question

June 26, 2001

Lynne,

If you mean that you are not receiving your fibromyalgia messages. I can see

nothing wrong.

If it is an email account with Yahoo, you will have to ask them what is wrong.

If you receive this, then you will know all is all right.

This list get slow at times and other times, it is very busy.

Take care,

Irene

CO-Moderator

>

> Does anyone know why I am not receiving my posts at my Yahoo mailbox?

> Can someone help?

>

June 27, 2001

Lynne,

I checked your settings and didn't see any reason why

you aren't getting mail...except that the email

address showing in the member file is your aol

address. If you want this to go to your yahoo

address, you will need to make that change. I can't

change it for you. Go to yahoogroups and sign into

our group. Go to my groups, then edit my groups.

Scroll down to your email address. Click the arrow.

It should show your aol address and your yahoo

address. Select yahoo address and save. If it only

has your aol address, click add address. Type in the

yahoo address and click verify. When your address

gets the verification, you follow directions to link

it to your group. Then go in and follow the

directions to change delivery to the yahoo address.

Hope that helps.

Peace,

*another co-moderator

__________________________________________________

June 27, 2001

Lynne,

I checked your settings and didn't see any reason why

you aren't getting mail...except that the email

address showing in the member file is your aol

address. If you want this to go to your yahoo

address, you will need to make that change. I can't

change it for you. Go to yahoogroups and sign into

our group. Go to my groups, then edit my groups.

Scroll down to your email address. Click the arrow.

It should show your aol address and your yahoo

address. Select yahoo address and save. If it only

has your aol address, click add address. Type in the

yahoo address and click verify. When your address

gets the verification, you follow directions to link

it to your group. Then go in and follow the

directions to change delivery to the yahoo address.

Hope that helps.

Peace,

*another co-moderator

__________________________________________________

June 27, 2001

Lynne,

I checked your settings and didn't see any reason why

you aren't getting mail...except that the email

address showing in the member file is your aol

address. If you want this to go to your yahoo

address, you will need to make that change. I can't

change it for you. Go to yahoogroups and sign into

our group. Go to my groups, then edit my groups.

Scroll down to your email address. Click the arrow.

It should show your aol address and your yahoo

address. Select yahoo address and save. If it only

has your aol address, click add address. Type in the

yahoo address and click verify. When your address

gets the verification, you follow directions to link

it to your group. Then go in and follow the

directions to change delivery to the yahoo address.

Hope that helps.

Peace,

*another co-moderator

__________________________________________________

June 28, 2001

I am a glaucoma suspect. I have had laser treatment to cut a new space for

the fluid behind my eye to drain. The usual place was closing up and I had a

lot of pressure behind my right eye. I am sure this is not the medical way

to describe it. I go in every 6 months to have my eyes checked.

Take care,

Irene

> For several years now, the eye Dr.'s have been playing with the diagnosis of

> glaucoma for me, and just last week, the Dr. made a firm diagnosis. I have

> the symptoms, and use eye drops, but I think the Dr.'s didn't really want to

> make the diagnosis. Anyway, I was just wondering if anyone else has this

>

June 28, 2001

I am a glaucoma suspect. I have had laser treatment to cut a new space for

the fluid behind my eye to drain. The usual place was closing up and I had a

lot of pressure behind my right eye. I am sure this is not the medical way

to describe it. I go in every 6 months to have my eyes checked.

Take care,

Irene

> For several years now, the eye Dr.'s have been playing with the diagnosis of

> glaucoma for me, and just last week, the Dr. made a firm diagnosis. I have

> the symptoms, and use eye drops, but I think the Dr.'s didn't really want to

> make the diagnosis. Anyway, I was just wondering if anyone else has this

>

June 28, 2001

I am a glaucoma suspect. I have had laser treatment to cut a new space for

the fluid behind my eye to drain. The usual place was closing up and I had a

lot of pressure behind my right eye. I am sure this is not the medical way

to describe it. I go in every 6 months to have my eyes checked.

Take care,

Irene

> For several years now, the eye Dr.'s have been playing with the diagnosis of

> glaucoma for me, and just last week, the Dr. made a firm diagnosis. I have

> the symptoms, and use eye drops, but I think the Dr.'s didn't really want to

> make the diagnosis. Anyway, I was just wondering if anyone else has this

>

July 2, 2001

I'am also a sufferer and I'm 31 years old.

You need to read as much as you can on this. Look it up on the Internet or

get you a book. I think what's happening to you is Muscle Spasms. That what

happens to me. I may be wrong. But muscle spasms is very common. I have

tried Yoga techniques and stretching and hot showers will indeed help this.

