New member

[Guest guest]

> Hi my name is Lorraine, I have had Fibromyalgia since birth.

Welcome to the list, Lorraine! I'm sure you'll find yourself among friends

here.

ee

[Guest guest]

Hi my name is Cheri, I've been married for 20 yrs and have 2 boy's.

For the last several month i've had from mild pain to moderate pain

in my neck, lower back, and in my knees. Trouble with my hands and

feet tingling, headaches, a constant feeling of being sick to my

stomach, ECT !!!!

I was diagnosed 14 yrs ago with sever panic and anxiety disorder, and

major depression. This has been under control for several yrs with

medication. I know control them, instead of letting them control me.

When i was at the dr yesturday he done a pin point pressure test,

needless to say i was in tears and at a loss when i left his office.

I'm in search of any kind of information about Fibro that anyone has

to offer. I guess you can say i'm scared to death of whats yet to

come, although i know i should not borrow trouble from the future,

this has me scared to death. I've been put on elivil 1 at bedtime,

and flexeril starting with 1 10 mg at bedtime the first week, and as

each week progresses, i'm to up the flexeril till i'm taking 5 10 mg

tablets at bedtime on the 5th week. Is this a normal does ?? i'm

afraid of taking any kind of medication, i guess it's sort of a

phobia i have as well, i also take paxil and xanax for the panic and

anxiety. this just seems like a lot of mecication to me.

I'm looking forward to joing in the chat session tonight, in hopes to

get some answers. Thanks for listening, and if anyone has any advise,

i'm all ears. Cheri

[Guest guest]

Cheri wrote:

i'm

> afraid of taking any kind of medication, i guess it's sort of a

> phobia i have as well, i also take paxil and xanax for the panic and

> anxiety. this just seems like a lot of mecication to me.

> I'm looking forward to joing in the chat session tonight, in hopes to

> get some answers. Thanks for listening, and if anyone has any advise,

> i'm all ears. Cheri

Hi Cheri and welcome, I can't help you with the doses since I'm not on

those, but a lot of us are on a lot of medication.

Darcy

[Guest guest]

Cheri wrote:

i'm

> afraid of taking any kind of medication, i guess it's sort of a

> phobia i have as well, i also take paxil and xanax for the panic and

> anxiety. this just seems like a lot of mecication to me.

> I'm looking forward to joing in the chat session tonight, in hopes to

> get some answers. Thanks for listening, and if anyone has any advise,

> i'm all ears. Cheri

Hi Cheri and welcome, I can't help you with the doses since I'm not on

those, but a lot of us are on a lot of medication.

Darcy

[Guest guest]

Cheri wrote:

i'm

> afraid of taking any kind of medication, i guess it's sort of a

> phobia i have as well, i also take paxil and xanax for the panic and

> anxiety. this just seems like a lot of mecication to me.

> I'm looking forward to joing in the chat session tonight, in hopes to

> get some answers. Thanks for listening, and if anyone has any advise,

> i'm all ears. Cheri

Hi Cheri and welcome, I can't help you with the doses since I'm not on

those, but a lot of us are on a lot of medication.

Darcy

[Guest guest]

Cheri, what about the chat session? is it for fms, where? Live chat would be

cool.

Aloha from Iris.

---------------------------------

[Guest guest]

Cheri, what about the chat session? is it for fms, where? Live chat would be

cool.

Aloha from Iris.

---------------------------------

[Guest guest]

Welcome to the list. It is a list of good, caring and loving members. We

are very supportive and glad to help if we can. You will receive a lot of

good information and find very friendly members.

Take care,

Irene

Co-Moderator

[Guest guest]

Welcome to the list. It is a list of good, caring and loving members. We

are very supportive and glad to help if we can. You will receive a lot of

good information and find very friendly members.

Take care,

Irene

Co-Moderator

[Guest guest]

Dear All

My name is Heidi,am 30 years old and live in the Midlands(UK).I was first

Diagnosed with RSI 3 yrs ago in August.MPS in nov20000 and FMS at the beginning

of this year.As no doubt so many of you will have been threw its all in your

head from Dr's and so called Specialists I have come to the conclusion that its

down to me to find out what helps and what doesn't so here I am. I'm glad I have

found you all, sorry that there are so many of you out there, but knowing that

you are not alone does help in a small way.Look forward to chatting and hearing

from you all.

Take Care

Heidi

New Member

We have a new member to the list.

Will you please give them a warm welcome.

heidi.wallis@... will you please introduce yourself to the list.

Bierman

[Guest guest]

Dear All

My name is Heidi,am 30 years old and live in the Midlands(UK).I was first

Diagnosed with RSI 3 yrs ago in August.MPS in nov20000 and FMS at the beginning

of this year.As no doubt so many of you will have been threw its all in your

head from Dr's and so called Specialists I have come to the conclusion that its

down to me to find out what helps and what doesn't so here I am. I'm glad I have

found you all, sorry that there are so many of you out there, but knowing that

you are not alone does help in a small way.Look forward to chatting and hearing

from you all.

Take Care

Heidi

New Member

We have a new member to the list.

Will you please give them a warm welcome.

heidi.wallis@... will you please introduce yourself to the list.

Bierman

[Guest guest]

Dear All

My name is Heidi,am 30 years old and live in the Midlands(UK).I was first

Diagnosed with RSI 3 yrs ago in August.MPS in nov20000 and FMS at the beginning

of this year.As no doubt so many of you will have been threw its all in your

head from Dr's and so called Specialists I have come to the conclusion that its

down to me to find out what helps and what doesn't so here I am. I'm glad I have

found you all, sorry that there are so many of you out there, but knowing that

you are not alone does help in a small way.Look forward to chatting and hearing

from you all.

Take Care

Heidi

New Member

We have a new member to the list.

Will you please give them a warm welcome.

heidi.wallis@... will you please introduce yourself to the list.

Bierman

[Guest guest]

We are happy to have you join the list. It is a very good and supportive

list. The members are very caring. Please tell us about your selves.

Take care.

Irene

Co-Moderator

[Guest guest]

Welcome to our list. It is a very carrying and loving list. We all care for

each and are supportive. Please introduce yourself and join in the posting

and find that there is a lot of information out there.

Take care,

Irene

Co-Moderator

[Guest guest]

jeannejw@... will you please introduce yourself.

Welcome to the list. It is a good group of people. They are very loving and

caring. Also very supportive. Please let us know about you.

Take care,

Irene

[Guest guest]

jeannejw@... will you please introduce yourself.

Welcome to the list. It is a good group of people. They are very loving and

caring. Also very supportive. Please let us know about you.

Take care,

Irene

[Guest guest]

Hello to all the new list-members,

I'm still pretty new myself, and for the most part have been fairly silent,

but I have learned a great deal already and am sure to learn more. I think

the most important things, though, are knowing there are others out there

like myself, that this is not in my head, and that I am not just 'unwilling'

to push and get things done - as so many people seem to think - I am often

'unable'.

I would class myself at this time in the mild to moderate category as far as

the fibro-pain, etc. Its there, constantly, but I do not suffer as much as

many of those on this list do. The fatigue I have is debilitating though,

and the brain-fog not only frustrating but life-altering at times. I have

constant tingling in my hands and feet and sleep problems. I do suffer from

chemical allergies big time as well.

I am a self-employed artist and (hope to be) writer as well as a restorer of

antique dolls. I have one 17 year old and an understanding husband (thank

goodness).

This is a great place to be to connect with others who are trying to live

with these problems. And just to learn.

Welcome,

Marla in Ohio

> 1. New Member

>

> Subject: New Members Welcome

>

> I would like to welcome all new members to the list. .

>

>I know that when the other friendly people on this >list feel better they

will welcome you. FMS-CFS >is (as all of you know or you would not be here)

a >painful and tiring illness and there are times when

>members of this list are not able to get to the >computer. I am sorry for

you and I am sorry that >we have so many of our list members down

>and I do hope that all of you are soon doing >better. I miss you.

[Guest guest]

Hello to all the new list-members,

I'm still pretty new myself, and for the most part have been fairly silent,

but I have learned a great deal already and am sure to learn more. I think

the most important things, though, are knowing there are others out there

like myself, that this is not in my head, and that I am not just 'unwilling'

to push and get things done - as so many people seem to think - I am often

'unable'.

I would class myself at this time in the mild to moderate category as far as

the fibro-pain, etc. Its there, constantly, but I do not suffer as much as

many of those on this list do. The fatigue I have is debilitating though,

and the brain-fog not only frustrating but life-altering at times. I have

constant tingling in my hands and feet and sleep problems. I do suffer from

chemical allergies big time as well.

I am a self-employed artist and (hope to be) writer as well as a restorer of

antique dolls. I have one 17 year old and an understanding husband (thank

goodness).

This is a great place to be to connect with others who are trying to live

with these problems. And just to learn.

Welcome,

Marla in Ohio

> 1. New Member

>

> Subject: New Members Welcome

>

> I would like to welcome all new members to the list. .

