Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Hello, I am happy to hear that you found Dr. Ponseti before your grandson was treated the " other " way. A lot of parents/grandparents aren't as lucky and end up going through a lot of unnecessary treatments before they find the wonderful Dr. Ponseti! You will find this group to be very intellegent, helpful, responsive, understanding and loving as I have! I think we are just one big family, the Dr. Ponseti cf family! Glad to have you! Sincererly, & Breanna ugo2l wrote: Hello everyone I am a new member here and would like to introduce myslef, and tell everyone about my familys experince with cf. My name is Leora I live in NE. My experince started 21 years ago when my son was born with cf. At that time I knew nothing about cf and trusted my Dr to guide me in getting the treatment my son needed, we were sent to a sugeron. was in cast for about the first 6 months of his life and had his first sugery when he was about 14 months old. Scince then he has had 7 sugerys in all and his foot is scared and painful. I must say we have always be greatful for the treatment kevin recived. We did not know that cf could be treated and corrected without sugery. When My grandson Dylan was born in March 2002 with bilatreial clubfeet, My husban Tom got on the internet and found Doctor Ponseti. Dylan started treatment when he was 12 days old he had 5 sets of cast and then wore the dennis brown splint for three months 24 hours a day. Dylan is now 5 months old and wears his dennis brown splint while he sleeps, his feet look wonderful. You would never know he had cf just by looking at his feet. If only we had knowen about Doctor Ponseti when was born. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Hello, I am happy to hear that you found Dr. Ponseti before your grandson was treated the " other " way. A lot of parents/grandparents aren't as lucky and end up going through a lot of unnecessary treatments before they find the wonderful Dr. Ponseti! You will find this group to be very intellegent, helpful, responsive, understanding and loving as I have! I think we are just one big family, the Dr. Ponseti cf family! Glad to have you! Sincererly, & Breanna ugo2l wrote: Hello everyone I am a new member here and would like to introduce myslef, and tell everyone about my familys experince with cf. My name is Leora I live in NE. My experince started 21 years ago when my son was born with cf. At that time I knew nothing about cf and trusted my Dr to guide me in getting the treatment my son needed, we were sent to a sugeron. was in cast for about the first 6 months of his life and had his first sugery when he was about 14 months old. Scince then he has had 7 sugerys in all and his foot is scared and painful. I must say we have always be greatful for the treatment kevin recived. We did not know that cf could be treated and corrected without sugery. When My grandson Dylan was born in March 2002 with bilatreial clubfeet, My husban Tom got on the internet and found Doctor Ponseti. Dylan started treatment when he was 12 days old he had 5 sets of cast and then wore the dennis brown splint for three months 24 hours a day. Dylan is now 5 months old and wears his dennis brown splint while he sleeps, his feet look wonderful. You would never know he had cf just by looking at his feet. If only we had knowen about Doctor Ponseti when was born. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Welcome to the board, Leora! I'm happy to hear that Dylan's treatment was so successful! If you don't mind me asking, what doctor did he see? I'm sorry to hear that has undergone so much with his clubfoot. There are other clubfoot parents here who are in the very same situation. We didn't have a family history- so it was very much a shock to us when my daughter was born with clubfoot! I hope Dylan continues to do well- please keep us updated! And feel free to post if you have any questions/comments/concerns! Regards, & (3-16-00) left clubfoot, switched to Ponseti method at 4 months old > > Hello everyone I am a new member here and would like to introduce > myslef, and tell everyone about my familys experince with cf. My name > is Leora I live in NE. My experince started 21 years ago when my son > was born with cf. At that time I knew nothing about cf and > trusted my Dr to guide me in getting the treatment my son needed, we > were sent to a sugeron. was in cast for about the first 6 > months of his life and had his first sugery when he was about 14 > months old. Scince then he has had 7 sugerys in all and his foot is > scared and painful. I must say we have always be greatful for the > treatment kevin recived. We did not know that cf could be treated and > corrected without sugery. When My grandson Dylan was born in March > 2002 with bilatreial clubfeet, My husban Tom got on the internet and > found Doctor Ponseti. Dylan started treatment when he was 12 days old > he had 5 sets of cast and then wore the dennis brown splint for three > months 24 hours a day. Dylan is now 5 months old and wears his dennis > brown splint while he sleeps, his feet look wonderful. You would > never know he had cf just by looking at his feet. If only we had > knowen about Doctor Ponseti when was born. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Welcome to the board, Leora! I'm happy to hear that Dylan's treatment was so successful! If you don't mind me asking, what doctor did he see? I'm sorry to hear that has undergone so much with his clubfoot. There are other clubfoot parents here who are in the very same situation. We didn't have a family history- so it was very much a shock to us when my daughter was born with clubfoot! I hope Dylan continues to do well- please keep us updated! And feel free to post if you have any questions/comments/concerns! Regards, & (3-16-00) left clubfoot, switched to Ponseti method at 4 months old > > Hello everyone I am a new member here and would like to introduce > myslef, and tell everyone about my familys experince with cf. My name > is Leora I live in NE. My experince started 21 years ago when my son > was born with cf. At that time I knew nothing about cf and > trusted my Dr to guide me in getting the treatment my son needed, we > were sent to a sugeron. was in cast for about the first 6 > months of his life and had his first sugery when he was about 14 > months old. Scince then he has had 7 sugerys in all and his foot is > scared and painful. I must say we have always be greatful for the > treatment kevin recived. We did not know that cf could be treated and > corrected without sugery. When My grandson Dylan was born in March > 2002 with bilatreial clubfeet, My husban Tom got on the internet and > found Doctor Ponseti. Dylan started treatment when he was 12 days old > he had 5 sets of cast and then wore the dennis brown splint for three > months 24 hours a day. Dylan is now 5 months old and wears his dennis > brown splint while he sleeps, his feet look wonderful. You would > never know he had cf just by looking at his feet. If only we had > knowen about Doctor Ponseti when was born. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Leora, Just think about what you said that you have always been thankful for the treatment that received. There was really not much of a way to research this 21 years ago without the internet. It was also a very different time in medicine. At that time people didn't second guess what a doctor said. Continue to be thankful for what you did for and with the changes in medicine (patients gaining the abililty to advocate for themselves) and resources such as the internet and be thankful for what you found for Dylan. I hope Dylan continues to do well. Pam and (8-12-01) > > Hello everyone I am a new member here and would like to introduce > myslef, and tell everyone about my familys experince with cf. My name > is Leora I live in NE. My experince started 21 years ago when my son > was born with cf. At that time I knew nothing about cf and > trusted my Dr to guide me in getting the treatment my son needed, we > were sent to a sugeron. was in cast for about the first 6 > months of his life and had his first sugery when he was about 14 > months old. Scince then he has had 7 sugerys in all and his foot is > scared and painful. I must say we have always be greatful for the > treatment kevin recived. We did not know that cf could be treated and > corrected without sugery. When My grandson Dylan was born in March > 2002 with bilatreial clubfeet, My husban Tom got on the internet and > found Doctor Ponseti. Dylan started treatment when he was 12 days old > he had 5 sets of cast and then wore the dennis brown splint for three > months 24 hours a day. Dylan is now 5 months old and wears his dennis > brown splint while he sleeps, his feet look wonderful. You would > never know he had cf just by looking at his feet. If only we had > knowen about Doctor Ponseti when was born. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Leora, Just think about what you said that you have always been thankful for the treatment that received. There was really not much of a way to research this 21 years ago without the internet. It was also a very different time in medicine. At that time people didn't second guess what a doctor said. Continue to be thankful for what you did for and with the changes in medicine (patients gaining the abililty to advocate for themselves) and resources such as the internet and be thankful for what you found for Dylan. I hope Dylan continues to do well. Pam and (8-12-01) > > Hello everyone I am a new member here and would like to introduce > myslef, and tell everyone about my familys experince with cf. My name > is Leora I live in NE. My experince started 21 years ago when my son > was born with cf. At that time I knew nothing about cf and > trusted my Dr to guide me in getting the treatment my son needed, we > were sent to a sugeron. was in cast for about the first 6 > months of his life and had his first sugery when he was about 14 > months old. Scince then he has had 7 sugerys in all and his foot is > scared and painful. I must say we have always be greatful for the > treatment kevin recived. We did not know that cf could be treated and > corrected without sugery. When My grandson Dylan was born in March > 2002 with bilatreial clubfeet, My husban Tom got on the internet and > found Doctor Ponseti. Dylan started treatment when he was 12 days old > he had 5 sets of cast and then wore the dennis brown splint for three > months 24 hours a day. Dylan is now 5 months old and wears his dennis > brown splint while he sleeps, his feet look wonderful. You would > never know he had cf just by looking at his feet. If only we had > knowen about Doctor Ponseti when was born. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Pam You are absoulaty right and I did not mean to make it sound as though I am no longer greatful for the treatment recived 21 years ago. I am and always will be greatful for that, I am so happy that Dylan won't need to have the pain and sugery like his Uncle had. Leora --- pammi_kay wrote: > Leora, > > Just think about what you said that you have always > been thankful for > the treatment that received. There was really > not much of a > way to research this 21 years ago without the > internet. It was also > a very different time in medicine. At that time > people didn't second > guess what a doctor said. Continue to be thankful > for what you did > for and with the changes in medicine (patients > gaining the > abililty to advocate for themselves) and resources > such as the > internet and be thankful for what you found for > Dylan. I hope Dylan > continues to do well. > > Pam and (8-12-01) > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Pam You are absoulaty right and I did not mean to make it sound as though I am no longer greatful for the treatment recived 21 years ago. I am and always will be greatful for that, I am so happy that Dylan won't need to have the pain and sugery like his Uncle had. Leora --- pammi_kay wrote: > Leora, > > Just think about what you said that you have always > been thankful for > the treatment that received. There was really > not much of a > way to research this 21 years ago without the > internet. It was also > a very different time in medicine. At that time > people didn't second > guess what a doctor said. Continue to be thankful > for what you did > for and with the changes in medicine (patients > gaining the > abililty to advocate for themselves) and resources > such as the > internet and be thankful for what you found for > Dylan. I hope Dylan > continues to do well. > > Pam and (8-12-01) > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Leora, So interesting. I am almost due and my son will be born with bilateral club foot. My brother in law was born with bilateral club foot 30+ years ago. His twin boys are fine but the genes hit through his brother - my husband. What a connection. We have to do something before its time for this generation to have babies. I will be working on locating genetic labs doing research on isolating the club foot gene. Please let me know if you know anything about that. Dessi Re: Re: New member Pam You are absoulaty right and I did not mean to make it sound as though I am no longer greatful for the treatment recived 21 years ago. I am and always will be greatful for that, I am so happy that Dylan won't need to have the pain and sugery like his Uncle had. Leora --- pammi_kay wrote: > Leora, > > Just think about what you said that you have always > been thankful for > the treatment that received. There was really > not much of a > way to research this 21 years ago without the > internet. It was also > a very different time in medicine. At that time > people didn't second > guess what a doctor said. Continue to be thankful > for what you did > for and with the changes in medicine (patients > gaining the > abililty to advocate for themselves) and resources > such as the > internet and be thankful for what you found for > Dylan. I hope Dylan > continues to do well. > > Pam and (8-12-01) > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Leora, So interesting. I am almost due and my son will be born with bilateral club foot. My brother in law was born with bilateral club foot 30+ years ago. His twin boys are fine but the genes hit through his brother - my husband. What a connection. We have to do something before its time for this generation to have babies. I will be working on locating genetic labs doing research on isolating the club foot gene. Please let me know if you know anything about that. Dessi Re: Re: New member Pam You are absoulaty right and I did not mean to make it sound as though I am no longer greatful for the treatment recived 21 years ago. I am and always will be greatful for that, I am so happy that Dylan won't need to have the pain and sugery like his Uncle had. Leora --- pammi_kay wrote: > Leora, > > Just think about what you said that you have always > been thankful for > the treatment that received. There was really > not much of a > way to research this 21 years ago without the > internet. It was also > a very different time in medicine. At that time > people didn't second > guess what a doctor said. Continue to be thankful > for what you did > for and with the changes in medicine (patients > gaining the > abililty to advocate for themselves) and resources > such as the > internet and be thankful for what you found for > Dylan. I hope Dylan > continues to do well. > > Pam and (8-12-01) > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Leora, So interesting. I am almost due and my son will be born with bilateral club foot. My brother in law was born with bilateral club foot 30+ years ago. His twin boys are fine but the genes hit through his brother - my husband. What a connection. We have to do something before its time for this generation to have babies. I will be working on locating genetic labs doing research on isolating the club foot gene. Please let me know if you know anything about that. Dessi Re: Re: New member Pam You are absoulaty right and I did not mean to make it sound as though I am no longer greatful for the treatment recived 21 years ago. I am and always will be greatful for that, I am so happy that Dylan won't need to have the pain and sugery like his Uncle had. Leora --- pammi_kay wrote: > Leora, > > Just think about what you said that you have always > been thankful for > the treatment that received. There was really > not much of a > way to research this 21 years ago without the > internet. It was also > a very different time in medicine. At that time > people didn't second > guess what a doctor said. Continue to be thankful > for what you did > for and with the changes in medicine (patients > gaining the > abililty to advocate for themselves) and resources > such as the > internet and be thankful for what you found for > Dylan. I hope Dylan > continues to do well. > > Pam and (8-12-01) > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 , Thank you for your warm welcome. Dylan went to Iowa City Iowa and was seen by Dr. Ponseti. I Hope your daugther's treatment is going well. Leora --- jennifertrevillian wrote: > Welcome to the board, Leora! I'm happy to hear that > Dylan's > treatment was so successful! If you don't mind me > asking, what > doctor did he see? > I'm sorry to hear that has undergone so much > with his > clubfoot. There are other clubfoot parents here who > are in the very > same situation. We didn't have a family history- so > it was very much > a shock to us when my daughter was born with > clubfoot! > I hope Dylan continues to do well- please keep us > updated! And feel > free to post if you have any > questions/comments/concerns! > Regards, > & (3-16-00) > left clubfoot, switched to Ponseti method at 4 > months old > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 , Thank you for your warm welcome. Dylan went to Iowa City Iowa and was seen by Dr. Ponseti. I Hope your daugther's treatment is going well. Leora --- jennifertrevillian wrote: > Welcome to the board, Leora! I'm happy to hear that > Dylan's > treatment was so successful! If you don't mind me > asking, what > doctor did he see? > I'm sorry to hear that has undergone so much > with his > clubfoot. There are other clubfoot parents here who > are in the very > same situation. We didn't have a family history- so > it was very much > a shock to us when my daughter was born with > clubfoot! > I hope Dylan continues to do well- please keep us > updated! And feel > free to post if you have any > questions/comments/concerns! > Regards, > & (3-16-00) > left clubfoot, switched to Ponseti method at 4 > months old > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 , Thank you for your warm welcome. Dylan went to Iowa City Iowa and was seen by Dr. Ponseti. I Hope your daugther's treatment is going well. Leora --- jennifertrevillian wrote: > Welcome to the board, Leora! I'm happy to hear that > Dylan's > treatment was so successful! If you don't mind me > asking, what > doctor did he see? > I'm sorry to hear that has undergone so much > with his > clubfoot. There are other clubfoot parents here who > are in the very > same situation. We didn't have a family history- so > it was very much > a shock to us when my daughter was born with > clubfoot! > I hope Dylan continues to do well- please keep us > updated! And feel > free to post if you have any > questions/comments/concerns! > Regards, > & (3-16-00) > left clubfoot, switched to Ponseti method at 4 > months old > > > > > > Hello everyone I am a new member here and > would like to > introduce > > myslef, and tell everyone about my familys > experince with cf. My > name > > is Leora I live in NE. My experince started 21 > years ago when my > son > > was born with cf. At that time I knew > nothing about cf and > > trusted my Dr to guide me in getting the treatment > my son needed, > we > > were sent to a sugeron. was in cast for > about the first 6 > > months of his life and had his first sugery when > he was about 14 > > months old. Scince then he has had 7 sugerys in > all and his foot is > > scared and painful. I must say we have always be > greatful for the > > treatment kevin recived. We did not know that cf > could be treated > and > > corrected without sugery. When My grandson Dylan > was born in March > > 2002 with bilatreial clubfeet, My husban Tom got > on the internet > and > > found Doctor Ponseti. Dylan started treatment when > he was 12 days > old > > he had 5 sets of cast and then wore the dennis > brown splint for > three > > months 24 hours a day. Dylan is now 5 months old > and wears his > dennis > > brown splint while he sleeps, his feet look > wonderful. You would > > never know he had cf just by looking at his feet. > If only we had > > knowen about Doctor Ponseti when was born. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 You are right I have already gotten so many warm welcomes from everyone here it is a very warm and comfortable here. And so nice to talk to other people who are going through the same thing as you are it helps alot. and is so nice to hear that so many have very happy results. And yes Doctor Ponseti is a very wonderful man. Leora --- Janusz wrote: > > Hello, > I am happy to hear that you found Dr. Ponseti before > your grandson was treated the " other " way. A lot of > parents/grandparents aren't as lucky and end up > going through a lot of unnecessary treatments before > they find the wonderful Dr. Ponseti! You will find > this group to be very intellegent, helpful, > responsive, understanding and loving as I have! I > think we are just one big family, the Dr. Ponseti cf > family! > Glad to have you! > Sincererly, > & Breanna > ugo2l wrote: > Hello everyone I am a new member here and would > like to introduce > myslef, and tell everyone about my familys experince > with cf. My name > is Leora I live in NE. My experince started 21 years > ago when my son > was born with cf. At that time I knew nothing > about cf and > trusted my Dr to guide me in getting the treatment > my son needed, we > were sent to a sugeron. was in cast for about > the first 6 > months of his life and had his first sugery when he > was about 14 > months old. Scince then he has had 7 sugerys in all > and his foot is > scared and painful. I must say we have always be > greatful for the > treatment kevin recived. We did not know that cf > could be treated and > corrected without sugery. When My grandson Dylan was > born in March > 2002 with bilatreial clubfeet, My husban Tom got on > the internet and > found Doctor Ponseti. Dylan started treatment when > he was 12 days old > he had 5 sets of cast and then wore the dennis brown > splint for three > months 24 hours a day. Dylan is now 5 months old and > wears his dennis > brown splint while he sleeps, his feet look > wonderful. You would > never know he had cf just by looking at his feet. If > only we had > knowen about Doctor Ponseti when was born. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 You are right I have already gotten so many warm welcomes from everyone here it is a very warm and comfortable here. And so nice to talk to other people who are going through the same thing as you are it helps alot. and is so nice to hear that so many have very happy results. And yes Doctor Ponseti is a very wonderful man. Leora --- Janusz wrote: > > Hello, > I am happy to hear that you found Dr. Ponseti before > your grandson was treated the " other " way. A lot of > parents/grandparents aren't as lucky and end up > going through a lot of unnecessary treatments before > they find the wonderful Dr. Ponseti! You will find > this group to be very intellegent, helpful, > responsive, understanding and loving as I have! I > think we are just one big family, the Dr. Ponseti cf > family! > Glad to have you! > Sincererly, > & Breanna > ugo2l wrote: > Hello everyone I am a new member here and would > like to introduce > myslef, and tell everyone about my familys experince > with cf. My name > is Leora I live in NE. My experince started 21 years > ago when my son > was born with cf. At that time I knew nothing > about cf and > trusted my Dr to guide me in getting the treatment > my son needed, we > were sent to a sugeron. was in cast for about > the first 6 > months of his life and had his first sugery when he > was about 14 > months old. Scince then he has had 7 sugerys in all > and his foot is > scared and painful. I must say we have always be > greatful for the > treatment kevin recived. We did not know that cf > could be treated and > corrected without sugery. When My grandson Dylan was > born in March > 2002 with bilatreial clubfeet, My husban Tom got on > the internet and > found Doctor Ponseti. Dylan started treatment when > he was 12 days old > he had 5 sets of cast and then wore the dennis brown > splint for three > months 24 hours a day. Dylan is now 5 months old and > wears his dennis > brown splint while he sleeps, his feet look > wonderful. You would > never know he had cf just by looking at his feet. If > only we had > knowen about Doctor Ponseti when was born. