Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Hi 's Mom, You're correct about your daughter's levels. While reference ranges vary at different testing labs, at most labs her levels would indicate hyperthyroidism and her thyroglobulin antibodies suggest autoimmune thyroid disease. However, while she will always have autoimmune thyroid disease, if Graves' disease is her diagnosis, this disorder runs it's own course, which varies from person to person. Some people achieve remission fairly quickly, while others may be on meds for several years. And after remission, some people have relapses, others may move into spontaneous hypothyroidism (about 20%), and others never have problems again. If opts for anti-thyroid drugs, she'll be maintained on a low dose until she achieves remission. Not that this isn't a lot to go through as Amy's mom, Pam, will tell you. I just want you to know that most children with GD end up achieving remission with anti-thyroid drugs. Used in conjunction with lifestyle and dietary changes, the disease course may even be milder. There are several moms of GD kids on this board although not everyone posts. They will teach you a lot. And the rest of us are all here for you. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Hi 's Mom, You're correct about your daughter's levels. While reference ranges vary at different testing labs, at most labs her levels would indicate hyperthyroidism and her thyroglobulin antibodies suggest autoimmune thyroid disease. However, while she will always have autoimmune thyroid disease, if Graves' disease is her diagnosis, this disorder runs it's own course, which varies from person to person. Some people achieve remission fairly quickly, while others may be on meds for several years. And after remission, some people have relapses, others may move into spontaneous hypothyroidism (about 20%), and others never have problems again. If opts for anti-thyroid drugs, she'll be maintained on a low dose until she achieves remission. Not that this isn't a lot to go through as Amy's mom, Pam, will tell you. I just want you to know that most children with GD end up achieving remission with anti-thyroid drugs. Used in conjunction with lifestyle and dietary changes, the disease course may even be milder. There are several moms of GD kids on this board although not everyone posts. They will teach you a lot. And the rest of us are all here for you. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Hi 's Mom, You're correct about your daughter's levels. While reference ranges vary at different testing labs, at most labs her levels would indicate hyperthyroidism and her thyroglobulin antibodies suggest autoimmune thyroid disease. However, while she will always have autoimmune thyroid disease, if Graves' disease is her diagnosis, this disorder runs it's own course, which varies from person to person. Some people achieve remission fairly quickly, while others may be on meds for several years. And after remission, some people have relapses, others may move into spontaneous hypothyroidism (about 20%), and others never have problems again. If opts for anti-thyroid drugs, she'll be maintained on a low dose until she achieves remission. Not that this isn't a lot to go through as Amy's mom, Pam, will tell you. I just want you to know that most children with GD end up achieving remission with anti-thyroid drugs. Used in conjunction with lifestyle and dietary changes, the disease course may even be milder. There are several moms of GD kids on this board although not everyone posts. They will teach you a lot. And the rest of us are all here for you. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 > Hi 's Mom, > You're correct about your daughter's levels. While reference ranges vary at > different testing labs, at most labs her levels would indicate > hyperthyroidism and her thyroglobulin antibodies suggest autoimmune thyroid > disease. > However, while she will always have autoimmune thyroid disease, if Graves' > disease is her diagnosis, this disorder runs it's own course, which varies > from person to person. Some people achieve remission fairly quickly, while > others may be on meds for several years. And after remission, some people > have relapses, others may move into spontaneous hypothyroidism (about 20%), > and others never have problems again. If opts for anti- thyroid drugs, > she'll be maintained on a low dose until she achieves remission. Not that > this isn't a lot to go through as Amy's mom, Pam, will tell you. I just want > you to know that most children with GD end up achieving remission with > anti-thyroid drugs. Used in conjunction with lifestyle and dietary changes, > the disease course may even be milder. There are several moms of GD kids on > this board although not everyone posts. They will teach you a lot. And the > rest of us are all here for you. Take care, Elaine > > Elaine - I'm not sure if this is the proper way to reply??? but thank you so much for your information. Your book has been recommended to me by many on this board and others so your words carry much weight. I myself have Hashi's and was diagnosed in October, so thankfully our family is already somewhat familiar with this thyroid thing and we remind ourselves daily of how lucky we are to be dealing with something treatable. That's how we feel about , too! your words on remission were incredible, I hope that's what happens with her. Meanwhile, we're learning and praying! The support group has been invaluable with giving me insight into some of Em's idiosyncracies and learning that some of them could be due to her condition. Understanding and knowing that has helped us grow even closer. Em's a great kid and I can't wait to see what she'll be able to do when we get this under control. Thanks, mrsbaird > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 > Hi 's Mom, > You're correct about your daughter's levels. While reference ranges vary at > different testing labs, at most labs her levels would indicate > hyperthyroidism and her thyroglobulin antibodies suggest autoimmune thyroid > disease. > However, while she will always have autoimmune thyroid disease, if Graves' > disease is her diagnosis, this disorder runs it's own course, which varies > from person to person. Some people achieve remission fairly quickly, while > others may be on meds for several years. And after remission, some people > have relapses, others may move into spontaneous hypothyroidism (about 20%), > and others never have problems again. If opts for anti- thyroid drugs, > she'll be maintained on a low dose until she achieves remission. Not that > this isn't a lot to go through as Amy's mom, Pam, will tell you. I just want > you to know that most children with GD end up achieving remission with > anti-thyroid drugs. Used in conjunction with lifestyle and dietary changes, > the disease course may even be milder. There are several moms of GD kids on > this board although not everyone posts. They will teach you a lot. And the > rest of us are all here for you. Take care, Elaine > > Elaine - I'm not sure if this is the proper way to reply??? but thank you so much for your information. Your book has been recommended to me by many on this board and others so your words carry much weight. I myself have Hashi's and was diagnosed in October, so thankfully our family is already somewhat