>

>I know that when the other friendly people on this >list feel better they

will welcome you. FMS-CFS >is (as all of you know or you would not be here)

a >painful and tiring illness and there are times when

>members of this list are not able to get to the >computer. I am sorry for

you and I am sorry that >we have so many of our list members down

>and I do hope that all of you are soon doing >better. I miss you.

[Guest guest]

Hello to all the new list-members,

I'm still pretty new myself, and for the most part have been fairly silent,

but I have learned a great deal already and am sure to learn more. I think

the most important things, though, are knowing there are others out there

like myself, that this is not in my head, and that I am not just 'unwilling'

to push and get things done - as so many people seem to think - I am often

'unable'.

I would class myself at this time in the mild to moderate category as far as

the fibro-pain, etc. Its there, constantly, but I do not suffer as much as

many of those on this list do. The fatigue I have is debilitating though,

and the brain-fog not only frustrating but life-altering at times. I have

constant tingling in my hands and feet and sleep problems. I do suffer from

chemical allergies big time as well.

I am a self-employed artist and (hope to be) writer as well as a restorer of

antique dolls. I have one 17 year old and an understanding husband (thank

goodness).

This is a great place to be to connect with others who are trying to live

with these problems. And just to learn.

Welcome,

Marla in Ohio

> 1. New Member

>

> Subject: New Members Welcome

>

> I would like to welcome all new members to the list. .

>

>I know that when the other friendly people on this >list feel better they

will welcome you. FMS-CFS >is (as all of you know or you would not be here)

a >painful and tiring illness and there are times when

>members of this list are not able to get to the >computer. I am sorry for

you and I am sorry that >we have so many of our list members down

>and I do hope that all of you are soon doing >better. I miss you.

[Guest guest]

I, too, want to welcome the new members. I'm still relatively new myself,

and I am learning a lot from this list and thriving from the knowledge that

I am not weird!

I'm in the midst of my worst flare-up to date (out of 15 years of

flare-ups), and I felt so bad this morning that I *would* have called in

sick if I weren't already off.

Marla--have you tried a cervical pillow? I found that sleeping on one has

all but eliminated the tingling in hands and feet. I tried an expensive one

from a chiropractor, and wasn't so happy with that one. Now I use a

relatively inexpensive one I bought at Linens 'N' Things (I think). The

only problem I have with this foam pillow is that if it is at all warm in

the room, my neck perspires a lot. I just keep it as cool as I can!

I used to think that my neck hurt and my fingers and toes got numb and

tingly because my neck was misaligned--it is almost straight instead of

naturally curved. Now that I understand what fibromyalgia is, I've come to

suspect that my neck is misaligned because the muscles are abnormally

contracted. Chiropractic seemed to help a bit, but I think massage would

probably help even more.

Things have been going better at work for me. My boss has a better

understanding of what is happening with me, and I'm really trying to get to

work on time! I'm just finding the nearly 11-hour days (Mondays and

Wednesdays) to be too much, and I'm trying to figure out a solution to that

so that I can keep my job. We'll see.

I think I've even gotten my husband to understand a little better what is

going on. He's now helping me brainstorm ways to rearrange the house so

that I'm not going up and down stairs so often.

I look forward to hearing from all the new members, and the " old " members,

too!

ee

[Guest guest]

I, too, want to welcome the new members. I'm still relatively new myself,

and I am learning a lot from this list and thriving from the knowledge that

I am not weird!

I'm in the midst of my worst flare-up to date (out of 15 years of

flare-ups), and I felt so bad this morning that I *would* have called in

sick if I weren't already off.

Marla--have you tried a cervical pillow? I found that sleeping on one has

all but eliminated the tingling in hands and feet. I tried an expensive one

from a chiropractor, and wasn't so happy with that one. Now I use a

relatively inexpensive one I bought at Linens 'N' Things (I think). The

only problem I have with this foam pillow is that if it is at all warm in

the room, my neck perspires a lot. I just keep it as cool as I can!

I used to think that my neck hurt and my fingers and toes got numb and

tingly because my neck was misaligned--it is almost straight instead of

naturally curved. Now that I understand what fibromyalgia is, I've come to

suspect that my neck is misaligned because the muscles are abnormally

contracted. Chiropractic seemed to help a bit, but I think massage would

probably help even more.

Things have been going better at work for me. My boss has a better

understanding of what is happening with me, and I'm really trying to get to

work on time! I'm just finding the nearly 11-hour days (Mondays and

Wednesdays) to be too much, and I'm trying to figure out a solution to that

so that I can keep my job. We'll see.