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 You are right I have already gotten so many warm welcomes from everyone here it is a very warm and comfortable here. And so nice to talk to other people who are going through the same thing as you are it helps alot. and is so nice to hear that so many have very happy results. And yes Doctor Ponseti is a very wonderful man. Leora --- Janusz wrote: > > Hello, > I am happy to hear that you found Dr. Ponseti before > your grandson was treated the " other " way. A lot of > parents/grandparents aren't as lucky and end up > going through a lot of unnecessary treatments before > they find the wonderful Dr. Ponseti! You will find > this group to be very intellegent, helpful, > responsive, understanding and loving as I have! I > think we are just one big family, the Dr. Ponseti cf > family! > Glad to have you! > Sincererly, > & Breanna > ugo2l wrote: > Hello everyone I am a new member here and would > like to introduce > myslef, and tell everyone about my familys experince > with cf. My name > is Leora I live in NE. My experince started 21 years > ago when my son > was born with cf. At that time I knew nothing > about cf and > trusted my Dr to guide me in getting the treatment > my son needed, we > were sent to a sugeron. was in cast for about > the first 6 > months of his life and had his first sugery when he > was about 14 > months old. Scince then he has had 7 sugerys in all > and his foot is > scared and painful. I must say we have always be > greatful for the > treatment kevin recived. We did not know that cf > could be treated and > corrected without sugery. When My grandson Dylan was > born in March > 2002 with bilatreial clubfeet, My husban Tom got on > the internet and > found Doctor Ponseti. Dylan started treatment when > he was 12 days old > he had 5 sets of cast and then wore the dennis brown > splint for three > months 24 hours a day. Dylan is now 5 months old and > wears his dennis > brown splint while he sleeps, his feet look > wonderful. You would > never know he had cf just by looking at his feet. If > only we had > knowen about Doctor Ponseti when was born. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Dessi I am sorry to say I do not know anything about that, but I would be glad to help in any way that I can. We have been told that cf is not hereditery, but I am having a hard time beleveing that it is not. I did not know at the time my son was born but my uncle also had clubfoot. Now my grandson, and his mother has a cousin with clubfoot too. Good luck with you son and his treatment. Leora --- Dessi Pickett wrote: > Leora, > > So interesting. I am almost due and my son will be > born with bilateral club > foot. My brother in law was born with bilateral > club foot 30+ years ago. > His twin boys are fine but the genes hit through his > brother - my husband. > What a connection. We have to do something before > its time for this > generation to have babies. I will be working on > locating genetic labs doing > research on isolating the club foot gene. Please > let me know if you know > anything about that. > > Dessi > > > > Re: Re: New member > > > Pam > > You are absoulaty right and I did not mean to make > it > sound as though I am no longer greatful for the > treatment recived 21 years ago. I am and > always > will be greatful for that, I am so happy that Dylan > won't need to have the pain and sugery like his > Uncle > had. Leora > --- pammi_kay wrote: > > Leora, > > > > Just think about what you said that you have > always > > been thankful for > > the treatment that received. There was > really > > not much of a > > way to research this 21 years ago without the > > internet. It was also > > a very different time in medicine. At that time > > people didn't second > > guess what a doctor said. Continue to be thankful > > for what you did > > for and with the changes in medicine > (patients > > gaining the > > abililty to advocate for themselves) and resources > > such as the > > internet and be thankful for what you found for > > Dylan. I hope Dylan > > continues to do well. > > > > Pam and (8-12-01) > > > > > > > > > > Hello everyone I am a new member here and > > would like to > > introduce > > > myslef, and tell everyone about my familys > > experince with cf. My > > name > > > is Leora I live in NE. My experince started 21 > > years ago when my > > son > > > was born with cf. At that time I knew > > nothing about cf and > > > trusted my Dr to guide me in getting the > treatment > > my son needed, > > we > > > were sent to a sugeron. was in cast for > > about the first 6 > > > months of his life and had his first sugery when > > he was about 14 > > > months old. Scince then he has had 7 sugerys in > > all and his foot is > > > scared and painful. I must say we have always be > > greatful for the > > > treatment kevin recived. We did not know that cf > > could be treated > > and > > > corrected without sugery. When My grandson Dylan > > was born in March > > > 2002 with bilatreial clubfeet, My husban Tom got > > on the internet > > and > > > found Doctor Ponseti. Dylan started treatment > when > > he was 12 days > > old > > > he had 5 sets of cast and then wore the dennis > > brown splint for > > three > > > months 24 hours a day. Dylan is now 5 months old > > and wears his > > dennis > > > brown splint while he sleeps, his feet look > > wonderful. You would > > > never know he had cf just by looking at his > feet. > > If only we had > > > knowen about Doctor Ponseti when was born. > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Dessi I am sorry to say I do not know anything about that, but I would be glad to help in any way that I can. We have been told that cf is not hereditery, but I am having a hard time beleveing that it is not. I did not know at the time my son was born but my uncle also had clubfoot. Now my grandson, and his mother has a cousin with clubfoot too. Good luck with you son and his treatment. Leora --- Dessi Pickett wrote: > Leora, > > So interesting. I am almost due and my son will be > born with bilateral club > foot. My brother in law was born with bilateral > club foot 30+ years ago. > His twin boys are fine but the genes hit through his > brother - my husband. > What a connection. We have to do something before > its time for this > generation to have babies. I will be working on > locating genetic labs doing > research on isolating the club foot gene. Please > let me know if you know > anything about that. > > Dessi > > > > Re: Re: New member > > > Pam > > You are absoulaty right and I did not mean to make > it > sound as though I am no longer greatful for the > treatment recived 21 years ago. I am and > always > will be greatful for that, I am so happy that Dylan > won't need to have the pain and sugery like his > Uncle > had. Leora > --- pammi_kay wrote: > > Leora, > > > > Just think about what you said that you have > always > > been thankful for > > the treatment that received. There was > really > > not much of a > > way to research this 21 years ago without the > > internet. It was also > > a very different time in medicine. At that time > > people didn't second > > guess what a doctor said. Continue to be thankful > > for what you did > > for and with the changes in medicine > (patients > > gaining the > > abililty to advocate for themselves) and resources > > such as the > > internet and be thankful for what you found for > > Dylan. I hope Dylan > > continues to do well. > > > > Pam and (8-12-01) > > > > > > > > > > Hello everyone I am a new member here and > > would like to > > introduce > > > myslef, and tell everyone about my familys > > experince with cf. My > > name > > > is Leora I live in NE. My experince started 21 > > years ago when my > > son > > > was born with cf. At that time I knew > > nothing about cf and > > > trusted my Dr to guide me in getting the > treatment > > my son needed, > > we > > > were sent to a sugeron. was in cast for > > about the first 6 > > > months of his life and had his first sugery when > > he was about 14 > > > months old. Scince then he has had 7 sugerys in > > all and his foot is > > > scared and painful. I must say we have always be > > greatful for the > > > treatment kevin recived. We did not know that cf > > could be treated > > and > > > corrected without sugery. When My grandson Dylan > > was born in March > > > 2002 with bilatreial clubfeet, My husban Tom got > > on the internet > > and > > > found Doctor Ponseti. Dylan started treatment > when > > he was 12 days > > old > > > he had 5 sets of cast and then wore the dennis > > brown splint for > > three > > > months 24 hours a day. Dylan is now 5 months old > > and wears his > > dennis > > > brown splint while he sleeps, his feet look > > wonderful. You would > > > never know he had cf just by looking at his > feet. > > If only we had > > > knowen about Doctor Ponseti when was born. > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 Leora, I didn't think you sounded like you were ungrateful for 's treatment. I know you are just sorry that has the pain and scaring from his surgeries. I was just saying at that time it would have been near impossible for you to find out of the Ponseti method. Pam and (8-12-01) - In nosurgery4clubfoot@y..., leora johns <ugo2l@y...> wrote: > Pam > > You are absoulaty right and I did not mean to make it > sound as though I am no longer greatful for the > treatment recived 21 years ago. I am and always > will be greatful for that, I am so happy that Dylan > won't need to have the pain and sugery like his Uncle > had. Leora > --- pammi_kay <pam@s...> wrote: > > Leora, > > > > Just think about what you said that you have always > > been thankful for > > the treatment that received. There was really > > not much of a > > way to research this 21 years ago without the > > internet. It was also > > a very different time in medicine. At that time > > people didn't second > > guess what a doctor said. Continue to be thankful > > for what you did > > for and with the changes in medicine (patients > > gaining the > > abililty to advocate for themselves) and resources > > such as the > > internet and be thankful for what you found for > > Dylan. I hope Dylan > > continues to do well. > > > > Pam and (8-12-01) > > > > > > > > > > Hello everyone I am a new member here and > > would like to > > introduce > > > myslef, and tell everyone about my familys > > experince with cf. My > > name > > > is Leora I live in NE. My experince started 21 > > years ago when my > > son > > > was born with cf. At that time I knew > > nothing about cf and > > > trusted my Dr to guide me in getting the treatment > > my son needed, > > we > > > were sent to a sugeron. was in cast for > > about the first 6 > > > months of his life and had his first sugery when > > he was about 14 > > > months old. Scince then he has had 7 sugerys in > > all and his foot is > > > scared and painful. I must say we have always be > > greatful for the > > > treatment kevin recived. We did not know that cf > > could be treated > > and > > > corrected without sugery. When My grandson Dylan > > was born in March > > > 2002 with bilatreial clubfeet, My husban Tom got > > on the internet > > and > > > found Doctor Ponseti. Dylan started treatment when > > he was 12 days > > old > > > he had 5 sets of cast and then wore the dennis > > brown splint for > > three > > > months 24 hours a day. Dylan is now 5 months old > > and wears his > > dennis > > > brown splint while he sleeps, his feet look > > wonderful. You would > > > never know he had cf just by looking at his feet. > > If only we had > > > knowen about Doctor Ponseti when was born. > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 So true that is why my family tells everyone who will listen about Doctor Ponseti and this treatment. I hope that someday real soon all parents of children born with clubfoot will know about this treatment. --- pammi_kay wrote: > Leora, > I didn't think you sounded like you were ungrateful > for 's > treatment. I know you are just sorry that has > the pain and > scaring from his surgeries. I was just saying at > that time it would > have been near impossible for you to find out of the > Ponseti method. > Pam and (8-12-01) > > - In nosurgery4clubfoot@y..., leora johns > <ugo2l@y...> wrote: > > Pam > > > > You are absoulaty right and I did not mean to make > it > > sound as though I am no longer greatful for the > > treatment recived 21 years ago. I am and > always > > will be greatful for that, I am so happy that > Dylan > > won't need to have the pain and sugery like his > Uncle > > had. Leora > > --- pammi_kay <pam@s...