New member

[Guest guest]

I am not sorry you wrote it. Is Dee your real name or is it a nickname,

cause people real close to me call me Dee. I did notmean to say

something wrong about the way you said that. I just wanted every one to

know we had to similiar. Thanks for writing. I assume you have FM too.

I do not remember getting your story. If you care to tell me about it i

would be glad to listen and you would be sadly missed if you left so

please do not and let me knw what I missed. Hope you are pain free

today. Deana in CA. Oh where are you in Ca. I live in northern part

near Sacramnto, a little town south of Sac actually, called Galt

between Elk Grove and Stockton. Hope to hear from you.

On Wed, 20 Jun 2001 00:12:39 -0700 (PDT) MY-FIBROJOURNEY@...

writes:

> I am Dee and I am in Calif.

> And I wrote that. I guess If I leave I would' never be

> misses......Dee

> Aka De Lois ......Sorry for the confusion. Good Bye

>

> http://community.webtv.net/MY-FIBROJOURNEY/THISISMYFIBRO

>

>

> SEND POST TO: fibromyalgia-cfs

>

[Guest guest]

Dee,

Do you know what this is all about? She did unsubscribe and I would like to

know why she did. What confusion? I have not seen any confusion that would

cause her to leave unless she answered an email with your name on it but that

happens all the time.

Take care,

Irene

C0-Moderator

>

> On Wed, 20 Jun 2001 00:12:39 -0700 (PDT) MY-FIBROJOURNEY@...

> writes:

> > I am Dee and I am in Calif.

> > And I wrote that. I guess If I leave I would' never be

> > misses......Dee

> > AKA DE Lois ......Sorry for the confusion. Good Bye

> >

> > http://community.webtv.net/MY-FIBROJOURNEY/THISISMYFIBRO

> >

> >

>

[Guest guest]

Dee,

Do you know what this is all about? She did unsubscribe and I would like to

know why she did. What confusion? I have not seen any confusion that would

cause her to leave unless she answered an email with your name on it but that

happens all the time.

Take care,

Irene

C0-Moderator

>

> On Wed, 20 Jun 2001 00:12:39 -0700 (PDT) MY-FIBROJOURNEY@...

> writes:

> > I am Dee and I am in Calif.

> > And I wrote that. I guess If I leave I would' never be

> > misses......Dee

> > AKA DE Lois ......Sorry for the confusion. Good Bye

> >

> > http://community.webtv.net/MY-FIBROJOURNEY/THISISMYFIBRO

> >

> >

>

[Guest guest]

hey my name is Pamm and I have had Fibromyalgia/Chronic Fatigue Syndrome,

Polycystic Ovary Syndrome, for 6 years, and it's no fun. A lot of my family

thinks I'am a hypochondriac and It's hard to get people to understand what I

have is real and I'am in pain everyday and I'm totally exhausted everyday. I

joined this group to get support so I won't feel alone. I have 3 young boys

and a wonderful husband, and I'm only 31 and I feel so much older. I want to

be young again so I can do all I can with my family. This Illness does make

you severly depressed. Thank You for letting me be a part of this group.

[Guest guest]

hey my name is Pamm and I have had Fibromyalgia/Chronic Fatigue Syndrome,

Polycystic Ovary Syndrome, for 6 years, and it's no fun. A lot of my family

thinks I'am a hypochondriac and It's hard to get people to understand what I

have is real and I'am in pain everyday and I'm totally exhausted everyday. I

joined this group to get support so I won't feel alone. I have 3 young boys

and a wonderful husband, and I'm only 31 and I feel so much older. I want to

be young again so I can do all I can with my family. This Illness does make

you severly depressed. Thank You for letting me be a part of this group.

