OT- WAS: Re: Any suggestions.. NOW: Remicade-

[Guest guest]

Well, it was tricky with me.. Helped me some especially in the

begining to get out of that horrible decline- but I still couldn't

function and get on with my life. That only lasted the first few

infusions.

But, like your experience I have a couple of friends that basically

experienced the same thing that you did.

I guess the hard choice when it comes to Remicade/LDN is that when

some people switch it renders the Remicade ineffective? I seem to

recall an issue with this. So if people are helped by Remicade I can

understand the feeling the gamble as if the LDN doesn't work than what?

I would look into the above issue at length though?

Sally: is this part of your hardship deciding about LDN?

Jodi

SCD 14 months

Crohn's/Colitis

> It's not necessarily tricky like that. The last six months I was on

it, I

> was on a double dose. It had no effect (except the first time I took

> the double dose and not even then for the entire month.) I dropped

> it by simply never getting any more (I didn't wean or anything)

> and that had no effect as well.

>

> Mara

>