Celiac Disease and Inflamation

[Guest guest]

> Hi, I have had celiac disease for almost three years and followed a

> strict gluten-free diet but recently became very ill with nausea and

> diarhea for 6 weeks straight. I have seen a GI specialist and they

> have done all the tests but can only find mild inflamation in my

> colon. The nausea is so bad that it prevents me from even going to

> work. After 6 weeks of suffering, I found Elaine's book - Breaking

> the

> viscious cycle and it was an answer to prayer! I have been following

> the SCD diet for about 5 weeks now and feeling great, however, this

> week I am experiencing the nausea again even when I just drink water.

> I have lost 25 pounds throughout this ordeal and do not wish to lose

> more, can anyone tell me what the nausea is about and how to fix it?

Hi Lorraine,

Welcome to SCD and the list.

This could be a range of things. Nausea from die-off, re-experiencing

of symptoms you went through on your way to getting better or a reaction

to something you ate retriggering bacterial infection. And I'm sure

other

things as well.

Please be more specific about what you are eating in general, and

what you ate specifically before the nausea began. And probiotics and

supplements you are taking.

Meanwhile, for the nausea, ginger tea is helpful, I've found. Hot water

infused with fresh ginger with or without honey. Or ginger in tonic

water.

Also, go back to basics with eating chicken soup or bone broth and

simple level 1 foods.

Mara

[Guest guest]

Hi Mara:

Thank you so much for your response. Before I became sick, I ate only foods that were gluten free, now I am eating only according to the SCD diet which is still gluten free. The first five weeks were great but once the nausea started again, I became concerned that I moved on too quickly to other stages so I stopped eating nuts and nut flour for a couple of days but have found no improvement. Yesterday and today I have gone back to the basic intro stage. I wake up feeling fine but once I start eating, the nausea returns, even with just water. I ate two boiled eggs and a slice of the cheese cake recommended in the intro diet for breakfast today and felt fine but once a couple of hours passed, the nausea returned. I will wake up tomorrow feeling fine again but have the nausea by afternoon, this has been happening for about five days. I am not currently taking any supplements.

thanks,

Lorraine

To: BTVC-SCD Sent: Tuesday, December 23, 2008 11:19:08 AMSubject: Re: Celiac Disease and Inflamation

> Hi, I have had celiac disease for almost three years and followed a> strict gluten-free diet but recently became very ill with nausea and> diarhea for 6 weeks straight. I have seen a GI specialist and they> have done all the tests but can only find mild inflamation in my> colon. The nausea is so bad that it prevents me from even going to> work. After 6 weeks of suffering, I found Elaine's book - Breaking > the> viscious cycle and it was an answer to prayer! I have been following> the SCD diet for about 5 weeks now and feeling great, however, this> week I am experiencing the nausea again even when I just drink water.> I have lost 25 pounds throughout this ordeal and do not wish to lose> more, can anyone tell me what the nausea is about and how to fix it?Hi Lorraine,Welcome to SCD and the

list.This could be a range of things. Nausea from die-off, re-experiencingof symptoms you went through on your way to getting better or a reactionto something you ate retriggering bacterial infection. And I'm sure otherthings as well.Please be more specific about what you are eating in general, andwhat you ate specifically before the nausea began. And probiotics andsupplements you are taking.Meanwhile, for the nausea, ginger tea is helpful, I've found. Hot waterinfused with fresh ginger with or without honey. Or ginger in tonic water.Also, go back to basics with eating chicken soup or bone broth andsimple level 1 foods.Mara

[Guest guest]

Thanks, I will try that,

[Guest guest]

Lorraine

I have had to learn about nausea in the past five years -- we're now constant companions... There are a number of conditions that can trigger nausea; Mara has mentioned a few common ones.

Some other causes are upper GI malfunctions, particularly gastroparesis (stomach empties abnormally slow), problems with the liver and/or pancreas, Sphincter of Oddi dysfunction (what I have). There are also some neurological triggers; things like pain and dizziness are usually accompanied by nausea, and there's also some other brain/spine activities that can cause nausea. Some supplements and medications can also cause nausea. Even stress can trigger nausea. I have Sphincter of Oddi dysfunction, and any exercises or stretches that involve the abdominal muscles will trigger nausea -- so even exercise can cause problems.

So there are many causes of nausea. I suggest carefully reviewing your food and supplement choices, make sure there is nothing that is causing the nausea. It would help to focus on anything you've added in the past week, since the nausea just started up.

If the nausea persists, then I'd check with your doctor or seek other medical opinions. There are a number of standard tests and scans of the upper GI that can check for problems. Have you had a Hida scan, or a GES? There are also a few others that are more specialized, looking for upper GI dysfunctions. Then there's all the tests a neurologist orders.

There are also medications that help with chronic nausea. I take one of them fairly often, Phenergan, but it makes me drowsy so I wait until I'm home from work. Zofran is another nausea med. I keep my chronic nausea minimal most of the time by being careful with my food and supplements, and careful with my workload and stress levels, and being careful when I exercise.

Kim M.

