looking for answer

[Guest guest]

My 7 year old with Crohn's has been SCD for the last 3 months. We have

had what I guess would be success. His BM's changed from D to mushy,

formed. It has been this way for the whole 3 months, occasionally, a

formed poop, but that's about it. Christmas time was very difficult

for me to adhere to the diet and plan for company, etc. As a family,

we made a decision to come off the diet for the week of Christmas, and

begin again yesterday. Since coming off the diet, my son has has

consistently formed poops - every day- and just one a day, as oppossed

to the 2 mushy ones on the diet. How can this be?? I find myself

questioning what I'm doing. He is on Colazal, and has been since the

begining. Nothing has changed, other than the illegal foods. I just

question why I'm going through all the effort of the diet, and see

better results off???? Has any one else experienced this??

Thanks

Kim

[Guest guest]

I have. And it is frustrating to say the least. I sometimes think

that the diet does work - but many times I also doubt it as well. I've

been on for 3 months. Previously I was on it for maybe 8 mts to a

year. I went into remission and began eating whatever foods I liked.

I ate whatever I liked for about 2 years. I wasn't having any

trouble, except C which has always been an issue, until about 8 months

ago when I began to notice I was having trouble again. So the disease

came out of remission.

I have been on the diet 4 months or so now and saw some improvement at

the beginning, but now things have gotten worse. I've decided to cut

out o.j., honey, yogert and cheese for a week and see if symptoms

improve. I should also say that when I was on the diet the 1st time,

I really was not following the book that much. No yogurt, lots of

pre-shredded cheeses with starches, sweet potatoes, soy milk. I don't

remember what happened except that I only read the book once and

thought I was following it!

So did the disease come out of remission because of the foods I ate or

is it just its natural cycle? (Ulcerative Colitis/IBS by the way) I

do not believe my disease is totally reliant on being healed by SCD

foods. I know, scandalous!

Just my .02 cents worth.

[Guest guest]

I did exactly what you did. I started the diet then when I saw so

much improvement, I started eating regular food but I kept the yogurt

going. It was so much harder to restart, it took longer to show

improvement and easier to cheat for some reason.

After going through some iron issues, I ate illegals again. Now I'm

back to being convinced if I stay strict--and it will take longer than

if I had stayed on it to begin with--a lot longer, and stay on the

iron until everything shows up normal--I may have to keep this diet

from now on. I do think it controls symptoms so well, eventually the

blood work will be normal to good. Or great.

So here we go again. I think it just takes longer depending on how

long or how damaged and how strict you stay. It totally solved the

main problems the first time I started it by being able to maintain

food--at least for me. You just have to take it slow, maybe reduce

some of the baked goods for longer than some people. Avoid one food

you tolerate and eating it all the time like peanut butter or in my

case, the DCCC.

JMHO,

Debbie 39 cd

scd originally 12/05

[Guest guest]

At 08:46 AM 12/29/2008, you wrote:

I do not believe my disease is

totally reliant on being healed by SCD foods. I know,

scandalous!

There are cycles. However, if one is following SCD correctly (and not

doing what I did, which was figure all the long-term people were just

plain nuts with their insistence on fanatical adherence to the tenets of

the diet), then one has a significantly better chance of smoothing out

the bumps in the road.

SCD works. I wouldn't be alive today if it didn't.

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

>Since coming off the diet, my son has has

consistently formed poops - every day- and just one a day, as oppossed

to the 2 mushy ones on the diet. How can this be?? I find myself

questioning what I'm doing. <

If he was a baby and starting on solids you

would expect a few mushy poops a day.

One hard poop once a day would be a sign

of constipation.

Obviously he is not a baby, but IF the problem

is his gut flora, he is starting like a baby to

build up a good gut flora and doing

that by eating like a baby, encouraging

the " good " bacteria to mulitply.

The thing is, poop is not food leftovers.

Poop is mostly made of

the bi-products of the bacteria in your gut.

And water.

So he has gone from lots of runny, maybe

foamy, stuff to mushy formed stools

That is a great sign! Things are happening

in there.

Just keep going.

Don't be fooled by hard poop LOL

Plus a child should poop a couple

of times a day. That is a good sign

things are moving along inside

Cecilia

[Guest guest]

I have heard from experts that once you go to remisision, you need to stick to SCD for the rest of the life, not to become sick again.

I guess you ate the SCD illegal food after going to remisison, that is perhaps the reason.

I am still suffeirng a lot and not even gone to remission, I pray so hard and tell myself, only If I could go to remisison once, I woudl strictly stick to SCD and I would sacrifice so much, so much in my life till the end, even then, I am not gone to remisison, I have sacrificed so much already...........

Sandhya

Subject: Re: looking for answerTo: BTVC-SCD Date: Monday, December 29, 2008, 9:46 AM

I have. And it is frustrating to say the least. I sometimes thinkthat the diet does work - but many times I also doubt it as well. I'vebeen on for 3 months. Previously I was on it for maybe 8 mts to ayear. I went into remission and began eating whatever foods I liked.I ate whatever I liked for about 2 years. I wasn't having anytrouble, except C which has always been an issue, until about 8 monthsago when I began to notice I was having trouble again. So the diseasecame out of remission. I have been on the diet 4 months or so now and saw some improvement atthe beginning, but now things have gotten worse. I've decided to cutout o.j., honey, yogert and cheese for a week and see if symptomsimprove. I should also say that when I was on the diet the 1st time,I really was not following the book that much. No yogurt, lots ofpre-shredded cheeses with starches, sweet potatoes, soy milk. I

don'tremember what happened except that I only read the book once andthought I was following it! So did the disease come out of remission because of the foods I ate oris it just its natural cycle? (Ulcerative Colitis/IBS by the way) Ido not believe my disease is totally reliant on being healed by SCDfoods. I know, scandalous!Just my .02 cents worth.

[Guest guest]

My question is

Does SCD work only for Crohn disease or also for All types of colitis including UC?

I read many with CD gone into remisisoon successfully with SCD alone, In case of UC, do we need to do something extra apart from strictly following the SCD ?

Thank you

Sandhya

Subject: Re: Re: looking for answerTo: BTVC-SCD Date: Monday, December 29, 2008, 10:20 AM

I did exactly what you did. I started the diet then when I saw somuch improvement, I started eating regular food but I kept the yogurtgoing. It was so much harder to restart, it took longer to showimprovement and easier to cheat for some reason.After going through some iron issues, I ate illegals again. Now I'mback to being convinced if I stay strict--and it will take longer thanif I had stayed on it to begin with--a lot longer, and stay on theiron until everything shows up normal--I may have to keep this dietfrom now on. I do think it controls symptoms so well, eventually theblood work will be normal to good. Or great.So here we go again. I think it just takes longer depending on howlong or how damaged and how strict you stay. It totally solved themain problems the first time I started it by being able to maintainfood--at least for me. You just have to take it slow, maybe reducesome of

the baked goods for longer than some people. Avoid one foodyou tolerate and eating it all the time like peanut butter or in mycase, the DCCC.JMHO,Debbie 39 cdscd originally 12/05

[Guest guest]

Marilyn,

Thank you for your line "SCD works, I would not be alive today, if it didnt."

It gives me hope, even though I am so depressed that it is not working so well with me right now.

Sandhya

I do not believe my disease is totally reliant on being healed by SCD foods. I know, scandalous!There are cycles. However, if one is following SCD correctly (and not doing what I did, which was figure all the long-term people were just plain nuts with their insistence on fanatical adherence to the tenets of the diet), then one has a significantly better chance of smoothing out the bumps in the road.SCD works. I wouldn't be alive today if it didn't.

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund