Re: HELP -Day three of flare - frightened :(

[Guest guest]

> STATUS:

> Day three and holding...actually the stomach pains started on Monday.

> After a meal with potential illegals in it I had D that night.

> Tuesday was increase frequency (I'd says seven visits to the bathroom)

> but formed loose, sizable stools. Wednesday was about seven visits,

> all D, lots of urgency and a little bit of blood in one or two of the

> BMs. Initiated beginning stage of SCD. Three visits to the bathroom

> that night and about eight visits all together to the bathroom

> yesterday. More bright blood in the morning and an increase in blood

> overall - I'd say 1/3 c for the day. Drank home made pedialite which

> gave me a headache that lasted throughout the day. Used a Canasa

> suppository last night and will also today but no other meds.

> QUESTIONS:

> Is this all normal for a die off flare?

That's not die off, it's a clear response to the illegals.

>

> Can this be cause buy some illegals?

yep.

>

> Should I increase probiotics? Taking two Lyosans a day . Might that

> aggrivate my system?

Well it could aggravate or it could be helpful - depends on your system

response.

>

> Am I able to do the yogurt at the beginning stage? The intro chart

> from Pecanbread does not show into of dairy.

Yes - apparently that was one thing that bugged Elaine about the

intro chart. Doesn't mention yogurt.

>

> SCD friednly gatrointerologist in the Portland, OR area anyone?

> I see Elaine had said a small dose of Prednisone might help through

> this - I have some left over from the last major flare prescd. The

> doc started me at 60 - I was thinking that if thing progress much

> worse I will do a small cycle of this, starting at 10 or 15 mg a day

> and do the taper. I hate that stuff and want to avoid it.

> I'm SCARED guys - I realize this is supposed to happen but I am not

> sure to what intensity. I am not sure at what point I should seek

> medical attention. If I go to the doc I know he is going to want to

> initiate immune suppressors.

I would try strict intro for a few days before starting any prednisone.

Maybe even the GAPS version of the intro, with no dairy and

eating the yolks of soft boiled eggs in the chicken broth, which is

really good and satisfying and nutritional. (Assuming that eggs are

not a trouble food for you.) And all soft veggie purees.

But that's just me. Of course, if you feel you need prednisone - take

it.

But keep in mind this is one of the situations that the intro diet was

set

up to help.

Also, you didn't say what you have - UC, CD, etc.?

Mara

[Guest guest]

I have this occasionally still (sometimes even without changing my

diet). Hope you feel better soon.

I am UC for 7 years and SCD for almost 4 now. I also have a form of

MCS which means that SCD was part of the answer for me but not all.

Whenever I personally have cramping, it often means I am physcially

near something that I am sensitive to since for me it is not just

diet but also environment. It is now my easiest symptom to shut off

but used to be continually tied to the " flare " .

For example, parraffin candles, artificial fragrances, wrapping

paper, and newspapers give me personally cramping. Certain tree

pollens do too. If I have cramping, I likely have gotten near one of

these things.....and sometimes it is a food.

Last year I had a horrible flare as the wrapped gifts from others

started pouring in. This year we have moved them away from the main

living areas and asked people to not wrap if possible and I am doing

much better.

I am not saying that is what you have. I have learned that the

crmaping and " d " (for me) shut on and off based upon what I am

exposed to. An illegal would be in your tummy for four days from

consumption and you would likely start to get some relief after that

if it is a food. Activated charcoal can help if you are not sensitive

to it. Also, I take bisalts for food reactions which can help some.

SO, Your mileage may definately vary but I have dissected all

the " symptoms " that go with a huge flare and find they come and go at

different times depending upon my total body picture. For me cramping

and bleeding and mucous and intesinty and tyoe of stool and " d " are

all different depending upon my total load and what I was doing right

before I had to go running off to the toilet. That is key. What were

you just doing or what part of your home were you in? Sometimes it is

subtle mold from one bad piece of food in the fridge for me because I

am so sensitive, but doing fantastic and off meds and having avoided

surgery or chemo on the combo of strict environemtnal controls and

SCd with avoidance of additional legal foods that I am sensitive to.

Cedar pollen is super high here now and I am super sensitive so I am

in a mild flare but before I figured all this out it would have

landed me in the hospital. For myself, I have it arranged with the

doctor to do a short burst and taper in these times of the

prednisone. It beats the constant low level dose I had to maintain

for a long time.....it is a super short and quick burst to get me

over the hump....usually no more than a couple days. Of course this

is to discuss with your physician since I know mine well.

I have seen advice given to you to go back on intro......for me that

would not be ideal because I am personally sensitive to chicken, so

the soup is a sometimes treat for me when I am not bleeding. Intro is

the foods your body tolerates best....so make sure your intro is

that. I have seen people who are likely sensitive to chicken do the

chicken soup to death with an illegal in the chicken or just

sensitive to it and wonder why intro does not help them. going back

to your safest core (SCd Legal) foods is ideal if you know what they

are. It is tough because what feels safest and what you crave may not

always be safest. Thus Elaine created the intro.

Hang in there. See if changing your personal environment and what you

are doing while you recover can help. I have an " oasis room " with an

air purifier, no carpet, very little dust gathering furniture, where

I can retreat when things are rough.

There is so much more that I do on a regular basis but this can be a

start. What changed in your diet? (Even legal foods you may have

added in the new stage three....you could be sensitive to one of

them). What changed in your personal environemnt.....decorations,

presents, etc and try to go away from those things and see if

cramping improves.....since cramping is the first indication to

flee......

Sorry if this is not as clear as I intended. Michele

>

> STATUS:

> Day three and holding...actually the stomach pains started on

Monday.

> After a meal with potential illegals in it I had D that night.

