Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 abraxis3@... Dear , Welcome, welcome, welcome!!! I'm pretty new here, too, and I love it. The people here are just great! I never knew I could feel so connected to people I've never even seen! I'm still trying to figure out my computer. A friend of mine tried to teach me how to cut and paste, and I came home and did it on mine once...now I've forgotten how! That darn 'brain fog'...it makes things a challenge! Mail me anytime...I love to talk!!!! LOL Sue age: 51 2 grown children 1 husband 2 cats 1 canary 2 Karoke machines 1 sewing machine! diagnosed 4 years ago: had fibro about 20 years --- Lucy Milam wrote: > Welcome , > I am a new member of this group also and I find > it really helpful to > know that there is someone out there that > understands just what you are > going through. I have just been diagnose with > Fibromyalgia in April of this > year. I have a heart condition also. Email me any > time. > > Lucy Milam > on, AR > Age:54 > Been married 36 years to a wonderful husband > I have no children but I have two rat terrier dogs > that I love very much. > I have three God sons that I have raised that I > think of as my own. > NEW MEMBER > > > >Hello, > > > >I am a new member. My name is , 25 years old > and have been suffering > >with FMS and CFS for a number of years. > > > >Like most fibro sufferers, I have other health > conditions. > > > >Looking forward to being part of this group. > > > > > > > > > >SEND POST TO: fibromyalgia-cfs > >TO > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > >List owner: Bierman > fibromyalgia-cfs-owner > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 abraxis3@... Dear , Welcome, welcome, welcome!!! I'm pretty new here, too, and I love it. The people here are just great! I never knew I could feel so connected to people I've never even seen! I'm still trying to figure out my computer. A friend of mine tried to teach me how to cut and paste, and I came home and did it on mine once...now I've forgotten how! That darn 'brain fog'...it makes things a challenge! Mail me anytime...I love to talk!!!! LOL Sue age: 51 2 grown children 1 husband 2 cats 1 canary 2 Karoke machines 1 sewing machine! diagnosed 4 years ago: had fibro about 20 years --- Lucy Milam wrote: > Welcome , > I am a new member of this group also and I find > it really helpful to > know that there is someone out there that > understands just what you are > going through. I have just been diagnose with > Fibromyalgia in April of this > year. I have a heart condition also. Email me any > time. > > Lucy Milam > on, AR > Age:54 > Been married 36 years to a wonderful husband > I have no children but I have two rat terrier dogs > that I love very much. > I have three God sons that I have raised that I > think of as my own. > NEW MEMBER > > > >Hello, > > > >I am a new member. My name is , 25 years old > and have been suffering > >with FMS and CFS for a number of years. > > > >Like most fibro sufferers, I have other health > conditions. > > > >Looking forward to being part of this group. > > > > > > > > > >SEND POST TO: fibromyalgia-cfs > >TO > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > >List owner: Bierman > fibromyalgia-cfs-owner > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 abraxis3@... Hi , Have you had more stress in your life lately than usual? If so, take some time to yourself. Put on some soft music, lay in tub with bubbles and try and clear your mind. Just relax as much as possible. Close your eyes, take deep slow breaths, start with you toes and fell them go limp, and do the same slowly up the rest of your body. Lie there awhile and see yourself in what you would consider and relaxing wonderful place to be. Picture soft clouds, feel the warmth of the sun. Watch gentle breezes in the trees, or see water glistening and hear the sound of the water lapping, etc. Do this everyday, and see what happens! Make it a priority. It's for you and well worth it! Have a great day! LOL Sue --- " S.D. Krein " wrote: > Hi Sue, > Thanks for the welcome and welcome here too!!! > > I was diagnosed with fibro 4 years ago, along with > other chronic issues, but > I'm only coming to terms to it now. Lately, the > fibro has been flaring more > than usual and I'm literally going out of my mind. > > I plan on staying around. > > Love > > Re: NEW MEMBER > > > > abraxis3@... > > Hi , I'm pretty new here, too, and I've > received > > a very warm welcome and love everyone here! > > I know you will get the support you need here with > > all of the wonderful people there are here! > > Just being able to share and air your concerns is > so > > healing in itself. Making new friends is the > added > > bonus! I know I definately don't feel all alone > now, > > like I did. It gives me the motivation to want to > > help > > others, and in so doing, it also helps me. It > opens > > my eyes, alot. Makes me feel more positive, > cause, > > as you know, the pain makes it easy to be really > > negative! > > Hope ya stay around! > > Have a great day! > > LOL > > Sue > > age: 51 > > two grown children > > two cats > > a husband > > diagnosed 4 years ago(had it for about 20 years) > > live in Iowa > > > > Welcome! > > --- " S.D. Krein " wrote: > > > Hello, > > > > > > I am a new member. My name is , 25 years > old > > > and have been suffering > > > with FMS and CFS for a number of years. > > > > > > Like most fibro sufferers, I have other health > > > conditions. > > > > > > Looking forward to being part of this group. > > > > > > > > > > > > > > > SEND POST TO: fibromyalgia-cfs > > > TO > > > > > > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > List owner: Bierman > > > fibromyalgia-cfs-owner > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 abraxis3@... Hi , Have you had more stress in your life lately than usual? If so, take some time to yourself. Put on some soft music, lay in tub with bubbles and try and clear your mind. Just relax as much as possible. Close your eyes, take deep slow breaths, start with you toes and fell them go limp, and do the same slowly up the rest of your body. Lie there awhile and see yourself in what you would consider and relaxing wonderful place to be. Picture soft clouds, feel the warmth of the sun. Watch gentle breezes in the trees, or see water glistening and hear the sound of the water lapping, etc. Do this everyday, and see what happens! Make it a priority. It's for you and well worth it! Have a great day! LOL Sue --- " S.D. Krein " wrote: > Hi Sue, > Thanks for the welcome and welcome here too!!! > > I was diagnosed with fibro 4 years ago, along with > other chronic issues, but > I'm only coming to terms to it now. Lately, the > fibro has been flaring more > than usual and I'm literally going out of my mind. > > I plan on staying around. > > Love > > Re: NEW MEMBER > > > > abraxis3@... > > Hi , I'm pretty new here, too, and I've > received > > a very warm welcome and love everyone here! > > I know you will get the support you need here with > > all of the wonderful people there are here! > > Just being able to share and air your concerns is > so > > healing in itself. Making new friends is the > added > > bonus! I know I definately don't feel all alone > now, > > like I did. It gives me the motivation to want to > > help > > others, and in so doing, it also helps me. It > opens > > my eyes, alot. Makes me feel more positive, > cause, > > as you know, the pain makes it easy to be really > > negative! > > Hope ya stay around! > > Have a great day! > > LOL > > Sue > > age: 51 > > two grown children > > two cats > > a husband > > diagnosed 4 years ago(had it for about 20 years) > > live in Iowa > > > > Welcome! > > --- " S.D. Krein " wrote: > > > Hello, > > > > > > I am a new member. My name is , 25 years > old > > > and have been suffering > > > with FMS and CFS for a number of years. > > > > > > Like most fibro sufferers, I have other health > > > conditions. > > > > > > Looking forward to being part of this group. > > > > > > > > > > > > > > > SEND POST TO: fibromyalgia-cfs > > > TO > > > > > > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > List owner: Bierman > > > fibromyalgia-cfs-owner > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 abraxis3@... Hi , Have you had more stress in your life lately than usual? If so, take some time to yourself. Put on some soft music, lay in tub with bubbles and try and clear your mind. Just relax as much as possible. Close your eyes, take deep slow breaths, start with you toes and fell them go limp, and do the same slowly up the rest of your body. Lie there awhile and see yourself in what you would consider and relaxing wonderful place to be. Picture soft clouds, feel the warmth of the sun. Watch gentle breezes in the trees, or see water glistening and hear the sound of the water lapping, etc. Do this everyday, and see what happens! Make it a priority. It's for you and well worth it! Have a great day! LOL Sue --- " S.D. Krein " wrote: > Hi Sue, > Thanks for the welcome and welcome here too!!! > > I was diagnosed with fibro 4 years ago, along with > other chronic issues, but > I'm only coming to terms to it now. Lately, the > fibro has been flaring more > than usual and I'm literally going out of my mind. > > I plan on staying around. > > Love > > Re: NEW MEMBER > > > > abraxis3@... > > Hi , I'm pretty new here, too, and I've > received > > a very warm welcome and love everyone here! > > I know you will get the support you need here with > > all of the wonderful people there are here! > > Just being able to share and air your concerns is > so > > healing in itself. Making new friends is the > added > > bonus! I know I definately don't feel all alone > now, > > like I did. It gives me the motivation to want to > > help > > others, and in so doing, it also helps me. It > opens > > my eyes, alot. Makes me feel more positive, > cause, > > as you know, the pain makes it easy to be really > > negative! > > Hope ya stay around! > > Have a great day! > > LOL > > Sue > > age: 51 > > two grown children > > two cats > > a husband > > diagnosed 4 years ago(had it for about 20 years) > > live in Iowa > > > > Welcome! > > --- " S.D. Krein " wrote: > > > Hello, > > > > > > I am a new member. My name is , 25 years > old > > > and have been suffering > > > with FMS and CFS for a number of years. > > > > > > Like most fibro sufferers, I have other health > > > conditions. > > > > > > Looking forward to being part of this group. > > > > > > > > > > > > > > > SEND POST TO: fibromyalgia-cfs > > > TO > > > > > > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > List owner: Bierman > > > fibromyalgia-cfs-owner > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Welcome again to you. You are working some long hours. Are you going to try to go back full time when your vacation and sick days are used up? We are also happy to get to know you. We will be a support if you need one and you let us know any time you are having problems and you will love and caring from this group. They will also try to help you, Take care, Irene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 In a message dated 5/29/01 12:51:55 PM Eastern Daylight Time, wlms@... writes: > I am an RN and work in a hospital high risk nursery-for 21 years, so I can > answer your baby questions if needed. I work 3 12 hour shifts a week and > that is really hard. I have been on a light schedule since diagnosed using > sick time and vacation time to make it easier. Soon I have to go back full > time as I am running out of days off-so I will be struggling with that. > I look forward to getting to know everyone. > > > > Welcome , It amaze's me how many nurses have fibro. I belong to this group and 2 more and there has to be 20 nurses that I've met. I also am an R.N. I am not working now as the pain of the fibro has become too severe. I miss working a lot, and am hoping that someday I will go back. There is a lot of help here and the people are great. Kathy D. Live in Western Massachusetts Married for almost 19yrs, to a sweetheart Mother to 16 and 14 My Rottie dog Shelby Spooky the cat Hobbies: Boating, Learning this computer Arts & Crafts, and a passionate reader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Hi Welcome to the list. We need to differentiate between the two 's when replying to posts. People can call me Sar for short Love new member > Hello! I am a new member of your group. I have had fibromyalgia for about a year but only been diagnosed about 6 months. You know-all the testing and when its not anything else it is fibromyalgia. Anyway, I hope to get to know you and share what I have learned and learn from you. > I live in Georgia and am the mother of two teens (one of which just graduated last Friday) We are big time into high school baseball which gets tough trying to go to all the games, etc. > I am an RN and work in a hospital high risk nursery-for 21 years, so I can answer your baby questions if needed. I work 3 12 hour shifts a week and that is really hard. I have been on a light schedule since diagnosed using sick time and vacation time to make it easier. Soon I have to go back full time as I am running out of days off-so I will be struggling with that. > I look forward to getting to know everyone. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Hi Guys! I have such a bad headache.. going to rest a little! Love Re: new member > Welcome again to you. You are working some long hours. Are you going to try > to go back full time when your vacation and sick days are used up? > > > > We are also happy to get to know you. We will be a support if you need one > and you let us know any time you are having problems and you will love and > caring from this group. They will also try to help you, > > Take care, > Irene > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 , Thanks for sharing with the group. I am also a nicu rn, but just today went on total disibility. I was diagnosed 4 years ago but I believe I had it in a mil On Tue, 29 May 2001 10:39:45 -0400 " " writes: > Hello! I am a new member of your group. I have had fibromyalgia for > about a year but only been diagnosed about 6 months. You know-all > the testing and when its not anything else it is fibromyalgia. > Anyway, I hope to get to know you and share what I have learned and > learn from you. > I live in Georgia and am the mother of two teens (one of which just > graduated last Friday) We are big time into high school baseball > which gets tough trying to go to all the games, etc. > I am an RN and work in a hospital high risk nursery-for 21 years, so > I can answer your baby questions if needed. I work 3 12 hour shifts > a week and that is really hard. I have been on a light schedule > since diagnosed using sick time and vacation time to make it easier. > Soon I have to go back full time as I am running out of days off-so > I will be struggling with that. > I look forward to getting to know everyone. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Welcome June to the group. We are very good to help each of us when we need support or just to listen to what you have to say. We are all where you are and if things are bad and you need to rant a little about it, we listen too as you will hear from some of us every now and again. Take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Welcome June to the group. We are very good to help each of us when we need support or just to listen to what you have to say. We are all where you are and if things are bad and you need to rant a little about it, we listen too as you will hear from some of us every now and again. Take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Welcome Marla to our list. We are a very supportive group and also a very friendly one. We are happy that you have joined us and you will be happy with our group. Take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Hello