[Guest guest]

hey my name is Pamm and I have had Fibromyalgia/Chronic Fatigue Syndrome,

Polycystic Ovary Syndrome, for 6 years, and it's no fun. A lot of my family

thinks I'am a hypochondriac and It's hard to get people to understand what I

have is real and I'am in pain everyday and I'm totally exhausted everyday. I

joined this group to get support so I won't feel alone. I have 3 young boys

and a wonderful husband, and I'm only 31 and I feel so much older. I want to

be young again so I can do all I can with my family. This Illness does make

you severly depressed. Thank You for letting me be a part of this group.

[Guest guest]

We are very happy to have you as a member of this group. You are very

welcome. There is no such thing as letting you be a member, we are happy to

have you join us. Yes, I am afraid that there are still a lot of folks out

there that thinks we are hypochondriacs It can hurt when they treat you like

that. I have a friend that does not believe that I am ill. Even when he

knows that I am on morphine. They do not prescribe that for everyone coming

down the pike. My husband has tried to get him to understand but no, he has

made up his mind and that is that.

Take care,

Irene

> hey my name is Pamm and I have had Fibromyalgia/Chronic Fatigue Syndrome,

> Polycystic Ovary Syndrome, for 6 years, and it's no fun. A lot of my

> family

> thinks I'm a hypochondriac and It's hard to get people to understand what I

> have is real and I'm in pain everyday and I'm totally exhausted everyday.

> I

> joined this group to get support so I won't feel alone. I have 3 young

> boys

> and a wonderful husband, and I'm only 31 and I feel so much older. I want

> to

> be young again so I can do all I can with my family. This Illness does

> make

> you severely depressed.

[Guest guest]

We are very happy to have you as a member of this group. You are very

welcome. There is no such thing as letting you be a member, we are happy to

have you join us. Yes, I am afraid that there are still a lot of folks out

there that thinks we are hypochondriacs It can hurt when they treat you like

that. I have a friend that does not believe that I am ill. Even when he

knows that I am on morphine. They do not prescribe that for everyone coming

down the pike. My husband has tried to get him to understand but no, he has

made up his mind and that is that.

Take care,

Irene

> hey my name is Pamm and I have had Fibromyalgia/Chronic Fatigue Syndrome,

> Polycystic Ovary Syndrome, for 6 years, and it's no fun. A lot of my

> family

> thinks I'm a hypochondriac and It's hard to get people to understand what I

> have is real and I'm in pain everyday and I'm totally exhausted everyday.

> I

> joined this group to get support so I won't feel alone. I have 3 young

> boys

> and a wonderful husband, and I'm only 31 and I feel so much older. I want

> to

> be young again so I can do all I can with my family. This Illness does

> make

> you severely depressed.

[Guest guest]

We are very happy to have you as a member of this group. You are very

welcome. There is no such thing as letting you be a member, we are happy to

have you join us. Yes, I am afraid that there are still a lot of folks out

there that thinks we are hypochondriacs It can hurt when they treat you like

that. I have a friend that does not believe that I am ill. Even when he

knows that I am on morphine. They do not prescribe that for everyone coming

down the pike. My husband has tried to get him to understand but no, he has

made up his mind and that is that.

Take care,

Irene

> hey my name is Pamm and I have had Fibromyalgia/Chronic Fatigue Syndrome,

> Polycystic Ovary Syndrome, for 6 years, and it's no fun. A lot of my

> family

> thinks I'm a hypochondriac and It's hard to get people to understand what I

> have is real and I'm in pain everyday and I'm totally exhausted everyday.

> I

> joined this group to get support so I won't feel alone. I have 3 young

> boys

> and a wonderful husband, and I'm only 31 and I feel so much older. I want

> to

> be young again so I can do all I can with my family. This Illness does

> make

> you severely depressed.

[Guest guest]

patidu@... wrote:

>

> Yes, I am afraid that there are still a lot of folks out

> there that thinks we are hypochondriacs It can hurt when they treat you like

> that. I have a friend that does not believe that I am ill. Even when he

> knows that I am on morphine. They do not prescribe that for everyone coming

> down the pike. My husband has tried to get him to understand but no, he has

> made up his mind and that is that.

