement and a link- as perhaps you missed

something. So what I told you now is more like in general but to give

us a better clue listing the brand name and link is important.

Jodi

SCD 14 months

Crohn's/Colitis

December 3, 2008

Hi Marla,

> So please answer me from last night. Do you think the by being on

these supplements for months while on the diet is the reason Rach

never felt like the diet has helped? And why she still has the anxiety

since I know her anxiety is gut related? And is it just that we have

slowed progress but it wasn't useless for 3 months being on the diet?

Just wondered what you think.

I have been hesitant to answer this as I don't want you to feel too

guilty or kick yourself too much. But it is important to learn. I

will speak for myself and my experience- yes, the tiny bit of illegals

accumulated over time on a daily basis would totally derail my

healing. I'm pretty sure this is the case for your daughter. It's

critical to be adamant and fanatical- this is really how I have seen

results. There are certain factors that I am not responsible for

which caused huge set-backs in me like eating contaminated meat. This

completely derailed my progress and I ended up having to take meds.

With that said I have made many many mistakes among them a lot stemmed

from ignorance. It is crazy learning how many loop holes there are in

food labeling and manufacturing laws.

I have personally been through the 3 month, 6 month, 9 month (which

lasted many months) flares. As it is we have to deal with many issues

that go hand in hand with bowel disease like yeast issues. These

stubborn bad bugs feed on the tiniest illegals and they triumph.

I was thinking maybe there is some different fast acting thing your

daughter can take for anxiety like the nasal spray. With that said

the longer she is on the diet she will see definite results helping

her anxiety. The gut has it's own type of neurotransmitters so it is

like a second brain. There is a huge connection between the gut and

the brain. I used to have anxiety attacks which caused me to have a

totally spastic colon that was watery for days on end. It sucks.

This is in the past for me. Although stress triggers me and I

experience GI issues it is not nearly as horrific as it used to be.

Hang in there!!

Jodi

SCD 14 months

Crohn's/Colitis

December 3, 2008

Allergy Research Corp. - Saccharomyces boulardii (probiotic)

------------------

Marla,

Just to let you know that I've been on SCD for over 9 months, and I'm not considering boulardii (probiotic) yet. I hear second hand that some people have had major symptoms taking boulardii, if their systems can't tolerate it yet.

My guess is that I would be very anxious, if I took boulardii right now. When I do try it, I will start with 1/10 of a capsule. I don't know if the Allergy Research is compliant to SCD or not, but in general, I very much like that company. (No financial interest.)

We're all different--taking note of central nervous system and behavior symptoms is as important, or more important, than gut symptoms for some of us.

It's awesome that you are helping your daughter!

all the best!

Louise

MCS, ME/CFS, FM--severely ill since 1973

food sensitivities and candida

SCD intro Feb. 25/08; GAPS intro Nov. 15/08

Vancouver Island, BC, Canada

December 3, 2008

Hi Marla,So please answer me from last night. Do you think the by being onthese supplements for months while on the diet is the reason Rachnever felt like the diet has helped? And why she still has the anxietysince I know her anxiety is gut related? And is it just that we haveslowed progress but it wasn't useless for 3 months being on the diet?Just wondered what you think.I was thinking maybe there is some different fast acting thing yourdaughter can take for anxiety like the nasal spray. With that saidthe longer she is on the diet she will see definite results helpingher anxiety. The gut has it's own type of neurotransmitters so it islike a second brain. There is a huge connection between the gut andthe brain. There's a book about this, that talks about the gut having its ownperfect neuro circuitry, separate from the brain. That's why the expression gut feeling has so much resonance to it;the gut actually is a parallel processing center, a more primitive one. And it is also the seat of anxiety.Anyway, if you are interesting in reading more about this, or if yourdaughter is, here is the citation for the book:http://www.amazon.com/Second-Brain-Groundbreaking-Understanding-Disorders/dp/0060930721/ref=pd_bbs_sr_1?ie=UTF8 & s=books & qid=1228341315 & sr=8-1http://tinyurl.com/6dgmgeOr second hand:http://www.amazon.com/gp/offer-listing/0060182520/ref=dp_olp_used?ie=UTF8 & condition=usedhttp://tinyurl.com/5gaw7hMara

December 3, 2008

This is my personal opinion and my experience.

I was on some supplements during nine months of SCD.

I think some of them have been perfectly fine, but a couple

have non-SCD fillers.

After some healing of my gut, adrenals, CNS, etc., I am

starting to absorb foods better and to feel differently.

Yes, I have had some healing, even though I didn't do things

perfectly.

For three weeks while on the GAPS intro diet, I have not

taken most of my supplements. This is the first time in

decades that I have been able to go this long without some

of them, without going into major CNS symptoms, such

crying and depression.

My theory is that for the past nine months, the diet has

been helping! I'm now absorbing nutrients that I couldn't

absorb before.

I encourage you. Not everything you have done on the diet

is useless. That's my opinion.

Getting to another level on the diet will of course help, but

I honestly don't think that it's beneficial to feel as if what

you've done the past three months is useless. Just my opinion.

I certainly don't think that what I've been doing the past

nine months is useless. Far from it! It's an answer to prayer.

Sure I"m slow. But I've been severely ill for 35 years. I have

had to work up to the place where I could get off supplements,

similar to how some folks gradually go off their drugs.

Louise

MCS, ME/CFS, FM--severely ill since 1973

food sensitivities and candida

SCD intro--Feb. 25/08; GAPS intro--Nov. 15/08

Vancouver Island, BC, Canada

So please answer me from last night. Do you think the by being onthese supplements for months while on the diet is the reason Rachnever felt like the diet has helped? And why she still has the anxietysince I know her anxiety is gut related? And is it just that we haveslowed progress but it wasn't useless for 3 months being on the diet?Just wondered what you think.

December 3, 2008

This is my personal opinion and my experience. I certainly don't think that what I've been doing the past nine months is useless. Far from it! It's an answer to prayer. Sure I"m slow. But I've been severely ill for 35 years. I have had to work up to the place where I could get off supplements, similar to how some folks gradually go off their drugs.That's wonderful to hear that you are doing better, Louise.Mara

December 3, 2008

I was at the vitamin shoppe today and I noticed that L-tryptophan,

which Eileen is currently taking, is marked as for relaxation.

She thinks it is helping her. I wonder if it would help your daughter

as

well.

Mara

December 3, 2008

i use thorne brand but as long as it's legal - give it a try- takes

time to build up and work - plus I take l-glutamine so i saw more

difference with the 2 together

eileen

>

> I was at the vitamin shoppe today and I noticed that L-tryptophan,

> which Eileen is currently taking, is marked as for relaxation.

>

> She thinks it is helping her. I wonder if it would help your

daughter

> as

> well.

>

> Mara

>

December 6, 2008

Just me again. - with more questions, again.!!!!

What brands of supplements do you use that are legal? I need a b comlex multiple vitamin and something that helps Rach absorb foods.

Also, I need some advice on getting her to gain some weight, especially since she can't do dairy.

Also, I feel 1/2 the time if I'm doing the right thing. The facts are the medical field couldn't find anything in Sept. after doing the endoscope. We know she has celiac disease, a thyroid condition that the med doc can't help with at this time, anxiety and the nutritionist found the overgrowth of bacteria. So, because of the bacteria, we are on this diet. But should I be doing more? Should I get another opinion from a medical doc or will he just say the same thing the first gastro doc said - that her pains were all psych?

We are now trying to go to stage 1 of the diet since she's done the intro all week. She still has loose stools but maybe 1 time a day. Before theintro diet on Tues morning, she had D 3 times. I'm sure some of the D was stress related as this was her first week back to school since June.

But on a positive note - She went up to 2 hours a day by end of the week to school. And is not really nervous at all about it now. She broke the fear cycle that she was on and once she did that, she's been doing really good. She also went to our church's youth group Christmas party last night for 4 hours and had a blast. She hasn't been to youth group since the summer either. She avoided any social things for months. So for her to be at church last night without us there with her, for 4 hours, is a HUGE answer to prayer.

So, I guess I need to hear once again that I'm on the right track with her with this diet. I guess her going to school and youth group is proof of that. But I need to hear it from all of you out there.

I'm worried about her weight and also that I don't have a medical doc that can be on board with this. I'm relying on a nutritionist who is a nice lady but still has given us supplements that were illegal, etc. Any advice, I'd appreciate it.

Thanks to all that replied to all my emails recently. I don't have time to answer each one, but wanted to say thanks for all of your feedback.

Marla

To: BTVC-SCD Sent: Wednesday, December 3, 2008 4:07:44 PMSubject: Re: Re:My Daughter/ Supplements

Hi Marla,

So please answer me from last night. Do you think the by being onthese supplements for months while on the diet is the reason Rachnever felt like the diet has helped? And why she still has the anxietysince I know her anxiety is gut related? And is it just that we haveslowed progress but it wasn't useless for 3 months being on the diet?Just wondered what you think.I was thinking maybe there is some different fast acting thing yourdaughter can take for anxiety like the nasal spray. With that saidthe longer she is on the diet she will see definite results helpingher anxiety. The gut has it's own type of neurotransmitters so it islike a second brain. There is a huge connection between the gut andthe brain.

There's a book about this, that talks about the gut having its own

perfect neuro circuitry, separate from the brain.

That's why the expression gut feeling has so much resonance to it;

the gut actually is a parallel processing center, a more primitive one.

And it is also the seat of anxiety.

Anyway, if you are interesting in reading more about this, or if your

daughter is, here is the citation for the book:

http://www.amazon. com/Second- Brain-Groundbrea king-Understandi ng-Disorders/ dp/0060930721/ ref=pd_bbs_ sr_1?ie=UTF8 & s=books & qid=1228341315 & sr=8-1

http://tinyurl. com/6dgmge

Or second hand:

http://www.amazon. com/gp/offer- listing/00601825 20/ref=dp_ olp_used? ie=UTF8 & condition=used

http://tinyurl. com/5gaw7h

Mara

December 6, 2008

How long do you do each stage of the diet?

We are now starting stage 1 today.

Marla

To: BTVC-SCD Sent: Saturday, December 6, 2008 12:13:22 PMSubject: Re: Re:My Daughter/ Supplements