SCD 5 years

Sphincter of Oddi dysfunction and other upper GI stuff 5+ years

neurological deterioration 2+ years

>>>>>>>>>>>>

Hi, I have had celiac disease for almost three years and followed a strict gluten-free diet but recently became very ill with nausea and diarhea for 6 weeks straight. I have seen a GI specialist and they have done all the tests but can only find mild inflamation in my colon. The nausea is so bad that it prevents me from even going to work. After 6 weeks of suffering, I found Elaine's book - Breaking the viscious cycle and it was an answer to prayer! I have been following the SCD diet for about 5 weeks now and feeling great, however, this week I am experiencing the nausea again even when I just drink water. I have lost 25 pounds throughout this ordeal and do not wish to lose more, can anyone tell me what the nausea is about and how to fix it?thanks,Lorraine

[Guest guest]

I have only had the test where they put the camera down your throat, I forget what that is called but it came back normal. Thank you for your response, it makes me realize there are other things I should motivate my doctor to check or find another doctor, I have been there about 8 times in the last two months and they just keep giving me pills for nausea instead of trying to find the problem, time to move on I guess. Thanks again, have a great Christmas!

Lorraine

To: BTVC-SCD Sent: Wednesday, December 24, 2008 8:13:05 AMSubject: Re:Celiac Disease and Inflamation

Lorraine

I have had to learn about nausea in the past five years -- we're now constant companions.. . There are a number of conditions that can trigger nausea; Mara has mentioned a few common ones.

Some other causes are upper GI malfunctions, particularly gastroparesis (stomach empties abnormally slow), problems with the liver and/or pancreas, Sphincter of Oddi dysfunction (what I have). There are also some neurological triggers; things like pain and dizziness are usually accompanied by nausea, and there's also some other brain/spine activities that can cause nausea. Some supplements and medications can also cause nausea. Even stress can trigger nausea. I have Sphincter of Oddi dysfunction, and any exercises or stretches that involve the abdominal muscles will trigger nausea -- so even exercise can cause problems.

So there are many causes of nausea. I suggest carefully reviewing your food and supplement choices, make sure there is nothing that is causing the nausea. It would help to focus on anything you've added in the past week, since the nausea just started up.

If the nausea persists, then I'd check with your doctor or seek other medical opinions. There are a number of standard tests and scans of the upper GI that can check for problems. Have you had a Hida scan, or a GES? There are also a few others that are more specialized, looking for upper GI dysfunctions. Then there's all the tests a neurologist orders.

There are also medications that help with chronic nausea. I take one of them fairly often, Phenergan, but it makes me drowsy so I wait until I'm home from work. Zofran is another nausea med. I keep my chronic nausea minimal most of the time by being careful with my food and supplements, and careful with my workload and stress levels, and being careful when I exercise.

Kim M.

SCD 5 years

Sphincter of Oddi dysfunction and other upper GI stuff 5+ years

neurological deterioration 2+ years

>>>>>>>>>>>>

Hi, I have had celiac disease for almost three years and followed a strict gluten-free diet but recently became very ill with nausea and diarhea for 6 weeks straight. I have seen a GI specialist and they have done all the tests but can only find mild inflamation in my colon. The nausea is so bad that it prevents me from even going to work. After 6 weeks of suffering, I found Elaine's book - Breaking the viscious cycle and it was an answer to prayer! I have been following the SCD diet for about 5 weeks now and feeling great, however, this week I am experiencing the nausea again even when I just drink water. I have lost 25 pounds throughout this ordeal and do not wish to lose more, can anyone tell me what the nausea is about and how to fix it?thanks,Lorraine

[Guest guest]

>

> Or ginger in tonic water.

.....................^^^^^^^^^^^^^

Probably illegal. Be sure to check the ingredients. (Could try diet,

I guess...)

--

Cheers,

DF in MA

UC June '07

SCD Nov '08

[Guest guest]

> On Tue, Dec 23, 2008 at 11:19 AM, Mara Schiffren

> wrote:

>>

>> Or ginger in tonic water.

> ....................^^^^^^^^^^^^^

> Probably illegal. Be sure to check the ingredients. (Could try diet,

> I guess...)

I was thinking of plain tonic water. Unflavored.

But, hmm. Who knew tonic water had quinine in it, which is derived

from bark.

Certainly not I.

http://en.wikipedia.org/wiki/Quinine#Chemical_structure

Well, plain seltzer water then for the homemade ginger drink.

I know that's legal because it's in a recipe on pecan bread.

Marilyn or Kim H - is quinine and/or tonic water illegal?

It's not on the list.

Mara

[Guest guest]

>

> I was thinking of plain tonic water. Unflavored.

I know it as club soda. AFAIK tonic water is sweetened. (Yep, HFCS

and/or sugar:

http://www.canadadry.com/textOnly/tonicwater.aspx)

> But, hmm. Who knew tonic water had quinine in it, which is derived

> from bark. Certainly not I.

I didn't even bother with the quinine issue :-)

> It's not on the list.

I checked the list too and saw it wasn't there.