>

> Take care,

> Irene

Pamm and Irene, I think a lot of people find it easier to make up their

mind that you are making things up then to actually have to deal with

you if they acknowledge that you are ill. If you're ill, then they have

to deal with their own mortality (even though this isn't dying), they

have to figure out how to treat you, give you sympathy, help, etc. It's

much " easier " to just ignore than it is to deal with it. I think it's

sad though.

Darcy

[Guest guest]

patidu@... wrote:

>

> Yes, I am afraid that there are still a lot of folks out

> there that thinks we are hypochondriacs It can hurt when they treat you like

> that. I have a friend that does not believe that I am ill. Even when he

> knows that I am on morphine. They do not prescribe that for everyone coming

> down the pike. My husband has tried to get him to understand but no, he has

> made up his mind and that is that.

>

> Take care,

> Irene

Pamm and Irene, I think a lot of people find it easier to make up their

mind that you are making things up then to actually have to deal with

you if they acknowledge that you are ill. If you're ill, then they have

to deal with their own mortality (even though this isn't dying), they

have to figure out how to treat you, give you sympathy, help, etc. It's

much " easier " to just ignore than it is to deal with it. I think it's

sad though.

Darcy

[Guest guest]

patidu@... wrote:

>

> Yes, I am afraid that there are still a lot of folks out

> there that thinks we are hypochondriacs It can hurt when they treat you like

> that. I have a friend that does not believe that I am ill. Even when he

> knows that I am on morphine. They do not prescribe that for everyone coming

> down the pike. My husband has tried to get him to understand but no, he has

> made up his mind and that is that.

>

> Take care,

> Irene

Pamm and Irene, I think a lot of people find it easier to make up their

mind that you are making things up then to actually have to deal with

you if they acknowledge that you are ill. If you're ill, then they have

to deal with their own mortality (even though this isn't dying), they

have to figure out how to treat you, give you sympathy, help, etc. It's

much " easier " to just ignore than it is to deal with it. I think it's

sad though.

Darcy

[Guest guest]

Welcome June! You have found the best group that there is. You will get great

support here and also great advice. I'm sorry to here you are having such a

ruff time of it I hope you start to feel a little better. Applying for short

term disability through work and S.S. is a long process, I have been through

it but hang it there as frustrating as it may get it will be well worth it! I

am in the Midwest to so it's nice to hear from someone so close to home!

Take Care,

[Guest guest]

Welcome June! You have found the best group that there is. You will get great

support here and also great advice. I'm sorry to here you are having such a

ruff time of it I hope you start to feel a little better. Applying for short

term disability through work and S.S. is a long process, I have been through

it but hang it there as frustrating as it may get it will be well worth it! I

am in the Midwest to so it's nice to hear from someone so close to home!

Take Care,

[Guest guest]

Welcome June! You have found the best group that there is. You will get great

support here and also great advice. I'm sorry to here you are having such a

ruff time of it I hope you start to feel a little better. Applying for short

term disability through work and S.S. is a long process, I have been through

it but hang it there as frustrating as it may get it will be well worth it! I

am in the Midwest to so it's nice to hear from someone so close to home!

Take Care,

[Guest guest]

Hi Lynne,

I have just joined this group too. Have had CFS for 11 yrs; then got FMS 2

yrs later. Am homebound, too, except for occasional slight upswings (being

out for one hour.) I am in my late 50's and live in a small town. We moved

here after my husband was in a cutback and the same month I had to leave my

job and two years later got disability. Since I have been sick the whole

time we have been here, 80% bedridden, I am very lonely also. It is so hard

to make friends when you cannot make it out to places where one might meet

friends. There are no support groups here either.

Glad to see another newbie. I have been trying to find a group that was

supportive and not so active that I can't keep up with the messages.

Question for you and everyone: Has anyone found a good multi-vitamin that

is in powder form? I don't seem to absorb the tablets and capsules.

