Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 --- In , " sharonann557 " <sharonann557@y...> wrote: > Just found out Ihave to have a complete shoulder replacment. Anybody > out there that can give me some information? Hi Sharon. I too am a new member here on this board. Had a total shoulder done on 6/12/03. Doing fine with it. I think the things to know are: there are different types of shoulder replacement systems. I had the global shoulder made by DePuy inserted because that is what the doc felt fit my shoulder size and configuration best. This is considered a " bone sparing " system as they do not cut the bones off and replace them. Just reduce the articulating surfaces in size and go over them (like a reline). I'm 58 and I was told to stay away from the bone reducing shoulder replacements because I am too young (for once) to have my shoulder bones cut out at this time. I think it is important to have an excellant surgeon. The doc I went to only does shoulders and elbows-nothing else. Of all the joint replacements- hips, knees, ankles and shoulders, shoulders are considered the hardest to do. So you will want someone who is very experienced in this area. The surgery was 4 hours because I had terrible damage from my RA and osteoarthritis in the joint (that is what caused it to fail, esp. the RA damage). Very little pain after. I had two shoulder repairs and the replacement was much easier than the repair attempts. I haven't started PT yet (cause doc wants everything well healed first) but I can move my shoulder better than before surgery. I hope this helps you. Take care, Calaverascutie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Hello and welcome to the group! Sorry to hear that you need a shoulder replacement. I'm assuming you have RA. Here are some good information on the subject: From the University of Washington, " Shoulder Replacement Surgery for Arthritis " : http://www.orthop.washington.edu/faculty/Matsen/shoulrep/03?faq Dr. Matsen and Jackins, physical therapist with the UW Bone and Joint Center, discuss shoulder surgery with an emphasis on patient involvement in the UWTV video, " Total Shoulder Replacement: Partnership with the Patient " : http://www.orthop.washington.edu/movies/matsen2/view " Arthroplasty of the Shoulder " from Wheeless' Textbook or Orthopaedics: http://wheeless.orthoweb.be/orthoo/44.htm From Medscape, " Shoulder Arthroplasty " : http://www.medscape.com/viewarticle/412922 [ ] New Member Here > Just found out Ihave to have a complete shoulder replacment. Anybody > out there that can give me some information? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Welcome to the group, Calaverascutie! Thanks for sharing your shoulder replacement story. Happy to hear that you are recovering well. How is your other shoulder? [ ] Re: New Member Here > > > Just found out Ihave to have a complete shoulder replacment. > Anybody > > out there that can give me some information? > Hi Sharon. I too am a new member here on this board. Had a total > shoulder done on 6/12/03. Doing fine with it. I think the things to > know are: there are different types of shoulder replacement systems. > I had the global shoulder made by DePuy inserted because that is what > the doc felt fit my shoulder size and configuration best. This is > considered a " bone sparing " system as they do not cut the bones off > and replace them. Just reduce the articulating surfaces in size and > go over them (like a reline). I'm 58 and I was told to stay away from > the bone reducing shoulder replacements because I am too young (for > once) to have my shoulder bones cut out at this time. I think it is > important to have an excellant surgeon. The doc I went to only does > shoulders and elbows-nothing else. Of all the joint replacements- > hips, knees, ankles and shoulders, shoulders are considered the > hardest to do. So you will want someone who is very experienced in > this area. The surgery was 4 hours because I had terrible damage > from my RA and osteoarthritis in the joint (that is what caused it to > fail, esp. the RA damage). Very little pain after. I had two shoulder > repairs and the replacement was much easier than the repair attempts. > I haven't started PT yet (cause doc wants everything well healed > first) but I can move my shoulder better than before surgery. I hope > this helps you. Take care, Calaverascutie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Calaverascutie, do you post on the about.com arthritis board? If you're the person I'm thinking of, I've enjoyed a lot of your insight in the past. Either way, welcome to the RA-Support group. This is the best bunch of friends! They mean the world to me. Not only will you find great RA info courtesy of our moderators, a and , but you'll find support when you need it. We've all been there and are happy to lend a shoulder to lean on in times of trouble or pain. Welcome also to the MANY new group members who I haven't had time to extend a welcome to. I've been a pretty active group member in the past, but I'm starting a new business venture right now (hoping my RA will allow me to do so) and it's kept my group activity to a minimum. Even when I'm not participating actively, every one of you are in my thoughts and prayers. Love to all, Carol Re: [ ] Re: New Member Here Welcome to the group, Calaverascutie! Thanks for sharing your shoulder replacement