Good Luck

Sincerely Pamm

July 2, 2001

I'am also a sufferer and I'm 31 years old.

You need to read as much as you can on this. Look it up on the Internet or

get you a book. I think what's happening to you is Muscle Spasms. That what

happens to me. I may be wrong. But muscle spasms is very common. I have

tried Yoga techniques and stretching and hot showers will indeed help this.

Good Luck

Sincerely Pamm

July 2, 2001

I'am also a sufferer and I'm 31 years old.

You need to read as much as you can on this. Look it up on the Internet or

get you a book. I think what's happening to you is Muscle Spasms. That what

happens to me. I may be wrong. But muscle spasms is very common. I have

tried Yoga techniques and stretching and hot showers will indeed help this.

Good Luck

Sincerely Pamm

July 2, 2001

At 12:07 AM 07/02/2001 -0400, PUSASALES@... wrote:

>I think what's happening to you is Muscle Spasms.

I'm honestly not sure. I think I *could* move if I absolutely HAD to, but

the pain is so bad I just freeze in place. Instead of the duller constant

pain I've been trying to get used to, this is like someone upping the

voltage from 110 to 220 -- it's just POW. Grit your teeth and freeze in

place until the pain lessens enough for you to move.

Thank you for your letter -- I *will* research this.

Best,

Em

July 2, 2001

At 12:07 AM 07/02/2001 -0400, PUSASALES@... wrote:

>I think what's happening to you is Muscle Spasms.

I'm honestly not sure. I think I *could* move if I absolutely HAD to, but

the pain is so bad I just freeze in place. Instead of the duller constant

pain I've been trying to get used to, this is like someone upping the

voltage from 110 to 220 -- it's just POW. Grit your teeth and freeze in

place until the pain lessens enough for you to move.

Thank you for your letter -- I *will* research this.

Best,

Em

July 2, 2001

abraxis3@...

Hi Em,

Welcome!

You might ask your doctor for some muscles relaxers,

and take some nice warm baths...not too hot! Get out

the bubble bath and pamper yourself. Turn the lights

down, light a candle, and place it where you can just

look at the flame. Lay back, take some nice slow,

deep breaths in and out and start with your toes and

wiggle them, then tell them to go limp. Continue

doing

this on 'every' part of your body! Don't worry

about whether this will work or not...just do it.

Once you have done this clear up to your forehead,

then picture a mouse hole and ask yourself, " I wonder

what 'thought' will come up out of this hole " . Lay

there, and in your mind focus on that hole. " This

will give your mind a rest from thoughts for a little

while. Our mind needs a rest, too! Do this

for about 20 minutes...we don't want you to shrivel

up!

After this, ask yourself, " What have I been so

'uptight' about? " The first thing that pops into your

head will be the answer! Is there something you are

feeling you need to do and haven't? Is there someone

you need to say something to in order to 'honor'

yourself?

Whatever it is. Be 'gentle' with yourself, Em. Have

you been critical of yourself? Let it go! You are

a wonderful person, and don't believe otherwise! Give

yourself some love! It helps, a lot!

Take care!

Love,

Sue

--- Brunson wrote:

> Hi there --

>

> I am very new to fibromyalgia, and I dont' have

> anyone to ask about this --

> please forgive if it seems an elementary question.

>

> My syndrome, if you will, I guess, is to feel fine

> when I'm sitting down or

> lying down, but a few moments after I get up I

> " freeze " for anywhere from

> 1-5 minutes. It's like all my muscles clench at

> once, and the pain is

> excruciating. I can't move at all. Then it slowly

> subsides, and I can sit

> down.

>

> Is this common? Any information would be welcome --

> I'm utterly in the

> dark about it. And it happens consistently enough

> to have begun

> interfering with work, which frightens me.

>

> Thanks in advance,

> Em

>

__________________________________________________

July 2, 2001

Yes, Em it is common. Mostly when you get up in the morning. It happens to

me when I have been driving a long distance. When I tell my husband that I

need to stop and walk around, we do. I also have problems with this during

the night, I wake up from pain and it is so horrific that I can't move.

Doesn't last long but quite painful when it is there.

Take care,

Irene

> My syndrome, if you will, I guess, is to feel fine when I'm sitting down or

> lying down, but a few moments after I get up I " freeze " for anywhere from

> 1-5 minutes. It's like all my muscles clench at once, and the pain is

> excruciating. I can't move at all. Then it slowly subsides, and I can sit

>

July 2, 2001

Yes, Em it is common. Mostly when you get up in the morning. It happens to

me when I have been driving a long distance. When I tell my husband that I

need to stop and walk around, we do. I also have problems with this during

the night, I wake up from pain and it is so horrific that I can't move.