Welcome, Lynne,

Beth

New Member

Hi Everyone:

I am Lynne from southern California. Actually I live in the Mojave

desert in the middle of nowhere. There are no resources or support

groups here. All I have is this computer to put me in touch with

people like myself. I have had CFS since I was 17 years old and I am

50 now so you can imagine the type of life I have led. Just barely. I

have had remissions and relapses which has prevented me from having

anything close to normalcy in my life especially in jobs or

relationships. I am now " retired " and on Disability (thank Goddess)

and live with my 14 year daughter. I am a single mom and it's not

easy but my daughter helps me out a lot. My biggest sadness is

loneliness and the fact that this illness is truly INVISIBLE and no

one thinks I am sick. If I try to explain to anyone that I am too

tired to get out of bed on any given day, they think I am just being

lazy. Well, I guess all of you know what I mean. Hopefully I will

be a good member of this group as I am very supportive and a good

listener.

[Guest guest]

Welcome to the list, Lynne. I am happy that you have joined our list. I am

sorry about the loneliness. I think that having friends around. That is if

they do believe your ill. I have one in particular like that. I just avoid

him.

This is a very friendly and helpful list. Of course, you will be a good

member of this list. Din;t ever think any other way.

Take care,

Irene

> . My biggest sadness is

> loneliness and the fact that this illness is truly INVISIBLE and no

> one thinks I am sick. If I try to explain to anyone that I am too

> tired to get out of bed on any given day, they think I am just being

> lazy. Well, I guess all of you know what I mean. Hopefully I will

> be a good member of this group as I am very supportive and a good

> listener.

>

[Guest guest]

Welcome to the list, Lynne. I am happy that you have joined our list. I am

sorry about the loneliness. I think that having friends around. That is if

they do believe your ill. I have one in particular like that. I just avoid

him.

This is a very friendly and helpful list. Of course, you will be a good

member of this list. Din;t ever think any other way.

Take care,

Irene

> . My biggest sadness is

> loneliness and the fact that this illness is truly INVISIBLE and no

> one thinks I am sick. If I try to explain to anyone that I am too

> tired to get out of bed on any given day, they think I am just being

> lazy. Well, I guess all of you know what I mean. Hopefully I will

> be a good member of this group as I am very supportive and a good

> listener.

>

[Guest guest]

Welcome to the list, Lynne. I am happy that you have joined our list. I am

sorry about the loneliness. I think that having friends around. That is if

they do believe your ill. I have one in particular like that. I just avoid

him.

This is a very friendly and helpful list. Of course, you will be a good

member of this list. Din;t ever think any other way.

Take care,

Irene

> . My biggest sadness is

> loneliness and the fact that this illness is truly INVISIBLE and no

> one thinks I am sick. If I try to explain to anyone that I am too

> tired to get out of bed on any given day, they think I am just being

> lazy. Well, I guess all of you know what I mean. Hopefully I will

> be a good member of this group as I am very supportive and a good

> listener.

>

[Guest guest]

Hi to all,

I am a new member and have really been having a difficult time with

the anxiety/panic aspect of the illness. Trying to stabilize and get

back on guai. The following will give some particulars.

I believe I had the genetic predisposition for this condition. I have

also had several of the predisposing factors that seem to be known

triggers for the illness. I had many musculoskeletal traumas over the

years, nothing really major but seemingly enough to cause alot of

discomfort at the time of injury. I also have had a great deal of

stress related to jobs and family issues. {Mom had a stroke 8 years

ago...and the wife and I then took Mom and Dad under the wing to help

out.} I think another biggie is the fact that I had alot of dental

amalgams. When my health continued to deteriorate, I ended up being

tested on a VEGA type machine and it came up with mercury toxicity. I

sought out a very well trained dentist that had been trained by Hal

Huggins and had all amalgam removed. I also had 3 teeth that had been

injured while playing high school football {many years before} that

had received root canals removed. { Nothing is in their place.} :{!!