--

Cheers,

DF in MA

UC June '07

SCD Nov '08

[Guest guest]

I didn't know that either. I'm not a big drinker so I've never had much use for it. When drank pre-SCD, it was always beer. Not that I enjoyed it but I'm a Texan and it's very un-Texan to not drink beer ;-) Now, I usually mix vodka with a legal juice if I'm going to drink.I'd say stick with club soda, it's legal and doesn't have things added for us to worry about. Since we're not trying to treat malaria, I think the quinine is just another opportunity to react negatively to something and no one needs that.Take care,Kim H.husband, , CD 1999SCD 2002

I was thinking of plain tonic water. Unflavored.

But, hmm. Who knew tonic water had quinine in it, which is derived

from bark.

Certainly not I.

http://en.wikipedia .org/wiki/ Quinine#Chemical _structure

Well, plain seltzer water then for the homemade ginger drink.

I know that's legal because it's in a recipe on pecan bread.

Marilyn or Kim H - is quinine and/or tonic water illegal?

It's not on the list.

Mara

[Guest guest]

At 08:37 PM 12/24/2008, you wrote:

Marilyn or Kim H - is quinine

and/or tonic water illegal?

Quinine is a treatment for malaria... and I'll bet if you trace the

origin of tonic water, it goes back to when people were in the tropics

and needed defense against malaria.

So if you need it for malaria, I'd say yes, it's legal.

I think I'd prefer to invoke " When in doubt, there's no doubt, leave

it OUT! " for quinine water until I can research it further. (If,

however, someone ELSE wants to research it and present convincing

arguments pro or con, I'll be interested to see what you find.

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

oh forgot - I think it was just time passing but boiling water with

some pieces of fresh ginger -steep 5 minutes - don't drink /eat

ginger -may help the nausea

eileen

>

> I have only had the test where they put the camera down your

throat, I forget what that is called but it came back normal.  Thank

you for your response, it makes me realize there are other things I

should motivate my doctor to check or find another doctor, I have

been there about 8 times in the last two months and they just keep

giving me pills for nausea instead of trying to find the problem,

time to move on I guess.  Thanks again, have a great Christmas!

>

> Lorraine

>

>  

>

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Wednesday, December 24, 2008 8:13:05 AM

> Subject: Re:Celiac Disease and Inflamation

>

>

> Lorraine

>  

> I have had to learn about nausea in the past five years -- we're

now constant companions.. .  There are a number of conditions that

can trigger nausea; Mara has mentioned a few common ones.

>  

> Some other causes are upper GI malfunctions, particularly

gastroparesis (stomach empties abnormally slow), problems with the

liver and/or pancreas, Sphincter of Oddi dysfunction (what I have). 

There are also some neurological triggers; things like pain and

dizziness are usually accompanied by nausea, and there's also some

other brain/spine activities that can cause nausea.  Some supplements

and medications can also cause nausea.  Even stress can trigger

nausea.  I have Sphincter of Oddi dysfunction, and any exercises or

stretches that involve the abdominal muscles will trigger nausea --

so even exercise can cause problems.

>  

> So there are many causes of nausea.  I suggest carefully reviewing

your food and supplement choices, make sure there is nothing that is

causing the nausea.  It would help to focus on anything you've added

in the past week, since the nausea just started up. 

>  

> If the nausea persists, then I'd check with your doctor or seek

other medical opinions.  There are a number of standard tests and

scans of the upper GI that can check for problems. Have you had a

Hida scan, or a GES?  There are also a few others that are more

specialized, looking for upper GI dysfunctions.  Then there's all the

tests a neurologist orders.

>  

> There are also medications that help with chronic nausea.  I take

one of them fairly often, Phenergan, but it makes me drowsy so I wait

until I'm home from work.  Zofran is another nausea med.  I keep my

chronic nausea minimal most of the time by being careful with my food

and supplements, and careful with my workload and stress levels, and

being careful when I exercise.

>  

> Kim M.

> SCD 5 years

> Sphincter of Oddi dysfunction and other upper GI stuff 5+ years

> neurological deterioration 2+ years

>  

>  

> >>>>>>>>>>>>

> Hi, I have had celiac disease for almost three years and followed a

> strict gluten-free diet but recently became very ill with nausea

and

> diarhea for 6 weeks straight. I have seen a GI specialist and they

> have done all the tests but can only find mild inflamation in my

> colon. The nausea is so bad that it prevents me from even going to

> work. After 6 weeks of suffering, I found Elaine's book - Breaking

the

> viscious cycle and it was an answer to prayer! I have been

following

> the SCD diet for about 5 weeks now and feeling great, however, this

> week I am experiencing the nausea again even when I just drink

water.

> I have lost 25 pounds throughout this ordeal and do not wish to

lose

> more, can anyone tell me what the nausea is about and how to fix it?

>

> thanks,

> Lorraine

> __.._,_.___

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[Guest guest]

Has anyone mentioned gallbladder/stones? You may want to have that

checked at the doctor.

Spearmint or peppermint tea work really well for me for nausea.

Debbie 39 cd