> wrote: > > > Leora, > > > > > > Just think about what you said that you have > always > > > been thankful for > > > the treatment that received. There was > really > > > not much of a > > > way to research this 21 years ago without the > > > internet. It was also > > > a very different time in medicine. At that time > > > people didn't second > > > guess what a doctor said. Continue to be > thankful > > > for what you did > > > for and with the changes in medicine > (patients > > > gaining the > > > abililty to advocate for themselves) and > resources > > > such as the > > > internet and be thankful for what you found for > > > Dylan. I hope Dylan > > > continues to do well. > > > > > > Pam and (8-12-01) > > > > > > > > > > > > > > Hello everyone I am a new member here and > > > would like to > > > introduce > > > > myslef, and tell everyone about my familys > > > experince with cf. My > > > name > > > > is Leora I live in NE. My experince started 21 > > > years ago when my > > > son > > > > was born with cf. At that time I knew > > > nothing about cf and > > > > trusted my Dr to guide me in getting the > treatment > > > my son needed, > > > we > > > > were sent to a sugeron. was in cast for > > > about the first 6 > > > > months of his life and had his first sugery > when > > > he was about 14 > > > > months old. Scince then he has had 7 sugerys > in > > > all and his foot is > > > > scared and painful. I must say we have always > be > > > greatful for the > > > > treatment kevin recived. We did not know that > cf > > > could be treated > > > and > > > > corrected without sugery. When My grandson > Dylan > > > was born in March > > > > 2002 with bilatreial clubfeet, My husban Tom > got > > > on the internet > > > and > > > > found Doctor Ponseti. Dylan started treatment > when > > > he was 12 days > > > old > > > > he had 5 sets of cast and then wore the dennis > > > brown splint for > > > three > > > > months 24 hours a day. Dylan is now 5 months > old > > > and wears his > > > dennis > > > > brown splint while he sleeps, his feet look > > > wonderful. You would > > > > never know he had cf just by looking at his > feet. > > > If only we had > > > > knowen about Doctor Ponseti when was > born. > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 So true that is why my family tells everyone who will listen about Doctor Ponseti and this treatment. I hope that someday real soon all parents of children born with clubfoot will know about this treatment. --- pammi_kay wrote: > Leora, > I didn't think you sounded like you were ungrateful > for 's > treatment. I know you are just sorry that has > the pain and > scaring from his surgeries. I was just saying at > that time it would > have been near impossible for you to find out of the > Ponseti method. > Pam and (8-12-01) > > - In nosurgery4clubfoot@y..., leora johns > <ugo2l@y...> wrote: > > Pam > > > > You are absoulaty right and I did not mean to make > it > > sound as though I am no longer greatful for the > > treatment recived 21 years ago. I am and > always > > will be greatful for that, I am so happy that > Dylan > > won't need to have the pain and sugery like his > Uncle > > had. Leora > > --- pammi_kay <pam@s...> wrote: > > > Leora, > > > > > > Just think about what you said that you have > always > > > been thankful for > > > the treatment that received. There was > really > > > not much of a > > > way to research this 21 years ago without the > > > internet. It was also > > > a very different time in medicine. At that time > > > people didn't second > > > guess what a doctor said. Continue to be > thankful > > > for what you did > > > for and with the changes in medicine > (patients > > > gaining the > > > abililty to advocate for themselves) and > resources > > > such as the > > > internet and be thankful for what you found for > > > Dylan. I hope Dylan > > > continues to do well. > > > > > > Pam and (8-12-01) > > > > > > > > > > > > > > Hello everyone I am a new member here and > > > would like to > > > introduce > > > > myslef, and tell everyone about my familys > > > experince with cf. My > > > name > > > > is Leora I live in NE. My experince started 21 > > > years ago when my > > > son > > > > was born with cf. At that time I knew > > > nothing about cf and > > > > trusted my Dr to guide me in getting the > treatment > > > my son needed, > > > we > > > > were sent to a sugeron. was in cast for > > > about the first 6 > > > > months of his life and had his first sugery > when > > > he was about 14 > > > > months old. Scince then he has had 7 sugerys > in > > > all and his foot is > > > > scared and painful. I must say we have always > be > > > greatful for the > > > > treatment kevin recived. We did not know that > cf > > > could be treated > > > and > > > > corrected without sugery. When My grandson > Dylan > > > was born in March > > > > 2002 with bilatreial clubfeet, My husban Tom > got > > > on the internet > > > and > > > > found Doctor Ponseti. Dylan started treatment > when > > > he was 12 days > > > old > > > > he had 5 sets of cast and then wore the dennis > > > brown splint for > > > three > > > > months 24 hours a day. Dylan is now 5 months > old > > > and wears his > > > dennis > > > > brown splint while he sleeps, his feet look > > > wonderful. You would > > > > never know he had cf just by looking at his > feet. > > > If only we had > > > > knowen about Doctor Ponseti when was > born. > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 So true that is why my family tells everyone who will listen about Doctor Ponseti and this treatment. I hope that someday real soon all parents of children born with clubfoot will know about this treatment. --- pammi_kay wrote: > Leora, > I didn't think you sounded like you were ungrateful > for 's > treatment. I know you are just sorry that has > the pain and > scaring from his surgeries. I was just saying at > that time it would > have been near impossible for you to find out of the > Ponseti method. > Pam and (8-12-01) > > - In nosurgery4clubfoot@y..., leora johns > <ugo2l@y...> wrote: > > Pam > > > > You are absoulaty right and I did not mean to make > it > > sound as though I am no longer greatful for the > > treatment recived 21 years ago. I am and > always > > will be greatful for that, I am so happy that > Dylan > > won't need to have the pain and sugery like his > Uncle > > had. Leora > > --- pammi_kay <pam@s...