However, after all the extensive dental work my symptoms persisted.

Lots of musculoskeltal pain, unrefreshed sleep, chronic fatigue,

anxiety, depression, hypoglycemia etc. You all know the drill. BTW, I

have 2 Master's degrees in health and a Doctorate in Chiropractic.

None of this seemed to help in my quest for health. I haven't been in

practice for MANY years due to this illness. Sometime around March,

2000, while searching the net it dawned on me I had FMS! A doctor

here in the Atlanta area confirmed my diagnosis. He started me on the

Guai protocol. I started low and soon was at 2400mg. I tried 3000mg.

briefy, but it was more than I could handle. I stabilized at 2400mg.

Being a DC and always having been more the natural type, I wanted to

see if I could get off Guai. Seems now it was not a good choice. I

had started a Raw Food vegan diet and was 3 months into that when I

decided to do more cleansing. I ordered an herbal detox program from

Dr. and followed the protocol for a couple of weeks.

I got slowly but progressively worse. My bowel movements virtually

shut down and I started feeling really toxic. I stopped the herbs

after approximately 10 days or so, but am still suffering the effects.

It dawned on me after reading some of these posts and reading some of

the Dr. Cheney links, that I had indeed overdone it. I had never

heard of the role of glutathione.

Dr Cheney on Glutathine..

" Glutathione deficiency has two major implications: detox failure and

viral/microbial activation. Glutathione plays a major role in

detoxification pathways. This deficiency impairs the body's ability

to get rid of toxins, whether environmental or by-products of

cellular metabolism. CFS patients slowly become toxic, storing away

poisons in fatty tissue, muscles, organs and the brain. This cellular

detox failure can make CFS patients " canaries to their environment " .

Detox programs that have been successful in other conditions can

actually put some CFS patients in the hospital if their glutathione

deficiency is not first addressed. "

When I read the last sentence of that paragraph, it hit me like a ton

of bricks. My gut level reaction is that I started detoxing some

heavy metals from various places they have been stored and my body is

trying to catch up. I have gone into full blown panic attacks and am

really trying to make sense of this all again. I now feel the guai

really made a tremendous difference. I saw lots of precipitate while

taking it. It was only after stopping guai did my pain virtually

vanish. I will now start back slowly!

Best Wishes to you all!

:<> } Ron

> We have a new member on the list.

>

> Will you please give them a warm welcome.

>

> cubtrap@b... please introduce yourself to the list.

>

> Bierman

>

>

>

[Guest guest]

Hi to all,

I am a new member and have really been having a difficult time with

the anxiety/panic aspect of the illness. Trying to stabilize and get

back on guai. The following will give some particulars.

I believe I had the genetic predisposition for this condition. I have

also had several of the predisposing factors that seem to be known

triggers for the illness. I had many musculoskeletal traumas over the

years, nothing really major but seemingly enough to cause alot of

discomfort at the time of injury. I also have had a great deal of

stress related to jobs and family issues. {Mom had a stroke 8 years

ago...and the wife and I then took Mom and Dad under the wing to help

out.} I think another biggie is the fact that I had alot of dental

amalgams. When my health continued to deteriorate, I ended up being

tested on a VEGA type machine and it came up with mercury toxicity. I

sought out a very well trained dentist that had been trained by Hal

Huggins and had all amalgam removed. I also had 3 teeth that had been

injured while playing high school football {many years before} that

had received root canals removed. { Nothing is in their place.} :{!!

However, after all the extensive dental work my symptoms persisted.

Lots of musculoskeltal pain, unrefreshed sleep, chronic fatigue,

anxiety, depression, hypoglycemia etc. You all know the drill. BTW, I

have 2 Master's degrees in health and a Doctorate in Chiropractic.