everyone, I am here searching to some extent. After a very traumatic period in my life, I developed what the doctors have only been willing to call 'undiagnosed chronic fatigue'. Now, ten years later, it is still undiagnosed and I am still fatigued. Over the years I have been tested for everything under the sun and told I am healthy as the proverbial horse. <sigh> I was exploring on the net the other day and came across a Fibromyalgia site. A friend of mine had suggested I look into it. I sat with my mouth hanging open as ALL of my symptoms were described, including the odd ones like the tingling in my hands and feet. This was also the first time I had seen 'fibro-fog' described, which I had always used the old 'Quantum Leap' TV show term to describe, saying I had a 'swiss-cheese' brain - solid in some places with BIG holes in others. Anyhow, I am here to listen and to learn. I go to a natural/homeopathic/chiropractic and regular doctor. I love him. He thinks outside the box, but he is not into 'defining' things - so I don't know that I could ever get a definite 'you have fibromyalgia' out of him. I have pain all the time and burning in my muscles, etc. plus the fatigue and all those pain points involved.... The doctors have eliminated Epstein Barre, Hepatitis, Thyroid, etc. so I think this is where I belong. Fortunately, I am an artist and hope-to-be writer and am self-employed, so I can make my own schedule around this illness most of the time. Thanks for the warm welcome. I look forward to reading and participating. Marla in Ohio > Date: Tue, 5 Jun 2001 22:13:55 EDT > From: patidu@... > Subject: Re: New Member > > Welcome Marla to our list. We are a very supportive group and also a very > friendly one. We are happy that you have joined us and you will be happy > with our group. > > Take care, > Irene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 It's good to be somewhere where people DO know what it is you're talking about. I had hesitated to join a list, but after being home for almost three months I knew I had to talk with others who are also in this same boat. D: I'm going to have to quit work here soon unless my neurologist comes up with a miracle. I know that my list buddies are going to be what helps to keep me feeling connected when I'm finally home and not around other people so much. There are others who have this MUCH worse than I do. If it takes me six weeks instead of two days to get things done -- so be it. I don't know if it gets worse, stays the same or if it ever goes away. D: I think this is a big mental adjustment we all have to make. Learning to not care if it takes you much longer to do something or if you can't do something on a particular day is a big step in helping to make ourselves feel a bit better. Am thinking that I would like to get into some sort of volunteer work, but am trying to fathom this thing out. I don't want to commit myself and then be unable to do what I committed to. June Organizations are so happy to get anyone to volunteer, they aren't going to be upset if you don't feel well enough to come in on a given day. Pick an activity that seems about your speed, and if on some days you aren't able to come in, it will still be ok!! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 It's good to be somewhere where people DO know what it is you're talking about. I had hesitated to join a list, but after being home for almost three months I knew I had to talk with others who are also in this same boat. D: I'm going to have to quit work here soon unless my neurologist comes up with a miracle. I know that my list buddies are going to be what helps to keep me feeling connected when I'm finally home and not around other people so much. There are others who have this MUCH worse than I do. If it takes me six weeks instead of two days to get things done -- so be it. I don't know if it gets worse, stays the same or if it ever goes away. D: I think this is a big mental adjustment we all have to make. Learning to not care if it takes you much longer to do something or if you can't do something on a particular day is a big step in helping to make ourselves feel a bit better. Am thinking that I would like to get into some sort of volunteer work, but am trying to fathom this thing out. I don't want to commit myself and then be unable to do what I committed to. June Organizations are so happy to get anyone to volunteer, they aren't going to be upset if you don't feel well enough to come in on a given day. Pick an activity that seems about your speed, and if on some days you aren't able to come in, it will still be ok!! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 I have to say, what the heck is " undiagnosed chronic fatigue " ? Is this way of saying they don't know what's causing it, but it's not the same thing as " Chronic Fatigue Syndrome " ? I also have a tremendous amount of fatigue, but they are so far just saying they don't know why I have it, they aren't even close to saying Chronic Fatigue on any level. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Darcy, I think that fibro and chronic fatigue are two sides of a coin. The symptoms are pretty much the same. I think if you have one you usually have them both. Take care, Irene > > I have to say, what the heck is " undiagnosed chronic fatigue " ? Is this way > of saying they don't know what's causing it, but it's not the same thing as > " Chronic Fatigue Syndrome " ? I also have a tremendous amount of fatigue, but > they are so far just saying they don't know why I have it, they aren't even > close to saying Chronic Fatigue on any level. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Darcy, I think that fibro and chronic fatigue are two sides of a coin. The symptoms are pretty much the same. I think if you have one you usually have them both. Take care, Irene > > I have to say, what the heck is " undiagnosed chronic fatigue " ? Is this way > of saying they don't know what's causing it, but it's not the same thing as > " Chronic Fatigue Syndrome " ? I also have a tremendous amount of fatigue, but > they are so far just saying they don't know why I have it, they aren't even > close to saying Chronic Fatigue on any level. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Darcy, I think that fibro and chronic fatigue are two sides of a coin. The symptoms are pretty much the same. I think if you have one you usually have them both. Take care, Irene > > I have to say, what the heck is " undiagnosed chronic fatigue " ? Is this way > of saying they don't know what's causing it, but it's not the same thing as > " Chronic Fatigue Syndrome " ? I also have a tremendous amount of fatigue, but > they are so far just saying they don't know why I have it, they aren't even > close to saying Chronic Fatigue on any level. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Darcy, I think its a way of saying the same thing. " You have fatigue and its chronic or long term, but we can't give you a reason. " That's basically it. My doctor doesn't want to call it 'Chronic Fatigue Syndrome' for various reasons from insurance to his own 'unique' way of not using what he calls 'allopathic' or regular medical terms. Basically I have fatigue I never get over with no cause. Marla > I have to say, what the heck is " undiagnosed chronic fatigue " ? Is this way > of saying they don't know what's causing it, but it's not the same thing as > " Chronic Fatigue Syndrome " ? I also have a tremendous amount of fatigue, but > they are so far just saying they don't know why I have it, they aren't even > close to saying Chronic Fatigue on any level. > Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Marla not meaning to be nosey but what part of Ohio do you live in. My twin sister lives in a small town called Poland real near to Youngstown. She has fibromyalgia also but has had it a lot longer than I. It is so amazing the number of people with this illness, and even more on how debilating it is. Anyway you guys might be able to share some feelings if you are close enough. If You do not want to comment that is fine. Welcome to the group and I hope at least he is helpful in keeping your symptoms at a minimalso important with this illlness. Deana On Wed, 6 Jun 2001 10:13:46 -0400 " Marla Fair " writes: > Hello everyone, > > I am here searching to some extent. After a very traumatic period > in my > life, I developed what the doctors have only been willing to call > 'undiagnosed chronic fatigue'. Now, ten years later, it is still > undiagnosed and I am still fatigued. Over the years I have been > tested for > everything under the sun and told I am healthy as the proverbial > horse. > <sigh> > > I was exploring on the net the other day and came across a > Fibromyalgia > site. A friend of mine had suggested I look into it. I sat with my > mouth > hanging open as ALL of my symptoms were described, including the odd > ones > like the tingling in my hands and feet. This was also the first > time I had > seen 'fibro-fog' described, which I had always used the old 'Quantum > Leap' > TV show term to describe, saying I had a 'swiss-cheese' brain - > solid in > some places with BIG holes in others. > > Anyhow, I am here to listen and to learn. I go to a > natural/homeopathic/chiropractic and regular doctor. I love him. > He thinks > outside the box, but he is not into 'defining' things - so I don't > know that > I could ever get a definite 'you have fibromyalgia' out of him. I > have pain > all the time and burning in my muscles, etc. plus the fatigue and > all those > pain points involved.... The doctors have eliminated Epstein Barre, > Hepatitis, Thyroid, etc. so I think this is where I belong. > > Fortunately, I am an artist and hope-to-be writer and am > self-employed, so I > can make my own schedule around this illness most of the time. > > Thanks for the warm welcome. I look forward to reading and > participating. > > Marla in Ohio > > > > Date: Tue, 5 Jun 2001 22:13:55 EDT > > From: patidu@... > > Subject: Re: New Member > > > > Welcome Marla to our list. We are a very supportive group and > also a very > > friendly one. We are happy that you have joined us and you will > be happy > > with our group. > > > > Take care, > > Irene > > > > > > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Marla not meaning to be nosey but what part of Ohio do you live in. My twin sister lives in a small town called Poland real near to Youngstown. She has fibromyalgia also but has had it a lot longer than I. It is so amazing the number of people with this illness, and even more on how debilating it is. Anyway