I think I've even gotten my husband to understand a little better what is

going on. He's now helping me brainstorm ways to rearrange the house so

that I'm not going up and down stairs so often.

I look forward to hearing from all the new members, and the " old " members,

too!

ee

[Guest guest]

I, too, want to welcome the new members. I'm still relatively new myself,

and I am learning a lot from this list and thriving from the knowledge that

I am not weird!

I'm in the midst of my worst flare-up to date (out of 15 years of

flare-ups), and I felt so bad this morning that I *would* have called in

sick if I weren't already off.

Marla--have you tried a cervical pillow? I found that sleeping on one has

all but eliminated the tingling in hands and feet. I tried an expensive one

from a chiropractor, and wasn't so happy with that one. Now I use a

relatively inexpensive one I bought at Linens 'N' Things (I think). The

only problem I have with this foam pillow is that if it is at all warm in

the room, my neck perspires a lot. I just keep it as cool as I can!

I used to think that my neck hurt and my fingers and toes got numb and

tingly because my neck was misaligned--it is almost straight instead of

naturally curved. Now that I understand what fibromyalgia is, I've come to

suspect that my neck is misaligned because the muscles are abnormally

contracted. Chiropractic seemed to help a bit, but I think massage would

probably help even more.

Things have been going better at work for me. My boss has a better

understanding of what is happening with me, and I'm really trying to get to

work on time! I'm just finding the nearly 11-hour days (Mondays and

Wednesdays) to be too much, and I'm trying to figure out a solution to that

so that I can keep my job. We'll see.

I think I've even gotten my husband to understand a little better what is

going on. He's now helping me brainstorm ways to rearrange the house so

that I'm not going up and down stairs so often.

I look forward to hearing from all the new members, and the " old " members,

too!

ee

[Guest guest]

Hi ,

I am presently taking Trazodone (Desyrel) with Alprazolam(Xanax). It

makes me sleep good at night but I have to make sure I get to bed early if I

need to get up early. I have to have time to sleep it off. I have not had

any problems with it so far.

I was diagnose with Fibromyalgia in April 01 and I can feel that I am

getting worse. I was hoping it would get better with the medication.

Lucy

New member

>Hi all,

>

> Just a quick howdy to introduce myself and I do have a question as well. I

>am a 46F livingin C. Pa. I have three daughters 20,15 and 4 and am

interested

>in growing herbs(I grow about 40 different varieties) and I am an

apprentice

>Falconer. I also work with Natural dyes which is a true love of mine.

> I am one of those I guess stuck in between...as we had originally been

>looking at MS as a possible diagnosis(symptoms really started about 6 years

>ago, but were varied and I was busy being pregnant and then with a new

baby<G>

>..yeah at 42<G>). More recently we are looking at FS because the first MRI

>didn't come back with lesions(although we only did it on the brain and not

>the spine) so with the varied symptoms and chronic pain with little sleep

we

>are basically going along the lines of FS. This was in itself an odd kind

of

>WIN; as many of you have prob dealt with the Dr's, just getting them to

>accept that you REALLY hurt and you ARE NOT hysterical or ageing badly or

>whatever, you prob understand that to have them admit there was " a problem "

>was movement forward.

>

> My question is I " ve been put on low dose Traazodone to help with the

>sleeping and seem to be having headaches. Problem is the weather has been

so

>changeable and I'm prone to headaches as storms move in and out anyway..so

>I'm not sure if it is the meds or the weather...now I know THAT prob does

>sound a bit odd<G>, but was curious to how others have tolerated this med.

>

>Thanx in advance

>

>BTW its a LOVELY day today - worth a headache<G>

>

>

>

[Guest guest]

Hi Norma, How in the orld did you get your insurance to approve such a

surgery? So sorry to hear about your nex Diagnosis...Shay

Join my new Diabetic Recipes group @

http://groups.yahoo.com/group/Recipes4Diabetes

God Bless You All, Shay/Shalynn and the rescue gang;

Max, Samson I, Samson II, Walter, Bogie, Jake, Ralph, Curly (Tazz),

Sebastian, Tina Marie, Bear & Zeuss

[Guest guest]

Hi Norma, How in the orld did you get your insurance to approve such a

surgery? So sorry to hear about your nex Diagnosis...Shay

Join my new Diabetic Recipes group @

http://groups.yahoo.com/group/Recipes4Diabetes

God Bless You All, Shay/Shalynn and the rescue gang;

Max, Samson I, Samson II, Walter, Bogie, Jake, Ralph, Curly (Tazz),

Sebastian, Tina Marie, Bear & Zeuss