None of this seemed to help in my quest for health. I haven't been in

practice for MANY years due to this illness. Sometime around March,

2000, while searching the net it dawned on me I had FMS! A doctor

here in the Atlanta area confirmed my diagnosis. He started me on the

Guai protocol. I started low and soon was at 2400mg. I tried 3000mg.

briefy, but it was more than I could handle. I stabilized at 2400mg.

Being a DC and always having been more the natural type, I wanted to

see if I could get off Guai. Seems now it was not a good choice. I

had started a Raw Food vegan diet and was 3 months into that when I

decided to do more cleansing. I ordered an herbal detox program from

Dr. and followed the protocol for a couple of weeks.

I got slowly but progressively worse. My bowel movements virtually

shut down and I started feeling really toxic. I stopped the herbs

after approximately 10 days or so, but am still suffering the effects.

It dawned on me after reading some of these posts and reading some of

the Dr. Cheney links, that I had indeed overdone it. I had never

heard of the role of glutathione.

Dr Cheney on Glutathine..

" Glutathione deficiency has two major implications: detox failure and

viral/microbial activation. Glutathione plays a major role in

detoxification pathways. This deficiency impairs the body's ability

to get rid of toxins, whether environmental or by-products of

cellular metabolism. CFS patients slowly become toxic, storing away

poisons in fatty tissue, muscles, organs and the brain. This cellular

detox failure can make CFS patients " canaries to their environment " .

Detox programs that have been successful in other conditions can

actually put some CFS patients in the hospital if their glutathione

deficiency is not first addressed. "

When I read the last sentence of that paragraph, it hit me like a ton

of bricks. My gut level reaction is that I started detoxing some

heavy metals from various places they have been stored and my body is

trying to catch up. I have gone into full blown panic attacks and am

really trying to make sense of this all again. I now feel the guai

really made a tremendous difference. I saw lots of precipitate while

taking it. It was only after stopping guai did my pain virtually

vanish. I will now start back slowly!

Best Wishes to you all!

:<> } Ron

> We have a new member on the list.

>

> Will you please give them a warm welcome.

>

> cubtrap@b... please introduce yourself to the list.

>

> Bierman

>

>

>

[Guest guest]

Hi to all,

I am a new member and have really been having a difficult time with

the anxiety/panic aspect of the illness. Trying to stabilize and get

back on guai. The following will give some particulars.

I believe I had the genetic predisposition for this condition. I have

also had several of the predisposing factors that seem to be known

triggers for the illness. I had many musculoskeletal traumas over the

years, nothing really major but seemingly enough to cause alot of

discomfort at the time of injury. I also have had a great deal of

stress related to jobs and family issues. {Mom had a stroke 8 years

ago...and the wife and I then took Mom and Dad under the wing to help

out.} I think another biggie is the fact that I had alot of dental

amalgams. When my health continued to deteriorate, I ended up being

tested on a VEGA type machine and it came up with mercury toxicity. I

sought out a very well trained dentist that had been trained by Hal

Huggins and had all amalgam removed. I also had 3 teeth that had been

injured while playing high school football {many years before} that

had received root canals removed. { Nothing is in their place.} :{!!

However, after all the extensive dental work my symptoms persisted.

Lots of musculoskeltal pain, unrefreshed sleep, chronic fatigue,

anxiety, depression, hypoglycemia etc. You all know the drill. BTW, I

have 2 Master's degrees in health and a Doctorate in Chiropractic.

None of this seemed to help in my quest for health. I haven't been in

practice for MANY years due to this illness. Sometime around March,

2000, while searching the net it dawned on me I had FMS! A doctor

here in the Atlanta area confirmed my diagnosis. He started me on the

Guai protocol. I started low and soon was at 2400mg. I tried 3000mg.

briefy, but it was more than I could handle. I stabilized at 2400mg.

Being a DC and always having been more the natural type, I wanted to

see if I could get off Guai. Seems now it was not a good choice. I

had started a Raw Food vegan diet and was 3 months into that when I

decided to do more cleansing. I ordered an herbal detox program from

Dr. and followed the protocol for a couple of weeks.