you guys might be able to share some feelings if you are close enough. If You do not want to comment that is fine. Welcome to the group and I hope at least he is helpful in keeping your symptoms at a minimalso important with this illlness. Deana On Wed, 6 Jun 2001 10:13:46 -0400 " Marla Fair " writes: > Hello everyone, > > I am here searching to some extent. After a very traumatic period > in my > life, I developed what the doctors have only been willing to call > 'undiagnosed chronic fatigue'. Now, ten years later, it is still > undiagnosed and I am still fatigued. Over the years I have been > tested for > everything under the sun and told I am healthy as the proverbial > horse. > <sigh> > > I was exploring on the net the other day and came across a > Fibromyalgia > site. A friend of mine had suggested I look into it. I sat with my > mouth > hanging open as ALL of my symptoms were described, including the odd > ones > like the tingling in my hands and feet. This was also the first > time I had > seen 'fibro-fog' described, which I had always used the old 'Quantum > Leap' > TV show term to describe, saying I had a 'swiss-cheese' brain - > solid in > some places with BIG holes in others. > > Anyhow, I am here to listen and to learn. I go to a > natural/homeopathic/chiropractic and regular doctor. I love him. > He thinks > outside the box, but he is not into 'defining' things - so I don't > know that > I could ever get a definite 'you have fibromyalgia' out of him. I > have pain > all the time and burning in my muscles, etc. plus the fatigue and > all those > pain points involved.... The doctors have eliminated Epstein Barre, > Hepatitis, Thyroid, etc. so I think this is where I belong. > > Fortunately, I am an artist and hope-to-be writer and am > self-employed, so I > can make my own schedule around this illness most of the time. > > Thanks for the warm welcome. I look forward to reading and > participating. > > Marla in Ohio > > > > Date: Tue, 5 Jun 2001 22:13:55 EDT > > From: patidu@... > > Subject: Re: New Member > > > > Welcome Marla to our list. We are a very supportive group and > also a very > > friendly one. We are happy that you have joined us and you will > be happy > > with our group. > > > > Take care, > > Irene > > > > > > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Marla not meaning to be nosey but what part of Ohio do you live in. My twin sister lives in a small town called Poland real near to Youngstown. She has fibromyalgia also but has had it a lot longer than I. It is so amazing the number of people with this illness, and even more on how debilating it is. Anyway you guys might be able to share some feelings if you are close enough. If You do not want to comment that is fine. Welcome to the group and I hope at least he is helpful in keeping your symptoms at a minimalso important with this illlness. Deana On Wed, 6 Jun 2001 10:13:46 -0400 " Marla Fair " writes: > Hello everyone, > > I am here searching to some extent. After a very traumatic period > in my > life, I developed what the doctors have only been willing to call > 'undiagnosed chronic fatigue'. Now, ten years later, it is still > undiagnosed and I am still fatigued. Over the years I have been > tested for > everything under the sun and told I am healthy as the proverbial > horse. > <sigh> > > I was exploring on the net the other day and came across a > Fibromyalgia > site. A friend of mine had suggested I look into it. I sat with my > mouth > hanging open as ALL of my symptoms were described, including the odd > ones > like the tingling in my hands and feet. This was also the first > time I had > seen 'fibro-fog' described, which I had always used the old 'Quantum > Leap' > TV show term to describe, saying I had a 'swiss-cheese' brain - > solid in > some places with BIG holes in others. > > Anyhow, I am here to listen and to learn. I go to a > natural/homeopathic/chiropractic and regular doctor. I love him. > He thinks > outside the box, but he is not into 'defining' things - so I don't > know that > I could ever get a definite 'you have fibromyalgia' out of him. I > have pain > all the time and burning in my muscles, etc. plus the fatigue and > all those > pain points involved.... The doctors have eliminated Epstein Barre, > Hepatitis, Thyroid, etc. so I think this is where I belong. > > Fortunately, I am an artist and hope-to-be writer and am > self-employed, so I > can make my own schedule around this illness most of the time. > > Thanks for the warm welcome. I look forward to reading and > participating. > > Marla in Ohio > > > > Date: Tue, 5 Jun 2001 22:13:55 EDT > > From: patidu@... > > Subject: Re: New Member > > > > Welcome Marla to our list. We are a very supportive group and > also a very > > friendly one. We are happy that you have joined us and you will > be happy > > with our group. > > > > Take care, > > Irene > > > > > > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 I think that fibro and chronic fatigue are two sides of a coin. The symptoms are pretty much the same. I think if you have one you usually have them both. Take care, Irene Oh goody, can I send my coin back and get a different, better one?? Darcy Quote Link to comment Share on other sites More sharing options...
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