> wrote: > > > Leora, > > > > > > Just think about what you said that you have > always > > > been thankful for > > > the treatment that received. There was > really > > > not much of a > > > way to research this 21 years ago without the > > > internet. It was also > > > a very different time in medicine. At that time > > > people didn't second > > > guess what a doctor said. Continue to be > thankful > > > for what you did > > > for and with the changes in medicine > (patients > > > gaining the > > > abililty to advocate for themselves) and > resources > > > such as the > > > internet and be thankful for what you found for > > > Dylan. I hope Dylan > > > continues to do well. > > > > > > Pam and (8-12-01) > > > > > > > > > > > > > > Hello everyone I am a new member here and > > > would like to > > > introduce > > > > myslef, and tell everyone about my familys > > > experince with cf. My > > > name > > > > is Leora I live in NE. My experince started 21 > > > years ago when my > > > son > > > > was born with cf. At that time I knew > > > nothing about cf and > > > > trusted my Dr to guide me in getting the > treatment > > > my son needed, > > > we > > > > were sent to a sugeron. was in cast for > > > about the first 6 > > > > months of his life and had his first sugery > when > > > he was about 14 > > > > months old. Scince then he has had 7 sugerys > in > > > all and his foot is > > > > scared and painful. I must say we have always > be > > > greatful for the > > > > treatment kevin recived. We did not know that > cf > > > could be treated > > > and > > > > corrected without sugery. When My grandson > Dylan > > > was born in March > > > > 2002 with bilatreial clubfeet, My husban Tom > got > > > on the internet > > > and > > > > found Doctor Ponseti. Dylan started treatment > when > > > he was 12 days > > > old > > > > he had 5 sets of cast and then wore the dennis > > > brown splint for > > > three > > > > months 24 hours a day. Dylan is now 5 months > old > > > and wears his > > > dennis > > > > brown splint while he sleeps, his feet look > > > wonderful. You would > > > > never know he had cf just by looking at his > feet. > > > If only we had > > > > knowen about Doctor Ponseti when was > born. > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Hi, I'm mom to Simon Andres who was born with unilateral clubfoot. My brother in law was born with bilateral clubfoot 29 years ago. He does not have children yet; however I assume his brother (my husband) got the gene because our first born was born with it. So in our case I think it is genetic. Now I'm expecting my second child in November and we could not look at his feet in the first ultrasound. Will have one more next week, hopefully we will be able to find out Andreina & Simon Andres (10/04/2000) > > > > > > Hello everyone I am a new member here and > > would like to > > introduce > > > myslef, and tell everyone about my familys > > experince with cf. My > > name > > > is Leora I live in NE. My experince started 21 > > years ago when my > > son > > > was born with cf. At that time I knew > > nothing about cf and > > > trusted my Dr to guide me in getting the treatment > > my son needed, > > we > > > were sent to a sugeron. was in cast for > > about the first 6 > > > months of his life and had his first sugery when > > he was about 14 > > > months old. Scince then he has had 7 sugerys in > > all and his foot is > > > scared and painful. I must say we have always be > > greatful for the > > > treatment kevin recived. We did not know that cf > > could be treated > > and > > > corrected without sugery. When My grandson Dylan > > was born in March > > > 2002 with bilatreial clubfeet, My husban Tom got > > on the internet > > and > > > found Doctor Ponseti. Dylan started treatment when > > he was 12 days > > old > > > he had 5 sets of cast and then wore the dennis > > brown splint for > > three > > > months 24 hours a day. Dylan is now 5 months old > > and wears his > > dennis > > > brown splint while he sleeps, his feet look > > wonderful. You would > > > never know he had cf just by looking at his feet. > > If only we had > > > knowen about Doctor Ponseti when was born. > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Hi, I'm mom to Simon Andres who was born with unilateral clubfoot. My brother in law was born with bilateral clubfoot 29 years ago. He does not have children yet; however I assume his brother (my husband) got the gene because our first born was born with it. So in our case I think it is genetic. Now I'm expecting my second child in November and we could not look at his feet in the first ultrasound. Will have one more next week, hopefully we will be able to find out Andreina & Simon Andres (10/04/2000) > > > > > > Hello everyone I am a new member here and > > would like to > > introduce > > > myslef, and tell everyone about my familys > > experince with cf. My > > name > > > is Leora I live in NE. My experince started 21 > > years ago when my > > son > > > was born with cf. At that time I knew > > nothing about cf and > > > trusted my Dr to guide me in getting the treatment > > my son needed, > > we > > > were sent to a sugeron. was in cast for > > about the first 6 > > > months of his life and had his first sugery when > > he was about 14 > > > months old. Scince then he has had 7 sugerys in > > all and his foot is > > > scared and painful. I must say we have always be > > greatful for the > > > treatment kevin recived. We did not know that cf > > could be treated > > and > > > corrected without sugery. When My grandson Dylan > > was born in March > > > 2002 with bilatreial clubfeet, My husban Tom got > > on the internet > > and > > > found Doctor Ponseti. Dylan started treatment when > > he was 12 days > > old > > > he had 5 sets of cast and then wore the dennis > > brown splint for > > three > > > months 24 hours a day. Dylan is now 5 months old > > and wears his > > dennis > > > brown splint while he sleeps, his feet look > > wonderful. You would > > > never know he had cf just by looking at his feet. > > If only we had > > > knowen about Doctor Ponseti when was born. > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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