I got slowly but progressively worse. My bowel movements virtually

shut down and I started feeling really toxic. I stopped the herbs

after approximately 10 days or so, but am still suffering the effects.

It dawned on me after reading some of these posts and reading some of

the Dr. Cheney links, that I had indeed overdone it. I had never

heard of the role of glutathione.

Dr Cheney on Glutathine..

" Glutathione deficiency has two major implications: detox failure and

viral/microbial activation. Glutathione plays a major role in

detoxification pathways. This deficiency impairs the body's ability

to get rid of toxins, whether environmental or by-products of

cellular metabolism. CFS patients slowly become toxic, storing away

poisons in fatty tissue, muscles, organs and the brain. This cellular

detox failure can make CFS patients " canaries to their environment " .

Detox programs that have been successful in other conditions can

actually put some CFS patients in the hospital if their glutathione

deficiency is not first addressed. "

When I read the last sentence of that paragraph, it hit me like a ton

of bricks. My gut level reaction is that I started detoxing some

heavy metals from various places they have been stored and my body is

trying to catch up. I have gone into full blown panic attacks and am

really trying to make sense of this all again. I now feel the guai

really made a tremendous difference. I saw lots of precipitate while

taking it. It was only after stopping guai did my pain virtually

vanish. I will now start back slowly!

Best Wishes to you all!

:<> } Ron

> We have a new member on the list.

>

> Will you please give them a warm welcome.

>

> cubtrap@b... please introduce yourself to the list.

>

> Bierman

>

>

>

[Guest guest]

Hi to the groups its been a toughfew weeks for me and I am sorry I have

not written, but I have readand it blows my mine the number of people who

are suffering like me. This group is a wonderful group and just listening

has help me to get through the recent tough times. Been in a major

flares with migraines that nothing will take them away. I took an

ambulance ride last week to the er because of severe back pain, no one

could move me and I had not done a thing. Well the mri came back

degenerative back disease. Between hospital stay and now the pain has

since creeped into my rt shoulder and down my whole rt arm, and straight

down the back of my rt leg and to the tendons of my ankles. So we all

need each other. chubbygrrl5, sorry do not know your name, but I feel

for you being so secluded and the people who are near by don't believe

it. But you do and the higher power does and all of us in this group do.

So stick with us we will help you by listening and you will know we know

you are not lazy. How does your daughter handle this? It must be tough

on her. I hope she at least is supportive. If you do not think I am

too nosey, hoping she is with you on this. Write back to me or the group

we are here. Deana, from northern Ca.

On Tue, 26 Jun 2001 15:31:10 -0000 chubbygrrl50@... writes:

> Hi Everyone:

> I am Lynne from southern California. Actually I live in the Mojave

> desert in the middle of nowhere. There are no resources or support

> groups here. All I have is this computer to put me in touch with

> people like myself. I have had CFS since I was 17 years old and I

> am

> 50 now so you can imagine the type of life I have led. Just barely.

> I

> have had remissions and relapses which has prevented me from having

> anything close to normalcy in my life especially in jobs or

> relationships. I am now " retired " and on Disability (thank Goddess)

>

> and live with my 14 year daughter. I am a single mom and it's not

> easy but my daughter helps me out a lot. My biggest sadness is

> loneliness and the fact that this illness is truly INVISIBLE and no

> one thinks I am sick. If I try to explain to anyone that I am too

> tired to get out of bed on any given day, they think I am just being

>

> lazy. Well, I guess all of you know what I mean. Hopefully I will

> be a good member of this group as I am very supportive and a good

> listener.

