Guest guest Posted April 11, 2004 Report Share Posted April 11, 2004 Hi and others, Avastin has been " tested " in my husband's case as 3rd or 4th line (I've lost track)trial and it stabilized his disease from October 2003 to March 2004. He will probably be unable to go on with the trial because of a stricture somewhere in his colon, making him ill. I also know that the other patient at our cancer center did well on it-(I was told his condition was similar to my husband's), as I kept asking about his progress. This information has probably not been reported officially anywhere yet-just our own personal experience. Certainly hope this is helpful. Remaining hopeful, Annie M > > By this time, Avastin and Erbitux had just come out. His Dr. > scheduled him to go into the hospital to get Avastin only to get a > call from the hospital (Swedish in Seattle) saying they will only > give Avastin as a first-line treatment since that is what it was > approved for. They had his biopsy examined and found that it is the > type of cancer that Erbitux is used for but > > he has to have irinotecan and have that fail before he is eligible > for Erbitux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Hi : Don't feel troubled,many of us feel the same way. The irrinatken is Camptosar or CPT11,and it works in combination with the 5fu/lv+ whatever else your oncologist prescribed. Ye it has hard side effects,though I think your dads were extreme. The hair will gow back,don't know if ou dad had mets before his surgery or how extensive it was. When my husband first had his they tested 26 lymph nodes and 9 were positve. Since hen(1999) he had mets to liver,wo lobes now,2 lung spots and a mass in the pancreas area. We fight each one,get mad,anrgy and then we realized we had to readjust our way of living. We take the good days and enjoy them. We get through the bad days on a day be day basis,and we have learned to cope. We are blessed with family and friends so that helps. We believe in God and we know that the prayers others are sending in our behalf have worked. There is no single answer,yo have to believe you can win,fight,and make adjustments in diet, and daily activity as necessary. Keeping hydrated and maintaining a normal weight helps. You make have to make some dratic diet changes for him,smaller portions, no raw veggies or fruits except bananas,fat free lactose free dairy,few fried foods but we do the holidays as usual and only give Nick smaller portions. Life is a gift. It is finite,love is infinite and only grows more so,so your having your dad there is a blessing for him,a great example for your girls and just shows what love and respect you have for him. God Bless,keep the faith ,hugs and prayers Nick & Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 > > Hi all, > > I start my amalgam removal next week and read all your posts with interest. > I mainly write just to let you know I'm here and but also to query about the > methylation issue with amalgam removal. One of the B's I'm on is sublingual > methylcobalamin, should I discontinue this while I do the removal protocol? TK--- no > If so, for how long? We both have liver phase 1/11 imbalances and I wonder > about the effect of the cruciferous veggies (sulfur) on this. TK--- sulfer foods can make things worse for many in general, some do better with some, it varies per individual. Unfortunately > our main sensitivities are to salicylates and amines so inclusion of other > foods isn't possible right now. Could the sulfurous food be perpetuating the > liver imbalances? What a vicious cycle! > > Thanks for your useful info so far, > > Kelle > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2006 Report Share Posted October 17, 2006 > > Hi all, > > I start my amalgam removal next week and read all your posts with interest. > I mainly write just to let you know I'm here and but also to query about the > methylation issue with amalgam removal. One of the B's I'm on is sublingual > methylcobalamin, should I discontinue this while I do the removal protocol? TK--- no > If so, for how long? We both have liver phase 1/11 imbalances and I wonder > about the effect of the cruciferous veggies (sulfur) on this. TK--- sulfer foods can make things worse for many in general, some do better with some, it varies per individual. Unfortunately > our main sensitivities are to salicylates and amines so inclusion of other > foods isn't possible right now. Could the sulfurous food be perpetuating the > liver imbalances? What a vicious cycle! > > Thanks for your useful info so far, > > Kelle > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 My doctor has recommended that I go to a gastroenterologist for a colonoscopy. I am so not looking forward to this. Does anyone have any tips on how to get through the prep? Also do we have a good docs list? I would like to find one who is pro-SCD. I am located in Birmingham, AL. Lynn undiagnosed IBS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 HI JOLIE CONGRATULATIONS AND HIGH-FIVE!!! LONDA ~ALL THAT IM NOT MAKES ME ALLTHAT I AM~ Subject: Re: New MemberTo: MSersLife Date: Monday, August 17, 2009, 1:16 PM Hi a and new members, my name is Jolie. I'm 31 anf I have 2daughters who are 8 & 9. I was DXed in 2004 and have been takingRebif since then. Just got back from my doctor, only one small newlesion on my MRI. So I will continue on with Rebif since it seems tobe working. Anyways, welcome to the group to everybody!Jolie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 HI JOLIE CONGRATULATIONS AND HIGH-FIVE!!! LONDA ~ALL THAT IM NOT MAKES ME ALLTHAT I AM~ Subject: Re: New MemberTo: MSersLife Date: Monday, August 17, 2009, 1:16 PM Hi a and new members, my name is Jolie. I'm 31 anf I have 2daughters who are 8 & 9. I was DXed in 2004 and have been takingRebif since then. Just got back from my doctor, only one small newlesion on my MRI. So I will continue on with Rebif since it seems tobe working. Anyways, welcome to the group to everybody!Jolie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 HI JOLIE CONGRATULATIONS AND HIGH-FIVE!!! LONDA ~ALL THAT IM NOT MAKES ME ALLTHAT I AM~ Subject: Re: New MemberTo: MSersLife Date: Monday, August 17, 2009, 1:16 PM Hi a and new members, my name is Jolie. I'm 31 anf I have 2daughters who are 8 & 9. I was DXed in 2004 and have been takingRebif since then. Just got back from my doctor, only one small newlesion on my MRI. So I will continue on with Rebif since it seems tobe working. Anyways, welcome to the group to everybody!Jolie Quote Link to comment Share on other sites More sharing options...
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