familiar with this thyroid thing and we remind ourselves daily of how lucky we are to be dealing with something treatable. That's how we feel about , too! your words on remission were incredible, I hope that's what happens with her. Meanwhile, we're learning and praying! The support group has been invaluable with giving me insight into some of Em's idiosyncracies and learning that some of them could be due to her condition. Understanding and knowing that has helped us grow even closer. Em's a great kid and I can't wait to see what she'll be able to do when we get this under control. Thanks, mrsbaird > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Welcome Mrs. Baird, I failed to welcome you the other day, so here I am. It's me, -Pam- from About.com...or Almostcrazy, you might remember. I am so glad you made it here. Your post right now, does bring an interesting thought to mind. As a group, those of us with Graves, when you over look our current battle with Graves, we are the type of people I would be proud to have as a daughter. Many very intelligent women here. We all seem to be more than capable, and bright. I have also run into a large numbers of artists, on lists like this. Not a bad bunch, if you have to be in a group, so to speak. I hope you and Amys Mom ( Amys Pam ), have had a chance to meet. And I hope I didn't muddle it up too badly , when I was trying to send each of you the others address. If I did, you will see each other here. You will have quite the crew of veterans here, cheering on. I think you mentioned that you do not yet have your thyroid replacement hormone for yourself, straightened out yet ? If this is so, there are also some here, that may be able to answer questions about that . Good to see you, -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Welcome Mrs. Baird, I failed to welcome you the other day, so here I am. It's me, -Pam- from About.com...or Almostcrazy, you might remember. I am so glad you made it here. Your post right now, does bring an interesting thought to mind. As a group, those of us with Graves, when you over look our current battle with Graves, we are the type of people I would be proud to have as a daughter. Many very intelligent women here. We all seem to be more than capable, and bright. I have also run into a large numbers of artists, on lists like this. Not a bad bunch, if you have to be in a group, so to speak. I hope you and Amys Mom ( Amys Pam ), have had a chance to meet. And I hope I didn't muddle it up too badly , when I was trying to send each of you the others address. If I did, you will see each other here. You will have quite the crew of veterans here, cheering on. I think you mentioned that you do not yet have your thyroid replacement hormone for yourself, straightened out yet ? If this is so, there are also some here, that may be able to answer questions about that . Good to see you, -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 Welcome Mrs. Baird, I failed to welcome you the other day, so here I am. It's me, -Pam- from About.com...or Almostcrazy, you might remember. I am so glad you made it here. Your post right now, does bring an interesting thought to mind. As a group, those of us with Graves, when you over look our current battle with Graves, we are the type of people I would be proud to have as a daughter. Many very intelligent women here. We all seem to be more than capable, and bright. I have also run into a large numbers of artists, on lists like this. Not a bad bunch, if you have to be in a group, so to speak. I hope you and Amys Mom ( Amys Pam ), have had a chance to meet. And I hope I didn't muddle it up too badly , when I was trying to send each of you the others address. If I did, you will see each other here. You will have quite the crew of veterans here, cheering on. I think you mentioned that you do not yet have your thyroid replacement hormone for yourself, straightened out yet ? If this is so, there are also some here, that may be able to answer questions about that . Good to see you, -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi 's Mom, There are several people in this group now that have both Graves Disease and Hashimoto's. You may want to type Hashi's into our search engine in the archives and read what they have to say for your self also. B has some great insights into dealing with this. I believe she is using Armour Thyroid to help keep her regulated. Take care of yourself as well as all you do for . Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi 's Mom, There are several people in this group now that have both Graves Disease and Hashimoto's. You may want to type Hashi's into our search engine in the archives and read what they have to say for your self also. B has some great insights into dealing with this. I believe she is using Armour Thyroid to help keep her regulated. Take care of yourself as well as all you do for . Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi 's Mom, There are several people in this group now that have both Graves Disease and Hashimoto's. You may want to type Hashi's into our search engine in the archives and read what they have to say for your self also. B has some great insights into dealing with this. I believe she is using Armour Thyroid to help keep her regulated. Take care of yourself as well as all you do for . Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Dear Marla, Your story is so famliar to me. I am 25 but my chronic stomach problems have haunted me since I was four. I was an incredibly anxious child (the chicken or the egg?) whose parents also could not figure out why her stomach would not allow her to live a normal life. And my gosh I remember being your daughters age. It is terrible to grow up feeling that lack of control. Random shot in the dark, but have you been told anything about a possible serotonin deficiency? Forgive me this is a very new theory that has just been presented to me by a holistic doctor I'm now seeing, so I know very little. But this doctor told me that the digestive problems might be secondary to a neurotransmitter problem, and that my body might not be producing enough serotonin -- needed not only to keep you calm, but also to regulate your digestive system. My digestive troubles, she has suggested, are then secondary to this stress problem. I have been on TraveCor (5-hydroxytryptophan) and feel more balanced and calm than I have since I can remember. I don't know the validity of this but it's helping me. I hope you can find a way to help your daughter feel less defensive in a life that she thinks is attacking her. Stress and stomach problems are so closely related. I think that's so much of the problem, after twenty years of dealing with this myself. I know you've been getting a lot of advice, but here is mine: Keep her exercising, keep her focusing on things other than health issues, and hopefully get her into a support group with other kids she can feel equal with and relate to. I don't believe you can point your finger at a specific triggers like a tiny bit of illegal in a tiny little supplement and call it the cause of her troubles. My own disease has taught me it's not an equation like that. But if you can shift her into a different mindset where her disease does not feel so hopeless, her mind might let her heal. Kate Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.