>

>

> SEND POST TO: fibromyalgia-cfs

>

[Guest guest]

Hi to the groups its been a toughfew weeks for me and I am sorry I have

not written, but I have readand it blows my mine the number of people who

are suffering like me. This group is a wonderful group and just listening

has help me to get through the recent tough times. Been in a major

flares with migraines that nothing will take them away. I took an

ambulance ride last week to the er because of severe back pain, no one

could move me and I had not done a thing. Well the mri came back

degenerative back disease. Between hospital stay and now the pain has

since creeped into my rt shoulder and down my whole rt arm, and straight

down the back of my rt leg and to the tendons of my ankles. So we all

need each other. chubbygrrl5, sorry do not know your name, but I feel

for you being so secluded and the people who are near by don't believe

it. But you do and the higher power does and all of us in this group do.

So stick with us we will help you by listening and you will know we know

you are not lazy. How does your daughter handle this? It must be tough

on her. I hope she at least is supportive. If you do not think I am

too nosey, hoping she is with you on this. Write back to me or the group

we are here. Deana, from northern Ca.

On Tue, 26 Jun 2001 15:31:10 -0000 chubbygrrl50@... writes:

> Hi Everyone:

> I am Lynne from southern California. Actually I live in the Mojave

> desert in the middle of nowhere. There are no resources or support

> groups here. All I have is this computer to put me in touch with

> people like myself. I have had CFS since I was 17 years old and I

> am

> 50 now so you can imagine the type of life I have led. Just barely.

> I

> have had remissions and relapses which has prevented me from having

> anything close to normalcy in my life especially in jobs or

> relationships. I am now " retired " and on Disability (thank Goddess)

>

> and live with my 14 year daughter. I am a single mom and it's not

> easy but my daughter helps me out a lot. My biggest sadness is

> loneliness and the fact that this illness is truly INVISIBLE and no

> one thinks I am sick. If I try to explain to anyone that I am too

> tired to get out of bed on any given day, they think I am just being

>

> lazy. Well, I guess all of you know what I mean. Hopefully I will

> be a good member of this group as I am very supportive and a good

> listener.

>

>

> SEND POST TO: fibromyalgia-cfs

>

[Guest guest]

Hi to the groups its been a toughfew weeks for me and I am sorry I have

not written, but I have readand it blows my mine the number of people who

are suffering like me. This group is a wonderful group and just listening

has help me to get through the recent tough times. Been in a major

flares with migraines that nothing will take them away. I took an

ambulance ride last week to the er because of severe back pain, no one

could move me and I had not done a thing. Well the mri came back

degenerative back disease. Between hospital stay and now the pain has

since creeped into my rt shoulder and down my whole rt arm, and straight

down the back of my rt leg and to the tendons of my ankles. So we all

need each other. chubbygrrl5, sorry do not know your name, but I feel

for you being so secluded and the people who are near by don't believe

it. But you do and the higher power does and all of us in this group do.

So stick with us we will help you by listening and you will know we know

you are not lazy. How does your daughter handle this? It must be tough

on her. I hope she at least is supportive. If you do not think I am

too nosey, hoping she is with you on this. Write back to me or the group

we are here. Deana, from northern Ca.

On Tue, 26 Jun 2001 15:31:10 -0000 chubbygrrl50@... writes:

> Hi Everyone:

> I am Lynne from southern California. Actually I live in the Mojave

> desert in the middle of nowhere. There are no resources or support

> groups here. All I have is this computer to put me in touch with

> people like myself. I have had CFS since I was 17 years old and I

> am

> 50 now so you can imagine the type of life I have led. Just barely.

> I

> have had remissions and relapses which has prevented me from having

> anything close to normalcy in my life especially in jobs or

> relationships. I am now " retired " and on Disability (thank Goddess)

>

> and live with my 14 year daughter. I am a single mom and it's not

> easy but my daughter helps me out a lot. My biggest sadness is

> loneliness and the fact that this illness is truly INVISIBLE and no

> one thinks I am sick. If I try to explain to anyone that I am too

> tired to get out of bed on any given day, they think I am just being

>

> lazy. Well, I guess all of you know what I mean. Hopefully I will

> be a good member of this group as I am very supportive and a good

> listener.

>

>

> SEND POST TO: fibromyalgia-cfs

>