> Tuesday was increase frequency (I'd says seven visits to the

bathroom)

> but formed loose, sizable stools. Wednesday was about seven visits,

> all D, lots of urgency and a little bit of blood in one or two of

the

> BMs. Initiated beginning stage of SCD. Three visits to the

bathroom

> that night and about eight visits all together to the bathroom

> yesterday. More bright blood in the morning and an increase in

blood

> overall - I'd say 1/3 c for the day. Drank home made pedialite

which

> gave me a headache that lasted throughout the day. Used a Canasa

> suppository last night and will also today but no other meds.

> QUESTIONS:

> Is this all normal for a die off flare?

> Can this be cause buy some illegals?

> Should I increase probiotics? Taking two Lyosans a day . Might

that

> aggrivate my system?

> Am I able to do the yogurt at the beginning stage? The intro chart

> from Pecanbread does not show into of dairy.

> SCD friednly gatrointerologist in the Portland, OR area anyone?

> I see Elaine had said a small dose of Prednisone might help through

> this - I have some left over from the last major flare prescd. The

> doc started me at 60 - I was thinking that if thing progress much

> worse I will do a small cycle of this, starting at 10 or 15 mg a day

> and do the taper. I hate that stuff and want to avoid it.

> I'm SCARED guys - I realize this is supposed to happen but I am not

> sure to what intensity. I am not sure at what point I should seek

> medical attention. If I go to the doc I know he is going to want to

> initiate immune suppressors.

>

[Guest guest]

Thanks for the response - just curious - how can you tell that this is a response to the illegals and not a die of? It's my first experience with this as I did not have a die off at three months and I'd like to have a better sense myself. I initiated 17.5 mg of Prednisone yesterday as things started getting bad quickly. Yesterday was 12 visits to the bathroom and blood while the day before was 7 visits. I have never had the symptoms come on so strongly so quickly - usually takes a month or two. To answer your question I have UC and have for close to six years now. It actually was only Ulcerative Proctitis for 1/2 that time then it started "crawling up" my intestines. End of Dec I will have been on SCD for five months. Last flare was in July, a really bad one and I took Prednisone for a

little over two months. Today only three visits to the loo and itis 10am. Yesterday I was already at five by this time (although I did have something to eat and I have not yet today)Any idea why homemade pedialite might cause a headache?Thank you for the feedback - I am very proactive and will remain true to the diet as planned. In as much thought any candle of light for guidance in all of this darkness of uncertainty is soooooo appreciated.aiazeenUC 6 yearsscd 4.75 months

[Guest guest]

Regarding illegals and what I had ingested - on Firday I order Salmon, ok with butter and the butter had brown sugar in it - I did not realize till I ate half. On Saturday, I went out to this Chinese place and asked for stir fry - I would not normally go to a Chinese place but my parents insisted that they new the owner and they could help me. The first stir fry prep had corn starch as a thickener - I had a little taste on my finder and sent it back. The server with pursed lips insisted the second round should only have oil and or butter - it still seemed a little suspicious. That day I also had a reaction to Monterray Jack Cheese - had a big hunk of it, producing D but it went away. Monday I went out again for a holiday dinner. Already having a cramped stomach on and off, I had rib eye veggies and steamed mushrooms -

that night was foul gas and D. Tuesday seemed to be formed stool but loose and Wed it went to D and some blood and I have not been right since.AS far as Pedialite, I spoke with Lucy at Lucy's kitchen and the mixture was water, boiled and adding salt, baking soda and honey. I have just decided to drink tons of water.Michele, you had said you do a quick dose of Prednisone for a couple of days and then stop. I thought you could not just stop due to the adrenal function and such. What is the dosage you take for a couple of days?Yesterday (Sat) was still 12 visits to the loo and bleeding and D. Today it is now two and thought I was having the same reacion this morning sarting of at 5 visits to the loo. The patterns has been a need to go to the loo about 20 min after eating food but I ate a piece of broiled pork and I did not have to. I told myself that I would increase the prednisone to 20 or 25 mg

if I had 8 bms by 3. Looks like I will not have to. As far as food sensitivtiy its just been chicken soup, applesauce (8 apples and one pear that was goign to go bad), grilled lamb, ripe bananas in home made yogurt (with a little honeY) , grilled pork, diluted welches grape juice (minimal), fredda supplements, a probiotic. I think part of my problem yesterday was that I ate about a cup of apple sauce, a banana earlier in the day and welches grape fruit juice - maybe too much fruit - I really started ahving probelms after the apple sauce. Two days prior thought I had eaten some cooked apples and I don't think I experience any real probelsm. As far as chicken sensitivity, I ate some of the chicken by itself after it cooked in the soup all night and I did not have to run to the loo - ate it about the same time I ate the pork today - about 12:15 so I dio not think that I am sensitive to it right now.Mara, thanks

for your feedback. it is most helpful on gaining insight here but I had a few questions: You wrote "Die-off is the reaction to bacteria and yeast exploding internally and releasing their toxins into your system. You can have D or C with die-off, but IME, you feel ill - like with a virus or a cold, with a fever, etc. I suppose it could trigger bleeding, but I don't believe that is typical, or that it would bring that on all by itself since in fact it signifies a reduction in bacteria levels."I know what "D" is but I do not know what "C" or "IME" means - please clarify.Thanks everyone for the support during this uncertain time.

[Guest guest]

Mara, LDN? I know of an immune suppressor but what is LDN and where can I get it. I have an appt with my primary care physician tomorrow (Monday), assuming that I can get out of the house - we have snow and freezing rain here in Portland, OR - I was initially going to see here regarding some hair loss issue s that I have had in the last month, but she is a celiac specialist and knows that I am on this diet.Does anyone know of any SCD gastointerologists in the Portland area?aiazeenuc 5.5 yearsscd 4.75 months