Re: first dose of SR T3--for Nick

[Guest guest]

Thanks, Nick. I'm on the adrenals group, too, so have already shown Val the cortisol labs. You're right--she recommends a higher dose. But as I said, my doc is conservative about it and unwilling to give me more than this, at least initially. So I've been respecting his position, for now. I've saved your comments and will discuss them with him, including the issue of the iron IV, and send him a link to the RT3 website. Although he's conservative, he's normally quite responsive to my concerns--he knows I do my homework.

One of my main concerns is that this is SR T3, so it's different from the regular stuff, which means I don't really understand what I should be experiencing, what to watch out for, whether the major fatigue of today, plus the hyper feeling, could possibly be related to SR T3 in such a minuscule dose--5 mcg. From everything I read on the website (and thanks SO MUCH for your efforts--it's fantastic), regular T3 is so much easier to dose. So I'll definitely ask for it. But meanwhile, the question--can such a tiny dose of SR T3 be causing any reaction whatsoever? I'm inclined to think, since you emphasize the severity of my labs, that the answer might be yes.

Finally, the idea that my CFS might actually be radically improved almost moves me to tears. I think I failed to mention that I've had it for 25 years. I have repeatedly asked for thyroid testing, and have always been assured, based on the TSH, that there was no issue. It wasn't till I found STTM and the RT3 website that I was able to ask in an informed way for what I needed. You are performing an absolutely invaluable service, and I am more grateful than I can say.

Peggy

Re: first dose of SR T3 Bump Val Adrenal help please

You are going to need a LOT more HC than that. You are horribly hypoand have the worst FT3/RT3 ratio I have seen in the 9 months I havebeen on the group, first as someone with problems and then staying onto help Val out and putting the web site together>T3, free, serum 2.1 (2.0-4.4) pg/mL>RT3 434 ( 90-350) pg/mL2100/434 = 4.8. Needs to be over 20Also horribly hypo, that FT3 will need to be around 5 or 6 to feelreally well.The good news is your Chronic Fatigue is thoroughly explained by thoselabs and there is no reason why in 6 months time you can't be feelinga LOT better as long as the Drs don't get in the way of you needing adecent dose of HC and to go onto T3 only, we normally say a minimumof 3 months but in your case I suspect it may take longer as I havenever seen labs that bad.Nick

[Guest guest]

>From everything I read on the website (and thanks SO MUCH for your

efforts--it's fantastic), regular T3 is so much easier to dose. So I'll

definitely ask for it.

Glad it makes sense, it saves a lot of typing when replying to

questions on the list here being able to point people at the right

place, it let me put more information in than I could in individual

answers as well.

>But meanwhile, the question--can such a tiny dose of SR T3 be causing any

reaction whatsoever? I'm inclined to think, since you emphasize the severity of

my labs, that the answer might be yes.

The most likely thing that it did was take cortisol lower, and that's

too low and disregulated due to too low a dose making it worse.

>

In your case it really will be necessary to supplement HC until

temperatures are stable before increasing T3. That ferritin will need

to be higher too

>Finally, the idea that my CFS might actually be radically improved almost moves

me to tears. I think I failed to mention that I've had it for 25 years. I have

repeatedly asked for thyroid testing, and have always been assured, based on the

TSH, that there was no issue. It wasn't till I found STTM and the RT3 website

that I was able to ask in an informed way for what I needed. You are performing

an absolutely invaluable service, and I am more grateful than I can say.

Stunning incompetence from the medical profession. There is an

interesting statistic that CFS diagnosis only started to become common

at the time the TSH test was introduced. The " false negatives " that

occur due to the TSH test are a big problem. My the time people like

you manage to get to the bottom of the thyroid issue adrenal and RT3

issues have developed as well.

Nick