Doesn't last long but quite painful when it is there.

Take care,

Irene

> My syndrome, if you will, I guess, is to feel fine when I'm sitting down or

> lying down, but a few moments after I get up I " freeze " for anywhere from

> 1-5 minutes. It's like all my muscles clench at once, and the pain is

> excruciating. I can't move at all. Then it slowly subsides, and I can sit

>

July 2, 2001

Yes, Em it is common. Mostly when you get up in the morning. It happens to

me when I have been driving a long distance. When I tell my husband that I

need to stop and walk around, we do. I also have problems with this during

the night, I wake up from pain and it is so horrific that I can't move.

Doesn't last long but quite painful when it is there.

Take care,

Irene

> My syndrome, if you will, I guess, is to feel fine when I'm sitting down or

> lying down, but a few moments after I get up I " freeze " for anywhere from

> 1-5 minutes. It's like all my muscles clench at once, and the pain is

> excruciating. I can't move at all. Then it slowly subsides, and I can sit

>

July 3, 2001

Em,

I am not sure if I can explain this either. But, I am

not " fine " sitting. The " freeze " you describe, I get

this from sitting, or holding my arm a certain way.

Then I can't move it until the muscle relaxes. Seems

to be just part of FMS. I haven't found a way to deal

with it. You definitely are not alone, though.

Peace,

__________________________________________________

July 3, 2001

Em,

I am not sure if I can explain this either. But, I am

not " fine " sitting. The " freeze " you describe, I get

this from sitting, or holding my arm a certain way.

Then I can't move it until the muscle relaxes. Seems

to be just part of FMS. I haven't found a way to deal

with it. You definitely are not alone, though.

Peace,

__________________________________________________

July 3, 2001

Em,

I am not sure if I can explain this either. But, I am

not " fine " sitting. The " freeze " you describe, I get

this from sitting, or holding my arm a certain way.

Then I can't move it until the muscle relaxes. Seems

to be just part of FMS. I haven't found a way to deal

with it. You definitely are not alone, though.

Peace,

__________________________________________________

July 3, 2001

When I read your question about the muscle pain it made me think of what those

with Chiari malformation and/or cervical stenosis describe. Some of my friends

on another forum have this and describe intense muscular pain, sometimes

feeling like an electrical jolt or spasm. I'm not saying that you have this, but

if you haven't had an mri of your brainstem and c-spine that rules this out, it

might be worth investigating. I know that Dr. Heffez in Chicago will review your

films for free. I can give you links on this stuff if you're interested.

8:) Nina

July 3, 2001

When I read your question about the muscle pain it made me think of what those

with Chiari malformation and/or cervical stenosis describe. Some of my friends

on another forum have this and describe intense muscular pain, sometimes

feeling like an electrical jolt or spasm. I'm not saying that you have this, but

if you haven't had an mri of your brainstem and c-spine that rules this out, it

might be worth investigating. I know that Dr. Heffez in Chicago will review your

films for free. I can give you links on this stuff if you're interested.

8:) Nina

July 3, 2001

When I read your question about the muscle pain it made me think of what those

with Chiari malformation and/or cervical stenosis describe. Some of my friends

on another forum have this and describe intense muscular pain, sometimes

feeling like an electrical jolt or spasm. I'm not saying that you have this, but

if you haven't had an mri of your brainstem and c-spine that rules this out, it

might be worth investigating. I know that Dr. Heffez in Chicago will review your

films for free. I can give you links on this stuff if you're interested.

8:) Nina

July 3, 2001

Thank you for the info, Nina!

I have had a recent brain MRI, but I don't know if that included the

brainstem. I have a mild case of hydrocephalus which has only been

discovered in the past 6 months. The neurosurgeon who evaluated me said

that my skull is large enough to house both the brain and the fluid (all

four ventricles are substantially enlarged) without damage, and that they'd

do another MRI in about a year just to check. I don't believe this has

anything to do with my myalgia problems; I have extremely high blood

pressure, and the MRI was to see if the fluid was causing it.

Thanks again

Em

At 11:01 AM 07/03/2001 -0400, Nina Wilde wrote:

>When I read your question about the muscle pain it made me think of what

>those with Chiari malformation and/or cervical stenosis describe. Some of

>my friends on another forum have this and describe intense muscular pain,

>sometimes feeling like an electrical jolt or spasm. I'm not saying that

>you have this, but if you haven't had an mri of your brainstem and c-spine

>that rules this out, it might be worth investigating.

July 3, 2001