story. Happy to hear that you are recovering well. How is your other shoulder? [ ] Re: New Member Here > > > Just found out Ihave to have a complete shoulder replacment. > Anybody > > out there that can give me some information? > Hi Sharon. I too am a new member here on this board. Had a total > shoulder done on 6/12/03. Doing fine with it. I think the things to > know are: there are different types of shoulder replacement systems. > I had the global shoulder made by DePuy inserted because that is what > the doc felt fit my shoulder size and configuration best. This is > considered a " bone sparing " system as they do not cut the bones off > and replace them. Just reduce the articulating surfaces in size and > go over them (like a reline). I'm 58 and I was told to stay away from > the bone reducing shoulder replacements because I am too young (for > once) to have my shoulder bones cut out at this time. I think it is > important to have an excellant surgeon. The doc I went to only does > shoulders and elbows-nothing else. Of all the joint replacements- > hips, knees, ankles and shoulders, shoulders are considered the > hardest to do. So you will want someone who is very experienced in > this area. The surgery was 4 hours because I had terrible damage > from my RA and osteoarthritis in the joint (that is what caused it to > fail, esp. the RA damage). Very little pain after. I had two shoulder > repairs and the replacement was much easier than the repair attempts. > I haven't started PT yet (cause doc wants everything well healed > first) but I can move my shoulder better than before surgery. I hope > this helps you. Take care, Calaverascutie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hi Trish, Welcome to the group! Repositioning does work, but it is hard work. You must be diligent, it is a 24/7 job. Even when the baby is asleep. We have a repositioning moderator that will gladly answer any questions you might have. Also in the FILES and in the LINKS section there is a lot of information on repoing. You can post a picture by going into our PHOTOS section and then into OUR PLAGIO BABIES file, make a folder and add your pictures. I can't wait to see Carson. > Hello all, > > Mt name is Trish I'm 25 and I have 2 boys, Ben 2 1/2 amd Carson 5 > months. We live in Barrie , Ontario. I noticed a couple of months > ago that Carson's head was getting a little flat and our family > doctor voiced his concern at his 4 months appointment. Since then I > have tried putting him on his side to sleep and have been not > putting him on his back to play and is doesn't seem to be getitng > better. We are going to see a pediatrician on Dec 17th. I was > wondering, does evey child with this have to wear a helmet? Or does > re-positioning help just as much in the long run? > > Trish > > PS How can I post a picture of him so I can get all your opinions on > how bad it looks? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hi Trish and welcome to this wonderful group! My name is Donna and I am 28, live in Phx. AZ and also have two boys, Jaxon 19.5 months and Xavier 7 months. I joined this group after xaviers 1 month check up where we were told to start repo-ing and referred to a specialist. I tried to repo Xavier for 2.5 months without any success but there are some mothers on here that have had great success with it ) I am sure they will chime in soon! The people in this group will give you tons of info and advice and it was them I have to thank for Xavier being on his way to a rounder head. He is in his 2nd DOCband and showing great correction. One thing I would say is that time is everthing in dealing with this and cathcing it early. Is there any way you could see your ped befroe December to maybe get a referel some where? If you do decide to band the earlier Carson gets banded the earlier he gets it off. Donna and Xavier DOCband 7/25 and 10/8 > Hello all, > > Mt name is Trish I'm 25 and I have 2 boys, Ben 2 1/2 amd Carson 5 > months. We live in Barrie , Ontario. I noticed a couple of months > ago that Carson's head was getting a little flat and our family > doctor voiced his concern at his 4 months appointment. Since then I > have tried putting him on his side to sleep and have been not > putting him on his back to play and is doesn't seem to be getitng > better. We are going to see a pediatrician on Dec 17th. I was > wondering, does evey child with this have to wear a helmet? Or does > re-positioning help just as much in the long run? > > Trish > > PS How can I post a picture of him so I can get all your opinions on > how bad it looks? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Trish, hi and welcome to the group. I see that Christie has posted to you regarding repoing. She is our Group repo guru. Hope she has given you some great tips. Her daughter is proof that to correct the shape of an infants head is completely possible with reposititioning only. Good Luck and keep us updated. Can't wait to see pictures of your little cutie. Dustie > Hello all, > > Mt name is Trish I'm 25 and I have 2 boys, Ben 2 1/2 amd Carson 5 > months. We live in Barrie , Ontario. I noticed a couple of months > ago that Carson's head was getting a little flat and our family > doctor voiced his concern at his 4 months appointment. Since then I > have tried putting him on his side to sleep and have been not > putting him on his back to play and is doesn't seem to be getitng > better. We are going to see a pediatrician on Dec 17th. I was > wondering, does evey child with this have to wear a helmet? Or does > re-positioning help just as much in the long run? > > Trish > > PS How can I post a picture of him so I can get all your opinions on > how bad it looks? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 -Welcome to the group. Not all babies have to wear a helmet. In they files section there are pictures of Remy who received wonderful correction by aggressive repositioning. I'm sure if you haven't already you will hear from her mom Christie. Angie and Jenna(STARband grad)-- In Plagiocephaly , " rickandtrish2003 " <rickandtrish2003@y...> wrote: > Hello all, > > Mt name is Trish I'm 25 and I have 2 boys, Ben 2 1/2 amd Carson 5 > months. We live in Barrie , Ontario. I noticed a couple of months > ago that Carson's head was getting a little flat and our family > doctor voiced his concern at his 4 months appointment. Since then I > have tried putting him on his side to sleep and have been not > putting him on his back to play and is doesn't seem to be getitng > better. We are going to see a pediatrician on Dec 17th. I was > wondering, does evey child with this have to wear a helmet? Or does > re-positioning help just as much in the long run? > > Trish > > PS How can I post a picture of him so I can get all your opinions on > how bad it looks? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hi Trish & welcome to our group: You've already gotten great replies so I'll simply second what everyone said. Are you near Toronto? We've had several Ontario members used Toronto's Sick Kids helmet IF you would end up needing one for your Carson. Glad you found us, look forward to seeing Carson's cutie pictures. Debbie Abby's mom DOCGrad MI > > > Hello all, > > > > Mt name is Trish I'm 25 and I have 2 boys, Ben 2 1/2 amd Carson 5 > > months. We live in Barrie , Ontario. I noticed a couple of months > > ago that Carson's head was getting a little flat and our family > > doctor voiced his concern at his 4 months appointment. Since then I > > have tried putting him on his side to sleep and have been not > > putting him on his back to play and is doesn't seem to be getitng > > better. We are going to see a pediatrician on Dec 17th. I was > > wondering, does evey child with this have to wear a helmet? Or does > > re-positioning help just as much in the long run? > > > > Trish > > > > PS How can I post a picture of him so I can get all your opinions > on > > how bad it looks? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Hi everyone- My name is Deborah and I live in Maine. We have no RA support groups here, and I am lucky to have found you all. I have had RA since 1994, but wasnt diagnosed until 1995. I am currently on MTX and Remicade, which my body seems to be rejecting. I also have Fibro, Chronic Fatigue and hyperthyroid which the RA brought on. We just had another huge snow storm here. No one can understand what we go through in a day, except those who have RA. I hope you can all share your experiences. I am very glad to be here. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Hi Deborah and welcome to a great group. We all sure understand what you are going through. And it sucks! I was diagnosed last April, though we think I might have had Juvenile RA. No one can say for sure now though. It is my hands, neck, shoulders, hips, knees, and feet. I take Methotrexate for the RA. I was just diagnosed Friday with Sjogren's and have started Plaquenil for that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Hi, If your daughter is behind in her speech (I don't remember where a 14 month old should be) you should pick up the book The Late Talker. Here's a link I got off the Cherab website w/info about speech milestones: http://www.ldonline.org/article/6313 Here's the Cherab website: http://www.cherab.org/information/indexinformation.html If she continues to be delayed in speech you could have an evaluation done to see if she qualifies for early intervention (they would provide speech therapy & the therapist would be able to help you with things to work on at home as well). HTH, M. > > Hi, I'm Ravyn. I have a 14 month old and she can say " mama' and " dada " > but I don't know how to encourage her to speak more. I read to her > almost everyday and talk to her and tell her what I'm doing. Any other > advice anybody can give me? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Hello Ravyn, I too have a 14 month old and at this point she can only say ma and ahhhh. She didn't babble at all. She has been in therapy since the age of 5 months and is behind in other areas as well. I would suggest to you to call for an assessment. It can't hurt to get one done and they will be able to assess where she is on the charts. That would be your best first choice. There should be an Early Intervention for children aged 3 and under in your state that can perform one and many times at no cost to you. > > Hi, I'm Ravyn. I have a 14 month old and she can say " mama' and " dada " > but I don't know how to encourage her to speak more. I read to her > almost everyday and talk to her and tell her what I'm doing. Any other > advice anybody can give me? > Quote Link to comment Share on other sites More sharing options...
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